CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 601 - 625 of 749
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C10171 Trial number

The number representing the sequence for any repeated measure test or assessment when it is performed multiple times

Supplemental Other Non-Motor Guidance for CDE Use Parkinson's Disease Parkinson's Disease
C08013 Dystonia symptom text

The free-text field to specify symptoms experienced by the participant/subject related to dystonia

Supplemental Medical History of Parkinson's Disease Parkinson's Disease Parkinson's Disease
C09591 Brief Psychiatric Rating Scale (BPRS) - anxiety score

The score of the participant's/subject's anxiety, as part of the Brief Psychiatric Rating Scale (BPRS) form.

Supplemental Brief Psychiatric Rating Scale (BPRS) Parkinson's Disease Parkinson's Disease
C12808 Gene sequenced with no variant mutation indicator

Indicator of whether there are additional genes sequenced with no variants or mutations detected

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C08018 Surgery age value

Age of the participant/subject at the time of the selected surgical procedure

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C10179 Diffusion Capacity Corrected measurement

Diffusion Capacity Corrected (DLCO CORR) = A correction for predicted value is made using patients Hemoglobin

Supplemental Other Non-Motor Guidance for CDE Use Parkinson's Disease Parkinson's Disease
C09599 Brief Psychiatric Rating Scale (BPRS) - hostility score

The score of the participant's/subject's hostility, as part of the Brief Psychiatric Rating Scale (BPRS) form.

Supplemental Brief Psychiatric Rating Scale (BPRS) Parkinson's Disease Parkinson's Disease
C08036 Stereotactic surgery mini-frame type

Type of mini-frame used for surgery. A mini-frame is a simpler and smaller support for stereotactic surgery; used mainly in image-guided surgery

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C10188 Videofluoroscopic swallowing study penetration aspiration scale

Penetration aspiration scale of the Videofluoroscopic Swallowing Study (VFSS)

Supplemental Other Non-Motor Guidance for CDE Use Parkinson's Disease Parkinson's Disease
C09607 Brief Psychiatric Rating Scale (BPRS) - disorientation score

The score of the participant's/subject's disorientation, as part of the Brief Psychiatric Rating Scale (BPRS) form.

Supplemental Brief Psychiatric Rating Scale (BPRS) Parkinson's Disease Parkinson's Disease
C17893 Gene missense nonsense variant point mutation location other text

The free-text field about missense/nonsense variant or point mutation at locations other than the exon and intron

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C08046 Medication anti-Parkinsonian reduced after surgery indicator

Indicator of whether anti-Parkinsonism medication(s) were reduced following optimization (X weeks after surgery)

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C52710 Menarche begin age value

The age at which menarche began for the participant/subject

Supplemental History of Early Exposure Parkinson's Disease Parkinson's Disease
C09349 Hamilton Anxiety Rating Scale (HAM-A) - somatic muscular score

The score of the participant's/subject's somatic (muscular) levels, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.

Supplemental Hamilton Anxiety Rating Scale (HAM-A) Parkinson's Disease Parkinson's Disease
C20376 Pittsburgh Sleep Quality Index (PSQI) - Awaken past month time

The wake up time (recorded as 24-hour clock or military time) for the majority of the mornings in the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

Supplemental Pittsburgh Sleep Quality Index (PSQI) Parkinson's Disease Parkinson's Disease
C59586 Stereotactic surgery mini-frame type other text

The free-text field related to 'Stereotactic surgery mini-frame type', specifying other text. Type of mini-frame used for surgery. A mini-frame is a simpler and smaller support for stereotactic surgery; used mainly in image-guided surgery

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C59157 Genetic study data analysis category type

Type of analysis category data expected for the genetics study

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C20441 Beck Depression Inventory II (BDI-II) - Sex interest loss scale

Scale identifying level of loss of interest in sex, as part of the Beck Depression Inventory II (BDI-II)

Supplemental Beck Depression Inventory II (BDI-II) Parkinson's Disease Parkinson's Disease
C59123 Brain lead intercontact space interval type other text

The free-text field related to 'Brain lead intercontact space interval type', specifying other text. Type of intercontact spacing interval for the implanted brain leads (between ends of contacts, not centers)

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C59069 Menarche begin age category

Categorization of the age at which menarche began for the participant/subject

Supplemental History of Early Exposure Parkinson's Disease Parkinson's Disease
C09357 Hamilton Anxiety Rating Scale (HAM-A) - behavior interview score

The score of the participant's/subject's behavior at interview, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.

Supplemental Hamilton Anxiety Rating Scale (HAM-A) Parkinson's Disease Parkinson's Disease
C20385 Pittsburgh Sleep Quality Index (PSQI) - Day dysfunction due to sleepiness scale

The scale to which day dysfunction due to sleepiness was calculated, as part of the Pittsburgh Sleep quality Index (PSQI)

Supplemental Pittsburgh Sleep Quality Index (PSQI) Parkinson's Disease Parkinson's Disease
C02013 Medication prior or concomitant dose unit of measure UCUM code

Code that represents the dosage unit of measure of the prior or concomitant medication administered. Unified Code for Units of Measure (UCUM)

Supplemental Non-Parkinson's Disease Medication Log Parkinson's Disease Parkinson's Disease
C59169 Gene promoter affect exon deleted duplicated indicator

Indicator of whether known gene promoters were affected by exonic deletions/duplications

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C09581 Brief Pain Inventory (BPI) - treatment received text

Text of treatment/medication subject receives for the pain, as part of the Brief Pain Inventory (BPI) form

Supplemental Brief Pain Inventory (BPI) Short Form Parkinson's Disease Parkinson's Disease
Displaying 601 - 625 of 749

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.