CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2955-C59098	C59098	Database of Genotypes and Phenotypes study title text	The free-text field to specify the title of the of the database of Genotypes and Phenotypes (dbGaP) study	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2952-C59111	C59111	Microelectrode record microstimulation sedation type	Type of sedation used during microelectrode recording or microstimulation for intra-operative target verification	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F3030-C54702	C54702	Epworth Sleepiness Scale (ESS) - Doze off likelihood sit talk code	The code denoting the subect/participant's self-reported likelihood of dozing off while sitting and talking, as part of the Epworth Sleepiness Scale (ESS)	Supplemental-Highly Recommended	Epworth Sleepiness Scale (ESS) - Adult Version	True	Parkinson's Disease	Parkinson's Disease
F2952-C59586	C59586	Stereotactic surgery mini-frame type other text	The free-text field related to 'Stereotactic surgery mini-frame type', specifying other text. Type of mini-frame used for surgery. A mini-frame is a simpler and smaller support for stereotactic surgery; used mainly in image-guided surgery	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2955-C59157	C59157	Genetic study data analysis category type	Type of analysis category data expected for the genetics study	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2952-C59123	C59123	Brain lead intercontact space interval type other text	The free-text field related to 'Brain lead intercontact space interval type', specifying other text. Type of intercontact spacing interval for the implanted brain leads (between ends of contacts, not centers)	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2952-C59131	C59131	Stimulation brain parameter positive contact text	Text related to positive contact brain stimulation parameters	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2955-C59177	C59177	Research relate database of Genotypes and Phenotypes study indicator	Indicator whether the study is related to a pre-existing registered NCBI database of Genotypes and Phenotypes (dbGaP) study	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2952-C59139	C59139	Optimal programming limit stimulation adverse effect indicator	Indicator related to whether optimal programming is limited by stimulation-induced adverse effects	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2955-C59059	C59059	Diagnosis primary clinical parkinsonism type	Type of primary clinical parkinsonism diagnosis	Supplemental-Highly Recommended	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2952-C59090	C59090	Deep brain stimulation indication type other text	The free-text field related to 'Deep brain stimulation indication type', specifying other text. Type of indications for deep brain stimulation (DBS)	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2952-C59148	C59148	Adverse event outcome status other text	The free-text field related to 'Adverse event outcome status', specifying other text. Final status of the participant/subject related to the adverse event	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2950-C59035	C59035	Imaging echo count	Count of echoes for multiecho method used in image acquisition	Supplemental-Highly Recommended	MRI and Spectroscopy	False	Parkinson's Disease	Parkinson's Disease
F2952-C59101	C59101	Functional neurosurgery target planning software type text	The free-text field to describe the type of functional neurosurgery target planning software used to determine the coordinates of the target (brain nucleus)	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F3029-C20531	C20531	European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Pain discomfort category	Category determining the extent to which the participant has problems with pain or discomfort category, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)	Supplemental-Highly Recommended	EuroQoL-5 Dimension Questionnaire (EQ-5D)	True	Parkinson's Disease	Parkinson's Disease
F2952-C59156	C59156	Pulse generator replacement reason	The reason the pulse generator was replaced	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F3056-C54692	C54692	Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health carry out social role scale	Scale related to an individual's rating of his/her ability to carry out usual social activities and roles, as part of the PROMIS Global Health	Supplemental	PROMIS Item Bank v1.2 - Global Health	True	Parkinson's Disease	Parkinson's Disease
F3043-C20375	C20375	Pittsburgh Sleep Quality Index (PSQI) - Total score	The total score, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Parkinson's Disease	Parkinson's Disease
F3041-C20440	C20440	Beck Depression Inventory II (BDI-II) - Tiredness fatigue scale	Scale identifying level of tiredness or fatigue, as part of the Beck Depression Inventory II (BDI-II)	Supplemental	Beck Depression Inventory II (BDI-II)	True	Parkinson's Disease	Parkinson's Disease
F2951-C59042	C59042	Imaging radioligand type dihydrotetrabenazine specify text	The free-text field related to 'Imaging radioligand type', specifying dihydrotetrabenazine (DTBZ) isotope details. Isotope-labeled bioactive compound (generic or common name) used in the imaging scan	Supplemental-Highly Recommended	PET-SPECT Localization	False	Parkinson's Disease	Parkinson's Disease
F3043-C20384	C20384	Pittsburgh Sleep Quality Index (PSQI) - Sleep latency scale	The scale to which sleep latency was calculated, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Parkinson's Disease	Parkinson's Disease
F2955-C19584	C19584	Genetic test performed year value	Value of the year the genetic test was performed	Supplemental-Highly Recommended	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2951-C59050	C59050	Imaging reconstruct image resolution full width half maximum millimeter value	Value in millimeters of the reconstructed image resolution measured as full width at half maximum (FWHM)	Supplemental-Highly Recommended	PET-SPECT Localization	False	Parkinson's Disease	Parkinson's Disease
F2951-C59058	C59058	Imaging amyloid centiloid anatomic site other text	The free-text field related to 'Imaging amyloid centiloid anatomic site' specifying other text.	Supplemental	PET-SPECT Localization	False	Parkinson's Disease	Parkinson's Disease
F2945-C59064	C59064	Breastfed duration range	The range of duration that the participant/subject was breastfed	Supplemental	History of Early Exposure	False	Parkinson's Disease	Parkinson's Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.