CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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CRF Name

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C18710	Imaging radioligand dose other text	The free-text field related to 'Imaging radioligand dose unit of measure' specifying other text. Unit of measure for the dose of injected radioligand for the imaging scan	Supplemental	PET-SPECT	False	Parkinson's Disease	Parkinson's Disease
C18723	Imaging volume of interest placement method other text	The free-text field related to 'Imaging volume of interest placement method type' specifying other text. Type of method used for volume of interest (VOI) placement for the imaging data analysis	Supplemental	PET-SPECT	False	Parkinson's Disease	Parkinson's Disease
C18681	Functional neurosurgery target anatomic other text	The free-text field related to 'Functional neurosurgery target anatomic site' specifying other text. The anatomic site in the brain nucleus or group of neurons to be intervened for surgery	Supplemental	Functional Neurosurgery	False	Parkinson's Disease	Parkinson's Disease
C20364	Pittsburgh Sleep Quality Index (PSQI) - Bad dream past month scale	The scale to which the subject had bad dreams during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI).	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Parkinson's Disease	Parkinson's Disease
C21900	Geriatric Depression Scale (GDS) Long Form - Future hopeful indicator	Indicator whether the subject is hopeful about the future (long form) (GDSLF)	Supplemental	Geriatric Depression Scale (GDS)	False	Parkinson's Disease	Parkinson's Disease
C18758	Surgery post-operative target verification method other text	The free-text field related to 'Surgery post-operative target verification method source' specifying other text. Post-operative source method used for verifying the brain nucleus (target) was reached	Supplemental	Functional Neurosurgery	False	Parkinson's Disease	Parkinson's Disease
C20372	Pittsburgh Sleep Quality Index (PSQI) - Sleep quality past month scale	Rating of overall sleep quality past month, as part of the Pittsburgh Sleep Quality Index (PSQI).	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Parkinson's Disease	Parkinson's Disease
C21909	Geriatric Depression Scale (GDS) Long Form - Little thing upset indicator	Indicator whether the subject frequently gets upset over little things(long form) (GDSLF)	Supplemental	Geriatric Depression Scale (GDS)	False	Parkinson's Disease	Parkinson's Disease
C20380	Pittsburgh Sleep Quality Index (PSQI) - Bed partner roommate present scale	The scale that reflects the presence of a bed partner or roommate, as part of the Pittsburgh Sleep Quality Index (PSQI).	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Parkinson's Disease	Parkinson's Disease
C18698	Imaging F-dopa binding ratio other text	The free-text field related to 'Imaging F-dopa binding ratio type' specifying other text. Type of F-dopa binding ratio with respect to the rest of the brain	Supplemental	PET-SPECT	False	Parkinson's Disease	Parkinson's Disease
C21919	Geriatric Depression Scale (GDS) Long Form - Depression scale	Scale of depression based on scored count of all depressive answers, as part of the Geriatric Depression Scale Long Form	Supplemental	Geriatric Depression Scale (GDS)	False	Parkinson's Disease	Parkinson's Disease
C20435	Beck Depression Inventory II (BDI-II) - Energy loss scale	Scale identifying level of loss of energy, as part of the Beck Depression Inventory II (BDI-II).	Supplemental	Beck Depression Inventory II (BDI-II)	True	Parkinson's Disease	Parkinson's Disease
C18769	Thermoregulatory sweat test sweat chemical other text	The free-text field related to 'Thermoregulatory sweat test sweat chemical type' specifying other text. Chemical used for Thermoregulatory Sweat Test (TST) that shows a significant color change when mingled with sweat	Supplemental	Other Non-motor Guidelines for CDE Use	False	Parkinson's Disease	Parkinson's Disease
C18680	Food Frequency Questionnaire - (FFQ)-specific brand other text	The free-text field related to 'Food Frequency Questionnaire - (FFQ)-specific brand type' specifying other text. Specific brand of multi-vitamins taken, as part of Food Frequency Questionnaire -(FFQ)	Supplemental	Food Frequency Questionnaire (FFQ)	True	Parkinson's Disease	Parkinson's Disease
C18748	Risk Factor Questionnaire (RFQ) - military service branch other text	The free-text field related to 'Risk Factor Questionnaire (RFQ) - military service branch type' specifying other text. The type of branch the participant/subject was in for the longest duration as part of the Risk Factor Questionnaire (RFQ) - Occupation.	Supplemental-Highly Recommended	Risk Factor Questionnaire (RFQ) - Occupation and Employment Status	True	Parkinson's Disease	Parkinson's Disease
C20358	Pittsburgh Sleep Quality Index (PSQI) - Awaken bathroom use past month scale	The scale to which the subject had to get up to use the bathroom during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI).	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Parkinson's Disease	Parkinson's Disease
C18592	Unified Parkinson Disease Rating Scale (UPDRS) - right hand tremor at rest scale	Subject's tremor level at rest in the right hand as part of Unified Parkinsons Disease Rating Scale (UPDRS).	Core	Unified Parkinson's Disease Rating Scale (UPDRS)	True	Parkinson's Disease	Parkinson's Disease
C21126	Insomnia Severity Index (ISI) - Total score	Total score, as part of the Insomnia Severity Index (ISI).	Supplemental	Insomnia Severity Index (ISI)	True	Parkinson's Disease	Parkinson's Disease
C18600	Unified Parkinson Disease Rating Scale (UPDRS) - left lower extremity rigidity scale	Subject's rigidity in the left lower extremity as judged on passive movement of major joints with patient relaxed in sitting position as part of Unified Parkinsons Disease Rating Scale (UPDRS).	Core	Unified Parkinson's Disease Rating Scale (UPDRS)	True	Parkinson's Disease	Parkinson's Disease
C18717	Imaging scanner model other text	The free-text field related to 'Imaging scanner model name' specifying other text. Name of model of imaging scanner	Supplemental	MRI and Spectroscopy	False	Parkinson's Disease	Parkinson's Disease
C18704	Imaging parameter quantified other text	The free-text field related to 'Imaging parameter quantified type' specifying other text. Parameter used in imaging analysis being quantified.	Supplemental	MR	False	Parkinson's Disease	Parkinson's Disease
C20421	Beck Depression Inventory II (BDI-II) - Sadness scale	Scale identifying level of sadness, as part of the Beck Depression Inventory II (BDI-II).	Supplemental	Beck Depression Inventory II (BDI-II)	True	Parkinson's Disease	Parkinson's Disease
C18721	Imaging visual analysis other text	The free-text field related to 'Imaging visual analysis status' specifying other text. Status of findings from subjective review of image data	Supplemental	MR	False	Parkinson's Disease	Parkinson's Disease
C20529	European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Usual activities category	Category determining the extent to which the participants has problems with usual activities (e.g. work, study, housework, family or leisure activities), as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L).	Supplemental-Highly Recommended	EuroQoL-5 Dimension Questionnaire (EQ-5D)	True	Parkinson's Disease	Parkinson's Disease
C20429	Beck Depression Inventory II (BDI-II) - Suicidal thought wish scale	Scale identifying level of suicidal thoughts or wishes, as part of the Beck Depression Inventory II (BDI-II).	Supplemental	Beck Depression Inventory II (BDI-II)	True	Parkinson's Disease	Parkinson's Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.