CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 126 - 150 of 749
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C08101 Pneumonia episode hospitalization indicator

Indicator of whether the participant/subject was hospitalized for the pneumonia episode

Supplemental Infection History Parkinson's Disease Parkinson's Disease
C08233 Drug or substance first illicit use date and time

Date (and time if applicable and known) the participant/subject first used the category of illegal drugs, prescription or over-the-counter drugs

Supplemental Non-prescribed Drug Use Questionnaire Parkinson's Disease Parkinson's Disease
C08109 Preschool start date

Date participant/subject first started preschool

Supplemental History of Early Exposure Parkinson's Disease Parkinson's Disease
C08034 Surgery head position status

Status of the participant's/subject's head position with respect to the horizontal plane during surgery

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C09348 Hamilton Anxiety Rating Scale (HAM-A) - depressed mood score

The score of the participant's/subject's depressed mood, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.

Supplemental Hamilton Anxiety Rating Scale (HAM-A) Parkinson's Disease Parkinson's Disease
C10417 Sialorrhea Clinical Scale for PD (SCS-PD) - sleep saliva score

When you are asleep, how much saliva is there in your mouth? As part of SCS-PD questionnaire

Supplemental Sialorrhea Clinical Scale for Parkinson's Disease (SCS-PD) Parkinson's Disease Parkinson's Disease
C08260 Imaging isotope type

Type of radioactive isotope used for the imaging scan

Supplemental-Highly Recommended PET-SPECT Localization Parkinson's Disease Parkinson's Disease
C09575 Brief Pain Inventory (BPI) - other pain indicator

Indicates if the subject had pain other than everyday kinds of pain, as part of the Brief Pain Inventory (BPI) form

Supplemental Brief Pain Inventory (BPI) Short Form Parkinson's Disease Parkinson's Disease
C08243 Imaging matrix size value

Value representing the imaging matrix size in millimeters

Supplemental-Highly Recommended MRI and Spectroscopy Parkinson's Disease Parkinson's Disease
C09356 Hamilton Anxiety Rating Scale (HAM-A) - autonomic symptom score

The score of the participant's/subject's autonomic symptoms, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.

Supplemental Hamilton Anxiety Rating Scale (HAM-A) Parkinson's Disease Parkinson's Disease
C09592 Brief Psychiatric Rating Scale (BPRS) - emotional withdrawal score

The score of the participant's/subject's emotional withdrawal, as part of the Brief Psychiatric Rating Scale (BPRS) form.

Supplemental Brief Psychiatric Rating Scale (BPRS) Parkinson's Disease Parkinson's Disease
C08268 Imaging volume of interest placement method type

Type of method used for volume of interest (VOI) placement for the imaging data analysis

Supplemental-Highly Recommended PET-SPECT Localization Parkinson's Disease Parkinson's Disease
C09583 Brief Pain Inventory (BPI) - pain general activity interference scale

Scale assessing how much the pain has interfered with general activity, as part of the Brief Pain Inventory (BPI) form

Supplemental Brief Pain Inventory (BPI) Short Form Parkinson's Disease Parkinson's Disease
C09600 Brief Psychiatric Rating Scale (BPRS) - suspiciousness score

The score of the participant's/subject's suspiciousness, as part of the Brief Psychiatric Rating Scale (BPRS) form.

Supplemental Brief Psychiatric Rating Scale (BPRS) Parkinson's Disease Parkinson's Disease
C10183 Thermoregulatory sweat test 30 minutes elapsed room temperature value

Temperature of the room which induced the participant/subject to sweat for 30 minutes during the Thermoregulatory Sweat Test (TST)

Supplemental Other Non-Motor Guidance for CDE Use Parkinson's Disease Parkinson's Disease
C08114 Meningitis or encephalitis history indicator

Indicator of whether the participant/subject has ever had meningitis or encephalitis (brain infection) diagnosed by a physician

Supplemental Infection History Parkinson's Disease Parkinson's Disease
C08234 Drug or substance last illicit use date and time

Date (and time if applicable and known) of the participant's/subject's last use of an unprescribed, controlled psychoactive drugs or substances used by the participant/subject

Supplemental Non-prescribed Drug Use Questionnaire Parkinson's Disease Parkinson's Disease
C08080 Twin sibling indicator

Indicator of whether the participant/subject has a twin brother or sister

Supplemental History of Early Exposure Parkinson's Disease Parkinson's Disease
C08216 Medication prior or concomitant total daily as needed dose measurement

Total daily dose or PRN (as needed) dose of the non-Parkinson's disease (PD) medication taken by the participant/subject

Supplemental Non-Parkinson's Disease Medication Log Parkinson's Disease Parkinson's Disease
C08217 Medication prior taken as needed indicator

Indicator of whether the medication is being taken PRN (as needed)

Supplemental Non-Parkinson's Disease Medication Log Parkinson's Disease Parkinson's Disease
C08110 Preschool end date

Date participant/subject ended preschool

Supplemental History of Early Exposure Parkinson's Disease Parkinson's Disease
C10174 FEV1/FVC percentage value

Forced Expired Volume in One Second (FEV1) volume divided by Forced Vital Capacity (FVC), expressed as percent

Supplemental Other Non-Motor Guidance for CDE Use Parkinson's Disease Parkinson's Disease
C08246 Imaging pre-scan procedure type

Type(s) of pre-scan procedures administered to the participant/subject

Supplemental-Highly Recommended PET-SPECT Localization Parkinson's Disease Parkinson's Disease
C09349 Hamilton Anxiety Rating Scale (HAM-A) - somatic muscular score

The score of the participant's/subject's somatic (muscular) levels, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.

Supplemental Hamilton Anxiety Rating Scale (HAM-A) Parkinson's Disease Parkinson's Disease
C10418 Sialorrhea Clinical Scale for PD (SCS-PD) - awake saliva score

While you are awake, as part of SCS-PD Questionnaire

Supplemental Sialorrhea Clinical Scale for Parkinson's Disease (SCS-PD) Parkinson's Disease Parkinson's Disease
Displaying 126 - 150 of 749

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.