CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2952-C02302	C02302	Adverse event other action take type	Type of action taken due to adverse event other than action taken with study intervention/ treatment	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2952-C02303	C02303	Adverse event outcome status	Final status of the participant related to the adverse event	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2944-C00007	C00007	Birth date	Date (and time, if applicable and known) the participant was born	Core	Demographics	False	Parkinson's Disease	Parkinson's Disease
F1807-C00007	C00007	Birth date	Date (and time, if applicable and known) the participant was born	Core	General Core	False	Parkinson's Disease	Parkinson's Disease
F2944-C58780	C58780	Birth sex assigned type other text	The free-text field related to 'Birth sex assigned type', specifying other text. Self-reported phenotypic sex of participant, assigned at birth	Supplemental	Demographics	False	Parkinson's Disease	Parkinson's Disease
F1807-C58676	C58676	Birth sex assigned type	Self-reported phenotypic sex of participant, assigned at birth	Core	General Core	False	Parkinson's Disease	Parkinson's Disease
F1807-C58780	C58780	Birth sex assigned type other text	The free-text field related to 'Birth sex assigned type', specifying other text. Self-reported phenotypic sex of participant, assigned at birth	Supplemental	General Core	False	Parkinson's Disease	Parkinson's Disease
F2944-C58676	C58676	Birth sex assigned type	Self-reported phenotypic sex of participant, assigned at birth	Core	Demographics	False	Parkinson's Disease	Parkinson's Disease
F2944-C58677	C58677	Gender identity type	Gender identity self-identified by the participant. Gender type may or may not match sex assigned at birth	Core	Demographics	False	Parkinson's Disease	Parkinson's Disease
F1807-C58677	C58677	Gender identity type	Gender identity self-identified by the participant. Gender type may or may not match sex assigned at birth	Core	General Core	False	Parkinson's Disease	Parkinson's Disease
F2944-C58781	C58781	Gender identity type other text	The free-text field related to 'Gender identity type', specifying other text. Gender identity self-identified by the participant. Gender type may or may not match sex assigned at birth	Supplemental	Demographics	False	Parkinson's Disease	Parkinson's Disease
F1807-C58781	C58781	Gender identity type other text	The free-text field related to 'Gender identity type', specifying other text. Gender identity self-identified by the participant. Gender type may or may not match sex assigned at birth	Supplemental	General Core	False	Parkinson's Disease	Parkinson's Disease
F2944-C00020	C00020	Ethnicity USA category	Category of ethnicity the participant most closely identifies with	Core	Demographics	False	Parkinson's Disease	Parkinson's Disease
F1807-C00020	C00020	Ethnicity USA category	Category of ethnicity the participant most closely identifies with	Core	General Core	False	Parkinson's Disease	Parkinson's Disease
F2944-C00030	C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories	Core	Demographics	False	Parkinson's Disease	Parkinson's Disease
F1807-C00030	C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories	Core	General Core	False	Parkinson's Disease	Parkinson's Disease
F2945-C52710	C52710	Menarche begin age value	The age at which menarche began for the participant/subject	Supplemental	History of Early Exposure	False	Parkinson's Disease	Parkinson's Disease
F2953-C17402	C17402	Site name	The name of the site for the study	Supplemental	Non-Parkinson's Disease Medication Log	False	Parkinson's Disease	Parkinson's Disease
F2955-C18027	C18027	Comment text	Provide any additional information that pertains to the question	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2955-C15545	C15545	Gene nucleotide change name	In cases of an genetic variant or mutation, specify the nucleotide name	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2955-C15549	C15549	Gene amino acid change name	In cases of an genetic variant or mutation, specify the amino acid change	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2955-C15557	C15557	Gene detection method type	The method used to detect the gene mutation or variant	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F3040-C10411	C10411	Scale for Outcomes of Parkinsons disease (SCOPA) - sleep asleep sitting past month frequency	Pre-specified frequencies for falling asleep while sitting peacefully in the past month	Supplemental-Highly Recommended	Scale for Outcomes in Parkinson's Disease-Sleep (SCOPA-SLEEP)	True	Parkinson's Disease	Parkinson's Disease
F2169-C08633	C08633	Risk Factor Questionnaire (RFQ) - longest occupation 56 65 year third duty text	Text describing the participant's/subject's third of four major tasks or duties at the longest held occupation from the age of 56-65 years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation	Supplemental-Highly Recommended	Risk Factor Questionnaire (RFQ) - Occupation and Employment Status	True	Parkinson's Disease	Parkinson's Disease
F2806-C09300	C09300	Apathy Scale (AS) - Comment text	Comments about the subjects apathetic rating, as part of the Apathy Scale (AS) form	Supplemental-Highly Recommended	Apathy Scale (AS)	True	Parkinson's Disease	Parkinson's Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.