CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Show All
Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 301 - 325 of 759
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C17684 Non-prescribed controlled psychoactive drug substance stimulant cocaine text

The text specifying the drugs within the Stimulants: cocaine/crack category as unprescribed, controlled psychoactive drugs or substances used by the participant/subject

 Supplemental Non-prescribed Drug Use Questionnaire False Parkinson's Disease Parkinson's Disease
C17683 Non-prescribed controlled psychoactive drug substance marijuana text

The text specifying the drugs within the Marijuana: hash, THC category as unprescribed, controlled psychoactive drugs or substances used by the participant/subject

 Supplemental Non-prescribed Drug Use Questionnaire False Parkinson's Disease Parkinson's Disease
C18670 Subscribed drug or substance illicitly used category other text

The free-text field related to 'Subscribed drug or substance illicitly used category' specifying other text. Category of illegal drugs, prescription, or over-the-counter drugs the participant/subject used for purposes other than those for which they are meant to be used, or in large amounts

 Supplemental Non-prescribed Drug Use Questionnaire False Parkinson's Disease Parkinson's Disease
C59020 Diagnosis certainty category

Category of the clinician's certainty of the medical diagnosis of the disease or disorder

 Core Medical History of Parkinson's Disease False Parkinson's Disease Parkinson's Disease
C08013 Dystonia symptom text

The free-text field to specify symptoms experienced by the participant/subject related to dystonia

 Supplemental Medical History of Parkinson's Disease False Parkinson's Disease Parkinson's Disease
C08012 Motor symptom Parkinsonian initial type

Type(s) of initial motor symptoms of Parkinson's disease described by the participant/subject.

 Core Medical History of Parkinson's Disease False Parkinson's Disease Parkinson's Disease
C19529 Motor symptom parkinsonian initial type ambulatory axial difficulty abnormal posture gait other text

The free-text field related to 'Motor symptom parkinsonian initial type', specifying ambulatory/axial difficulties-other abnormality of posture or gait other text. Type(s) of initial motor symptoms of Parkinson's disease described by the participant/subject.

 Supplemental Medical History of Parkinson's Disease False Parkinson's Disease Parkinson's Disease
C08009 Diagnostic feature criterion presence status

Status of diagnostic feature or criterion observed during clinical assessment of the participant/subject

 Core Medical History of Parkinson's Disease False Parkinson's Disease Parkinson's Disease
C08008 Diagnostic feature criterion type

Type of diagnostic feature or criterion assessed in the participant/subject.

 Core Medical History of Parkinson's Disease False Parkinson's Disease Parkinson's Disease
C08006 Symptoms first appear date and time

Date (and time if applicable and known) the symptoms for the disease or disorder first appeared as confirmed by the participant's/subject's medical history obtained by a physician

 Core Medical History of Parkinson's Disease False Parkinson's Disease Parkinson's Disease
C58781 Gender identity type other text

The free-text field related to 'Gender identity type', specifying other text

 Supplemental Demographics False Parkinson's Disease Parkinson's Disease
C58781 Gender identity type other text

The free-text field related to 'Gender identity type', specifying other text

 Supplemental General Core False Parkinson's Disease Parkinson's Disease
C58780 Birth sex assigned type other text

The free-text field related to 'Birth sex assigned type', specifying other text

 Supplemental Demographics False Parkinson's Disease Parkinson's Disease
C58780 Birth sex assigned type other text

The free-text field related to 'Birth sex assigned type', specifying other text

 Supplemental General Core False Parkinson's Disease Parkinson's Disease
C58680 Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health general health scale

Scale related to an individual's rating of his/her general health, as part of the PROMIS Global Health

 Supplemental PROMIS Item Bank v1.2 - Global Health True Parkinson's Disease Parkinson's Disease
C58681 Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health average pain rating scale

Scale indicating the rating of the average pain experienced by the subject, as part of the PROMIS Global Health

 Supplemental PROMIS Item Bank v1.2 - Global Health True Parkinson's Disease Parkinson's Disease
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth

 Core Demographics False Parkinson's Disease Parkinson's Disease
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth

 Core General Core False Parkinson's Disease Parkinson's Disease
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth

 Core Demographics False Parkinson's Disease Parkinson's Disease
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth

 Core General Core False Parkinson's Disease Parkinson's Disease
C56033 Genetic test result source type

The source of the subject's genetic test results

 Supplemental-Highly Recommended Parkinson's Disease Genetics False Parkinson's Disease Parkinson's Disease
C08039 Electrode brain count

Count of electrodes introduced in the brain

 Supplemental Functional Neurosurgery: Deep Brain Stimulation False Parkinson's Disease Parkinson's Disease
C54705 Epworth Sleepiness Scale (ESS) - Total score

Total score of all questions on the Epworth Sleepiness Scale (ESS)

 Supplemental-Highly Recommended Epworth Sleepiness Scale (ESS) - Adult Version True Parkinson's Disease Parkinson's Disease
C54697 Epworth Sleepiness Scale (ESS) - Doze off likelihood sit read code

The code denoting the subect/participant's self-reported likelihood of dozing off while sitting and reading, as part of the Epworth Sleepiness Scale (ESS)

 Supplemental-Highly Recommended Epworth Sleepiness Scale (ESS) - Adult Version True Parkinson's Disease Parkinson's Disease
C54698 Epworth Sleepiness Scale (ESS) - Doze off likelihood watch television code

The code denoting the subect/participant's self-reported likelihood of dozing off while watching television (TV), as part of the Epworth Sleepiness Scale (ESS)

 Supplemental-Highly Recommended Epworth Sleepiness Scale (ESS) - Adult Version True Parkinson's Disease Parkinson's Disease
Displaying 301 - 325 of 759

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.