CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 576 - 600 of 749
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C10174 FEV1/FVC percentage value

Forced Expired Volume in One Second (FEV1) volume divided by Forced Vital Capacity (FVC), expressed as percent

 Supplemental Other Non-Motor Guidance for CDE Use False Parkinson's Disease Parkinson's Disease
C09305 Apathy Scale (AS) - Indifference scale

The scale related to subject's indifference to things, as part of the Apathy Scale (AS) form

 Supplemental-Highly Recommended Apathy Scale (AS) True Parkinson's Disease Parkinson's Disease
C10421 Sialorrhea Clinical Scale for PD (SCS-PD) - drool day score

How many times do you drool during the daytime? As part of SCS-PD questionnaire

 Supplemental Sialorrhea Clinical Scale for Parkinson's Disease (SCS-PD) False Parkinson's Disease Parkinson's Disease
C08517 36-item Short Form Health Survey (SF-36) - Cut time on work activities emotional problems indicator

Indicator for surveyee-reported cut down time on work or other activities as a result of emotional problems during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Supplemental-Highly Recommended Short Form 36-Item Health Survey (SF-36) True Parkinson's Disease Parkinson's Disease
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

 Supplemental Functional Neurosurgery: Deep Brain Stimulation False Parkinson's Disease Parkinson's Disease
C10415 Scale for Outcomes of Parkinsons disease (SCOPA) - sleep asleep day problem past month frequency

Pre-specified frequencies for falling asleep during the day as a problem in the past month

 Supplemental-Highly Recommended Scale for Outcomes in Parkinson's Disease-Sleep (SCOPA-SLEEP) True Parkinson's Disease Parkinson's Disease
C15545 Gene nucleotide change name

In cases of an genetic variant or mutation, specify the nucleotide name

 Supplemental Parkinson's Disease Genetics False Parkinson's Disease Parkinson's Disease
C08033 Medication anti-Parkinsonian during procedure indicator

Indicator of whether the participant/subject was on anti-Parkinsonian medication(s) during the surgical procedure

 Supplemental Functional Neurosurgery: Deep Brain Stimulation False Parkinson's Disease Parkinson's Disease
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

 Core Demographics False Parkinson's Disease Parkinson's Disease
C08041 Surgery lead secure method type

Type of method or device used to protect and secure the lead (part of the electrode that is introduced into the brain), this part must be safely secured and held still in position

 Supplemental Functional Neurosurgery: Deep Brain Stimulation False Parkinson's Disease Parkinson's Disease
C00712 Subscribed drug or substance illicitly used category

Category of illegal drugs, prescription, or over-the-counter drugs subscribed by the participant/subject, and used for purposes other than those for which they are meant to be used, or in large amounts

 Supplemental Non-prescribed Drug Use Questionnaire False Parkinson's Disease Parkinson's Disease
C10844 Gene type

The type of gene screened in the participant/subject for the disease or disorder

 Supplemental Parkinson's Disease Genetics False Parkinson's Disease Parkinson's Disease
C09576 Brief Pain Inventory (BPI) - pain area indicator

On the diagram, shade in the areas where you feel pain. Put an X on the area that hurts the most, as part of the Brief Pain Inventory (BPI) form

 Supplemental Brief Pain Inventory (BPI) Short Form True Parkinson's Disease Parkinson's Disease
C08106 Day care end date

Date participant/subject ended day care outside of home

 Supplemental History of Early Exposure False Parkinson's Disease Parkinson's Disease
C09584 Brief Pain Inventory (BPI) - pain mood interference scale

Scale assessing how much the pain has interfered with mood, as part of the Brief Pain Inventory (BPI) form

 Supplemental Brief Pain Inventory (BPI) Short Form True Parkinson's Disease Parkinson's Disease
C07433 Patient Health Questionnaire (PHQ) - Tired little energy score

Score of how much the subject has been feeling tired in the past two weeks, as part of the Patient Health Questionnaire (PHQ)

 Supplemental Patient Health Questionnaire - 9 (PHQ-9) Depression Scale True Parkinson's Disease Parkinson's Disease
C08603 Risk Factor Questionnaire (RFQ) - current job text

Text describing the participant's/subject's current job as part of the Risk Factor Questionnaire (RFQ) - Occupation

 Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status True Parkinson's Disease Parkinson's Disease
C10184 Thermoregulatory sweat test room temperature unit of measurement

Unit temperature is measured in for the Thermoregulatory Sweat Test (TST)

 Supplemental Other Non-Motor Guidance for CDE Use False Parkinson's Disease Parkinson's Disease
C09597 Brief Psychiatric Rating Scale (BPRS) - grandiosity score

The score of the participant's/subject's grandiosity, as part of the Brief Psychiatric Rating Scale (BPRS) form.

 Supplemental Brief Psychiatric Rating Scale (BPRS) False Parkinson's Disease Parkinson's Disease
C08526 36-item Short Form Health Survey (SF-36) - Times calm peaceful score

Score of times feeling calm and peaceful during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Supplemental-Highly Recommended Short Form 36-Item Health Survey (SF-36) True Parkinson's Disease Parkinson's Disease
C00023 Hand preference type

Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively

 Core Medical History of Parkinson's Disease False Parkinson's Disease Parkinson's Disease
C08631 Risk Factor Questionnaire (RFQ) - longest occupation 56 65 year first duty text

Text describing the participant's/subject's first of four major tasks or duties at the longest held occupation from the age of 56-65 years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation

 Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status True Parkinson's Disease Parkinson's Disease
C08611 Risk Factor Questionnaire (RFQ) - longest occupation 25 year first duty text

Text describing the participant's/subject's first of four major tasks or duties at the longest held occupation from the age of 0-25 years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation

 Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status True Parkinson's Disease Parkinson's Disease
C09605 Brief Psychiatric Rating Scale (BPRS) - blunted affect score

The score of the participant's/subject's blunted affect, as part of the Brief Psychiatric Rating Scale (BPRS) form.

 Supplemental Brief Psychiatric Rating Scale (BPRS) False Parkinson's Disease Parkinson's Disease
C08534 36-item Short Form Health Survey (SF-36) - Healthy as anybody score

Score of how true or false surveyee perceived the statement: I am as healthy as anybody I know, as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Supplemental-Highly Recommended Short Form 36-Item Health Survey (SF-36) True Parkinson's Disease Parkinson's Disease
Displaying 576 - 600 of 749

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.