CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 526 - 550 of 749
Operations
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C08611 Risk Factor Questionnaire (RFQ) - longest occupation 25 year first duty text

Text describing the participant's/subject's first of four major tasks or duties at the longest held occupation from the age of 0-25 years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation

 Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status True Parkinson's Disease Parkinson's Disease
C08109 Preschool start date

Date participant/subject first started preschool

 Supplemental History of Early Exposure False Parkinson's Disease Parkinson's Disease
C09605 Brief Psychiatric Rating Scale (BPRS) - blunted affect score

The score of the participant's/subject's blunted affect, as part of the Brief Psychiatric Rating Scale (BPRS) form.

 Supplemental Brief Psychiatric Rating Scale (BPRS) False Parkinson's Disease Parkinson's Disease
C09587 Brief Pain Inventory (BPI) - pain relations interference scale

Scale assessing how much the pain has interfered with relations with other people, as part of the Brief Pain Inventory (BPI) form

 Supplemental Brief Pain Inventory (BPI) Short Form True Parkinson's Disease Parkinson's Disease
C10410 Scale for Outcomes of Parkinsons disease (SCOPA) - sleep asleep unexpected past month frequency

Pre-specified frequencies for falling asleep unexpectedly during the day or in the evening in the past month

 Supplemental-Highly Recommended Scale for Outcomes in Parkinson's Disease-Sleep (SCOPA-SLEEP) True Parkinson's Disease Parkinson's Disease
C08619 Risk Factor Questionnaire (RFQ) - longest occupation 26 35 year fourth duty text

Text describing the participant's/subject's fourth of four major tasks or duties at the longest held occupation from the age of 26-35 years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation

 Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status True Parkinson's Disease Parkinson's Disease
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

 Core General Core False Parkinson's Disease Parkinson's Disease
C08018 Surgery age value

Age of the participant/subject at the time of the selected surgical procedure

 Supplemental Functional Neurosurgery: Deep Brain Stimulation False Parkinson's Disease Parkinson's Disease
C08627 Risk Factor Questionnaire (RFQ) - longest occupation 46 55 year second duty text

Text describing the participant's/subject's second of four major tasks or duties at the longest held occupation from the age of 46-55 years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation

 Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status True Parkinson's Disease Parkinson's Disease
C08587 Risk Factor Questionnaire (RFQ) - military service age stop value

The value indicating the participant's/subject's age they ceased to be active in the military as part of the Risk Factor Questionnaire (RFQ) - Occupation

 Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status True Parkinson's Disease Parkinson's Disease
C09315 Apathy Scale (AS) - total score

Total Score on the apathy scale, as part of the Apathy Scale (AS) form

 Supplemental-Highly Recommended Apathy Scale (AS) True Parkinson's Disease Parkinson's Disease
C08101 Pneumonia episode hospitalization indicator

Indicator of whether the participant/subject was hospitalized for the pneumonia episode

 Supplemental Infection History False Parkinson's Disease Parkinson's Disease
C08595 Risk Factor Questionnaire (RFQ) - military service combat state station longest text

The text describing the state the participant/subject was in combat for the longest duration as part of the Risk Factor Questionnaire (RFQ) - Occupation

 Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status True Parkinson's Disease Parkinson's Disease
C10422 Sialorrhea Clinical Scale for PD (SCS-PD) - social saliva score

When you go out or on social occasions, does saliva accumulation bother you? As part of SCS-PD questionnaire

 Supplemental Sialorrhea Clinical Scale for Parkinson's Disease (SCS-PD) False Parkinson's Disease Parkinson's Disease
C08233 Drug or substance first illicit use date and time

Date (and time if applicable and known) the participant/subject first used the category of illegal drugs, prescription or over-the-counter drugs

 Supplemental Non-prescribed Drug Use Questionnaire False Parkinson's Disease Parkinson's Disease
C12690 Gene name

Name of the gene analyzed

 Supplemental Parkinson's Disease Genetics False Parkinson's Disease Parkinson's Disease
C08603 Risk Factor Questionnaire (RFQ) - current job text

Text describing the participant's/subject's current job as part of the Risk Factor Questionnaire (RFQ) - Occupation

 Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status True Parkinson's Disease Parkinson's Disease
C09597 Brief Psychiatric Rating Scale (BPRS) - grandiosity score

The score of the participant's/subject's grandiosity, as part of the Brief Psychiatric Rating Scale (BPRS) form.

 Supplemental Brief Psychiatric Rating Scale (BPRS) False Parkinson's Disease Parkinson's Disease
C08255 Imaging visual analysis blinded indicator

Indicator of whether the visual analysis was performed blinded to clinical data

 Supplemental-Highly Recommended PET-SPECT Localization False Parkinson's Disease Parkinson's Disease
C09352 Hamilton Anxiety Rating Scale (HAM-A) - cardiovascular symptom score

The score of the participant's/subject's cardiovascular symptoms, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.

 Supplemental Hamilton Anxiety Rating Scale (HAM-A) False Parkinson's Disease Parkinson's Disease
C08505 36-item Short Form Health Survey (SF-36) - Health limited carrying groceries score

Score of surveyee-reported limited lifting or carrying groceries due to physical health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Supplemental-Highly Recommended Short Form 36-Item Health Survey (SF-36) True Parkinson's Disease Parkinson's Disease
C10404 Scale for Outcomes of Parkinsons disease (SCOPA) - sleep night trouble fall asleep past month scale

Pre-specified scales for trouble falling asleep at night in the past month

 Supplemental-Highly Recommended Scale for Outcomes in Parkinson's Disease-Sleep (SCOPA-SLEEP) True Parkinson's Disease Parkinson's Disease
C09301 Apathy Scale (AS) - Learn eagerness scale

The scale related to subject's eagerness to learn new things, as part of the Apathy Scale (AS) form

 Supplemental-Highly Recommended Apathy Scale (AS) True Parkinson's Disease Parkinson's Disease
C08513 36-item Short Form Health Survey (SF-36) - Cut time on work activities physical health indicator

Indicator for surveyee-reported cut down time on work or other activities as a result of physical health during past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Supplemental-Highly Recommended Short Form 36-Item Health Survey (SF-36) True Parkinson's Disease Parkinson's Disease
C08276 Imaging scan aborted reason

Reason the imaging was aborted

 Supplemental PET-SPECT Localization False Parkinson's Disease Parkinson's Disease
Displaying 526 - 550 of 749

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.