CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 226 - 250 of 759

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2952-C59087	C59087	Dyskinesia troublesome year duration	Duration in years of troublesome dyskinesias at the time of surgery	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2952-C59585	C59585	Dyskinesia troublesome month duration	Duration in months of troublesome dyskinesias at the time of surgery	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2952-C59086	C59086	Motor fluctuation year duration	Duration in years of motor fluctuations at the time of surgery	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2952-C59584	C59584	Motor fluctuation month duration	Duration in months of motor fluctuations at the time of surgery	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2952-C59583	C59583	Parkinsons disease motor sign month duration	Duration in months of motor signs related to Parkinson's disease at the time of surgery	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2952-C59085	C59085	Parkinsons disease motor sign year duration	Duration in years of motor signs related to Parkinson's disease at the time of surgery	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2955-C59084	C59084	Genetic study type	Type of genetics study conducted	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2955-C59083	C59083	Repository contact text	The free-text field to specify the contact information for a biological sample repository	Supplemental-Highly Recommended	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2955-C59082	C59082	Brain family member available indicator	Indicator of whether a brain of the participant's/subject's family member is available in a repository	Supplemental-Highly Recommended	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2955-C59080	C59080	Biological sample in repository specimen type other text	The free-text field related to 'Biological sample in repository specimen type', specifying other text. Type of biological sample or specimen collected and stored in a repository	Supplemental-Highly Recommended	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2955-C59076	C59076	Response anti parkinsonism therapy status	Status of the participant's/subject's response to anti-parkinsonism therapy	Supplemental-Highly Recommended	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2955-C59075	C59075	Diagnosis Parkinsons disease support sign status	Status of the sign supportive of Parkinsons disease diagnosis	Supplemental-Highly Recommended	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2955-C59074	C59074	Diagnosis Parkinsons disease support sign type	Type of sign supportive of Parkinsons disease diagnosis	Supplemental-Highly Recommended	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2955-C19014	C19014	Gene detection method type other text	The free-text field related to 'Gene detection method type' specifying other text. The method used to detect the gene mutation or variant	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2955-C15539	C15539	Gene variant or mutation type	The type of genetic variant or mutation shown	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2955-C10846	C10846	Gene variant or mutation indicator	Indicator whether a variant or mutation was found in the common gene screened in the participant/subject for the disease or disorder	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2955-C10845	C10845	Gene screened indicator	Indicator whether the participant/subject was screened for the specific gene mutation (e.g., Superoxide dismutase 1, Fused in sarcoma, TAR DNA binding protein) commonly seen in the disease or disorder	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2955-C56038	C56038	Genetic test performed other text	The free-text field specifying the other genetic test that was performed	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2955-C17890	C17890	Allele number one missense nonsense variant or point mutation subclass information type	Type of missense/nonsense variant or point mutation subclass information, first allele number one	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2945-C08111	C08111	Preschool hour per week value	Approximate hours per week the participant/subject attended preschool as a child	Supplemental	History of Early Exposure	False	Parkinson's Disease	Parkinson's Disease
F2945-C08107	C08107	Day care hour per week value	Approximate hours per week the participant/subject attended day care as a child	Supplemental	History of Early Exposure	False	Parkinson's Disease	Parkinson's Disease
F2945-C08079	C08079	Full biological brothers count	Count of full biological brothers the participant/subject has	Supplemental	History of Early Exposure	False	Parkinson's Disease	Parkinson's Disease
F2945-C08078	C08078	Full biological sisters count	Count of full biological sisters the participant/subject has	Supplemental	History of Early Exposure	False	Parkinson's Disease	Parkinson's Disease
F2945-C59073	C59073	Full biological sibling indicator	Indicator of whether the participant/subject has any full biological brothers and/or sisters. Full brothers and/or sisters are defined as those with whom a biological mother and father is shared	Supplemental	History of Early Exposure	False	Parkinson's Disease	Parkinson's Disease
F2945-C59072	C59072	Height in twenties measurement	Measurement of participant's/subject's height when in their twenties	Supplemental	History of Early Exposure	False	Parkinson's Disease	Parkinson's Disease

Displaying 226 - 250 of 759

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.