CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 51 - 75 of 759
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C20381 Pittsburgh Sleep Quality Index (PSQI) - Fall asleep past month minute duration

The duration of time (in minutes) it takes the subject to fall asleep the majority of the nights in the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

Supplemental Pittsburgh Sleep Quality Index (PSQI) Parkinson's Disease Parkinson's Disease
C59129 Stimulation brain parameter contact configuration text

Text related to contact configuration brain stimulation parameters

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C59166 Genotype platform URL text

The free-text field specifying the genotype platform URL (uniform resource locator)

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C59137 Stimulation brain paradigm type

Type of brain stimulation paradigm

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C59174 Genetic test result patient inform indicator

Indicator of whether the participant/subject was informed of the genetic test results

Supplemental-Highly Recommended Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C59088 Deep brain stimulation indication type

Type of indications for deep brain stimulation (DBS)

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C56033 Genetic test result source type

The source of the subject's genetic test results

Supplemental-Highly Recommended Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth

Core General Core Parkinson's Disease Parkinson's Disease
C20357 Pittsburgh Sleep Quality Index (PSQI) - Sleep efficiency scale

The sleep efficiency scale calculated, as part of the Pittsburgh Sleep Quality Index (PSQI)

Supplemental Pittsburgh Sleep Quality Index (PSQI) Parkinson's Disease Parkinson's Disease
C59146 Surgical complication hemorrhage symptom status

Status of hemorrhage symptoms related to intra-operative or post-operative surgical complications

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C20422 Beck Depression Inventory II (BDI-II) - Agitation scale

Scale identifying level of agitation, as part of the Beck Depression Inventory II (BDI-II)

Supplemental Beck Depression Inventory II (BDI-II) Parkinson's Disease Parkinson's Disease
C59099 Unified Parkinsons Disease Rating Scale part three on medication score

The score related to part three of the Unified Parkinson's Disease Rating Scale (UPDRS) when the participant/subject is on medications

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C59076 Response anti parkinsonism therapy status

Status of the participant's/subject's response to anti-parkinsonism therapy

Supplemental-Highly Recommended Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C20365 Pittsburgh Sleep Quality Index (PSQI) - Cough snore loudly past month scale

The scale to which the subject coughed or snored loudly during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

Supplemental Pittsburgh Sleep Quality Index (PSQI) Parkinson's Disease Parkinson's Disease
C59154 Brain lead replacement manipulation count

Count of brain leads replaced or manipulated

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C20526 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Mobility category

Category determining the extent to which the participant has problems with mobility, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)

Supplemental-Highly Recommended EuroQoL-5 Dimension Questionnaire (EQ-5D) Parkinson's Disease Parkinson's Disease
C20430 Beck Depression Inventory II (BDI-II) - Crying scale

Scale identifying level of crying, as part of the Beck Depression Inventory II (BDI-II)

Supplemental Beck Depression Inventory II (BDI-II) Parkinson's Disease Parkinson's Disease
C59067 Twin pea pod look indicator

Indicator of whether the participant/subject and his/her twin look like two peas in a pod

Supplemental History of Early Exposure Parkinson's Disease Parkinson's Disease
C54691 Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health social satisfaction rate scale

Scale related to an individual's rating of his/her satisfaction with his/her social activities, as part of the PROMIS Global Health

Supplemental PROMIS Item Bank v1.2 - Global Health Parkinson's Disease Parkinson's Disease
C59037 Medication Parkinsons disease indicator

Indicator of whether participant/subject is taking medication for Parkinson's disease

Supplemental-Highly Recommended PET-SPECT Localization Parkinson's Disease Parkinson's Disease
C59048 Imaging deadtime correction indicator

Indicator of whether imaging deadtime correction was used

Supplemental-Highly Recommended PET-SPECT Localization Parkinson's Disease Parkinson's Disease
C19599 Gene text

The free-text field to specify gene screened in the participant/subject for the disease or disorder

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C59056 Imaging quantitative outcome tyrosine hydroxylase radioligand type

Type of tyrosine hydroxylase radioligand used for the quantitative imaging outcome to describe tracer distribution and uptake for the imaging data analysis being documented.

Supplemental PET-SPECT Localization Parkinson's Disease Parkinson's Disease
C59041 Medication prior or concomitant as needed dose average frequency

The frequency of use on average of the prior/concomitant medication taken by the participant/subject on an as needed basis (PRN).

Supplemental Non-Parkinson's Disease Medication Log Parkinson's Disease Parkinson's Disease
C59021 Non-prescribed controlled psychoactive drug substance heroin text

The text specifying the drugs within the 'Heroin' category as unprescribed, controlled psychoactive drugs or substances used by the participant/subject

Supplemental Non-prescribed Drug Use Questionnaire Parkinson's Disease Parkinson's Disease
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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.