CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 651 - 675 of 759

Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2951-C08267	C08267	Imaging outcome variable name	Name of the primary imaging outcome variable	Supplemental-Highly Recommended	PET-SPECT Localization	False	Parkinson's Disease	Parkinson's Disease
F3048-C10189	C10189	Videofluoroscopic swallowing study dysphagia severity rating scale	Dysphagia severity rating scale of the Videofluoroscopic Swallowing Study (VFSS)	Supplemental	Other Non-Motor Guidance for CDE Use	False	Parkinson's Disease	Parkinson's Disease
F0803-C09592	C09592	Brief Psychiatric Rating Scale (BPRS) - emotional withdrawal score	The score of the participant's/subject's emotional withdrawal, as part of the Brief Psychiatric Rating Scale (BPRS) form.	Supplemental	Brief Psychiatric Rating Scale (BPRS)	False	Parkinson's Disease	Parkinson's Disease
F2945-C08104	C08104	Day care attendance indicator	Indicator of whether the participant/subject attended day care outside of the home as a child	Supplemental	History of Early Exposure	False	Parkinson's Disease	Parkinson's Disease
F0803-C09600	C09600	Brief Psychiatric Rating Scale (BPRS) - suspiciousness score	The score of the participant's/subject's suspiciousness, as part of the Brief Psychiatric Rating Scale (BPRS) form.	Supplemental	Brief Psychiatric Rating Scale (BPRS)	False	Parkinson's Disease	Parkinson's Disease
F3048-C10166	C10166	Quantitative sudomotor axon reflex test (QSART) - resting skin temperature anatomic site	Location on body where probes are placed to obtain resting skin temperature from quantitative sudomotor axon reflex test (QSART)	Supplemental	Other Non-Motor Guidance for CDE Use	False	Parkinson's Disease	Parkinson's Disease
F3042-C09582	C09582	Brief Pain Inventory (BPI) - relief received percentage number	Indicates the relief received from medication use, as part of the Brief Pain Inventory (BPI) form	Supplemental	Brief Pain Inventory (BPI) Short Form	True	Parkinson's Disease	Parkinson's Disease
F2945-C08112	C08112	Birth weight category	Categorization of the participant's/subject's birth weight	Supplemental	History of Early Exposure	False	Parkinson's Disease	Parkinson's Disease
F2952-C02303	C02303	Adverse event outcome status	Final status of the participant/subject related to the adverse event	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2946-C08096	C08096	Influenza vaccine history indicator	Indicator of whether the participant/subject has ever received an influenza vaccination	Supplemental	Infection History	False	Parkinson's Disease	Parkinson's Disease
F0796-C10417	C10417	Sialorrhea Clinical Scale for PD (SCS-PD) - sleep saliva score	When you are asleep, how much saliva is there in your mouth? As part of SCS-PD questionnaire	Supplemental	Sialorrhea Clinical Scale for Parkinson's Disease (SCS-PD)	False	Parkinson's Disease	Parkinson's Disease
F2946-C08116	C08116	Meningitis or encephalitis episode age value	Participant's/subject's age at the time of the meningitis or encephalitis episode	Supplemental	Infection History	False	Parkinson's Disease	Parkinson's Disease
F2951-C18037	C18037	Imaging radioligand specific activity value indicator	Whether the specific activity value is known	Supplemental-Highly Recommended	PET-SPECT Localization	False	Parkinson's Disease	Parkinson's Disease
F3040-C10407	C10407	Scale for Outcomes of Parkinsons disease (SCOPA) - sleep night early woken past month scale	Pre-specified scales for early wake-up at night in the past month	Supplemental-Highly Recommended	Scale for Outcomes in Parkinson's Disease-Sleep (SCOPA-SLEEP)	True	Parkinson's Disease	Parkinson's Disease
F2806-C09304	C09304	Apathy Scale (AS) - Condition concern scale	The scale related to subject's concern for ones own condition, as part of the Apathy Scale (AS) form	Supplemental-Highly Recommended	Apathy Scale (AS)	True	Parkinson's Disease	Parkinson's Disease
