CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 676 - 700 of 749

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2169-C08611	C08611	Risk Factor Questionnaire (RFQ) - longest occupation 25 year first duty text	Text describing the participant's/subject's first of four major tasks or duties at the longest held occupation from the age of 0-25 years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation	Supplemental-Highly Recommended	Risk Factor Questionnaire (RFQ) - Occupation and Employment Status	True	Parkinson's Disease	Parkinson's Disease
F2169-C08619	C08619	Risk Factor Questionnaire (RFQ) - longest occupation 26 35 year fourth duty text	Text describing the participant's/subject's fourth of four major tasks or duties at the longest held occupation from the age of 26-35 years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation	Supplemental-Highly Recommended	Risk Factor Questionnaire (RFQ) - Occupation and Employment Status	True	Parkinson's Disease	Parkinson's Disease
F2169-C08627	C08627	Risk Factor Questionnaire (RFQ) - longest occupation 46 55 year second duty text	Text describing the participant's/subject's second of four major tasks or duties at the longest held occupation from the age of 46-55 years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation	Supplemental-Highly Recommended	Risk Factor Questionnaire (RFQ) - Occupation and Employment Status	True	Parkinson's Disease	Parkinson's Disease
F2169-C08587	C08587	Risk Factor Questionnaire (RFQ) - military service age stop value	The value indicating the participant's/subject's age they ceased to be active in the military as part of the Risk Factor Questionnaire (RFQ) - Occupation	Supplemental-Highly Recommended	Risk Factor Questionnaire (RFQ) - Occupation and Employment Status	True	Parkinson's Disease	Parkinson's Disease
F2169-C08595	C08595	Risk Factor Questionnaire (RFQ) - military service combat state station longest text	The text describing the state the participant/subject was in combat for the longest duration as part of the Risk Factor Questionnaire (RFQ) - Occupation	Supplemental-Highly Recommended	Risk Factor Questionnaire (RFQ) - Occupation and Employment Status	True	Parkinson's Disease	Parkinson's Disease
F2169-C08634	C08634	Risk Factor Questionnaire (RFQ) - longest occupation 56 65year fourth duty text	Text describing the participant's/subject's fourth of four major tasks or duties at the longest held occupation from the age of 56-65 years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation	Supplemental-Highly Recommended	Risk Factor Questionnaire (RFQ) - Occupation and Employment Status	True	Parkinson's Disease	Parkinson's Disease
F2169-C17693	C17693	Risk Factor Questionnaire (RFQ) - military service year stop date	The date the participant's/subject's ceased to be active in the military as part of the Risk Factor Questionnaire (RFQ) - Occupation	Supplemental-Highly Recommended	Risk Factor Questionnaire (RFQ) - Occupation and Employment Status	True	Parkinson's Disease	Parkinson's Disease
F2169-C08604	C08604	Risk Factor Questionnaire (RFQ) - current job first duty text	Text describing the first of four major duties or tasks at the participant's/subject's current job as part of the Risk Factor Questionnaire (RFQ) - Occupation	Supplemental-Highly Recommended	Risk Factor Questionnaire (RFQ) - Occupation and Employment Status	True	Parkinson's Disease	Parkinson's Disease
F2169-C08612	C08612	Risk Factor Questionnaire (RFQ) - longest occupation 25 year second duty text	Text describing the participant's/subject's second of four major tasks or duties at the longest held occupation from the age of 0-25 years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation	Supplemental-Highly Recommended	Risk Factor Questionnaire (RFQ) - Occupation and Employment Status	True	Parkinson's Disease	Parkinson's Disease
F2169-C08620	C08620	Risk Factor Questionnaire (RFQ) - longest occupation 36 45 year text	Text describing the participant's/subject's longest held occupation from the age of 36-45 years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation	Supplemental-Highly Recommended	Risk Factor Questionnaire (RFQ) - Occupation and Employment Status	True	Parkinson's Disease	Parkinson's Disease
F2169-C08628	C08628	Risk Factor Questionnaire (RFQ) - longest occupation 46 55 year third duty text	Text describing the participant's/subject's third of four major tasks or duties at the longest held occupation from the age of 46-55 years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation	Supplemental-Highly Recommended	Risk Factor Questionnaire (RFQ) - Occupation and Employment Status	True	Parkinson's Disease	Parkinson's Disease
