CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 726 - 750 of 759

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3041-C20437	C20437	Beck Depression Inventory II (BDI-II) - Irritability scale	Scale identifying level of irritability, as part of the Beck Depression Inventory II (BDI-II)	Supplemental	Beck Depression Inventory II (BDI-II)	True	Parkinson's Disease	Parkinson's Disease
F2953-C02014	C02014	Medication prior or concomitant name	Name of the prior/concomitant agent or drug administered	Supplemental	Non-Parkinson's Disease Medication Log	False	Parkinson's Disease	Parkinson's Disease
F2955-C59170	C59170	Gene variant name	Name of the gene variant	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2952-C59132	C59132	Stimulation brain parameter directional steering indicator	Indicator related to whether directional steering was used in the brain stimulation parameters	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F3043-C20380	C20380	Pittsburgh Sleep Quality Index (PSQI) - Bed partner roommate present scale	The scale that reflects the presence of a bed partner or roommate, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Parkinson's Disease	Parkinson's Disease
F3042-C09577	C09577	Brief Pain Inventory (BPI) - worst pain rating scale	Scale indicating the rating of the worst pain, as part of the Brief Pain Inventory (BPI) form	Supplemental	Brief Pain Inventory (BPI) Short Form	True	Parkinson's Disease	Parkinson's Disease
F2952-C59140	C59140	Optimal programming limit stimulation adverse effect indicator specify text	The free-text field related to 'Optimal programming limit stimulation adverse effect indicator', specifying details if the response is 'Yes'	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2949-C08008	C08008	Diagnostic feature criterion type	Type of diagnostic feature or criterion assessed in the participant/subject.	Core	Medical History of Parkinson's Disease	False	Parkinson's Disease	Parkinson's Disease
F1807-C00007	C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Core	General Core	False	Parkinson's Disease	Parkinson's Disease
F2944-C00007	C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Core	Demographics	False	Parkinson's Disease	Parkinson's Disease
F2949-C08009	C08009	Diagnostic feature criterion presence status	Status of diagnostic feature or criterion observed during clinical assessment of the participant/subject	Core	Medical History of Parkinson's Disease	False	Parkinson's Disease	Parkinson's Disease
F2948-C08003	C08003	Family history relative type Parkinsons disease parkinsonism member count	Count of family members and ancestors, for the specified relative type, with Parkinson's disease (PD) or Parkinsonism	Core	Family History	False	Parkinson's Disease	Parkinson's Disease
F2944-C00012	C00012	Education level USA type	Highest grade or level of school participant/subject has completed or the highest degree received	Core	Demographics	False	Parkinson's Disease	Parkinson's Disease
F2949-C08012	C08012	Motor symptom Parkinsonian initial type	Type(s) of initial motor symptoms of Parkinson's disease described by the participant/subject.	Core	Medical History of Parkinson's Disease	False	Parkinson's Disease	Parkinson's Disease
F1807-C00020	C00020	Ethnicity USA category	Category of ethnicity the participant/subject most closely identifies with	Core	General Core	False	Parkinson's Disease	Parkinson's Disease
F2948-C08005	C08005	Family history relative type Parkinsons disease parkinsonism other neurological disorder member count	Count of family members and ancestors, for the specified relative type, with Parkinson's disease (PD) or Parkinsonism and other neurological disorder(s)	Core	Family History	False	Parkinson's Disease	Parkinson's Disease
F2944-C00020	C00020	Ethnicity USA category	Category of ethnicity the participant/subject most closely identifies with	Core	Demographics	False	Parkinson's Disease	Parkinson's Disease
F2949-C00023	C00023	Hand preference type	Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively	Core	Medical History of Parkinson's Disease	False	Parkinson's Disease	Parkinson's Disease
F1807-C00030	C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories	Core	General Core	False	Parkinson's Disease	Parkinson's Disease
F2948-C17405	C17405	Family history relative type neurological disorder not parkinsonian count	Count of family members and ancestors, for the specified relative type, with a neurological disorder(s) other than Parkinson's Disease or Parkinsonism	Core	Family History	False	Parkinson's Disease	Parkinson's Disease
F2944-C00030	C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories	Core	Demographics	False	Parkinson's Disease	Parkinson's Disease
F2949-C00314	C00314	Medical history taken date and time	Date (and time, if applicable and known) the participant/subject's medical history was taken	Core	Medical History of Parkinson's Disease	False	Parkinson's Disease	Parkinson's Disease
F1807-C00313	C00313	Medical history condition SNOMED CT code	Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject	Core	General Core	False	Parkinson's Disease	Parkinson's Disease
F2944-C58676	C58676	Birth sex assigned type	Self-reported phenotypic sex of participant/subject, assigned at birth	Core	Demographics	False	Parkinson's Disease	Parkinson's Disease
F2949-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Core	Medical History of Parkinson's Disease	False	Parkinson's Disease	Parkinson's Disease

Displaying 726 - 750 of 759

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.