CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

749 results.
Operations
Selected 24 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C08012 Motor symptom Parkinsonian initial type

Type(s) of initial motor symptoms of Parkinson's disease described by the participant/subject.

Core Medical History of Parkinson's Disease Parkinson's Disease Parkinson's Disease
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

Core General Core Parkinson's Disease Parkinson's Disease
C08005 Family history relative type Parkinsons disease parkinsonism other neurological disorder member count

Count of family members and ancestors, for the specified relative type, with Parkinson's disease (PD) or Parkinsonism and other neurological disorder(s)

Core Family History Parkinson's Disease Parkinson's Disease
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

Core Demographics Parkinson's Disease Parkinson's Disease
C00023 Hand preference type

Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively

Core Medical History of Parkinson's Disease Parkinson's Disease Parkinson's Disease
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

Core Demographics Parkinson's Disease Parkinson's Disease
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

Core General Core Parkinson's Disease Parkinson's Disease
C17405 Family history relative type neurological disorder not parkinsonian count

Count of family members and ancestors, for the specified relative type, with a neurological disorder(s) other than Parkinson's Disease or Parkinsonism

Core Family History Parkinson's Disease Parkinson's Disease
C00314 Medical history taken date and time

Date (and time, if applicable and known) the participant's medical history was taken

Core Medical History of Parkinson's Disease Parkinson's Disease Parkinson's Disease
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth

Core Demographics Parkinson's Disease Parkinson's Disease
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

Core General Core Parkinson's Disease Parkinson's Disease
C59020 Diagnosis certainty category

Category of the clinician's certainty of the medical diagnosis of the disease or disorder

Core Medical History of Parkinson's Disease Parkinson's Disease Parkinson's Disease
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

Core Medical History of Parkinson's Disease Parkinson's Disease Parkinson's Disease
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth

Core Demographics Parkinson's Disease Parkinson's Disease
C00722 Family history medical condition relative type

Relationship of the family member or ancestor with the medical condition or health related event to the participant

Core Family History Parkinson's Disease Parkinson's Disease
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core General Core Parkinson's Disease Parkinson's Disease
C08006 Symptoms first appear date and time

Date (and time if applicable and known) the symptoms for the disease or disorder first appeared as confirmed by the participant's/subject's medical history obtained by a physician

Core Medical History of Parkinson's Disease Parkinson's Disease Parkinson's Disease
C08000 Family history relative type total membercount

Count of total family members and ancestors for the specified relative type

Core Family History Parkinson's Disease Parkinson's Disease
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth

Core General Core Parkinson's Disease Parkinson's Disease
C08007 Diagnosis first given date and time

Date (and time if applicable and known) the participant/subject was initially diagnosed with the disease or disorder

Core Medical History of Parkinson's Disease Parkinson's Disease Parkinson's Disease
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth

Core General Core Parkinson's Disease Parkinson's Disease
C08008 Diagnostic feature criterion type

Type of diagnostic feature or criterion assessed in the participant/subject.

Core Medical History of Parkinson's Disease Parkinson's Disease Parkinson's Disease
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core General Core Parkinson's Disease Parkinson's Disease
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core Demographics Parkinson's Disease Parkinson's Disease
749 results.

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.