F2806-C09312	C09312	Apathy Scale (AS) - Start task ability no prompt scale	The scale related to subject's ability to start tasks without prompting, as part of the Apathy Scale (AS) form	Supplemental-Highly Recommended	Apathy Scale (AS)	True	Parkinson's Disease	Parkinson's Disease
F2169-C08637	C08637	Risk Factor Questionnaire (RFQ) - longest occupation over 65 year second duty text	Text describing the participant's/subject's second of four major tasks or duties at the longest held occupation from the age of 66+ years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation	Supplemental-Highly Recommended	Risk Factor Questionnaire (RFQ) - Occupation and Employment Status	True	Parkinson's Disease	Parkinson's Disease
F2169-C08599	C08599	Risk Factor Questionnaire (RFQ) - military service prisoner of war state text	The text describing the state the participant/subject was a prisoner of war as part of the Risk Factor Questionnaire (RFQ) - Occupation	Supplemental-Highly Recommended	Risk Factor Questionnaire (RFQ) - Occupation and Employment Status	True	Parkinson's Disease	Parkinson's Disease
F2169-C08607	C08607	Risk Factor Questionnaire (RFQ) - current job fourth duty text	Text describing the fourth of four major duties or tasks at the participant's/subject's current job as part of the Risk Factor Questionnaire (RFQ) - Occupation	Supplemental-Highly Recommended	Risk Factor Questionnaire (RFQ) - Occupation and Employment Status	True	Parkinson's Disease	Parkinson's Disease
F2169-C08615	C08615	Risk Factor Questionnaire (RFQ) - longest occupation 26 35 year text	Text describing the participant's/subject's longest held occupation from the age of 26-35 years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation	Supplemental-Highly Recommended	Risk Factor Questionnaire (RFQ) - Occupation and Employment Status	True	Parkinson's Disease	Parkinson's Disease
F3040-C10414	C10414	Scale for Outcomes of Parkinsons disease (SCOPA) - sleep trouble awake day evening past month frequency	Pre-specified frequencies for trouble staying awake during the day or in the evening in the past month	Supplemental-Highly Recommended	Scale for Outcomes in Parkinson's Disease-Sleep (SCOPA-SLEEP)	True	Parkinson's Disease	Parkinson's Disease
F2169-C08623	C08623	Risk Factor Questionnaire (RFQ) - longest occupation 36 45 year third duty text	Text describing the participant's/subject's third of four major tasks or duties at the longest held occupation from the age of 36-45 years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation	Supplemental-Highly Recommended	Risk Factor Questionnaire (RFQ) - Occupation and Employment Status	True	Parkinson's Disease	Parkinson's Disease
F2169-C08591	C08591	Risk Factor Questionnaire (RFQ) - military service state station longest text	The text describing the state the participant/subject was stationed in for the longest duration as part of the Risk Factor Questionnaire (RFQ) - Occupation	Supplemental-Highly Recommended	Risk Factor Questionnaire (RFQ) - Occupation and Employment Status	True	Parkinson's Disease	Parkinson's Disease
F3040-C10400	C10400	Scale for Outcomes of Parkinsons disease (SCOPA) - sleep tablets past month frequency	Pre-specified frequencies of using sleeping tablets in the last month	Supplemental-Highly Recommended	Scale for Outcomes in Parkinson's Disease-Sleep (SCOPA-SLEEP)	True	Parkinson's Disease	Parkinson's Disease
F2806-C09305	C09305	Apathy Scale (AS) - Indifference scale	The scale related to subject's indifference to things, as part of the Apathy Scale (AS) form	Supplemental-Highly Recommended	Apathy Scale (AS)	True	Parkinson's Disease	Parkinson's Disease

Displaying 651 - 675 of 759

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.