CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 401 - 425 of 759

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2171-C09354	C09354	Hamilton Anxiety Rating Scale (HAM-A) - gastrointestinal symptom score	The score of the participant's/subject's gastrointestinal symptoms, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.	Supplemental	Hamilton Anxiety Rating Scale (HAM-A)	False	Parkinson's Disease	Parkinson's Disease
F2953-C02016	C02016	Medication prior or concomitant start date and time	The date (and time, if applicable and known) on which the prior/concomitant medication usage began	Supplemental	Non-Parkinson's Disease Medication Log	False	Parkinson's Disease	Parkinson's Disease
F2955-C59171	C59171	Gene copy number change name	In cases of an genetic variant or mutation, specify the copy number change	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2952-C59133	C59133	Stimulation brain parameter amplitude value	Value of the amplitude of electric pulses (stimulation) on brain hemisphere	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F3048-C10172	C10172	Forced vital capacity result value	Value of the Forced Vital Capacity (FVC), in liters, as the maximum volume of air that can be exhaled as rapidly, forcefully, and completely as possible from the point of maximal inhalation	Supplemental	Other Non-Motor Guidance for CDE Use	False	Parkinson's Disease	Parkinson's Disease
F3028-C07430	C07430	Patient Health Questionnaire (PHQ) - Little interest score	Score of how much the subject has been bothered by having little interest or pleasure in doing things in the past two weeks, as part of the Patient Health Questionnaire (PHQ)	Supplemental	Patient Health Questionnaire - 9 (PHQ-9) Depression Scale	True	Parkinson's Disease	Parkinson's Disease
F2952-C59142	C59142	Unified Parkinsons Disease Rating Scale part three on DBS off medication score	The score related to part three of the Unified Parkinson's Disease Rating Scale (UPDRS) when the participant/subject is on DBS and off medications	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F3048-C10180	C10180	Thermoregulatory sweat test sweat chemical type	Type of chemical used for Thermoregulatory Sweat Test (TST) that shows a significant color change when mingled with sweat	Supplemental	Other Non-Motor Guidance for CDE Use	False	Parkinson's Disease	Parkinson's Disease
F2952-C59094	C59094	Unified Parkinsons Disease Rating Scale part three off levodopa score	The score related to part three of the Unified Parkinson's Disease Rating Scale (UPDRS) when the participant/subject is off of levodopa	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2948-C59028	C59028	Family history relative type neurological disorder not parkinsonian code	Code for neurological disorder(s) other than Parkinson's Disease or Parkinsonism experienced by the family member or ancestor, for the specified relative type	Supplemental	Family History	False	Parkinson's Disease	Parkinson's Disease
F3028-C07439	C07439	Patient Health Questionnaire (PHQ) - Better dead thought score	Score of how much the subject has been suffering with the thoughts of that he/she would be better off dead to hurt, as part of the Patient Health Questionnaire (PHQ)	Supplemental	Patient Health Questionnaire - 9 (PHQ-9) Depression Scale	True	Parkinson's Disease	Parkinson's Disease
F2952-C59150	C59150	Hardware component remove type	Type of hardware component removed	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F3048-C10189	C10189	Videofluoroscopic swallowing study dysphagia severity rating scale	Dysphagia severity rating scale of the Videofluoroscopic Swallowing Study (VFSS)	Supplemental	Other Non-Motor Guidance for CDE Use	False	Parkinson's Disease	Parkinson's Disease
F2952-C59105	C59105	Anesthesia type	Type of anesthesia given to the participant/subject	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2952-C59159	C59159	Lead extender replacement manipulation count	Count of brain lead extenders replaced or manipulated during further surgery	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F3056-C54694	C54694	Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health bother emotional problem scale	Scale related to an individual's rating of how often he/she has been bothered by emotional problems such as feeling anxious, depressed or irritable, as part of the PROMIS Global Health	Supplemental	PROMIS Item Bank v1.2 - Global Health	True	Parkinson's Disease	Parkinson's Disease
F0803-C09592	C09592	Brief Psychiatric Rating Scale (BPRS) - emotional withdrawal score	The score of the participant's/subject's emotional withdrawal, as part of the Brief Psychiatric Rating Scale (BPRS) form.	Supplemental	Brief Psychiatric Rating Scale (BPRS)	False	Parkinson's Disease	Parkinson's Disease
F3043-C20377	C20377	Pittsburgh Sleep Quality Index (PSQI) - Past month bed time	The bed time (recorded as 24-hour clock or military time) for the majority of the nights in the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Parkinson's Disease	Parkinson's Disease
F2955-C17896	C17896	Variant mutational analysis not performed reason	Reason for why the mutational analysis was not performed	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2952-C08064	C08064	Lead reposition reason	Reason the lead was repositioned in the participant/subject	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F3041-C20442	C20442	Beck Depression Inventory II (BDI-II) - Total score	Total score, as part of the Beck Depression Inventory II (BDI-II)	Supplemental	Beck Depression Inventory II (BDI-II)	True	Parkinson's Disease	Parkinson's Disease
F2947-C17683	C17683	Non-prescribed controlled psychoactive drug substance marijuana text	The text specifying the drugs within the Marijuana: hash, THC category as unprescribed, controlled psychoactive drugs or substances used by the participant/subject	Supplemental	Non-prescribed Drug Use Questionnaire	False	Parkinson's Disease	Parkinson's Disease
F2955-C12784	C12784	Variant mutational analysis performed family member indicator	Indicator of whether the mutational analysis was performed on a family member	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2945-C08104	C08104	Day care attendance indicator	Indicator of whether the participant/subject attended day care outside of the home as a child	Supplemental	History of Early Exposure	False	Parkinson's Disease	Parkinson's Disease
F0803-C09600	C09600	Brief Psychiatric Rating Scale (BPRS) - suspiciousness score	The score of the participant's/subject's suspiciousness, as part of the Brief Psychiatric Rating Scale (BPRS) form.	Supplemental	Brief Psychiatric Rating Scale (BPRS)	False	Parkinson's Disease	Parkinson's Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.