CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 76 - 100 of 759

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2952-C59089	C59089	Deep brain stimulation indication type medication side effect other text	The free text field related to 'Deep brain stimulation indication type', specifying other medication side effects	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2952-C59147	C59147	Adverse event treatment specify text	The free-text field to specify the treatment required for the adverse event other than action taken with study intervention/ treatment	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2950-C59034	C59034	Imaging multiecho indicator	Indicator of whether a multiecho method is used in imaging acquisition	Supplemental-Highly Recommended	MRI and Spectroscopy	False	Parkinson's Disease	Parkinson's Disease
F2952-C59100	C59100	Functional neurosurgery target anatomic site multiple ipsilateral lead specify text	The free-text field to specify the anatomic site targets when multiple ipsilateral leads are used in functional neurosurgery procedure	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F3043-C20366	C20366	Pittsburgh Sleep Quality Index (PSQI) - Trouble stay awake past month scale	The scale to which the subject had trouble staying awake while driving, eating meals, or engaging in social activity past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Parkinson's Disease	Parkinson's Disease
F3041-C20431	C20431	Beck Depression Inventory II (BDI-II) - Pessimism scale	Scale identifying level of pessimism, as part of the Beck Depression Inventory II (BDI-II)	Supplemental	Beck Depression Inventory II (BDI-II)	True	Parkinson's Disease	Parkinson's Disease
F2954-C59179	C59179	Medication prior or concomitant suppository route type	Type of access route for the administration of the prior/concomitant medication in suppository dosage form	Supplemental-Highly Recommended	Parkinson's Disease Medication Log	False	Parkinson's Disease	Parkinson's Disease
F2944-C58677	C58677	Gender identity type	Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth	Core	Demographics	False	Parkinson's Disease	Parkinson's Disease
F3043-C20374	C20374	Pittsburgh Sleep Quality Index (PSQI) - Other reason past month other text	The free-text entry for other reason(s) the subject reported having trouble sleeping in the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Parkinson's Disease	Parkinson's Disease
F3041-C20439	C20439	Beck Depression Inventory II (BDI-II) - Concentration difficulty scale	Scale identifying level of difficulty concentrating, as part of the Beck Depression Inventory II (BDI-II)	Supplemental	Beck Depression Inventory II (BDI-II)	True	Parkinson's Disease	Parkinson's Disease
F2951-C59038	C59038	Medication Parkinsons disease last dose date time	Time (and date, if applicable and known) of most recent Parkinson's disease medication dose	Supplemental-Highly Recommended	PET-SPECT Localization	False	Parkinson's Disease	Parkinson's Disease
F3043-C20382	C20382	Pittsburgh Sleep Quality Index (PSQI) - Sleep disturbance scale	The scale to which sleep disturbance was calculated, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Parkinson's Disease	Parkinson's Disease
F2951-C59049	C59049	Imaging randoms correction indicator	Indicator of whether imaging randoms correction was used	Supplemental-Highly Recommended	PET-SPECT Localization	False	Parkinson's Disease	Parkinson's Disease
F2951-C59057	C59057	Imaging amyloid centiloid anatomic site	Anatomic site(s) for which quantitative estimations of amyloid plaque obtained by imaging were recorded using, or were scaled to, the Centiloid scale.	Supplemental	PET-SPECT Localization	False	Parkinson's Disease	Parkinson's Disease
F2945-C59063	C59063	Birth weight source	Source of the participant's/subject's birth weight data	Supplemental	History of Early Exposure	False	Parkinson's Disease	Parkinson's Disease
F3043-C20358	C20358	Pittsburgh Sleep Quality Index (PSQI) - Awaken bathroom use past month scale	The scale to which the subject had to get up to use the bathroom during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Parkinson's Disease	Parkinson's Disease
F3041-C20423	C20423	Beck Depression Inventory II (BDI-II) - Past failure scale	Scale identifying level of past failure, as part of the Beck Depression Inventory II (BDI-II)	Supplemental	Beck Depression Inventory II (BDI-II)	True	Parkinson's Disease	Parkinson's Disease
F2945-C59071	C59071	Shave facial hair regular begin age category	Categorization of the age at which the participant/subject began to regularly shave facial hair. Regular shaving is defined as once a week or more	Supplemental	History of Early Exposure	False	Parkinson's Disease	Parkinson's Disease
F3029-C20531	C20531	European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Pain discomfort category	Category determining the extent to which the participant has problems with pain or discomfort category, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)	Supplemental-Highly Recommended	EuroQoL-5 Dimension Questionnaire (EQ-5D)	True	Parkinson's Disease	Parkinson's Disease
F2952-C59156	C59156	Pulse generator replacement reason	The reason the pulse generator was replaced	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F3056-C54692	C54692	Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health carry out social role scale	Scale related to an individual's rating of his/her ability to carry out usual social activities and roles, as part of the PROMIS Global Health	Supplemental	PROMIS Item Bank v1.2 - Global Health	True	Parkinson's Disease	Parkinson's Disease
F2955-C59098	C59098	Database of Genotypes and Phenotypes study title text	The free-text field to specify the title of the of the database of Genotypes and Phenotypes (dbGaP) study	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2952-C59111	C59111	Microelectrode record microstimulation sedation type	Type of sedation used during microelectrode recording or microstimulation for intra-operative target verification	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F3030-C54702	C54702	Epworth Sleepiness Scale (ESS) - Doze off likelihood sit talk code	The code denoting the subect/participant's self-reported likelihood of dozing off while sitting and talking, as part of the Epworth Sleepiness Scale (ESS)	Supplemental-Highly Recommended	Epworth Sleepiness Scale (ESS) - Adult Version	True	Parkinson's Disease	Parkinson's Disease
F2952-C59586	C59586	Stereotactic surgery mini-frame type other text	The free-text field related to 'Stereotactic surgery mini-frame type', specifying other text. Type of mini-frame used for surgery. A mini-frame is a simpler and smaller support for stereotactic surgery; used mainly in image-guided surgery	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.