CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 676 - 700 of 749

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2954-C02008	C02008	Medication prior or concomitant end date and time	The date (and time, if applicable and known) the administration of the prior/concomitant medication ended	Supplemental-Highly Recommended	Parkinson's Disease Medication Log	False	Parkinson's Disease	Parkinson's Disease
F2945-C01582	C01582	Height unit of measure	Unit of measure for the height numerical value for participant	Supplemental	History of Early Exposure	False	Parkinson's Disease	Parkinson's Disease
F2947-C17685	C17685	Non-prescribed controlled psychoactive drug substance stimulant amphetamine text	The text specifying the drugs within the 'Stimulants: amphetamine, Benzedrine, Methedrine, Dexedrine, Preludin, Ritalin, uppers, speed,' category as unprescribed, controlled psychoactive drugs or substances used by the participant/subject	Supplemental	Non-prescribed Drug Use Questionnaire	False	Parkinson's Disease	Parkinson's Disease
F2953-C02013	C02013	Medication prior or concomitant dose unit of measure UCUM code	Code that represents the dosage unit of measure of the prior or concomitant medication administered. Unified Code for Units of Measure (UCUM)	Supplemental	Non-Parkinson's Disease Medication Log	False	Parkinson's Disease	Parkinson's Disease
F2945-C16170	C16170	Menstrual period occurrence indicator	Indicates whether participant has ever had a menstrual period	Supplemental	History of Early Exposure	False	Parkinson's Disease	Parkinson's Disease
F2951-C01541	C01541	Weight measurement	Measurement of participant's weight	Supplemental-Highly Recommended	PET-SPECT Localization	False	Parkinson's Disease	Parkinson's Disease
F2949-C08013	C08013	Dystonia symptom text	The free-text field to specify symptoms experienced by the participant/subject related to dystonia	Supplemental	Medical History of Parkinson's Disease	False	Parkinson's Disease	Parkinson's Disease
F2952-C08047	C08047	Medication anti-Parkinsonian reduced after surgery percent value	Percent anti-Parkinsonism medication(s) were reduced	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2955-C12782	C12782	Gene additional variants unknown significance indicator	Indicator of whether there are additional variants in other genes of unknown significance	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2955-C12790	C12790	Gene exon first deleted duplicated name	Name of the first exon deleted or duplicated	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2955-C12801	C12801	Gene point mutation nonsense variant codon type	Type of nonsense variant or point mutation	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2955-C12818	C12818	Gene second allele identical indicator	Indicator of whether allele #2 is identical to allele #1	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2954-C02013	C02013	Medication prior or concomitant dose unit of measure UCUM code	Code that represents the dosage unit of measure of the prior or concomitant medication administered. Unified Code for Units of Measure (UCUM)	Supplemental-Highly Recommended	Parkinson's Disease Medication Log	False	Parkinson's Disease	Parkinson's Disease
F2947-C17686	C17686	Non-prescribed controlled psychoactive drug substance sedative tranquilizer text	The text specifying the drugs within the 'Sedatives/minor tranquilizers/muscle relaxants-benzodiazepines and others: Valium/diazepam, Librium, Halcion, Xanax, Dalmane, Flexeril,' category as unprescribed, controlled psychoactive drugs or substances used by the participant/subject	Supplemental	Non-prescribed Drug Use Questionnaire	False	Parkinson's Disease	Parkinson's Disease
F2945-C08107	C08107	Day care hour per week value	Approximate hours per week the participant/subject attended day care as a child	Supplemental	History of Early Exposure	False	Parkinson's Disease	Parkinson's Disease
F2949-C00314	C00314	Medical history taken date and time	Date (and time, if applicable and known) the participant's medical history was taken	Core	Medical History of Parkinson's Disease	False	Parkinson's Disease	Parkinson's Disease
F2955-C12783	C12783	Variant mutational analysis results available indicator	Indicator of whether the variant or mutational analysis results are available on this participant	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2955-C12802	C12802	Gene variant mutation mRNA analysis performed indicator	Indicator of whether messenger ribonucleic acid (mRNA) analysis was performed	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2955-C12944	C12944	Variant mutational analysis performed indicator	Indicator of whether the variant or mutational analysis was performed on the participant	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2955-C17896	C17896	Variant mutational analysis not performed reason	Reason for why the mutational analysis was not performed	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2955-C12784	C12784	Variant mutational analysis performed family member indicator	Indicator of whether the mutational analysis was performed on a family member	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2950-C08239	C08239	Imaging echo duration	Duration between the application of the 90 degree pulse and the peak of the echo signal, in milliseconds, during the spin echo and inversion recovery pulse sequences in imaging acquisition	Supplemental-Highly Recommended	MRI and Spectroscopy	False	Parkinson's Disease	Parkinson's Disease
F2955-C12803	C12803	Gene variant mutation implications confirmed mRNA analysis indicator	Indicator of whether the messenger ribonucleic acid (mRNA) analysis confirmed implications of genetic analysis	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2955-C16198	C16198	Biological sample in repository consent form signed indicator	Indicates whether the participant provided signed informed consent for the biological sample collection and storage in a repository	Supplemental-Highly Recommended	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2955-C12795	C12795	Gene coding region sequenced indicator	Indicator of whether the entire coding region was sequenced for the allele of the gene for missense/nonsense variant or point mutations or pseudoexons	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease

Displaying 676 - 700 of 749

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.