CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Displaying 126 - 150 of 2446
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C59038 Medication Parkinsons disease last dose date time

Time (and date, if applicable and known) of most recent Parkinson's disease medication dose

Supplemental-Highly Recommended MRI and Spectroscopy Parkinson's Disease Parkinson's Disease
C59082 Brain family member available indicator

Indicator of whether a brain of the participant's/subject's family member is available in a repository

Supplemental-Highly Recommended Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C08532 36-item Short Form Health Survey (SF-36) - Times interfered social physical or emotional score

Score of times physical health or emotional problems interfered with social activities (like visiting with friends, relatives, etc) during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Supplemental-Highly Recommended Short Form 36-Item Health Survey (SF-36) Parkinson's Disease Parkinson's Disease
C54697 Epworth Sleepiness Scale (ESS) - Doze off likelihood sit read code

The code denoting the subect/participant's self-reported likelihood of dozing off while sitting and reading, as part of the Epworth Sleepiness Scale (ESS)

Supplemental-Highly Recommended Epworth Sleepiness Scale (ESS) - Adult Version Parkinson's Disease Parkinson's Disease
C08244 Imaging slice thickness value

Value of the thickness of the slice measured in millimeters (mm)

Supplemental-Highly Recommended PET-SPECT Localization Parkinson's Disease Parkinson's Disease
C02498 Imaging scanner software version number

Version number of the imaging scanner software

Supplemental-Highly Recommended MRI and Spectroscopy Parkinson's Disease Parkinson's Disease
C18749 Risk Factor Questionnaire (RFQ) - occupation other text

The free-text field related to 'Risk Factor Questionnaire (RFQ) - occupation status' specifying other text. The status indicating the participant's/subject's current occupational situation as part of the Risk Factor Questionnaire (RFQ) - Occupation

Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status Parkinson's Disease Parkinson's Disease
C54705 Epworth Sleepiness Scale (ESS) - Total score

Total score of all questions on the Epworth Sleepiness Scale (ESS)

Supplemental-Highly Recommended Epworth Sleepiness Scale (ESS) - Adult Version Parkinson's Disease Parkinson's Disease
C08260 Imaging isotope type

Type of radioactive isotope used for the imaging scan

Supplemental-Highly Recommended PET-SPECT Localization Parkinson's Disease Parkinson's Disease
C08243 Imaging matrix size value

Value representing the imaging matrix size in millimeters

Supplemental-Highly Recommended MRI and Spectroscopy Parkinson's Disease Parkinson's Disease
C08508 36-item Short Form Health Survey (SF-36) - Health limited bending kneeling stooping score

Score of surveyee-reported limited bending, kneeling, or stooping due to physical health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Supplemental-Highly Recommended Short Form 36-Item Health Survey (SF-36) Parkinson's Disease Parkinson's Disease
C10407 Scale for Outcomes of Parkinsons disease (SCOPA) - sleep night early woken past month scale

Pre-specified scales for early wake-up at night in the past month

Supplemental-Highly Recommended Scale for Outcomes in Parkinson's Disease-Sleep (SCOPA-SLEEP) Parkinson's Disease Parkinson's Disease
C08268 Imaging volume of interest placement method type

Type of method used for volume of interest (VOI) placement for the imaging data analysis

Supplemental-Highly Recommended PET-SPECT Localization Parkinson's Disease Parkinson's Disease
C09304 Apathy Scale (AS) - Condition concern scale

The scale related to subject's concern for ones own condition, as part of the Apathy Scale (AS) form

Supplemental-Highly Recommended Apathy Scale (AS) Parkinson's Disease Parkinson's Disease
C18708 Imaging pulse sequence type other text

The free-text field related to 'Imaging pulse sequence type', specifying other text. Type of imaging pulse sequence used

Supplemental-Highly Recommended MRI and Spectroscopy Parkinson's Disease Parkinson's Disease
C08516 36-item Short Form Health Survey (SF-36) - Difficulty work activities physical health indicator

Indicator for surveyee-reported difficulty performing work or other activities as a result of physical health during past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Supplemental-Highly Recommended Short Form 36-Item Health Survey (SF-36) Parkinson's Disease Parkinson's Disease
C10415 Scale for Outcomes of Parkinsons disease (SCOPA) - sleep asleep day problem past month frequency

Pre-specified frequencies for falling asleep during the day as a problem in the past month

Supplemental-Highly Recommended Scale for Outcomes in Parkinson's Disease-Sleep (SCOPA-SLEEP) Parkinson's Disease Parkinson's Disease
C18692 Imaging attenuation correction method type other text

The free-text field related to 'Imaging attenuation correction method type' specifying other text. The type of method to correct for different tissues density when analyzing the image

Supplemental-Highly Recommended PET-SPECT Localization Parkinson's Disease Parkinson's Disease
C09312 Apathy Scale (AS) - Start task ability no prompt scale

The scale related to subject's ability to start tasks without prompting, as part of the Apathy Scale (AS) form

Supplemental-Highly Recommended Apathy Scale (AS) Parkinson's Disease Parkinson's Disease
C59026 Imaging radio frequency coil manufacturer name other text

The free-text field related to 'Imaging radio frequency coil manufacturer name', specifying other text. Name of the manufacturer of the radio frequency (RF) coil used for the imaging scan

Supplemental-Highly Recommended MRI and Spectroscopy Parkinson's Disease Parkinson's Disease
C08524 36-item Short Form Health Survey (SF-36) - Times nervous score

Score of times being a very nervous person during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Supplemental-Highly Recommended Short Form 36-Item Health Survey (SF-36) Parkinson's Disease Parkinson's Disease
C17290 Questionnaire for Impulsive Disorders in Parkinson's Disease (QUIP-Current-Short) - medication use difficulty indicator

Indicates if there is a difficulty controlling medication, as part of the Questionnaire for Impulsive Disorders in Parkinson's Disease (QUIP-Current-Short)

Supplemental-Highly Recommended Questionnaire for Impulsive-Compulsive Disorders in Parkinson's Disease (QUIP) (Short Form) Parkinson's Disease Parkinson's Disease
C08631 Risk Factor Questionnaire (RFQ) - longest occupation 56 65 year first duty text

Text describing the participant's/subject's first of four major tasks or duties at the longest held occupation from the age of 56-65 years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation

Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status Parkinson's Disease Parkinson's Disease
C08591 Risk Factor Questionnaire (RFQ) - military service state station longest text

The text describing the state the participant/subject was stationed in for the longest duration as part of the Risk Factor Questionnaire (RFQ) - Occupation

Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status Parkinson's Disease Parkinson's Disease
C17355 Parkinson's Disease Sleep Scale (PDSS) - leg arm pain sleep scale

Scale assessing how often the participant felt pain in his arms or legs which woke him up from sleep at night during the past week (7 days), as part of the Parkinson's Disease Sleep Scale (PDSS)

Supplemental-Highly Recommended Parkinson's Disease Sleep Scale 2nd Version (PDSS-2) Parkinson's Disease Parkinson's Disease
Displaying 126 - 150 of 2446

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.