CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 26 - 50 of 759
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C59068 Twin difficult tell apart indicator

Indicator of whether the participant/subject and his/her twin are/were difficult for teachers or friends to tell apart

Supplemental History of Early Exposure Parkinson's Disease Parkinson's Disease
C59040 Medication prior use report duration

Duration in days prior to the study that participant/subject should report taking any medications, specified by the study protocol

Supplemental Non-Parkinson's Disease Medication Log Parkinson's Disease Parkinson's Disease
C20363 Pittsburgh Sleep Quality Index (PSQI) - Awaken night early morning past month scale

The scale to which the subject woke up in the middle of the night or early morning during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

Supplemental Pittsburgh Sleep Quality Index (PSQI) Parkinson's Disease Parkinson's Disease
C20428 Beck Depression Inventory II (BDI-II) - Self-criticalness scale

Scale identifying level of self-criticalness, as part of the Beck Depression Inventory II (BDI-II)

Supplemental Beck Depression Inventory II (BDI-II) Parkinson's Disease Parkinson's Disease
C18710 Imaging radioligand dose other text

The free-text field related to 'Imaging radioligand dose unit of measure' specifying other text. Unit of measure for the dose of injected radioligand for the imaging scan

Supplemental-Highly Recommended PET-SPECT Localization Parkinson's Disease Parkinson's Disease
C20371 Pittsburgh Sleep Quality Index (PSQI) - Partner report leg twitch jerk past month scale

The scale to which the subject's partner reported leg twitching or jerking during sleep past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

Supplemental Pittsburgh Sleep Quality Index (PSQI) Parkinson's Disease Parkinson's Disease
C20436 Beck Depression Inventory II (BDI-II) - Sleep pattern change scale

Scale identifying level of change in sleep pattern, as part of the Beck Depression Inventory II (BDI-II)

Supplemental Beck Depression Inventory II (BDI-II) Parkinson's Disease Parkinson's Disease
C59116 Genetic study data array data category type

Type of array data category data expected for the genetics study

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C59120 Brain lead directional type other text

The free-text field related to 'Brain lead type', specifying the other type of directional lead inserted

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C59166 Genotype platform URL text

The free-text field specifying the genotype platform URL (uniform resource locator)

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C59128 Imaging processing software name

Name of the software used for imaging processing

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C59136 Stimulation brain parameter pulse width value

Value of the width of electric pulses (stimulation) on brain hemisphere

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C59145 Brain lead post implant interval unit of measure

Unit of measure for the interval post implantation of brain leads at which the stimulation and parameters and clinical motor outcomes were documented

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C59032 Imaging eye status

Status of eyes during imaging session

Supplemental-Highly Recommended MRI and Spectroscopy Parkinson's Disease Parkinson's Disease
C59076 Response anti parkinsonism therapy status

Status of the participant's/subject's response to anti-parkinsonism therapy

Supplemental-Highly Recommended Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C59097 Dopamine agonist specify text

The free-text field to specify the dopamine agonist taken by the participant/subject

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C20526 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Mobility category

Category determining the extent to which the participant has problems with mobility, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)

Supplemental-Highly Recommended EuroQoL-5 Dimension Questionnaire (EQ-5D) Parkinson's Disease Parkinson's Disease
C59153 Lead extender remove count

Count of lead extenders removed

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C54689 Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health physical health rate scale

Scale related to an individual's rating of his/her physical health, as part of the PROMIS Global Health

Supplemental PROMIS Item Bank v1.2 - Global Health Parkinson's Disease Parkinson's Disease
C59084 Genetic study type

Type of genetics study conducted

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C59108 Stereotactic surgery robotic guidance lead insert indicator

Indicator of whether robotic guidance was used during stereotactic surgery for lead insertion

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C54699 Epworth Sleepiness Scale (ESS) - Doze off likelihood sit inactive public place code

The code denoting the subect/participant's self-reported likelihood of dozing off while sitting inactive in a public place (for example during a meeting or movie), as part of the Epworth Sleepiness Scale (ESS)

Supplemental-Highly Recommended Epworth Sleepiness Scale (ESS) - Adult Version Parkinson's Disease Parkinson's Disease
C59583 Parkinsons disease motor sign month duration

Duration in months of motor signs related to Parkinson's disease at the time of surgery

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C58681 Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health average pain rating scale

Scale indicating the rating of the average pain experienced by the subject, as part of the PROMIS Global Health

Supplemental PROMIS Item Bank v1.2 - Global Health Parkinson's Disease Parkinson's Disease
C20380 Pittsburgh Sleep Quality Index (PSQI) - Bed partner roommate present scale

The scale that reflects the presence of a bed partner or roommate, as part of the Pittsburgh Sleep Quality Index (PSQI)

Supplemental Pittsburgh Sleep Quality Index (PSQI) Parkinson's Disease Parkinson's Disease
Displaying 26 - 50 of 759

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.