CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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CRF Name

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C58677	Gender identity type	Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth.	Core	General Core	False	Parkinson's Disease	Parkinson's Disease
C58676	Birth sex assigned type	Self-reported phenotypic sex of participant/subject, assigned at birth.	Core	General Core	False	Parkinson's Disease	Parkinson's Disease
C08826	Risk Factor Questionnaire (RFQ) - height and weight age 60 body type code	Code for the patient's body type at age 60 according to the pictogram as defined by the Risk Factor Questionnaire (RFQ) - Height and Weight.	Supplemental	Risk Factor Questionnaire (RFQ-U) - Height and Weight	True	Parkinson's Disease	Parkinson's Disease
C18736	Medication prior or concomitant dose unit of measure other text	The free-text field related to 'Medication prior or concomitant dose unit of measure' specifying other text. Dosage unit of measure of the prior or concomitant medication administered.	Supplemental	Parkinson's Disease Medication Log	False	Parkinson's Disease	Parkinson's Disease
C18736	Medication prior or concomitant dose unit of measure other text	The free-text field related to 'Medication prior or concomitant dose unit of measure' specifying other text. Dosage unit of measure of the prior or concomitant medication administered.	Supplemental	Non-Parkinson's Disease Medication Log	False	Parkinson's Disease	Parkinson's Disease
C08039	Electrode brain count	Count of electrodes introduced in the brain	Supplemental	Functional Neurosurgery	False	Parkinson's Disease	Parkinson's Disease
C21919	Geriatric Depression Scale (GDS) Long Form - Depression scale	Scale of depression based on scored count of all depressive answers, as part of the Geriatric Depression Scale Long Form	Supplemental	Geriatric Depression Scale (GDS)	False	Parkinson's Disease	Parkinson's Disease
C21918	Geriatric Depression Scale (GDS) Long Form - Total score	Scored count of all depressive answers, as part of the Geriatric Depression Scale Long Form	Supplemental	Geriatric Depression Scale (GDS)	False	Parkinson's Disease	Parkinson's Disease
C21916	Geriatric Depression Scale (GDS) Long Form - Clear mind indicator	Indicator whether the subject 'mind is as clear as it had used to be(long form) (GDSLF)	Supplemental	Geriatric Depression Scale (GDS)	False	Parkinson's Disease	Parkinson's Disease
C21915	Geriatric Depression Scale (GDS) Long Form - Decision easy indicator	Indicator whether the subject feels it is easy to make decisions(long form) (GDSLF)	Supplemental	Geriatric Depression Scale (GDS)	False	Parkinson's Disease	Parkinson's Disease
C21914	Geriatric Depression Scale (GDS) Long Form - Social gathering avoidance indicator	Indicator whether the subject prefers to avoid social gatherings(long form) (GDSLF)	Supplemental	Geriatric Depression Scale (GDS)	False	Parkinson's Disease	Parkinson's Disease
C21913	Geriatric Depression Scale (GDS) Long Form - Awake enjoy indicator	Indicator whether the subject enjoys getting up in the morning(long form) (GDSLF)	Supplemental	Geriatric Depression Scale (GDS)	False	Parkinson's Disease	Parkinson's Disease
C21912	Geriatric Depression Scale (GDS) Long Form - Concentration trouble indicator	Indicator whether the subject has trouble concentrating(long form) (GDSLF)	Supplemental	Geriatric Depression Scale (GDS)	False	Parkinson's Disease	Parkinson's Disease
C21911	Geriatric Depression Scale (GDS) Long Form - Crying indicator	Indicator whether the subject frequently feels like crying(long form) (GDSLF)	Supplemental	Geriatric Depression Scale (GDS)	False	Parkinson's Disease	Parkinson's Disease
C21909	Geriatric Depression Scale (GDS) Long Form - Little thing upset indicator	Indicator whether the subject frequently gets upset over little things(long form) (GDSLF)	Supplemental	Geriatric Depression Scale (GDS)	False	Parkinson's Disease	Parkinson's Disease
C21908	Geriatric Depression Scale (GDS) Long Form - Project new start difficulty indicator	Indicator whether the subject feels it is hard to get started on new projects(long form) (GDSLF)	Supplemental	Geriatric Depression Scale (GDS)	False	Parkinson's Disease	Parkinson's Disease
C21907	Geriatric Depression Scale (GDS) Long Form - Exciting life indicator	Indicator whether the subject finds life very exciting(long form) (GDSLF)	Supplemental	Geriatric Depression Scale (GDS)	False	Parkinson's Disease	Parkinson's Disease
C21906	Geriatric Depression Scale (GDS) Long Form - Past worry indicator	Indicator whether the subject is worried about the past a lot (long form) (GDSLF)	Supplemental	Geriatric Depression Scale (GDS)	False	Parkinson's Disease	Parkinson's Disease
C21905	Geriatric Depression Scale (GDS) Long Form - Downhearted blue indicator	Indicator whether the subject often feels downhearted and blue (long form) (GDSLF)	Supplemental	Geriatric Depression Scale (GDS)	False	Parkinson's Disease	Parkinson's Disease
C21904	Geriatric Depression Scale (GDS) Long Form - Future worry indicator	Indicator whether the subject is frequently worried about the future (long form) (GDSLF)	Supplemental	Geriatric Depression Scale (GDS)	False	Parkinson's Disease	Parkinson's Disease
C21903	Geriatric Depression Scale (GDS) Long Form - Restless fidgety indicator	Indicator whether the subject often gets restless and fidgety(long form) (GDSLF)	Supplemental	Geriatric Depression Scale (GDS)	False	Parkinson's Disease	Parkinson's Disease
C21902	Geriatric Depression Scale (GDS) Long Form - Bothered indicator	Indicator whether the subject is bothered by the thoughts that can't get out of his or her head(long form) (GDSLF)	Supplemental	Geriatric Depression Scale (GDS)	False	Parkinson's Disease	Parkinson's Disease
C21900	Geriatric Depression Scale (GDS) Long Form - Future hopeful indicator	Indicator whether the subject is hopeful about the future (long form) (GDSLF)	Supplemental	Geriatric Depression Scale (GDS)	False	Parkinson's Disease	Parkinson's Disease
C21126	Insomnia Severity Index (ISI) - Total score	Total score, as part of the Insomnia Severity Index (ISI).	Supplemental	Insomnia Severity Index (ISI)	True	Parkinson's Disease	Parkinson's Disease
C20535	European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Health today scale	Scale of how good or bad the participant's health is today, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L).	Supplemental-Highly Recommended	EuroQoL-5 Dimension Questionnaire (EQ-5D)	True	Parkinson's Disease	Parkinson's Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.