CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Show All
Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 1 - 25 of 2446
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C16170 Menstrual period occurrence indicator

Indicates whether participant/subject has ever had a menstrual period

 Supplemental History of Early Exposure False Parkinson's Disease Parkinson's Disease
C52710 Menarche begin age value

The age at which menarche began for the participant/subject

 Supplemental History of Early Exposure False Parkinson's Disease Parkinson's Disease
C16195 Biological sample in repository specimen type

Type of biological sample or specimen collected and stored in a repository

 Supplemental-Highly Recommended Parkinson's Disease Genetics False Parkinson's Disease Parkinson's Disease
C17402 Site name

The name of the site for the study

 Supplemental Non-Parkinson's Disease Medication Log False Parkinson's Disease Parkinson's Disease
C15520 Genetic testing performed indicator

Indicator whether the subject participated in genetic testing

 Supplemental-Highly Recommended Parkinson's Disease Genetics False Parkinson's Disease Parkinson's Disease
C18027 Comment text

Provide any additional information that pertains to the question

 Supplemental Parkinson's Disease Genetics False Parkinson's Disease Parkinson's Disease
C15545 Gene nucleotide change name

In cases of an genetic variant or mutation, specify the nucleotide name

 Supplemental Parkinson's Disease Genetics False Parkinson's Disease Parkinson's Disease
C15549 Gene amino acid change name

In cases of an genetic variant or mutation, specify the amino acid change

 Supplemental Parkinson's Disease Genetics False Parkinson's Disease Parkinson's Disease
C15557 Gene detection method type

The method used to detect the gene mutation or variant

 Supplemental Parkinson's Disease Genetics False Parkinson's Disease Parkinson's Disease
C09145 Risk Factor Questionnaire (RFQ-U) - broadleaf herbicide exposure 56 65 age indicator

The indicator whether participant/subject used broadleaf herbicide products containing 2,4-Dichlorophenoxyacetic acid (2,4-D) at work from age 56 to 65 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Parkinson's Disease Parkinson's Disease
C08980 Risk Factor Questionnaire (RFQ-U) - work other herbicide use 26 35 age text

The description of any other herbicides used at work from age 26 to 35 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Parkinson's Disease Parkinson's Disease
C08856 Risk Factor Questionnaire (RFQ-U) - insecticide exposure 36 45 age frequency

The frequency of exposure to insecticides from ages 36 to 45 in a participant's/subject's life as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Home)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Home) True Parkinson's Disease Parkinson's Disease
C08758 Risk Factor Questionnaire (RFQ) - use trichloroethylene or PERC indicator

Ever use trichloroethylene or PERC (perchloroethylene) as part of the Risk Factor Questionnaire for Toxicants

 Supplemental Risk Factor Questionnaire (RFQ) - Toxicants True Parkinson's Disease Parkinson's Disease
C09105 Risk Factor Questionnaire (RFQ-U) - work aldrin product use 46 55 age indicator

The indicator whether participant/subject used aldrin products at work from age 46 to 55 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Parkinson's Disease Parkinson's Disease
C08673 Risk Factor Questionnaire (RFQ) - age 18 25 residential history residence state text

Text specifying the participant's/subject's state of residence from 18-25 years of age

 Supplemental Risk Factor Questionnaire (RFQ) - Residential History True Parkinson's Disease Parkinson's Disease
C08940 Risk Factor Questionnaire (RFQ-U) - work parathion product use birth 25 age indicator

The indicator whether participant/subject used parathion products at work from birth to age 25 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticide (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Parkinson's Disease Parkinson's Disease
C08580 Risk Factor Questionnaire (RFQ) - years not regularly taking other CCB medication indicator

Periods of a year or more when the participant did NOT regularly take other CCB medication as part of the Risk Factor Questionnaire for Nonsteroidal Anti-Inflammatory Drugs (NSAIDS) and Calcium Channel Blockers (CCB)

 Supplemental Risk Factor Questionnaire (RFQ) - NSAIDS and Calcium Channel Blockers (CCB) True Parkinson's Disease Parkinson's Disease
C18100 Quality of Life in Swallowing Disorders (SWAL-QOL) - age value

Age of the subject, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL)

 Supplemental Quality of Life in Swallowing Disorders (SWAL-QOL) True Parkinson's Disease Parkinson's Disease
C17369 Parkinson's Disease Quality of Life (PDQUALIF) - constipation scale

Rating scale for constipation problem as part of Parkinson's Disease Quality of Life (PDQUALIF) form

 Supplemental Parkinson's Disease Quality of Life Scale (PDQUALIF) True Parkinson's Disease Parkinson's Disease
C09153 Risk Factor Questionnaire (RFQ-U) - work benomyl product use 56 65 age indicator

The indicator whether participant/subject used benomyl products at work from age 56 to 65 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Parkinson's Disease Parkinson's Disease
C08988 Risk Factor Questionnaire (RFQ-U) - work other fungicide use 26 35 age indicator

The indicator whether participant/subject used other fungicides at work from age 26 to 35 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Parkinson's Disease Parkinson's Disease
C08864 Risk Factor Questionnaire (RFQ-U) - fungicide exposure 46 55 age frequency

The frequency of exposure to fungicides from ages 46 to 55 in a participant's/subject's life as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Home)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Home) True Parkinson's Disease Parkinson's Disease
C08766 Risk Factor Questionnaire (RFQ) - use Stoddard solvent indicator

Ever use Stoddard solvent as part of the Risk Factor Questionnaire for Toxicants

 Supplemental Risk Factor Questionnaire (RFQ) - Toxicants True Parkinson's Disease Parkinson's Disease
C09113 Risk Factor Questionnaire (RFQ-U) - work rotenone product use 46 55 age indicator

The indicator whether participant/subject used rotenone products at work from age 46 to 55 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Parkinson's Disease Parkinson's Disease
C08681 Risk Factor Questionnaire (RFQ) - age 26 35 residential history residence duration

Duration at residence lived from ages 26-35

 Supplemental Risk Factor Questionnaire (RFQ) - Residential History True Parkinson's Disease Parkinson's Disease
Displaying 1 - 25 of 2446

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.