CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

Displaying 601 - 625 of 749

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0796-C10417	C10417	Sialorrhea Clinical Scale for PD (SCS-PD) - sleep saliva score	When you are asleep, how much saliva is there in your mouth? As part of SCS-PD questionnaire	Supplemental	Sialorrhea Clinical Scale for Parkinson's Disease (SCS-PD)	False	Parkinson's Disease	Parkinson's Disease
F2806-C09313	C09313	Apathy Scale (AS) - Neutral mood scale	The scale related to subject's self reflection on their own mood and attitude towards the life that surrounds them, as part of the Apathy Scale (AS) form	Supplemental-Highly Recommended	Apathy Scale (AS)	True	Parkinson's Disease	Parkinson's Disease
F2169-C08598	C08598	Risk Factor Questionnaire (RFQ) - military service prisoner of war city text	The text describing the city the participant/subject was a prisoner of war as part of the Risk Factor Questionnaire (RFQ) - Occupation	Supplemental-Highly Recommended	Risk Factor Questionnaire (RFQ) - Occupation and Employment Status	True	Parkinson's Disease	Parkinson's Disease
F2170-C08525	C08525	36-item Short Form Health Survey (SF-36) - Times down score	Score of times feeling so down in the dumps that nothing could cheer up during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)	Supplemental-Highly Recommended	Short Form 36-Item Health Survey (SF-36)	True	Parkinson's Disease	Parkinson's Disease
F0803-C09592	C09592	Brief Psychiatric Rating Scale (BPRS) - emotional withdrawal score	The score of the participant's/subject's emotional withdrawal, as part of the Brief Psychiatric Rating Scale (BPRS) form.	Supplemental	Brief Psychiatric Rating Scale (BPRS)	False	Parkinson's Disease	Parkinson's Disease
F2169-C08630	C08630	Risk Factor Questionnaire (RFQ) - longest occupation 56 65 year text	Text describing the participant's/subject's longest held occupation from the age of 56-65 years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation	Supplemental-Highly Recommended	Risk Factor Questionnaire (RFQ) - Occupation and Employment Status	True	Parkinson's Disease	Parkinson's Disease
F3042-C09575	C09575	Brief Pain Inventory (BPI) - other pain indicator	Indicates if the subject had pain other than everyday kinds of pain, as part of the Brief Pain Inventory (BPI) form	Supplemental	Brief Pain Inventory (BPI) Short Form	True	Parkinson's Disease	Parkinson's Disease
F2946-C08115	C08115	Meningitis or encephalitis diagnosed type	Type of meningitis/encephalitis that participant/subject was diagnosed with	Supplemental	Infection History	False	Parkinson's Disease	Parkinson's Disease
F3042-C09583	C09583	Brief Pain Inventory (BPI) - pain general activity interference scale	Scale assessing how much the pain has interfered with general activity, as part of the Brief Pain Inventory (BPI) form	Supplemental	Brief Pain Inventory (BPI) Short Form	True	Parkinson's Disease	Parkinson's Disease
F2947-C08235	C08235	Drug or substance illicit use frequency	The subject's/participant's average or typical use frequency during the year of greatest use of an unprescribed, controlled psychoactive drugs or substances used by the participant/subject	Supplemental	Non-prescribed Drug Use Questionnaire	False	Parkinson's Disease	Parkinson's Disease
F2951-C08243	C08243	Imaging matrix size value	Value representing the imaging matrix size in millimeters	Supplemental-Highly Recommended	PET-SPECT Localization	False	Parkinson's Disease	Parkinson's Disease
F2945-C08081	C08081	Twin sibling type	Type of twin the participant/subject has	Supplemental	History of Early Exposure	False	Parkinson's Disease	Parkinson's Disease
F3048-C10176	C10176	Peak Expiratory Flow Rate Percentage value	Peak expiratory flow rate (PEFR)	Supplemental	Other Non-Motor Guidance for CDE Use	False	Parkinson's Disease	Parkinson's Disease
F2951-C08259	C08259	Imaging radioligand specific activity value	Value of the specific activity of the Radioligand in Bq/Kg	Supplemental-Highly Recommended	PET-SPECT Localization	False	Parkinson's Disease	Parkinson's Disease
F3040-C10414	C10414	Scale for Outcomes of Parkinsons disease (SCOPA) - sleep trouble awake day evening past month frequency	Pre-specified frequencies for trouble staying awake during the day or in the evening in the past month	Supplemental-Highly Recommended	Scale for Outcomes in Parkinson's Disease-Sleep (SCOPA-SLEEP)	True	Parkinson's Disease	Parkinson's Disease
F3048-C10185	C10185	Thermoregulatory sweat test intensity color change value	Intensity of the color change of the chemical on participant/subject's body during the Thermoregulatory Sweat Test (TST)	Supplemental	Other Non-Motor Guidance for CDE Use	False	Parkinson's Disease	Parkinson's Disease
F2950-C08242	C08242	Imaging acquisition duration	Duration of the imaging scan in minutes	Supplemental-Highly Recommended	MRI and Spectroscopy	False	Parkinson's Disease	Parkinson's Disease
F2955-C15545	C15545	Gene nucleotide change name	In cases of an genetic variant or mutation, specify the nucleotide name	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2953-C02024	C02024	Medication prior or concomitant indication text	Text describing reason for administration of a prior/concomitant (nonstudy) agent or measure. This is not the pharmacologic classification of an agent (antibiotic, analgesic, etc.), but the reason for its administration to the participant/subject	Supplemental	Non-Parkinson's Disease Medication Log	False	Parkinson's Disease	Parkinson's Disease
F2951-C08267	C08267	Imaging outcome variable name	Name of the primary imaging outcome variable	Supplemental-Highly Recommended	PET-SPECT Localization	False	Parkinson's Disease	Parkinson's Disease
F2955-C10844	C10844	Gene type	The type of gene screened in the participant/subject for the disease or disorder	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2806-C17769	C17769	Rater name	Name of rater	Supplemental-Highly Recommended	Apathy Scale (AS)	True	Parkinson's Disease	Parkinson's Disease
F2952-C08051	C08051	Stimulation parameter brain hemisphere type	Side of the brain targeted for stimulation	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2947-C17683	C17683	Non-prescribed controlled psychoactive drug substance marijuana text	The text specifying the drugs within the Marijuana: hash, THC category as unprescribed, controlled psychoactive drugs or substances used by the participant/subject	Supplemental	Non-prescribed Drug Use Questionnaire	False	Parkinson's Disease	Parkinson's Disease
F2955-C17890	C17890	Allele number one missense nonsense variant or point mutation subclass information type	Type of missense/nonsense variant or point mutation subclass information, first allele number one	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease

Displaying 601 - 625 of 749

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.