CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 451 - 475 of 749
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C00023 Hand preference type

Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively

Core Medical History of Parkinson's Disease Parkinson's Disease Parkinson's Disease
C08631 Risk Factor Questionnaire (RFQ) - longest occupation 56 65 year first duty text

Text describing the participant's/subject's first of four major tasks or duties at the longest held occupation from the age of 56-65 years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation

Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status Parkinson's Disease Parkinson's Disease
C08534 36-item Short Form Health Survey (SF-36) - Healthy as anybody score

Score of how true or false surveyee perceived the statement: I am as healthy as anybody I know, as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Supplemental-Highly Recommended Short Form 36-Item Health Survey (SF-36) Parkinson's Disease Parkinson's Disease
C08639 Risk Factor Questionnaire (RFQ) - longest occupation over 65 year fourth duty text

Text describing the participant's/subject's fourth of four major tasks or duties at the longest held occupation from the age of 66+ years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation

Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status Parkinson's Disease Parkinson's Disease
C08251 Imaging post injection management type

The type of special management post injection prior to image acquisition

Supplemental-Highly Recommended PET-SPECT Localization Parkinson's Disease Parkinson's Disease
C09349 Hamilton Anxiety Rating Scale (HAM-A) - somatic muscular score

The score of the participant's/subject's somatic (muscular) levels, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.

Supplemental Hamilton Anxiety Rating Scale (HAM-A) Parkinson's Disease Parkinson's Disease
C08236 Imaging scanner software name

Name of the scanner software that runs the imaging camera

Supplemental-Highly Recommended MRI and Spectroscopy Parkinson's Disease Parkinson's Disease
C08502 36-item Short Form Health Survey (SF-36) - Now heath score

Score of surveyee-reported present general heath compared to a year ago as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Supplemental-Highly Recommended Short Form 36-Item Health Survey (SF-36) Parkinson's Disease Parkinson's Disease
C10401 Scale for Outcomes of Parkinsons disease (SCOPA) - sleep tablets past month name

Names of sleeping tablets used in the last month

Supplemental-Highly Recommended Scale for Outcomes in Parkinson's Disease-Sleep (SCOPA-SLEEP) Parkinson's Disease Parkinson's Disease
C02002 Medication prior or concomitant use indicator

Indicator of whether the participant/subject reported taking any medications during the time period relevant to the study protocol

Supplemental Non-Parkinson's Disease Medication Log Parkinson's Disease Parkinson's Disease
C08262 Imaging radioligand dose unit of measure

Unit of measure for the dose of injected radioligand for the imaging scan

Supplemental-Highly Recommended PET-SPECT Localization Parkinson's Disease Parkinson's Disease
C09357 Hamilton Anxiety Rating Scale (HAM-A) - behavior interview score

The score of the participant's/subject's behavior at interview, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.

Supplemental Hamilton Anxiety Rating Scale (HAM-A) Parkinson's Disease Parkinson's Disease
C08245 Imaging slice count

Count representing the total number of single image planes captured during imaging acquisition

Supplemental-Highly Recommended MRI and Spectroscopy Parkinson's Disease Parkinson's Disease
C08510 36-item Short Form Health Survey (SF-36) - Health limited walking several blocks score

Score of surveyee-reported limited walking several blocks due to physical health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Supplemental-Highly Recommended Short Form 36-Item Health Survey (SF-36) Parkinson's Disease Parkinson's Disease
C02025 Medication prior or concomitant RXNorm code

Code for name of the prior/concomitant agent or drug administered

Supplemental Non-Parkinson's Disease Medication Log Parkinson's Disease Parkinson's Disease
C08270 Imaging reference region text

Text that describes the reference region used for the imaging scan and analysis

Supplemental-Highly Recommended PET-SPECT Localization Parkinson's Disease Parkinson's Disease
C08594 Risk Factor Questionnaire (RFQ) - military service combat city station longest text

The text describing the city the participant/subject was in combat for the longest duration as part of the Risk Factor Questionnaire (RFQ) - Occupation

Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status Parkinson's Disease Parkinson's Disease
C10421 Sialorrhea Clinical Scale for PD (SCS-PD) - drool day score

How many times do you drool during the daytime? As part of SCS-PD questionnaire

Supplemental Sialorrhea Clinical Scale for Parkinson's Disease (SCS-PD) Parkinson's Disease Parkinson's Disease
C08602 Risk Factor Questionnaire (RFQ) - current work indicator

The indicator as to whether or not the participant/subject is currently working as part of the Risk Factor Questionnaire (RFQ) - Occupation

Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status Parkinson's Disease Parkinson's Disease
C15549 Gene amino acid change name

In cases of an genetic variant or mutation, specify the amino acid change

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C09596 Brief Psychiatric Rating Scale (BPRS) - mannerisms posturing score

The score of the participant's/subject's mannerisms and posturing, as part of the Brief Psychiatric Rating Scale (BPRS) form.

Supplemental Brief Psychiatric Rating Scale (BPRS) Parkinson's Disease Parkinson's Disease
C08034 Surgery head position status

Status of the participant's/subject's head position with respect to the horizontal plane during surgery

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C08099 Pneumonia history indicator

Indicator of whether the participant/subject has ever had pneumonia diagnosed by a physician

Supplemental Infection History Parkinson's Disease Parkinson's Disease
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

Core Demographics Parkinson's Disease Parkinson's Disease
C08610 Risk Factor Questionnaire (RFQ) - longest occupation 25 year text

Text describing the participant's/subject's longest held occupation from the age of 0-25 years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation

Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status Parkinson's Disease Parkinson's Disease
Displaying 451 - 475 of 749

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.