CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 76 - 100 of 759
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C10407 Scale for Outcomes of Parkinsons disease (SCOPA) - sleep night early woken past month scale

Pre-specified scales for early wake-up at night in the past month

 Supplemental-Highly Recommended Scale for Outcomes in Parkinson's Disease-Sleep (SCOPA-SLEEP) True Parkinson's Disease Parkinson's Disease
C08631 Risk Factor Questionnaire (RFQ) - longest occupation 56 65 year first duty text

Text describing the participant's/subject's first of four major tasks or duties at the longest held occupation from the age of 56-65 years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation

 Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status True Parkinson's Disease Parkinson's Disease
C08605 Risk Factor Questionnaire (RFQ) - current job second duty text

Text describing the second of four major duties or tasks at the participant's/subject's current job as part of the Risk Factor Questionnaire (RFQ) - Occupation

 Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status True Parkinson's Disease Parkinson's Disease
C08613 Risk Factor Questionnaire (RFQ) - longest occupation 25 year third duty text

Text describing the participant's/subject's third of four major tasks or duties at the longest held occupation from the age of 0-25 years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation

 Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status True Parkinson's Disease Parkinson's Disease
C08621 Risk Factor Questionnaire (RFQ) - longest occupation 36 45 year first duty text

Text describing the participant's/subject's first of four major tasks or duties at the longest held occupation from the age of 36-45 years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation

 Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status True Parkinson's Disease Parkinson's Disease
C08629 Risk Factor Questionnaire (RFQ) - longest occupation 46 55 year fourth duty text

Text describing the participant's/subject's fourth of four major tasks or duties at the longest held occupation from the age of 46-55 years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation

 Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status True Parkinson's Disease Parkinson's Disease
C10414 Scale for Outcomes of Parkinsons disease (SCOPA) - sleep trouble awake day evening past month frequency

Pre-specified frequencies for trouble staying awake during the day or in the evening in the past month

 Supplemental-Highly Recommended Scale for Outcomes in Parkinson's Disease-Sleep (SCOPA-SLEEP) True Parkinson's Disease Parkinson's Disease
C08589 Risk Factor Questionnaire (RFQ) - military service branch type

The type of branch the participant/subject was in for the longest duration as part of the Risk Factor Questionnaire (RFQ) - Occupation

 Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status True Parkinson's Disease Parkinson's Disease
C08597 Risk Factor Questionnaire (RFQ) - military service prisoner of war indicator

Indicator as to whether the participant/subject was a prisoner of war as part of the Risk Factor Questionnaire (RFQ) - Occupation

 Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status True Parkinson's Disease Parkinson's Disease
C10467 Risk Factor Questionnaire (RFQ) - military service current active status

The status whether the participant/subject is currently active in the military as part of the Risk Factor Questionnaire (RFQ) - Occupation

 Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status True Parkinson's Disease Parkinson's Disease
C09299 Apathy Scale (AS) - Apathetic interviewer scale

The scale related to interviewer's opinion on how apathetic the subject is, as part of the Apathy Scale (AS) form

 Supplemental-Highly Recommended Apathy Scale (AS) True Parkinson's Disease Parkinson's Disease
C10400 Scale for Outcomes of Parkinsons disease (SCOPA) - sleep tablets past month frequency

Pre-specified frequencies of using sleeping tablets in the last month

 Supplemental-Highly Recommended Scale for Outcomes in Parkinson's Disease-Sleep (SCOPA-SLEEP) True Parkinson's Disease Parkinson's Disease
C09307 Apathy Scale (AS) - Seek work scale

The scale related to subject's desire to partake in projects, as part of the Apathy Scale (AS) form

 Supplemental-Highly Recommended Apathy Scale (AS) True Parkinson's Disease Parkinson's Disease
C08632 Risk Factor Questionnaire (RFQ) - longest occupation 56 65 year second duty text

Text describing the participant's/subject's second of four major tasks or duties at the longest held occupation from the age of 56-65 years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation

 Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status True Parkinson's Disease Parkinson's Disease
C08598 Risk Factor Questionnaire (RFQ) - military service prisoner of war city text

The text describing the city the participant/subject was a prisoner of war as part of the Risk Factor Questionnaire (RFQ) - Occupation

 Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status True Parkinson's Disease Parkinson's Disease
C08606 Risk Factor Questionnaire (RFQ) - current job third duty text

Text describing the third of four major duties or tasks at the participant's/subject's current job as part of the Risk Factor Questionnaire (RFQ) - Occupation

 Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status True Parkinson's Disease Parkinson's Disease
C08614 Risk Factor Questionnaire (RFQ) - longest occupation 25 year fourth duty text

Text describing the participant's/subject's fourth of four major tasks or duties at the longest held occupation from the age of 0-25 years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation

 Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status True Parkinson's Disease Parkinson's Disease
C08622 Risk Factor Questionnaire (RFQ) - longest occupation 36 45 year second duty text

Text describing the participant's/subject's second of four major tasks or duties at the longest held occupation from the age of 36-45 years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation

 Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status True Parkinson's Disease Parkinson's Disease
C10415 Scale for Outcomes of Parkinsons disease (SCOPA) - sleep asleep day problem past month frequency

Pre-specified frequencies for falling asleep during the day as a problem in the past month

 Supplemental-Highly Recommended Scale for Outcomes in Parkinson's Disease-Sleep (SCOPA-SLEEP) True Parkinson's Disease Parkinson's Disease
C08590 Risk Factor Questionnaire (RFQ) - military service city station longest text

The text describing the city the participant/subject was stationed in for the longest duration as part of the Risk Factor Questionnaire (RFQ) - Occupation

 Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status True Parkinson's Disease Parkinson's Disease
C09300 Apathy Scale (AS) - Comment text

Comments about the subjects apathetic rating, as part of the Apathy Scale (AS) form

 Supplemental-Highly Recommended Apathy Scale (AS) True Parkinson's Disease Parkinson's Disease
C10401 Scale for Outcomes of Parkinsons disease (SCOPA) - sleep tablets past month name

Names of sleeping tablets used in the last month

 Supplemental-Highly Recommended Scale for Outcomes in Parkinson's Disease-Sleep (SCOPA-SLEEP) True Parkinson's Disease Parkinson's Disease
C09308 Apathy Scale (AS) - Goal scale

The scale related to whether or not the subject has goals and plans for the future, as part of the Apathy Scale (AS) form

 Supplemental-Highly Recommended Apathy Scale (AS) True Parkinson's Disease Parkinson's Disease
C08633 Risk Factor Questionnaire (RFQ) - longest occupation 56 65 year third duty text

Text describing the participant's/subject's third of four major tasks or duties at the longest held occupation from the age of 56-65 years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation

 Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status True Parkinson's Disease Parkinson's Disease
C18037 Imaging radioligand specific activity value indicator

Whether the specific activity value is known

 Supplemental-Highly Recommended PET-SPECT Localization False Parkinson's Disease Parkinson's Disease
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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.