CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 401 - 425 of 749
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12805 Gene mRNA variant mutation name

Name using the Human Genome Organisation (HUGO) variant or mutation nomenclature of the messenger ribonucleic acid (mRNA) variant or mutation

 Supplemental Parkinson's Disease Genetics False Parkinson's Disease Parkinson's Disease
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

 Supplemental Functional Neurosurgery: Deep Brain Stimulation False Parkinson's Disease Parkinson's Disease
C10176 Peak Expiratory Flow Rate Percentage value

Peak expiratory flow rate (PEFR)

 Supplemental Other Non-Motor Guidance for CDE Use False Parkinson's Disease Parkinson's Disease
C59040 Medication prior use report duration

Duration in days prior to the study that participant/subject should report taking any medications, specified by the study protocol

 Supplemental Non-Parkinson's Disease Medication Log False Parkinson's Disease Parkinson's Disease
C07435 Patient Health Questionnaire (PHQ) - Abnormal diet score

Score of how much the subject has been bothered by abnormal diet/appetite in the past two weeks, as part of the Patient Health Questionnaire (PHQ)

 Supplemental Patient Health Questionnaire - 9 (PHQ-9) Depression Scale True Parkinson's Disease Parkinson's Disease
C15545 Gene nucleotide change name

In cases of an genetic variant or mutation, specify the nucleotide name

 Supplemental Parkinson's Disease Genetics False Parkinson's Disease Parkinson's Disease
C08033 Medication anti-Parkinsonian during procedure indicator

Indicator of whether the participant/subject was on anti-Parkinsonian medication(s) during the surgical procedure

 Supplemental Functional Neurosurgery: Deep Brain Stimulation False Parkinson's Disease Parkinson's Disease
C10185 Thermoregulatory sweat test intensity color change value

Intensity of the color change of the chemical on participant/subject's body during the Thermoregulatory Sweat Test (TST)

 Supplemental Other Non-Motor Guidance for CDE Use False Parkinson's Disease Parkinson's Disease
C17889 Gene missense nonsense variant point mutation location exon text

The free-text field about missense/nonsense variant or point mutation at the exon

 Supplemental Parkinson's Disease Genetics False Parkinson's Disease Parkinson's Disease
C08041 Surgery lead secure method type

Type of method or device used to protect and secure the lead (part of the electrode that is introduced into the brain), this part must be safely secured and held still in position

 Supplemental Functional Neurosurgery: Deep Brain Stimulation False Parkinson's Disease Parkinson's Disease
C59091 Genetic study type other text

The free-text field related to 'Genetic study type ', specifying other text. Type of genetics study conducted

 Supplemental Parkinson's Disease Genetics False Parkinson's Disease Parkinson's Disease
C10844 Gene type

The type of gene screened in the participant/subject for the disease or disorder

 Supplemental Parkinson's Disease Genetics False Parkinson's Disease Parkinson's Disease
C08233 Drug or substance first illicit use date and time

Date (and time if applicable and known) the participant/subject first used the category of illegal drugs, prescription or over-the-counter drugs

 Supplemental Non-prescribed Drug Use Questionnaire False Parkinson's Disease Parkinson's Disease
C20381 Pittsburgh Sleep Quality Index (PSQI) - Fall asleep past month minute duration

The duration of time (in minutes) it takes the subject to fall asleep the majority of the nights in the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

 Supplemental Pittsburgh Sleep Quality Index (PSQI) False Parkinson's Disease Parkinson's Disease
C08079 Full biological brothers count

Count of full biological brothers the participant/subject has

 Supplemental History of Early Exposure False Parkinson's Disease Parkinson's Disease
C02002 Medication prior or concomitant use indicator

Indicator of whether the participant/subject reported taking any medications during the time period relevant to the study protocol

 Supplemental Non-Parkinson's Disease Medication Log False Parkinson's Disease Parkinson's Disease
C09578 Brief Pain Inventory (BPI) - least pain rating scale

Scale indicating the rating of the least pain experienced by the subject, as part of the Brief Pain Inventory (BPI) form

 Supplemental Brief Pain Inventory (BPI) Short Form True Parkinson's Disease Parkinson's Disease
C59128 Imaging processing software name

Name of the software used for imaging processing

 Supplemental Functional Neurosurgery: Deep Brain Stimulation False Parkinson's Disease Parkinson's Disease
C09605 Brief Psychiatric Rating Scale (BPRS) - blunted affect score

The score of the participant's/subject's blunted affect, as part of the Brief Psychiatric Rating Scale (BPRS) form.

 Supplemental Brief Psychiatric Rating Scale (BPRS) False Parkinson's Disease Parkinson's Disease
C17688 Non-prescribed controlled psychoactive drug substance opioid text

The text specifying the drugs within the 'Opioids/Narcotics: heroin, opium, morphine, methadone, codeine, Darvon, Percodan, Oxycontin, Dilaudid, Demerol/meperidine,' category as unprescribed, controlled psychoactive drugs or substances used by the participant/subject

 Supplemental Non-prescribed Drug Use Questionnaire False Parkinson's Disease Parkinson's Disease
C08109 Preschool start date

Date participant/subject first started preschool

 Supplemental History of Early Exposure False Parkinson's Disease Parkinson's Disease
C02025 Medication prior or concomitant RXNorm code

Code for name of the prior/concomitant agent or drug administered

 Supplemental Non-Parkinson's Disease Medication Log False Parkinson's Disease Parkinson's Disease
C09586 Brief Pain Inventory (BPI) - pain normal work interference scale

Scale assessing how much the pain has interfered with normal work, as part of the Brief Pain Inventory (BPI) form

 Supplemental Brief Pain Inventory (BPI) Short Form True Parkinson's Disease Parkinson's Disease
C59136 Stimulation brain parameter pulse width value

Value of the width of electric pulses (stimulation) on brain hemisphere

 Supplemental Functional Neurosurgery: Deep Brain Stimulation False Parkinson's Disease Parkinson's Disease
C59063 Birth weight source

Source of the participant's/subject's birth weight data

 Supplemental History of Early Exposure False Parkinson's Disease Parkinson's Disease
Displaying 401 - 425 of 749

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.