F2169-C08588	C08588	Risk Factor Questionnaire (RFQ) - military service longest job text	Text describing the participant's/subject's longest held job while active in the military as part of the Risk Factor Questionnaire (RFQ) - Occupation	Supplemental-Highly Recommended	Risk Factor Questionnaire (RFQ) - Occupation and Employment Status	True	Parkinson's Disease	Parkinson's Disease
F2169-C08596	C08596	Risk Factor Questionnaire (RFQ) - military service combat country station longest text	The text describing the country the participant/subject was in combat for the longest duration as part of the Risk Factor Questionnaire (RFQ) - Occupation	Supplemental-Highly Recommended	Risk Factor Questionnaire (RFQ) - Occupation and Employment Status	True	Parkinson's Disease	Parkinson's Disease
F2169-C08635	C08635	Risk Factor Questionnaire (RFQ) - longest occupation over 65 year text	Text describing the participant's/subject's longest held occupation from the age of 66+ years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation	Supplemental-Highly Recommended	Risk Factor Questionnaire (RFQ) - Occupation and Employment Status	True	Parkinson's Disease	Parkinson's Disease
F2169-C17694	C17694	Risk Factor Questionnaire (RFQ) - retired year date	Date the participant/subject retired as part of the Risk Factor Questionnaire (RFQ) - Occupation	Supplemental-Highly Recommended	Risk Factor Questionnaire (RFQ) - Occupation and Employment Status	True	Parkinson's Disease	Parkinson's Disease
F3040-C10412	C10412	Scale for Outcomes of Parkinsons disease (SCOPA) - sleep asleep watch read past month frequency	Pre-specified frequencies for falling asleep peacefully while watching TV or reading in the past month	Supplemental-Highly Recommended	Scale for Outcomes in Parkinson's Disease-Sleep (SCOPA-SLEEP)	True	Parkinson's Disease	Parkinson's Disease
F3040-C10406	C10406	Scale for Outcomes of Parkinsons disease (SCOPA) - sleep night lying-awake past month scale	Pre-specified scales for lying awake at night in the past month	Supplemental-Highly Recommended	Scale for Outcomes in Parkinson's Disease-Sleep (SCOPA-SLEEP)	True	Parkinson's Disease	Parkinson's Disease
F3040-C10413	C10413	Scale for Outcomes of Parkinsons disease (SCOPA) - sleep asleep talk past month frequency	Pre-specified frequencies for falling asleep while talking to someone in the past month	Supplemental-Highly Recommended	Scale for Outcomes in Parkinson's Disease-Sleep (SCOPA-SLEEP)	True	Parkinson's Disease	Parkinson's Disease
F3040-C10407	C10407	Scale for Outcomes of Parkinsons disease (SCOPA) - sleep night early woken past month scale	Pre-specified scales for early wake-up at night in the past month	Supplemental-Highly Recommended	Scale for Outcomes in Parkinson's Disease-Sleep (SCOPA-SLEEP)	True	Parkinson's Disease	Parkinson's Disease
F3040-C10414	C10414	Scale for Outcomes of Parkinsons disease (SCOPA) - sleep trouble awake day evening past month frequency	Pre-specified frequencies for trouble staying awake during the day or in the evening in the past month	Supplemental-Highly Recommended	Scale for Outcomes in Parkinson's Disease-Sleep (SCOPA-SLEEP)	True	Parkinson's Disease	Parkinson's Disease
F3040-C10400	C10400	Scale for Outcomes of Parkinsons disease (SCOPA) - sleep tablets past month frequency	Pre-specified frequencies of using sleeping tablets in the last month	Supplemental-Highly Recommended	Scale for Outcomes in Parkinson's Disease-Sleep (SCOPA-SLEEP)	True	Parkinson's Disease	Parkinson's Disease
F3040-C10415	C10415	Scale for Outcomes of Parkinsons disease (SCOPA) - sleep asleep day problem past month frequency	Pre-specified frequencies for falling asleep during the day as a problem in the past month	Supplemental-Highly Recommended	Scale for Outcomes in Parkinson's Disease-Sleep (SCOPA-SLEEP)	True	Parkinson's Disease	Parkinson's Disease
F3040-C10401	C10401	Scale for Outcomes of Parkinsons disease (SCOPA) - sleep tablets past month name	Names of sleeping tablets used in the last month	Supplemental-Highly Recommended	Scale for Outcomes in Parkinson's Disease-Sleep (SCOPA-SLEEP)	True	Parkinson's Disease	Parkinson's Disease
F3040-C10408	C10408	Scale for Outcomes of Parkinsons disease (SCOPA) - sleep night little sleep past month scale	Pre-specified scales for too little sleep at night in the past month	Supplemental-Highly Recommended	Scale for Outcomes in Parkinson's Disease-Sleep (SCOPA-SLEEP)	True	Parkinson's Disease	Parkinson's Disease
F3040-C10402	C10402	Scale for Outcomes of Parkinsons disease (SCOPA) - sleep tablets past month total dose	Total dose of sleeping tablets used in the last month	Supplemental-Highly Recommended	Scale for Outcomes in Parkinson's Disease-Sleep (SCOPA-SLEEP)	True	Parkinson's Disease	Parkinson's Disease

Displaying 676 - 700 of 749

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.