CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 626 - 650 of 749

Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3028-C07440	C07440	Patient Health Questionnaire - (PHQ) - Depression questionnaire total score	Total score of the questionnaire, as the part of Patient Health Questionnaire Depression (PHQ)	Supplemental	Patient Health Questionnaire - 9 (PHQ-9) Depression Scale	True	Parkinson's Disease	Parkinson's Disease
F2952-C59151	C59151	Brain lead remove count	Count of brain leads removed	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F3048-C18769	C18769	Thermoregulatory sweat test sweat chemical other text	The free-text field related to 'Thermoregulatory sweat test sweat chemical type' specifying other text. Type of chemical used for Thermoregulatory Sweat Test (TST) that shows a significant color change when mingled with sweat	Supplemental	Other Non-Motor Guidance for CDE Use	False	Parkinson's Disease	Parkinson's Disease
F2952-C59106	C59106	Surgery head fixation status	Status of the participant's/subject's head fixation to the operating room table during surgery	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2945-C59071	C59071	Shave facial hair regular begin age category	Categorization of the age at which the participant/subject began to regularly shave facial hair. Regular shaving is defined as once a week or more	Supplemental	History of Early Exposure	False	Parkinson's Disease	Parkinson's Disease
F2952-C59160	C59160	Lead extender replacement reason	The reason the lead extender was replaced	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2955-C59112	C59112	Genetic study data general category type	Type of general category data expected for the genetics study	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2952-C59117	C59117	Brain lead insert count	Count of brain leads inserted	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2946-C08101	C08101	Pneumonia episode hospitalization indicator	Indicator of whether the participant/subject was hospitalized for the pneumonia episode	Supplemental	Infection History	False	Parkinson's Disease	Parkinson's Disease
F0796-C10422	C10422	Sialorrhea Clinical Scale for PD (SCS-PD) - social saliva score	When you go out or on social occasions, does saliva accumulation bother you? As part of SCS-PD questionnaire	Supplemental	Sialorrhea Clinical Scale for Parkinson's Disease (SCS-PD)	False	Parkinson's Disease	Parkinson's Disease
F2952-C59589	C59589	Anterior commissure posterior commissure target y coordinate value	Stereotactic y coordinate with respect to anterior and posterior commissure (brain nuclei)	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2955-C59164	C59164	Genotype platform vendor text	The free-text field to specify the genotype platform vendor	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2952-C59126	C59126	Pulse generator battery type	Type of battery used in the pulse generator(s) inserted	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2947-C08233	C08233	Drug or substance first illicit use date and time	Date (and time if applicable and known) the participant/subject first used the category of illegal drugs, prescription or over-the-counter drugs	Supplemental	Non-prescribed Drug Use Questionnaire	False	Parkinson's Disease	Parkinson's Disease
F2945-C08079	C08079	Full biological brothers count	Count of full biological brothers the participant/subject has	Supplemental	History of Early Exposure	False	Parkinson's Disease	Parkinson's Disease
F2951-C59053	C59053	Imaging quantitative outcome indicator	Indicator of use of a quantitative outcome to describe tracer distribution and uptake for the imaging data analysis	Supplemental	PET-SPECT Localization	False	Parkinson's Disease	Parkinson's Disease
F2171-C09352	C09352	Hamilton Anxiety Rating Scale (HAM-A) - cardiovascular symptom score	The score of the participant's/subject's cardiovascular symptoms, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.	Supplemental	Hamilton Anxiety Rating Scale (HAM-A)	False	Parkinson's Disease	Parkinson's Disease
F2952-C59087	C59087	Dyskinesia troublesome year duration	Duration in years of troublesome dyskinesias at the time of surgery	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F3043-C20354	C20354	Pittsburgh Sleep Quality Index (PSQI) - Cannot breathe comfortably past month scale	The scale to which the subject had trouble breathing comfortably during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Parkinson's Disease	Parkinson's Disease
F2955-C12804	C12804	Gene cDNA variant mutation name	Name using the Human Genome Organisation (HUGO) variant or mutation nomenclature of the complementary deoxyribonucleic acid (cDNA) variant or mutation	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2952-C02305	C02305	Adverse event severity scale grade	The grading scale of the severity or intensity of the adverse event	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2953-C19247	C19247	Subject ID	Subject identification ID	Supplemental	Non-Parkinson's Disease Medication Log	False	Parkinson's Disease	Parkinson's Disease
F3043-C20362	C20362	Pittsburgh Sleep Quality Index (PSQI) - Partner report other sleep restlessness past month scale	The scale to which the subject's partner reported other restlessness during sleep past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Parkinson's Disease	Parkinson's Disease
F2955-C15539	C15539	Gene variant or mutation type	The type of genetic variant or mutation shown	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2952-C08031	C08031	Functional neurosurgery target planning method type	The type of method used to determine the coordinates of the target (brain nucleus)	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease

Displaying 626 - 650 of 749

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.