CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 26 - 50 of 749
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C20378 Pittsburgh Sleep Quality Index (PSQI) - Actual sleep past month hour scale

The scaled duration (in hours) of actual sleep per night in the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

Supplemental Pittsburgh Sleep Quality Index (PSQI) Parkinson's Disease Parkinson's Disease
C59045 Imaging pre-scan procedure type carbidopa specify text

The free-text field related to 'Imaging pre-scan procedure type', specifying Carbidopa details. Type(s) of pre-scan procedures administered to the participant/subject

Supplemental-Highly Recommended PET-SPECT Localization Parkinson's Disease Parkinson's Disease
C19595 Genetic test karyotype tissue type

Type of tissue tested in the karyotype test

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C59021 Non-prescribed controlled psychoactive drug substance heroin text

The text specifying the drugs within the 'Heroin' category as unprescribed, controlled psychoactive drugs or substances used by the participant/subject

Supplemental Non-prescribed Drug Use Questionnaire Parkinson's Disease Parkinson's Disease
C59053 Imaging quantitative outcome indicator

Indicator of use of a quantitative outcome to describe tracer distribution and uptake for the imaging data analysis

Supplemental PET-SPECT Localization Parkinson's Disease Parkinson's Disease
C59087 Dyskinesia troublesome year duration

Duration in years of troublesome dyskinesias at the time of surgery

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C20354 Pittsburgh Sleep Quality Index (PSQI) - Cannot breathe comfortably past month scale

The scale to which the subject had trouble breathing comfortably during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

Supplemental Pittsburgh Sleep Quality Index (PSQI) Parkinson's Disease Parkinson's Disease
C59067 Twin pea pod look indicator

Indicator of whether the participant/subject and his/her twin look like two peas in a pod

Supplemental History of Early Exposure Parkinson's Disease Parkinson's Disease
C19247 Subject ID

Subject identification ID

Supplemental Non-Parkinson's Disease Medication Log Parkinson's Disease Parkinson's Disease
C59144 Brain lead post implant interval

Interval post implantation of brain leads at which the stimulation and parameters and clinical motor outcomes were documented

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C59031 Imaging slice order text

The free-text field to specify the slice order used in imaging acquisition

Supplemental-Highly Recommended MRI and Spectroscopy Parkinson's Disease Parkinson's Disease
C59075 Diagnosis Parkinsons disease support sign status

Status of the sign supportive of Parkinsons disease diagnosis

Supplemental-Highly Recommended Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C59096 L-Dopa pre-operative challenge off dopamine agonist duration

Duration in hours the participant/subject was off of dopamine agonists as part of the pre-operative L-Dopa challenge

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C59030 Family history relative type psychiatric disorder member count

Count of family members and ancestors, for the specified relative type, with a psychiatric disorder(s)

Supplemental Family History Parkinson's Disease Parkinson's Disease
C59152 Implantable pulse generator remove count

Count of implantable pulse generators (IPGs) removed

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C59582 Imaging blood oxygenation level dependent collect minute value

Value of minutes to perform blood oxygenation level dependent (BOLD) fMRI scan

Supplemental-Highly Recommended MRI and Spectroscopy Parkinson's Disease Parkinson's Disease
C59083 Repository contact text

The free-text field to specify the contact information for a biological sample repository

Supplemental-Highly Recommended Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C59107 Surgery head fixation text

The free-text field to specify the head fixation to the operating room table used for the subject/participant during surgery

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C54698 Epworth Sleepiness Scale (ESS) - Doze off likelihood watch television code

The code denoting the subect/participant's self-reported likelihood of dozing off while watching television (TV), as part of the Epworth Sleepiness Scale (ESS)

Supplemental-Highly Recommended Epworth Sleepiness Scale (ESS) - Adult Version Parkinson's Disease Parkinson's Disease
C59162 Lead extender replacement reason other text

The free-text field related to 'Lead extender replacement reason', specifying other text. The reason the lead extender was replaced

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C59118 Brain lead type

Type of brain lead inserted

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C59590 Anterior commissure posterior commissure target z coordinate value

Stereotactic z coordinate with respect to anterior and posterior commissure (brain nuclei)

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C59165 Genotype platform probe count

Count of probes for the genotype platform

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C59127 Pulse generator sensing function indicator

Indicator of whether the pulse generator inserted has sensing function

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C59173 Gene pathogenic certainty status other text

The free-text field related to 'Gene pathogenic certainty status', specifying other text. Status related to pathogenic certainty for the gene screened in the participant/subject

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
Displaying 26 - 50 of 749

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.