CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 2351 - 2375 of 2446
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C10006 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - leg agility left leg score

Score for the participant's/subject's left leg agility evaluating speed, amplitude, hesitations, halts and decrementing amplitude

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C18607 Unified Parkinson's Disease Rating Scale (UPDRS) - Schwab England daily living with dyskinesia scale

Schwab and England Activities of Daily Living Scale with dyskinesia

 Core Unified Parkinson's Disease Rating Scale (UPDRS) True Parkinson's Disease Parkinson's Disease
C09906 Unified Parkinson's Disease Rating Scale (UPDRS) - right hand action tremor scale

Subjects action or postural tremor of hands as part of Unified Parkinsons Disease Rating Scale (UPDRS)

 Core Unified Parkinson's Disease Rating Scale (UPDRS) True Parkinson's Disease Parkinson's Disease
C09914 Unified Parkinson's Disease Rating Scale (UPDRS) - gait scale

Subject's gait as part of Unified Parkinsons Disease Rating Scale (UPDRS)

 Core Unified Parkinson's Disease Rating Scale (UPDRS) True Parkinson's Disease Parkinson's Disease
C00722 Family history medical condition relative type

Relationship of the family member or ancestor with the medical condition or health related event to the participant/subject

 Core Family History False Parkinson's Disease Parkinson's Disease
C09922 Unified Parkinson's Disease Rating Scale (UPDRS) - unpredictable off period indicator

Indicator for the predictability of off periods as part of Unified Parkinsons Disease Rating Scale (UPDRS)

 Core Unified Parkinson's Disease Rating Scale (UPDRS) True Parkinson's Disease Parkinson's Disease
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

 Core General Core False Parkinson's Disease Parkinson's Disease
C09960 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - hallucination psychosis score

Score of the participant's/subject's hallucination and psychosis considering both illusions and hallucinations, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C18591 Unified Parkinson Disease Rating Scale (UPDRS) - face lips chin tremor at rest scale

Subject's tremor level at rest in the participant's face, lips or chin as part of Unified Parkinsons Disease Rating Scale (UPDRS)

 Core Unified Parkinson's Disease Rating Scale (UPDRS) True Parkinson's Disease Parkinson's Disease
C09968 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - pain other sensations score

Score for the participant's/subject's level of pain and other sensations, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C08007 Diagnosis first given date and time

Date (and time if applicable and known) the participant/subject was initially diagnosed with the disease or disorder

 Core Medical History of Parkinson's Disease False Parkinson's Disease Parkinson's Disease
C18599 Unified Parkinson Disease Rating Scale (UPDRS) - right lower extremity rigidity scale

Subject's rigidity in the right lower extremity as judged on passive movement of major joints with patient relaxed in sitting position as part of Unified Parkinsons Disease Rating Scale (UPDRS)

 Core Unified Parkinson's Disease Rating Scale (UPDRS) True Parkinson's Disease Parkinson's Disease
C09900 Unified Parkinson's Disease Rating Scale (UPDRS) - walking scale

Subjects ability to walk as part of Unified Parkinsons Disease Rating Scale (UPDRS)

 Core Unified Parkinson's Disease Rating Scale (UPDRS) True Parkinson's Disease Parkinson's Disease
C10015 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - kinetic tremor right hand score

Score for the participant's/subject's level of kinetic tremor of the right hand observing the highest amplitude seen, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C09975 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - chew swallow score

Score for the participant's/subject's ability to chew and swallow food, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C10023 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - dyskinesia chorea or dystonia presence score

Indicator for whether the participant's/subject's had any dyskinesia (chorea or dystonia) present during examination, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C09983 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - get out bed car deep chair score

Score for the participant's/subject's ability to get out of bed, a car, or a deep chair, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C10031 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - time spent in off state score

Score for the participant's/subject's level of complexity of motor fluctuations, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C09991 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - facial expression score

Score for the participant's/subject's ability to make facial expressions observing the eye-blink frequency, masked faces or loss of facial expression, spontaneous smiling and parting of lips, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C10039 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - total hour off with dystonia number

Number of total hours that the participant/subject is Off with dystonia, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C09999 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - right hand movement score

Score for the participant's/subject's ability to move the right hand evaluating speed, amplitude, hesitations, halts and decrementing amplitude, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C09892 Unified Parkinson's Disease Rating Scale (UPDRS) - swallowing scale

Subjects swallowing ability as part of Unified Parkinsons Disease Rating Scale (UPDRS)

 Core Unified Parkinson's Disease Rating Scale (UPDRS) True Parkinson's Disease Parkinson's Disease
C10007 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - arise from chair score

Score for the participant's/subject's ability to arise from a chair observing the posture, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C09907 Unified Parkinson's Disease Rating Scale (UPDRS) - neck rigidity scale

Subjects rigidity judged on passive movement of major joints with patient relaxed in sitting position as part of Unified Parkinsons Disease Rating Scale (UPDRS)

 Core Unified Parkinson's Disease Rating Scale (UPDRS) True Parkinson's Disease Parkinson's Disease
C09915 Unified Parkinson's Disease Rating Scale (UPDRS) - postural stability scale

Subject's postural stability as part of Unified Parkinsons Disease Rating Scale (UPDRS)

 Core Unified Parkinson's Disease Rating Scale (UPDRS) True Parkinson's Disease Parkinson's Disease
Displaying 2351 - 2375 of 2446

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.