CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Displaying 1 - 25 of 2446
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C16170 Menstrual period occurrence indicator

Indicates whether participant/subject has ever had a menstrual period

Supplemental History of Early Exposure Parkinson's Disease Parkinson's Disease
C52710 Menarche begin age value

The age at which menarche began for the participant/subject

Supplemental History of Early Exposure Parkinson's Disease Parkinson's Disease
C16195 Biological sample in repository specimen type

Type of biological sample or specimen collected and stored in a repository

Supplemental-Highly Recommended Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C17402 Site name

The name of the site for the study

Supplemental Non-Parkinson's Disease Medication Log Parkinson's Disease Parkinson's Disease
C15520 Genetic testing performed indicator

Indicator whether the subject participated in genetic testing

Supplemental-Highly Recommended Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C18027 Comment text

Provide any additional information that pertains to the question

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C15545 Gene nucleotide change name

In cases of an genetic variant or mutation, specify the nucleotide name

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C15549 Gene amino acid change name

In cases of an genetic variant or mutation, specify the amino acid change

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C15557 Gene detection method type

The method used to detect the gene mutation or variant

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C09302 Apathy Scale (AS) - Interest scale

The scale related to subject's interests, as part of the Apathy Scale (AS) form

Supplemental-Highly Recommended Apathy Scale (AS) Parkinson's Disease Parkinson's Disease
C08887 Risk Factor Questionnaire (RFQ-U) - home protective shoes use indicator

The indicator of whether the participant/subject wore chemical resistant boots or shoes more than half the time when personally mixing or applying pesticides as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Home)

Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Home) Parkinson's Disease Parkinson's Disease
C09136 Risk Factor Questionnaire (RFQ-U) - landscaping work 56 65 age indicator

The indicator whether participant/subject worked in landscaping/gardening/groundskeeping from age 56 to 65 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) Parkinson's Disease Parkinson's Disease
C08704 Risk Factor Questionnaire (RFQ) - age 46 55 residential history residence zip code number

Number specifying the participant's/subject's zip code of residence from 46-55 years of age

Supplemental Risk Factor Questionnaire (RFQ) - Residential History Parkinson's Disease Parkinson's Disease
C08971 Risk Factor Questionnaire (RFQ-U) - number years pesticide exposure work 26 35 age count

The total number of years during which participant/subject held a job with pesticide exposure from age 26 to 35 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) Parkinson's Disease Parkinson's Disease
C08847 Risk Factor Questionnaire (RFQ-U) - herbicide exposure birth 25 age indicator

The indicator whether there was exposure to herbicides during the first 25 years of a participant's/subject's life as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Home)

Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Home) Parkinson's Disease Parkinson's Disease
C08749 Risk Factor Questionnaire (RFQ) - stopped using solvents or degreasers value

Age/year the participant stopped using solvents or degreasers as part of the Risk Factor Questionnaire for Toxicants

Supplemental Risk Factor Questionnaire (RFQ) - Toxicants Parkinson's Disease Parkinson's Disease
C09096 Risk Factor Questionnaire (RFQ-U) - work benomyl product use 46 55 age indicator

The indicator whether participant/subject used benomyl products at work from age 46 to 55 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) Parkinson's Disease Parkinson's Disease
C08664 Risk Factor Questionnaire (RFQ) - residential history age 0 17 first residence zip code number

Number specifying the participant's/subject's first zip code of residence

Supplemental Risk Factor Questionnaire (RFQ) - Residential History Parkinson's Disease Parkinson's Disease
C08931 Risk Factor Questionnaire (RFQ-U) - work other fungicide use birth 25 age indicator

The indicator whether participant/subject used other fungicides at work from birth to age 25 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) Parkinson's Disease Parkinson's Disease
C08571 Risk Factor Questionnaire (RFQ) - age stopped regularly taking CCB medication period 1 value

Age when the participant stopped regularly taking CCB medication period 1 as part of the Risk Factor Questionnaire for Nonsteroidal Anti-Inflammatory Drugs (NSAIDS) and Calcium Channel Blockers (CCB)

Supplemental Risk Factor Questionnaire (RFQ) - NSAIDS and Calcium Channel Blockers (CCB) Parkinson's Disease Parkinson's Disease
C10413 Scale for Outcomes of Parkinsons disease (SCOPA) - sleep asleep talk past month frequency

Pre-specified frequencies for falling asleep while talking to someone in the past month

Supplemental-Highly Recommended Scale for Outcomes in Parkinson's Disease-Sleep (SCOPA-SLEEP) Parkinson's Disease Parkinson's Disease
C09310 Apathy Scale (AS) - Energy scale

The scale related to the subject's energy levels, as part of the Apathy Scale (AS) form

Supplemental-Highly Recommended Apathy Scale (AS) Parkinson's Disease Parkinson's Disease
C08895 Risk Factor Questionnaire (RFQ-U) - home sought medical care indicator

The indicator of seeking medical attention after exposure to pesticides as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Home)

Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Home) Parkinson's Disease Parkinson's Disease
C09144 Risk Factor Questionnaire (RFQ-U) - work herbicide use 56 65 age indicator

The indicator whether participant/subject used herbicides at work from age 56 to 65 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) Parkinson's Disease Parkinson's Disease
C08979 Risk Factor Questionnaire (RFQ-U) - work other herbicide use 26 35 age indicator

The indicator whether participant/subject used other herbicides at work from age 26 to 35 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) Parkinson's Disease Parkinson's Disease
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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.