CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C08608	Risk Factor Questionnaire (RFQ) - retired indicator	The indicator as to whether the subject/participant is currently retired as part of the Risk Factor Questionnaire (RFQ) - Occupation	Supplemental-Highly Recommended	Risk Factor Questionnaire (RFQ) - Occupation and Employment Status	True	Parkinson's Disease	Parkinson's Disease
C59046	Imaging observe method status	Status related to the method of observation of participant/subject during scan	Supplemental-Highly Recommended	PET-SPECT Localization	False	Parkinson's Disease	Parkinson's Disease
C08616	Risk Factor Questionnaire (RFQ) - longest occupation 26 35 year first duty text	Text describing the participant's/subject's first of four major tasks or duties at the longest held occupation from the age of 26-35 years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation	Supplemental-Highly Recommended	Risk Factor Questionnaire (RFQ) - Occupation and Employment Status	True	Parkinson's Disease	Parkinson's Disease
C56035	Genetic test result source type other text	The free-text field related to 'Genetic test result source type', specifying another source of the subject's test results	Supplemental-Highly Recommended	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
C08624	Risk Factor Questionnaire (RFQ) - longest occupation 36 45 year fourth duty text	Text describing the participant's/subject's fourth of four major tasks or duties at the longest held occupation from the age of 36-45 years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation	Supplemental-Highly Recommended	Risk Factor Questionnaire (RFQ) - Occupation and Employment Status	True	Parkinson's Disease	Parkinson's Disease
C08584	Risk Factor Questionnaire (RFQ) - occupation status	The status indicating the participant's/subject's current occupational situation as part of the Risk Factor Questionnaire (RFQ) - Occupation	Supplemental-Highly Recommended	Risk Factor Questionnaire (RFQ) - Occupation and Employment Status	True	Parkinson's Disease	Parkinson's Disease
C59077	Patient genetic test result inform source type	Type of source that informed the participant/subject of the genetic test results	Supplemental-Highly Recommended	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
C08632	Risk Factor Questionnaire (RFQ) - longest occupation 56 65 year second duty text	Text describing the participant's/subject's second of four major tasks or duties at the longest held occupation from the age of 56-65 years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation	Supplemental-Highly Recommended	Risk Factor Questionnaire (RFQ) - Occupation and Employment Status	True	Parkinson's Disease	Parkinson's Disease
C08592	Risk Factor Questionnaire (RFQ) - military service country station longest text	The text describing the country the participant/subject was stationed in for the longest duration as part of the Risk Factor Questionnaire (RFQ) - Occupation	Supplemental-Highly Recommended	Risk Factor Questionnaire (RFQ) - Occupation and Employment Status	True	Parkinson's Disease	Parkinson's Disease
C10467	Risk Factor Questionnaire (RFQ) - military service current active status	The status whether the participant/subject is currently active in the military as part of the Risk Factor Questionnaire (RFQ) - Occupation	Supplemental-Highly Recommended	Risk Factor Questionnaire (RFQ) - Occupation and Employment Status	True	Parkinson's Disease	Parkinson's Disease
C08600	Risk Factor Questionnaire (RFQ) - military service prisoner of war country text	The text describing the country the participant/subject was a prisoner of war as part of the Risk Factor Questionnaire (RFQ) - Occupation	Supplemental-Highly Recommended	Risk Factor Questionnaire (RFQ) - Occupation and Employment Status	True	Parkinson's Disease	Parkinson's Disease
C20247	Imaging scanner model name text	The free-text field related to name of model of imaging scanner	Supplemental-Highly Recommended	PET-SPECT Localization	False	Parkinson's Disease	Parkinson's Disease
C08236	Imaging scanner software name	Name of the scanner software that runs the imaging camera	Supplemental-Highly Recommended	MRI and Spectroscopy	False	Parkinson's Disease	Parkinson's Disease
C17348	Parkinson's Disease Sleep Scale (PDSS) - sleep stay difficulty scale	Scale assessing how often the participant had difficulty staying asleep during the past week (7 days), as part of the Parkinson's Disease Sleep Scale (PDSS)	Supplemental-Highly Recommended	Parkinson's Disease Sleep Scale 2nd Version (PDSS-2)	True	Parkinson's Disease	Parkinson's Disease
C08502	36-item Short Form Health Survey (SF-36) - Now heath score	Score of surveyee-reported present general heath compared to a year ago as part of version 1.0 of 36-item Short Form Health Survey (SF-36)	Supplemental-Highly Recommended	Short Form 36-Item Health Survey (SF-36)	True	Parkinson's Disease	Parkinson's Disease
C10401	Scale for Outcomes of Parkinsons disease (SCOPA) - sleep tablets past month name	Names of sleeping tablets used in the last month	Supplemental-Highly Recommended	Scale for Outcomes in Parkinson's Disease-Sleep (SCOPA-SLEEP)	True	Parkinson's Disease	Parkinson's Disease
C08262	Imaging radioligand dose unit of measure	Unit of measure for the dose of injected radioligand for the imaging scan	Supplemental-Highly Recommended	PET-SPECT Localization	False	Parkinson's Disease	Parkinson's Disease
C08245	Imaging slice count	Count representing the total number of single image planes captured during imaging acquisition	Supplemental-Highly Recommended	MRI and Spectroscopy	False	Parkinson's Disease	Parkinson's Disease
C17356	Parkinson's Disease Sleep Scale (PDSS) - muscle cramp scale	Scale assessing how often the participant had muscle cramps in his arms or legs which woke him up while sleeping during the past week (7 days), as part of the Parkinson's Disease Sleep Scale (PDSS)	Supplemental-Highly Recommended	Parkinson's Disease Sleep Scale 2nd Version (PDSS-2)	True	Parkinson's Disease	Parkinson's Disease
C08510	36-item Short Form Health Survey (SF-36) - Health limited walking several blocks score	Score of surveyee-reported limited walking several blocks due to physical health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)	Supplemental-Highly Recommended	Short Form 36-Item Health Survey (SF-36)	True	Parkinson's Disease	Parkinson's Disease
C10409	Scale for Outcomes of Parkinsons disease (SCOPA) - sleep well night past month scale	Pre-specified scales for overall sleep at night in the past month	Supplemental-Highly Recommended	Scale for Outcomes in Parkinson's Disease-Sleep (SCOPA-SLEEP)	True	Parkinson's Disease	Parkinson's Disease
C08270	Imaging reference region text	Text that describes the reference region used for the imaging scan and analysis	Supplemental-Highly Recommended	PET-SPECT Localization	False	Parkinson's Disease	Parkinson's Disease
C59174	Genetic test result patient inform indicator	Indicator of whether the participant/subject was informed of the genetic test results	Supplemental-Highly Recommended	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
C09306	Apathy Scale (AS) - Effort scale	The scale related to subject's desire to put effort into things, as part of the Apathy Scale (AS) form	Supplemental-Highly Recommended	Apathy Scale (AS)	True	Parkinson's Disease	Parkinson's Disease
C18716	Imaging scanner manufacturer name other text	The free-text field related to 'Imaging scanner manufacturer name', specifying other text. Name of manufacturer of imaging scanner	Supplemental-Highly Recommended	MRI and Spectroscopy	False	Parkinson's Disease	Parkinson's Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.