CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth.

Core General Core Parkinson's Disease Parkinson's Disease
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth.

Core General Core Parkinson's Disease Parkinson's Disease
C08826 Risk Factor Questionnaire (RFQ) - height and weight age 60 body type code

Code for the patient's body type at age 60 according to the pictogram as defined by the Risk Factor Questionnaire (RFQ) - Height and Weight.

Supplemental Risk Factor Questionnaire (RFQ-U) - Height and Weight Parkinson's Disease Parkinson's Disease
C18736 Medication prior or concomitant dose unit of measure other text

The free-text field related to 'Medication prior or concomitant dose unit of measure' specifying other text. Dosage unit of measure of the prior or concomitant medication administered.

Supplemental Parkinson's Disease Medication Log Parkinson's Disease Parkinson's Disease
C18736 Medication prior or concomitant dose unit of measure other text

The free-text field related to 'Medication prior or concomitant dose unit of measure' specifying other text. Dosage unit of measure of the prior or concomitant medication administered.

Supplemental Non-Parkinson's Disease Medication Log Parkinson's Disease Parkinson's Disease
C08039 Electrode brain count

Count of electrodes introduced in the brain

Supplemental Functional Neurosurgery Parkinson's Disease Parkinson's Disease
C21919 Geriatric Depression Scale (GDS) Long Form - Depression scale

Scale of depression based on scored count of all depressive answers, as part of the Geriatric Depression Scale Long Form

Supplemental Geriatric Depression Scale (GDS) Parkinson's Disease Parkinson's Disease
C21918 Geriatric Depression Scale (GDS) Long Form - Total score

Scored count of all depressive answers, as part of the Geriatric Depression Scale Long Form

Supplemental Geriatric Depression Scale (GDS) Parkinson's Disease Parkinson's Disease
C21916 Geriatric Depression Scale (GDS) Long Form - Clear mind indicator

Indicator whether the subject 'mind is as clear as it had used to be(long form) (GDSLF)

Supplemental Geriatric Depression Scale (GDS) Parkinson's Disease Parkinson's Disease
C21915 Geriatric Depression Scale (GDS) Long Form - Decision easy indicator

Indicator whether the subject feels it is easy to make decisions(long form) (GDSLF)

Supplemental Geriatric Depression Scale (GDS) Parkinson's Disease Parkinson's Disease
C21914 Geriatric Depression Scale (GDS) Long Form - Social gathering avoidance indicator

Indicator whether the subject prefers to avoid social gatherings(long form) (GDSLF)

Supplemental Geriatric Depression Scale (GDS) Parkinson's Disease Parkinson's Disease
C21913 Geriatric Depression Scale (GDS) Long Form - Awake enjoy indicator

Indicator whether the subject enjoys getting up in the morning(long form) (GDSLF)

Supplemental Geriatric Depression Scale (GDS) Parkinson's Disease Parkinson's Disease
C21912 Geriatric Depression Scale (GDS) Long Form - Concentration trouble indicator

Indicator whether the subject has trouble concentrating(long form) (GDSLF)

Supplemental Geriatric Depression Scale (GDS) Parkinson's Disease Parkinson's Disease
C21911 Geriatric Depression Scale (GDS) Long Form - Crying indicator

Indicator whether the subject frequently feels like crying(long form) (GDSLF)

Supplemental Geriatric Depression Scale (GDS) Parkinson's Disease Parkinson's Disease
C21909 Geriatric Depression Scale (GDS) Long Form - Little thing upset indicator

Indicator whether the subject frequently gets upset over little things(long form) (GDSLF)

Supplemental Geriatric Depression Scale (GDS) Parkinson's Disease Parkinson's Disease
C21908 Geriatric Depression Scale (GDS) Long Form - Project new start difficulty indicator

Indicator whether the subject feels it is hard to get started on new projects(long form) (GDSLF)

Supplemental Geriatric Depression Scale (GDS) Parkinson's Disease Parkinson's Disease
C21907 Geriatric Depression Scale (GDS) Long Form - Exciting life indicator

Indicator whether the subject finds life very exciting(long form) (GDSLF)

Supplemental Geriatric Depression Scale (GDS) Parkinson's Disease Parkinson's Disease
C21906 Geriatric Depression Scale (GDS) Long Form - Past worry indicator

Indicator whether the subject is worried about the past a lot (long form) (GDSLF)

Supplemental Geriatric Depression Scale (GDS) Parkinson's Disease Parkinson's Disease
C21905 Geriatric Depression Scale (GDS) Long Form - Downhearted blue indicator

Indicator whether the subject often feels downhearted and blue (long form) (GDSLF)

Supplemental Geriatric Depression Scale (GDS) Parkinson's Disease Parkinson's Disease
C21904 Geriatric Depression Scale (GDS) Long Form - Future worry indicator

Indicator whether the subject is frequently worried about the future (long form) (GDSLF)

Supplemental Geriatric Depression Scale (GDS) Parkinson's Disease Parkinson's Disease
C21903 Geriatric Depression Scale (GDS) Long Form - Restless fidgety indicator

Indicator whether the subject often gets restless and fidgety(long form) (GDSLF)

Supplemental Geriatric Depression Scale (GDS) Parkinson's Disease Parkinson's Disease
C21902 Geriatric Depression Scale (GDS) Long Form - Bothered indicator

Indicator whether the subject is bothered by the thoughts that can't get out of his or her head(long form) (GDSLF)

Supplemental Geriatric Depression Scale (GDS) Parkinson's Disease Parkinson's Disease
C21900 Geriatric Depression Scale (GDS) Long Form - Future hopeful indicator

Indicator whether the subject is hopeful about the future (long form) (GDSLF)

Supplemental Geriatric Depression Scale (GDS) Parkinson's Disease Parkinson's Disease
C21126 Insomnia Severity Index (ISI) - Total score

Total score, as part of the Insomnia Severity Index (ISI).

Supplemental Insomnia Severity Index (ISI) Parkinson's Disease Parkinson's Disease
C20535 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Health today scale

Scale of how good or bad the participant's health is today, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L).

Supplemental-Highly Recommended EuroQoL-5 Dimension Questionnaire (EQ-5D) Parkinson's Disease Parkinson's Disease
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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.