CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 551 - 575 of 759
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C59041 Medication prior or concomitant as needed dose average frequency

The frequency of use on average of the prior/concomitant medication taken by the participant/subject on an as needed basis (PRN).

 Supplemental Non-Parkinson's Disease Medication Log False Parkinson's Disease Parkinson's Disease
C10175 FEF25-75 percentage value

Forced expiratory flow rate between 25 to 75% of FVC (Used to be known as maximal mid expiratory flow rate)

 Supplemental Other Non-Motor Guidance for CDE Use False Parkinson's Disease Parkinson's Disease
C08018 Surgery age value

Age of the participant/subject at the time of the selected surgical procedure

 Supplemental Functional Neurosurgery: Deep Brain Stimulation False Parkinson's Disease Parkinson's Disease
C59148 Adverse event outcome status other text

The free-text field related to 'Adverse event outcome status', specifying other text. Final status of the participant/subject related to the adverse event

 Supplemental Functional Neurosurgery: Deep Brain Stimulation False Parkinson's Disease Parkinson's Disease
C59101 Functional neurosurgery target planning software type text

The free-text field to describe the type of functional neurosurgery target planning software used to determine the coordinates of the target (brain nucleus)

 Supplemental Functional Neurosurgery: Deep Brain Stimulation False Parkinson's Disease Parkinson's Disease
C59091 Genetic study type other text

The free-text field related to 'Genetic study type ', specifying other text. Type of genetics study conducted

 Supplemental Parkinson's Disease Genetics False Parkinson's Disease Parkinson's Disease
C09595 Brief Psychiatric Rating Scale (BPRS) - tension score

The score of the participant's/subject's tension, as part of the Brief Psychiatric Rating Scale (BPRS) form.

 Supplemental Brief Psychiatric Rating Scale (BPRS) False Parkinson's Disease Parkinson's Disease
C59156 Pulse generator replacement reason

The reason the pulse generator was replaced

 Supplemental Functional Neurosurgery: Deep Brain Stimulation False Parkinson's Disease Parkinson's Disease
C59111 Microelectrode record microstimulation sedation type

Type of sedation used during microelectrode recording or microstimulation for intra-operative target verification

 Supplemental Functional Neurosurgery: Deep Brain Stimulation False Parkinson's Disease Parkinson's Disease
C59119 Genetic study data genotype category type

Type of genotype category data expected for the genetics study

 Supplemental Parkinson's Disease Genetics False Parkinson's Disease Parkinson's Disease
C09603 Brief Psychiatric Rating Scale (BPRS) - uncooperativeness score

The score of the participant's/subject's uncooperativeness, as part of the Brief Psychiatric Rating Scale (BPRS) form.

 Supplemental Brief Psychiatric Rating Scale (BPRS) False Parkinson's Disease Parkinson's Disease
C59586 Stereotactic surgery mini-frame type other text

The free-text field related to 'Stereotactic surgery mini-frame type', specifying other text. Type of mini-frame used for surgery. A mini-frame is a simpler and smaller support for stereotactic surgery; used mainly in image-guided surgery

 Supplemental Functional Neurosurgery: Deep Brain Stimulation False Parkinson's Disease Parkinson's Disease
C59123 Brain lead intercontact space interval type other text

The free-text field related to 'Brain lead intercontact space interval type', specifying other text. Type of intercontact spacing interval for the implanted brain leads (between ends of contacts, not centers)

 Supplemental Functional Neurosurgery: Deep Brain Stimulation False Parkinson's Disease Parkinson's Disease
C59167 Genotype platform description text

The free-text field describing the genotype platform

 Supplemental Parkinson's Disease Genetics False Parkinson's Disease Parkinson's Disease
C02013 Medication prior or concomitant dose unit of measure UCUM code

Code that represents the dosage unit of measure of the prior or concomitant medication administered. Unified Code for Units of Measure (UCUM)

 Supplemental Non-Parkinson's Disease Medication Log False Parkinson's Disease Parkinson's Disease
C59131 Stimulation brain parameter positive contact text

Text related to positive contact brain stimulation parameters

 Supplemental Functional Neurosurgery: Deep Brain Stimulation False Parkinson's Disease Parkinson's Disease
C59139 Optimal programming limit stimulation adverse effect indicator

Indicator related to whether optimal programming is limited by stimulation-induced adverse effects

 Supplemental Functional Neurosurgery: Deep Brain Stimulation False Parkinson's Disease Parkinson's Disease
C59090 Deep brain stimulation indication type other text

The free-text field related to 'Deep brain stimulation indication type', specifying other text. Type of indications for deep brain stimulation (DBS)

 Supplemental Functional Neurosurgery: Deep Brain Stimulation False Parkinson's Disease Parkinson's Disease
C07435 Patient Health Questionnaire (PHQ) - Abnormal diet score

Score of how much the subject has been bothered by abnormal diet/appetite in the past two weeks, as part of the Patient Health Questionnaire (PHQ)

 Supplemental Patient Health Questionnaire - 9 (PHQ-9) Depression Scale True Parkinson's Disease Parkinson's Disease
C10420 Sialorrhea Clinical Scale for PD (SCS-PD) - eating impairment saliva score

Does accumulation of saliva in your mouth impair your eating ability? As part of SCS-PD questionnaire

 Supplemental Sialorrhea Clinical Scale for Parkinson's Disease (SCS-PD) False Parkinson's Disease Parkinson's Disease
C08022 Imaging magnetic resonance imaging findings result status

Results from MRI studies

 Supplemental Functional Neurosurgery: Deep Brain Stimulation False Parkinson's Disease Parkinson's Disease
C20365 Pittsburgh Sleep Quality Index (PSQI) - Cough snore loudly past month scale

The scale to which the subject coughed or snored loudly during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

 Supplemental Pittsburgh Sleep Quality Index (PSQI) False Parkinson's Disease Parkinson's Disease
C08100 Pneumonia episode age value

Participant's/subject's age at the time of the pneumonia episode

 Supplemental Infection History False Parkinson's Disease Parkinson's Disease
C15557 Gene detection method type

The method used to detect the gene mutation or variant

 Supplemental Parkinson's Disease Genetics False Parkinson's Disease Parkinson's Disease
C20430 Beck Depression Inventory II (BDI-II) - Crying scale

Scale identifying level of crying, as part of the Beck Depression Inventory II (BDI-II)

 Supplemental Beck Depression Inventory II (BDI-II) True Parkinson's Disease Parkinson's Disease
Displaying 551 - 575 of 759

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.