CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 2251 - 2275 of 2446
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C09877 Food Frequency Questionnaire - (FFQ)-egg use ten years indicator

Indicator of how the subjects use of eggs changed over the past ten years, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Parkinson's Disease Parkinson's Disease
C09409 Rome III Constipation Module (RCM3) - vomit 3 episode past year indicator

The indicator for whether the participant has had at least 3 vomiting episodes in the past year, as a part of Rome III Constipation Module (RCM3)

 Supplemental Rome III/IV Constipation Module True Parkinson's Disease Parkinson's Disease
C09932 World Health Organization Quality of Life (WHOQOL-BREF) - physical pain prevent work scale

Scale used to assess the extent to which pain prevents the participant from doing what needs to be done, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

 Supplemental World Health Organization Quality of Life Assessment (WHOQOL-BREF) True Parkinson's Disease Parkinson's Disease
C59100 Functional neurosurgery target anatomic site multiple ipsilateral lead specify text

The free-text field to specify the anatomic site targets when multiple ipsilateral leads are used in functional neurosurgery procedure

 Supplemental Functional Neurosurgery: Deep Brain Stimulation False Parkinson's Disease Parkinson's Disease
C09712 Food Frequency Questionnaire - (FFQ)-specific brand margarine spreadable butter indicator

Specific brand and type of margarine or spreadable butter the subjects usually uses, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Parkinson's Disease Parkinson's Disease
C20364 Pittsburgh Sleep Quality Index (PSQI) - Bad dream past month scale

The scale to which the subject had bad dreams during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

 Supplemental Pittsburgh Sleep Quality Index (PSQI) False Parkinson's Disease Parkinson's Disease
C09602 Brief Psychiatric Rating Scale (BPRS) - motor retardation score

The score of the participant's/subject's motor retardation, as part of the Brief Psychiatric Rating Scale (BPRS) form.

 Supplemental Brief Psychiatric Rating Scale (BPRS) False Parkinson's Disease Parkinson's Disease
C09837 Food Frequency Questionnaire - (FFQ)-fat free reduced sweet roll coffee cake other pastry indicator

Average total amount of fat free or reduced fat sweet roll, coffee cake or other pastry, the subject ate this past year, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Parkinson's Disease Parkinson's Disease
C15549 Gene amino acid change name

In cases of an genetic variant or mutation, specify the amino acid change

 Supplemental Parkinson's Disease Genetics False Parkinson's Disease Parkinson's Disease
C10051 Mini Nutritional Assessment (MNA) - full meal eat daily score

The score for how many full meals the participant eats daily as part of MNA form

 Supplemental Mini Nutritional Assessment (MNA) True Parkinson's Disease Parkinson's Disease
C17229 Swallowing Disturbance Questionnaire (SwDQ) - chew food dribble from mouth score

Score for how frequent the participant/subject chews up food dribble from the mouth, as a part of Swallowing Disturbance Questionnaire (SDQ)

 Supplemental Swallowing Disturbance Questionnaire (SDQ) True Parkinson's Disease Parkinson's Disease
C08034 Surgery head position status

Status of the participant's/subject's head position with respect to the horizontal plane during surgery

 Supplemental Functional Neurosurgery: Deep Brain Stimulation False Parkinson's Disease Parkinson's Disease
C09672 Food Frequency Questionnaire - (FFQ)-selenium indicator

Selenium indicator, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Parkinson's Disease Parkinson's Disease
C20429 Beck Depression Inventory II (BDI-II) - Suicidal thought wish scale

Scale identifying level of suicidal thoughts or wishes, as part of the Beck Depression Inventory II (BDI-II)

 Supplemental Beck Depression Inventory II (BDI-II) True Parkinson's Disease Parkinson's Disease
C09235 Risk Factor Questionnaire (RFQ-U) - work other fumigant use 66 onward age indicator

The indicator whether participant/subject used other fumigants at work from age 66 onward as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Parkinson's Disease Parkinson's Disease
C08099 Pneumonia history indicator

Indicator of whether the participant/subject has ever had pneumonia diagnosed by a physician

 Supplemental Infection History False Parkinson's Disease Parkinson's Disease
C09070 Risk Factor Questionnaire (RFQ-U) - work pesticide exposure other 46 55 age indicator

The indicator whether work exposure to pesticides from age 46 to 55 was other than through mixed or applied pesticides as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Parkinson's Disease Parkinson's Disease
C08905 Risk Factor Questionnaire (RFQ-U) - farm ranch pesticide exposure animals birth 25 age text

The description of any pesticides used on livestock/farm animals while working in farming or ranching from birth to age 25 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Parkinson's Disease Parkinson's Disease
C09195 Risk Factor Questionnaire (RFQ-U) - pest control work 66 onward age indicator

The indicator whether participant/subject worked in pest control or as an exterminator from age 66 onward as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Parkinson's Disease Parkinson's Disease
C08545 Risk Factor Questionnaire (RFQ) - age year stop taking aspirin value

Age/year the participant stopped regularly taking aspirin as part of the Risk Factor Questionnaire for Nonsteroidal Anti-Inflammatory Drugs (NSAIDS) and Calcium Channel Blockers (CCB)

 Supplemental Risk Factor Questionnaire (RFQ) - NSAIDS and Calcium Channel Blockers (CCB) True Parkinson's Disease Parkinson's Disease
C09030 Risk Factor Questionnaire (RFQ-U) - work herbicide use 36 45 age indicator

The indicator whether participant/subject used herbicides at work from age 36 to 45 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticide (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Parkinson's Disease Parkinson's Disease
C10297 Quality of Life in Swallowing Disorders (SWAL-QOL) - difficult find food indicator

Scale assessing how true the following statement has been for the participant during the last month: It is difficult to find foods that I both like and can eat. As part of Quality of Life in Swallowing Disorders (SWAL-QOL)

 Supplemental Quality of Life in Swallowing Disorders (SWAL-QOL) True Parkinson's Disease Parkinson's Disease
C08808 Risk Factor Questionnaire (RFQ) - year not regularly working around metal dust or metal fumes indicator

Periods of a year or more when the participant did not regularly working around metal dust or metal fumes as part of the Risk Factor Questionnaire for Toxicants

 Supplemental Risk Factor Questionnaire (RFQ) - Toxicants True Parkinson's Disease Parkinson's Disease
C09490 Scale for the Assessment of Positive Symptoms (SAPS) - global rating of positive formal thought disorder scale

Subject's global rating of positive formal thought disorder, as part of the Scale For The Assessment of Positive Symptoms (SAPS)- Aggressive Agitated Behavior indicator

 Supplemental Scale for the Assessment of Positive Symptoms (SAPS) True Parkinson's Disease Parkinson's Disease
C08723 Risk Factor Questionnaire (RFQ) - age 66 and over residential history residence state text

Text specifying the participant's/subject's state of residence from 66+ years of age

 Supplemental Risk Factor Questionnaire (RFQ) - Residential History True Parkinson's Disease Parkinson's Disease
Displaying 2251 - 2275 of 2446

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.