CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

CRF Name

Displaying 26 - 50 of 2446

« first
‹ previous
1
2
3
4
5
6
7
8
9
…
next ›
last »

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C59180	Medication prior or concomitant daily dose frequency	Frequency of use of a prior/concomitant medication daily	Supplemental-Highly Recommended	Parkinson's Disease Medication Log	False	Parkinson's Disease	Parkinson's Disease
C59179	Medication prior or concomitant suppository route type	Type of access route for the administration of the prior/concomitant medication in suppository dosage form	Supplemental-Highly Recommended	Parkinson's Disease Medication Log	False	Parkinson's Disease	Parkinson's Disease
C18769	Thermoregulatory sweat test sweat chemical other text	The free-text field related to 'Thermoregulatory sweat test sweat chemical type' specifying other text. Type of chemical used for Thermoregulatory Sweat Test (TST) that shows a significant color change when mingled with sweat	Supplemental	Other Non-Motor Guidance for CDE Use	False	Parkinson's Disease	Parkinson's Disease
C10180	Thermoregulatory sweat test sweat chemical type	Type of chemical used for Thermoregulatory Sweat Test (TST) that shows a significant color change when mingled with sweat	Supplemental	Other Non-Motor Guidance for CDE Use	False	Parkinson's Disease	Parkinson's Disease
C10168	Quantitative sudomotor axon reflex test (QSART) - resting skin temperature unit of measure	Unit resting skin temperature is measured in from quantitative sudomotor axon reflex test (QSART)	Supplemental	Other Non-Motor Guidance for CDE Use	False	Parkinson's Disease	Parkinson's Disease
C10167	Quantitative sudomotor axon reflex test (QSART) - resting skin temperature measurement	Measurement of resting skin temperature at a "normal" state from quantitative sudomotor axon reflex test (QSART)	Supplemental	Other Non-Motor Guidance for CDE Use	False	Parkinson's Disease	Parkinson's Disease
C10173	Forced expiratory volume second result value	Value representing the Amount of air, in Liters, that can be blown in the first second in the FVC maneuver (FEV1)	Supplemental	Other Non-Motor Guidance for CDE Use	False	Parkinson's Disease	Parkinson's Disease
C10172	Forced vital capacity result value	Value representing the Forced Vital Capacity (FVC), in Liters, as the maximum volume of air that can be exhaled as rapidly, forcefully, and completely as possible from the point of maximal inhalation	Supplemental	Other Non-Motor Guidance for CDE Use	False	Parkinson's Disease	Parkinson's Disease
C10170	Quantitative sudomotor axon reflex test (QSART) - result type	Type of overall results of quantitative sudomotor axon reflex test (QSART)	Supplemental	Other Non-Motor Guidance for CDE Use	False	Parkinson's Disease	Parkinson's Disease
C08036	Stereotactic surgery mini-frame type	Type of mini-frame used for surgery. A mini-frame is a simpler and smaller support for stereotactic surgery; used mainly in image-guided surgery	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
C08038	Surgery intra-operative target verification source	Intra-operative source method used for verifying the target of the surgery	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
C59178	Blood sample repository indicator	Indicator whether the participant/subject provided a blood sample to a repository	Supplemental-Highly Recommended	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
C08042	Surgery externalization use indicator	Indicator of whether a procedure of exposing the implanted electrodes out of the brain for stimulation purposes was performed	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
C02305	Adverse event severity scale grade	The grading scale of the severity or intensity of the adverse event	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
C08047	Medication anti-Parkinsonian reduced after surgery percent value	Percent anti-Parkinsonism medication(s) were reduced	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
C08046	Medication anti-Parkinsonian reduced after surgery indicator	Indicator of whether anti-Parkinsonism medication(s) were reduced following optimization (X weeks after surgery)	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
C08045	Surgery post-operative target verification method source	Post-operative source method used for verifying the brain nucleus (target) was reached	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
C08035	Stereotactic surgery frame type	Scaffold or support used for stereotactic surgery	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
C08026	Functional neurosurgery target anatomic site	The anatomic site in the brain nucleus or group of neurons to be intervened for surgery	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
C08064	Lead reposition reason	Reason the lead was repositioned in the participant/subject	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
C18734	Lead reposition reason other text	The free-text field related to 'Lead reposition reason', specifying other text. Reason the lead was repositioned in the participant/subject	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
C18763	Surgical complication post-operative type other text	The free-text field related to 'Surgical complications post-operative type', specifying other text. Type of post-operative surgical complications experienced by the participant/subject	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
C08067	Surgical complication post-operative type	Type of post-operative surgical complications experienced by the participant/subject	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
C18761	Surgical complication intra-operative type other text	The free-text field related to 'Surgical complications intra-operative type', specifying other text. Type of intra-operative surgical complications experienced by the participant/subject	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
C08066	Surgical complication intra-operative type	Type of intra-operative surgical complications experienced by the participant/subject	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease

Displaying 26 - 50 of 2446

« first
‹ previous
1
2
3
4
5
6
7
8
9
…
next ›
last »

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.