CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 651 - 675 of 759

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3028-C07437	C07437	Patient Health Questionnaire (PHQ) - Concentration impairment score	Score of how much the subject has been bothered with troubling concentrating in the past two weeks, as part of the Patient Health Questionnaire (PHQ)	Supplemental	Patient Health Questionnaire - 9 (PHQ-9) Depression Scale	True	Parkinson's Disease	Parkinson's Disease
F2952-C59148	C59148	Adverse event outcome status other text	The free-text field related to 'Adverse event outcome status', specifying other text. Final status of the participant/subject related to the adverse event	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2952-C59101	C59101	Functional neurosurgery target planning software type text	The free-text field to describe the type of functional neurosurgery target planning software used to determine the coordinates of the target (brain nucleus)	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F3043-C20355	C20355	Pittsburgh Sleep Quality Index (PSQI) - Feel hot past month scale	The scale to which the subject felt too hot during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Parkinson's Disease	Parkinson's Disease
F0803-C09590	C09590	Brief Psychiatric Rating Scale (BPRS) - somatic concern score	The score of the participant's/subject's somatic concern, as part of the Brief Psychiatric Rating Scale (BPRS) form.	Supplemental	Brief Psychiatric Rating Scale (BPRS)	False	Parkinson's Disease	Parkinson's Disease
F2952-C59156	C59156	Pulse generator replacement reason	The reason the pulse generator was replaced	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2955-C59098	C59098	Database of Genotypes and Phenotypes study title text	The free-text field to specify the title of the of the database of Genotypes and Phenotypes (dbGaP) study	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2952-C59111	C59111	Microelectrode record microstimulation sedation type	Type of sedation used during microelectrode recording or microstimulation for intra-operative target verification	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F3043-C20363	C20363	Pittsburgh Sleep Quality Index (PSQI) - Awaken night early morning past month scale	The scale to which the subject woke up in the middle of the night or early morning during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Parkinson's Disease	Parkinson's Disease
F0803-C09598	C09598	Brief Psychiatric Rating Scale (BPRS) - depressive mood score	The score of the participant's/subject's depressive mood, as part of the Brief Psychiatric Rating Scale (BPRS) form.	Supplemental	Brief Psychiatric Rating Scale (BPRS)	False	Parkinson's Disease	Parkinson's Disease
F3041-C20428	C20428	Beck Depression Inventory II (BDI-II) - Self-criticalness scale	Scale identifying level of self-criticalness, as part of the Beck Depression Inventory II (BDI-II)	Supplemental	Beck Depression Inventory II (BDI-II)	True	Parkinson's Disease	Parkinson's Disease
F2952-C59586	C59586	Stereotactic surgery mini-frame type other text	The free-text field related to 'Stereotactic surgery mini-frame type', specifying other text. Type of mini-frame used for surgery. A mini-frame is a simpler and smaller support for stereotactic surgery; used mainly in image-guided surgery	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2955-C59157	C59157	Genetic study data analysis category type	Type of analysis category data expected for the genetics study	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2952-C59123	C59123	Brain lead intercontact space interval type other text	The free-text field related to 'Brain lead intercontact space interval type', specifying other text. Type of intercontact spacing interval for the implanted brain leads (between ends of contacts, not centers)	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F3043-C20371	C20371	Pittsburgh Sleep Quality Index (PSQI) - Partner report leg twitch jerk past month scale	The scale to which the subject's partner reported leg twitching or jerking during sleep past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Parkinson's Disease	Parkinson's Disease
F0803-C09606	C09606	Brief Psychiatric Rating Scale (BPRS) - excitement score	The score of the participant's/subject's excitement, as part of the Brief Psychiatric Rating Scale (BPRS) form.	Supplemental	Brief Psychiatric Rating Scale (BPRS)	False	Parkinson's Disease	Parkinson's Disease
F3041-C20436	C20436	Beck Depression Inventory II (BDI-II) - Sleep pattern change scale	Scale identifying level of change in sleep pattern, as part of the Beck Depression Inventory II (BDI-II)	Supplemental	Beck Depression Inventory II (BDI-II)	True	Parkinson's Disease	Parkinson's Disease
F2953-C02013	C02013	Medication prior or concomitant dose unit of measure UCUM code	Code that represents the dosage unit of measure of the prior or concomitant medication administered. Unified Code for Units of Measure (UCUM)	Supplemental	Non-Parkinson's Disease Medication Log	False	Parkinson's Disease	Parkinson's Disease
F2955-C59169	C59169	Gene promoter affect exon deleted duplicated indicator	Indicator related to whether known gene promoters were affected by exonic deletions/duplications	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2952-C59131	C59131	Stimulation brain parameter positive contact text	Text related to positive contact brain stimulation parameters	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F3043-C20379	C20379	Pittsburgh Sleep Quality Index (PSQI) - Partner report other sleep restlessness past month scale other text	The free-text entry for other reason(s) the subject's partner reported the subject having restlessness while they sleep the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Parkinson's Disease	Parkinson's Disease
F3042-C09576	C09576	Brief Pain Inventory (BPI) - pain area indicator	On the diagram, shade in the areas where you feel pain. Put an X on the area that hurts the most, as part of the Brief Pain Inventory (BPI) form	Supplemental	Brief Pain Inventory (BPI) Short Form	True	Parkinson's Disease	Parkinson's Disease
F2951-C08276	C08276	Imaging scan aborted reason	Reason the imaging was aborted	Supplemental	PET-SPECT Localization	False	Parkinson's Disease	Parkinson's Disease
F2955-C59177	C59177	Research relate database of Genotypes and Phenotypes study indicator	Indicator whether the study is related to a pre-existing registered NCBI database of Genotypes and Phenotypes (dbGaP) study	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2952-C59139	C59139	Optimal programming limit stimulation adverse effect indicator	Indicator related to whether optimal programming is limited by stimulation-induced adverse effects	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease

Displaying 651 - 675 of 759

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.