CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 101 - 125 of 759
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C08003 Family history relative type Parkinsons disease parkinsonism member count

Count of family members and ancestors, for the specified relative type, with Parkinson's disease (PD) or Parkinsonism

Core Family History Parkinson's Disease Parkinson's Disease
C59030 Family history relative type psychiatric disorder member count

Count of family members and ancestors, for the specified relative type, with a psychiatric disorder(s)

Supplemental Family History Parkinson's Disease Parkinson's Disease
C08005 Family history relative type Parkinsons disease parkinsonism other neurological disorder member count

Count of family members and ancestors, for the specified relative type, with Parkinson's disease (PD) or Parkinsonism and other neurological disorder(s)

Core Family History Parkinson's Disease Parkinson's Disease
C17405 Family history relative type neurological disorder not parkinsonian count

Count of family members and ancestors, for the specified relative type, with a neurological disorder(s) other than Parkinson's Disease or Parkinsonism

Core Family History Parkinson's Disease Parkinson's Disease
C18679 Family history medical condition relative type other text

The free-text field related to 'Family history medical condition relative type', specifying other text. Relationship of the family member or ancestor with the medical condition or health related event to the participant

Supplemental Family History Parkinson's Disease Parkinson's Disease
C00722 Family history medical condition relative type

Relationship of the family member or ancestor with the medical condition or health related event to the participant

Core Family History Parkinson's Disease Parkinson's Disease
C08000 Family history relative type total membercount

Count of total family members and ancestors for the specified relative type

Core Family History Parkinson's Disease Parkinson's Disease
C59027 Family history relative type healthy member count

Count of family members and ancestors, for the specified relative type, that are healthy

Supplemental Family History Parkinson's Disease Parkinson's Disease
C08001 Family history relative type biological sample in repository indicator

Indicator of whether the participant's family member has donated biological sample(s) to a repository

Supplemental Family History Parkinson's Disease Parkinson's Disease
C59585 Dyskinesia troublesome month duration

Duration in months of troublesome dyskinesias at the time of surgery

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C59122 Brain lead intercontact space interval type

Type of intercontact spacing interval for the implanted brain leads (between ends of contacts, not centers)

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C59130 Stimulation brain parameter negative contact text

Text related to negative contact brain stimulation parameters

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C59138 Stimulation brain paradigm type other text

The free-text field related to 'Stimulation brain paradigm type', specifying other text. Type of brain stimulation paradigm

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C59089 Deep brain stimulation indication type medication side effect other text

The free text field related to 'Deep brain stimulation indication type', specifying other medication side effects

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C59147 Adverse event treatment specify text

The free-text field to specify the treatment required for the adverse event other than action taken with study intervention/ treatment

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C59100 Functional neurosurgery target anatomic site multiple ipsilateral lead specify text

The free-text field to specify the anatomic site targets when multiple ipsilateral leads are used in functional neurosurgery procedure

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C59155 Pulse generator replacement manipulation count

Count of pulse generators replaced or manipulated

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C59110 Surgery intra-operative target verify lead placement MRI type

Type of magnetic resonance imaging (MRI) intra-operative target verification in relation to time of lead placement surgery

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C08026 Functional neurosurgery target anatomic site

The anatomic site in the brain nucleus or group of neurons to be intervened for surgery

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C08039 Electrode brain count

Count of electrodes introduced in the brain

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C08064 Lead reposition reason

Reason the lead was repositioned in the participant/subject

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C18755 Stereotactic surgery frame type other text

The free-text field related to 'Stereotactic surgery frame type', specifying other text. Scaffold or support used for stereotactic surgery

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C59086 Motor fluctuation year duration

Duration in years of motor fluctuations at the time of surgery

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C02303 Adverse event outcome status

Final status of the participant/subject related to the adverse event

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C59111 Microelectrode record microstimulation sedation type

Type of sedation used during microelectrode recording or microstimulation for intra-operative target verification

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
Displaying 101 - 125 of 759

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.