CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

CRF Name

Displaying 201 - 225 of 759

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C12944	Variant mutational analysis performed indicator	Whether the variant or mutational analysis was performed on the participant/subject	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
C12783	Variant mutational analysis results available indicator	Whether the variant or mutational analysis results are available on this participant/ subject	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
C08079	Full biological brothers count	Count of full biological brothers the participant/subject has	Supplemental	History of Early Exposure	False	Parkinson's Disease	Parkinson's Disease
C08078	Full biological sisters count	Count of full biological sisters the participant/subject has	Supplemental	History of Early Exposure	False	Parkinson's Disease	Parkinson's Disease
C08113	Born prematurely indicator	Indicator of whether the participant/subject was informed by a physician or family member that he/she was born prematurely	Supplemental	History of Early Exposure	False	Parkinson's Disease	Parkinson's Disease
C59073	Full biological sibling indicator	Indicator of whether the participant/subject has any full biological brothers and/or sisters. Full brothers and/or sisters are defined as those with whom a biological mother and father is shared	Supplemental	History of Early Exposure	False	Parkinson's Disease	Parkinson's Disease
C59072	Height in twenties measurement	Measurement of participant's/subject's height when in their twenties	Supplemental	History of Early Exposure	False	Parkinson's Disease	Parkinson's Disease
C59071	Shave facial hair regular begin age category	Categorization of the age at which the participant/subject began to regularly shave facial hair. Regular shaving is defined as once a week or more	Supplemental	History of Early Exposure	False	Parkinson's Disease	Parkinson's Disease
C59070	Shave facial hair regular begin age value	The age at which the participant/subject began to regularly shave facial hair. Regular shaving is defined as once a week or more	Supplemental	History of Early Exposure	False	Parkinson's Disease	Parkinson's Disease
C59069	Menarche begin age category	Categorization of the age at which menarche began for the participant/subject	Supplemental	History of Early Exposure	False	Parkinson's Disease	Parkinson's Disease
C59068	Twin difficult tell apart indicator	Indicator of whether the participant/subject and his/her twin are/were difficult for teachers or friends to tell apart	Supplemental	History of Early Exposure	False	Parkinson's Disease	Parkinson's Disease
C59067	Twin pea pod look indicator	Indicator of whether the participant/subject and his/her twin look like two peas in a pod	Supplemental	History of Early Exposure	False	Parkinson's Disease	Parkinson's Disease
C59066	Twin sibling birth sex assigned type	Sex assigned at birth of participant's/subject's twin sibling	Supplemental	History of Early Exposure	False	Parkinson's Disease	Parkinson's Disease
C59065	Older full biological sibling count	Count of older full biological siblings the participant/subject has	Supplemental	History of Early Exposure	False	Parkinson's Disease	Parkinson's Disease
C59064	Breastfed duration range	The range of duration that the participant/subject was breastfed	Supplemental	History of Early Exposure	False	Parkinson's Disease	Parkinson's Disease
C59063	Birth weight source	Source of the participant's/subject's birth weight data	Supplemental	History of Early Exposure	False	Parkinson's Disease	Parkinson's Disease
C59062	Birth weight known indicator	Indicator of whether the participant/subject knows his/her birth weight	Supplemental	History of Early Exposure	False	Parkinson's Disease	Parkinson's Disease
C16198	Biological sample in repository consent form signed indicator	Indicates whether the participant/subject provided signed informed consent for the biological sample collection and storage in a repository	Supplemental-Highly Recommended	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
C16197	Biological sample in repository location name	The location of the banked biological sample or specimen, if known	Supplemental-Highly Recommended	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
C16196	Biological sample in repository study initially requested name	The name of the study for which the biological sample or specimen was initially taken	Supplemental-Highly Recommended	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
C16194	Biological sample in repository indicator	Indicates whether participant/subject had a biological sample or specimen drawn and banked in a repository	Supplemental-Highly Recommended	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
C56035	Genetic test result source type other text	The free-text field related to 'Genetic test result source type', specifying another source of the subject's test results	Supplemental-Highly Recommended	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
C59061	Diagnosis primary clinical parkinsonism status	Status of the primary clinical parkinsonism diagnosis	Supplemental-Highly Recommended	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
C59060	Diagnosis primary clinical parkinsonism type other text	The free-text field related to 'Diagnosis primary clinical parkinsonism type', specifying other text. Type of primary clinical parkinsonism diagnosis	Supplemental-Highly Recommended	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
C59059	Diagnosis primary clinical parkinsonism type	Type of primary clinical parkinsonism diagnosis	Supplemental-Highly Recommended	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease

Displaying 201 - 225 of 759

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.