CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 126 - 150 of 749
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C08515 36-item Short Form Health Survey (SF-36) - Limited work activities physical health indicator

Indicator for surveyee-reported limited work or activities as a result of physical health during past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Supplemental-Highly Recommended Short Form 36-Item Health Survey (SF-36) Parkinson's Disease Parkinson's Disease
C02003 Medication prior or concomitant ongoing indicator

Indicator of or description that the prior/concomitant medication usage is ongoing

Supplemental Non-Parkinson's Disease Medication Log Parkinson's Disease Parkinson's Disease
C08232 Drug or substance illicit use ever indicator

Indicator of participant's/subject's use of illegal drugs, prescription or over-the-counter drugs at any point in his/her lifetime for purposes other than those for which they are meant to be used, or in large amounts

Supplemental Non-prescribed Drug Use Questionnaire Parkinson's Disease Parkinson's Disease
C59053 Imaging quantitative outcome indicator

Indicator of use of a quantitative outcome to describe tracer distribution and uptake for the imaging data analysis

Supplemental PET-SPECT Localization Parkinson's Disease Parkinson's Disease
C59082 Brain family member available indicator

Indicator of whether a brain of the participant's/subject's family member is available in a repository

Supplemental-Highly Recommended Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C57934 Imaging multiband use indicator

Indicator of whether a multiband method is used in imaging acquisition

Supplemental-Highly Recommended MRI and Spectroscopy Parkinson's Disease Parkinson's Disease
C59034 Imaging multiecho indicator

Indicator of whether a multiecho method is used in imaging acquisition

Supplemental-Highly Recommended MRI and Spectroscopy Parkinson's Disease Parkinson's Disease
C08042 Surgery externalization use indicator

Indicator of whether a procedure of exposing the implanted electrodes out of the brain for stimulation purposes was performed

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C12807 Gene second disease allele indicator

Indicator of whether a second disease allele was identified

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C12818 Gene second allele identical indicator

Indicator of whether allele #2 is identical to allele #1

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C08046 Medication anti-Parkinsonian reduced after surgery indicator

Indicator of whether anti-Parkinsonism medication(s) were reduced following optimization (X weeks after surgery)

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C59048 Imaging deadtime correction indicator

Indicator of whether imaging deadtime correction was used

Supplemental-Highly Recommended PET-SPECT Localization Parkinson's Disease Parkinson's Disease
C59049 Imaging randoms correction indicator

Indicator of whether imaging randoms correction was used

Supplemental-Highly Recommended PET-SPECT Localization Parkinson's Disease Parkinson's Disease
C59047 Imaging scatter correction indicator

Indicator of whether imaging scatter correction was used

Supplemental-Highly Recommended PET-SPECT Localization Parkinson's Disease Parkinson's Disease
C59169 Gene promoter affect exon deleted duplicated indicator

Indicator of whether known gene promoters were affected by exonic deletions/duplications

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C12802 Gene variant mutation mRNA analysis performed indicator

Indicator of whether messenger ribonucleic acid (mRNA) analysis was performed

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C59051 Imaging MRI acquire co-registration indicator

Indicator of whether MRI was acquired for co-registration with the imaging study being documented.

Supplemental-Highly Recommended PET-SPECT Localization Parkinson's Disease Parkinson's Disease
C59037 Medication Parkinsons disease indicator

Indicator of whether participant/subject is taking medication for Parkinson's disease

Supplemental-Highly Recommended MRI and Spectroscopy Parkinson's Disease Parkinson's Disease
C59037 Medication Parkinsons disease indicator

Indicator of whether participant/subject is taking medication for Parkinson's disease

Supplemental-Highly Recommended PET-SPECT Localization Parkinson's Disease Parkinson's Disease
C59108 Stereotactic surgery robotic guidance lead insert indicator

Indicator of whether robotic guidance was used during stereotactic surgery for lead insertion

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C59102 Data aggregate-level General Research Use appropriate indicator

Indicator of whether the aggregate-level data is appropriate for General Research Use

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C12788 Gene exon copy number tested indicator

Indicator of whether the copy number was directly tested for all exons

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C12795 Gene coding region sequenced indicator

Indicator of whether the entire coding region was sequenced for the allele of the gene for missense/nonsense variant or point mutations or pseudoexons

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C12789 Gene deletions duplications limits clearly defined indicator

Indicator of whether the limits of deletions and duplications are defined

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C08217 Medication prior taken as needed indicator

Indicator of whether the medication is being taken PRN (as needed)

Supplemental Non-Parkinson's Disease Medication Log Parkinson's Disease Parkinson's Disease
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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.