CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 26 - 50 of 759
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C59082 Brain family member available indicator

Indicator of whether a brain of the participant's/subject's family member is available in a repository

Supplemental-Highly Recommended Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C08625 Risk Factor Questionnaire (RFQ) - longest occupation 46 55 year text

Text describing the participant's/subject's longest held occupation from the age of 46-55 years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation

Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status Parkinson's Disease Parkinson's Disease
C02015 Medication prior or concomitant route type

Type of access route for the administration of the prior/concomitant medication

Supplemental-Highly Recommended Parkinson's Disease Medication Log Parkinson's Disease Parkinson's Disease
C08585 Risk Factor Questionnaire (RFQ) - military service indicator

The indicator as to whether or not the participant/subject has ever been active in the military as part of the Risk Factor Questionnaire (RFQ) - Occupation

Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status Parkinson's Disease Parkinson's Disease
C54697 Epworth Sleepiness Scale (ESS) - Doze off likelihood sit read code

The code denoting the subect/participant's self-reported likelihood of dozing off while sitting and reading, as part of the Epworth Sleepiness Scale (ESS)

Supplemental-Highly Recommended Epworth Sleepiness Scale (ESS) - Adult Version Parkinson's Disease Parkinson's Disease
C16197 Biological sample in repository location name

The location of the banked biological sample or specimen, if known

Supplemental-Highly Recommended Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C08002 Family history relative type biological sample identifier number

Identification (ID) number assigned to family member's biological sample in repository

Supplemental-Highly Recommended Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C08593 Risk Factor Questionnaire (RFQ) - military service combat indicator

The indicator as to whether the participant/subject was ever in combat as part of the Risk Factor Questionnaire (RFQ) - Occupation

Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status Parkinson's Disease Parkinson's Disease
C54705 Epworth Sleepiness Scale (ESS) - Total score

Total score of all questions on the Epworth Sleepiness Scale (ESS)

Supplemental-Highly Recommended Epworth Sleepiness Scale (ESS) - Adult Version Parkinson's Disease Parkinson's Disease
C08601 Risk Factor Questionnaire (RFQ) - military service prisoner of war length value

The time the participant/subject was a prisoner of war as part of the Risk Factor Questionnaire (RFQ) - Occupation

Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status Parkinson's Disease Parkinson's Disease
C10407 Scale for Outcomes of Parkinsons disease (SCOPA) - sleep night early woken past month scale

Pre-specified scales for early wake-up at night in the past month

Supplemental-Highly Recommended Scale for Outcomes in Parkinson's Disease-Sleep (SCOPA-SLEEP) Parkinson's Disease Parkinson's Disease
C08609 Risk Factor Questionnaire (RFQ) - retired age value

Value of the participant's/subject's age of retirement as part of the Risk Factor Questionnaire (RFQ) - Occupation

Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status Parkinson's Disease Parkinson's Disease
C59074 Diagnosis Parkinsons disease support sign type

Type of sign supportive of Parkinsons disease diagnosis

Supplemental-Highly Recommended Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C08259 Imaging radioligand specific activity value

Value of the specific activity of the Radioligand in Bq/Kg

Supplemental-Highly Recommended PET-SPECT Localization Parkinson's Disease Parkinson's Disease
C09310 Apathy Scale (AS) - Energy scale

The scale related to the subject's energy levels, as part of the Apathy Scale (AS) form

Supplemental-Highly Recommended Apathy Scale (AS) Parkinson's Disease Parkinson's Disease
C08242 Imaging acquisition duration

Duration of the imaging scan in minutes

Supplemental-Highly Recommended MRI and Spectroscopy Parkinson's Disease Parkinson's Disease
C18720 Imaging visual analysis location performed type other text

The free-text field related to 'Imaging visual analysis location performed type' specifying other text. Location where visual analysis of the imaging data are performed

Supplemental-Highly Recommended PET-SPECT Localization Parkinson's Disease Parkinson's Disease
C08522 36-item Short Form Health Survey (SF-36) - Pain interfere work score

Score of bodily pain interfering with work (in home and outside) during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Supplemental-Highly Recommended Short Form 36-Item Health Survey (SF-36) Parkinson's Disease Parkinson's Disease
C08267 Imaging outcome variable name

Name of the primary imaging outcome variable

Supplemental-Highly Recommended PET-SPECT Localization Parkinson's Disease Parkinson's Disease
C18700 Imaging matrix size value other text

The free-text field related to 'Imaging matrix size value', specifying other text. Value representing the imaging matrix size in millimeters

Supplemental-Highly Recommended MRI and Spectroscopy Parkinson's Disease Parkinson's Disease
C59042 Imaging radioligand type dihydrotetrabenazine specify text

The free-text field related to 'Imaging radioligand type', specifying dihydrotetrabenazine (DTBZ) isotope details. Isotope-labeled bioactive compound (generic or common name) used in the imaging scan

Supplemental-Highly Recommended PET-SPECT Localization Parkinson's Disease Parkinson's Disease
C08530 36-item Short Form Health Survey (SF-36) - Times happy score

Score of times being a happy person during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Supplemental-Highly Recommended Short Form 36-Item Health Survey (SF-36) Parkinson's Disease Parkinson's Disease
C08635 Risk Factor Questionnaire (RFQ) - longest occupation over 65 year text

Text describing the participant's/subject's longest held occupation from the age of 66+ years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation

Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status Parkinson's Disease Parkinson's Disease
C59025 Imaging radio frequency coil manufacturer name

Name of the manufacturer of the radio frequency (RF) coil used for the imaging scan

Supplemental-Highly Recommended MRI and Spectroscopy Parkinson's Disease Parkinson's Disease
C59050 Imaging reconstruct image resolution full width half maximum millimeter value

Value in millimeters of the reconstructed image resolution measured as full width at half maximum (FWHM)

Supplemental-Highly Recommended PET-SPECT Localization Parkinson's Disease Parkinson's Disease
Displaying 26 - 50 of 759

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.