CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 151 - 175 of 2446
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C17353 Parkinson's Disease Sleep Scale (PDSS) - urinate night scale

Scale assessing how often the participant got up at night to pass urine during the past week (7 days), as part of the Parkinson's Disease Sleep Scale (PDSS)

 Supplemental-Highly Recommended Parkinson's Disease Sleep Scale 2nd Version (PDSS-2) True Parkinson's Disease Parkinson's Disease
C17768 Apathy Scale (AS) - Form complete date

Date the rater/interviewer completed the apathy scale questionnaire from Apathy Scale (AS)

 Supplemental-Highly Recommended Apathy Scale (AS) True Parkinson's Disease Parkinson's Disease
C59034 Imaging multiecho indicator

Indicator of whether a multiecho method is used in imaging acquisition

 Supplemental-Highly Recommended MRI and Spectroscopy False Parkinson's Disease Parkinson's Disease
C08528 36-item Short Form Health Survey (SF-36) - Times downhearted blue score

Score of times feeling downhearted and blue during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Supplemental-Highly Recommended Short Form 36-Item Health Survey (SF-36) True Parkinson's Disease Parkinson's Disease
C18720 Imaging visual analysis location performed type other text

The free-text field related to 'Imaging visual analysis location performed type' specifying other text. Location where visual analysis of the imaging data are performed

 Supplemental-Highly Recommended PET-SPECT Localization False Parkinson's Disease Parkinson's Disease
C20529 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Usual activities category

Category determining the extent to which the participants has problems with usual activities (e.g. work, study, housework, family or leisure activities), as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)

 Supplemental-Highly Recommended EuroQoL-5 Dimension Questionnaire (EQ-5D) True Parkinson's Disease Parkinson's Disease
C02496 Imaging scanner manufacturer name

Name of manufacturer of imaging scanner

 Supplemental-Highly Recommended PET-SPECT Localization False Parkinson's Disease Parkinson's Disease
C08536 36-item Short Form Health Survey (SF-36) - Excellent health score

Score of how true or false surveyee perceived the statement: My health is excellent, as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Supplemental-Highly Recommended Short Form 36-Item Health Survey (SF-36) True Parkinson's Disease Parkinson's Disease
C17244 Questionnaire for Impulsive-Compulsive Disorders in Parkinson's Disease (QUIP) - excess distress indicator

Indicator of whether the participant's urges or desires for the behaviors are excessive or cause distress (including becoming restless or irritable when unable to participate in the behavior), as part of the Questionnaire for Impulsive-Compulsive Disorders in Parkinson's Disease (QUIP)

 Supplemental-Highly Recommended Questionnaire for Impulsive-Compulsive Disorders in Parkinson's Disease (QUIP) (Long Form) True Parkinson's Disease Parkinson's Disease
C54701 Epworth Sleepiness Scale (ESS) - Doze off likelihood recline rest afternoon code

The code denoting the subect/participant's self-reported likelihood of dozing off while lying down to rest in the afternoon, as part of the Epworth Sleepiness Scale (ESS)

 Supplemental-Highly Recommended Epworth Sleepiness Scale (ESS) - Adult Version True Parkinson's Disease Parkinson's Disease
C08254 Imaging visual analysis location performed type

Type of location where visual analysis of the imaging data are performed

 Supplemental-Highly Recommended PET-SPECT Localization False Parkinson's Disease Parkinson's Disease
C08239 Imaging echo duration

Duration between the application of the 90 degree pulse and the peak of the echo signal, in milliseconds, during the spin echo and inversion recovery pulse sequences in imaging acquisition

 Supplemental-Highly Recommended MRI and Spectroscopy False Parkinson's Disease Parkinson's Disease
C08504 36-item Short Form Health Survey (SF-36) - Health limited moderate activities score

Score of surveyee-reported limited moderate activities due to physical health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Supplemental-Highly Recommended Short Form 36-Item Health Survey (SF-36) True Parkinson's Disease Parkinson's Disease
C08611 Risk Factor Questionnaire (RFQ) - longest occupation 25 year first duty text

Text describing the participant's/subject's first of four major tasks or duties at the longest held occupation from the age of 0-25 years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation

 Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status True Parkinson's Disease Parkinson's Disease
C59049 Imaging randoms correction indicator

Indicator of whether imaging randoms correction was used

 Supplemental-Highly Recommended PET-SPECT Localization False Parkinson's Disease Parkinson's Disease
C08619 Risk Factor Questionnaire (RFQ) - longest occupation 26 35 year fourth duty text

Text describing the participant's/subject's fourth of four major tasks or duties at the longest held occupation from the age of 26-35 years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation

 Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status True Parkinson's Disease Parkinson's Disease
C59060 Diagnosis primary clinical parkinsonism type other text

The free-text field related to 'Diagnosis primary clinical parkinsonism type', specifying other text. Type of primary clinical parkinsonism diagnosis

 Supplemental-Highly Recommended Parkinson's Disease Genetics False Parkinson's Disease Parkinson's Disease
C17289 Questionnaire for Impulsive Disorders in Parkinson's Disease (QUIP-Current-Short) - medication use indicator

Indicates if there is an issue with taking too much medication, as part of the Questionnaire for Impulsive Disorders in Parkinson's Disease (QUIP-Current-Short)

 Supplemental-Highly Recommended Questionnaire for Impulsive-Compulsive Disorders in Parkinson's Disease (QUIP) (Short Form) True Parkinson's Disease Parkinson's Disease
C08627 Risk Factor Questionnaire (RFQ) - longest occupation 46 55 year second duty text

Text describing the participant's/subject's second of four major tasks or duties at the longest held occupation from the age of 46-55 years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation

 Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status True Parkinson's Disease Parkinson's Disease
C08587 Risk Factor Questionnaire (RFQ) - military service age stop value

The value indicating the participant's/subject's age they ceased to be active in the military as part of the Risk Factor Questionnaire (RFQ) - Occupation

 Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status True Parkinson's Disease Parkinson's Disease
C16194 Biological sample in repository indicator

Indicates whether participant/subject had a biological sample or specimen drawn and banked in a repository

 Supplemental-Highly Recommended Parkinson's Disease Genetics False Parkinson's Disease Parkinson's Disease
C08635 Risk Factor Questionnaire (RFQ) - longest occupation over 65 year text

Text describing the participant's/subject's longest held occupation from the age of 66+ years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation

 Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status True Parkinson's Disease Parkinson's Disease
C59179 Medication prior or concomitant suppository route type

Type of access route for the administration of the prior/concomitant medication in suppository dosage form

 Supplemental-Highly Recommended Parkinson's Disease Medication Log False Parkinson's Disease Parkinson's Disease
C08595 Risk Factor Questionnaire (RFQ) - military service combat state station longest text

The text describing the state the participant/subject was in combat for the longest duration as part of the Risk Factor Questionnaire (RFQ) - Occupation

 Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status True Parkinson's Disease Parkinson's Disease
C17694 Risk Factor Questionnaire (RFQ) - retired year date

Date the participant/subject retired as part of the Risk Factor Questionnaire (RFQ) - Occupation

 Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status True Parkinson's Disease Parkinson's Disease
Displaying 151 - 175 of 2446

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.