CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Displaying 1 - 25 of 2446
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C02008 Medication prior or concomitant end date and time

The date (and time, if applicable and known) the administration of the prior/concomitant medication ended

Supplemental-Highly Recommended Parkinson's Disease Medication Log Parkinson's Disease Parkinson's Disease
C18700 Imaging matrix size value other text

The free-text field related to 'Imaging matrix size value', specifying other text. Value representing the imaging matrix size in millimeters

Supplemental-Highly Recommended PET-SPECT Localization Parkinson's Disease Parkinson's Disease
C17248 Questionnaire for Impulsive-Compulsive Disorders in Parkinson's Disease (QUIP) - repeat simple activity indicator

Indicator of whether the participant spends too much time repeating simple motor activities (cleaning, tidying, handling, examining, sorting, ordering, or arranging objects, etc.), as part of the Questionnaire for Impulsive-Compulsive Disorders in Parkinson's Disease (QUIP)

Supplemental-Highly Recommended Questionnaire for Impulsive-Compulsive Disorders in Parkinson's Disease (QUIP) (Long Form) Parkinson's Disease Parkinson's Disease
C09315 Apathy Scale (AS) - total score

Total Score on the apathy scale, as part of the Apathy Scale (AS) form

Supplemental-Highly Recommended Apathy Scale (AS) Parkinson's Disease Parkinson's Disease
C59033 Imaging band count

Count of bands for multiband method used in image acquisition

Supplemental-Highly Recommended MRI and Spectroscopy Parkinson's Disease Parkinson's Disease
C08527 36-item Short Form Health Survey (SF-36) - Times energy score

Score of times having a lot of energy during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Supplemental-Highly Recommended Short Form 36-Item Health Survey (SF-36) Parkinson's Disease Parkinson's Disease
C18716 Imaging scanner manufacturer name other text

The free-text field related to 'Imaging scanner manufacturer name', specifying other text. Name of manufacturer of imaging scanner

Supplemental-Highly Recommended PET-SPECT Localization Parkinson's Disease Parkinson's Disease
C20527 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Self-care category

Category determining the extent to which the participant has problems with self-care, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)

Supplemental-Highly Recommended EuroQoL-5 Dimension Questionnaire (EQ-5D) Parkinson's Disease Parkinson's Disease
C17256 Questionnaire for Impulsive-Compulsive Disorders in Parkinson's Disease (QUIP) - hoard hide increase medication indicator

Indicator of whether the participant hoards or hide Parkinson's medication to increase the overall dosage

Supplemental-Highly Recommended Questionnaire for Impulsive-Compulsive Disorders in Parkinson's Disease (QUIP) (Long Form) Parkinson's Disease Parkinson's Disease
C02014 Medication prior or concomitant name

Name of the prior/concomitant agent or drug administered

Supplemental-Highly Recommended PET-SPECT Localization Parkinson's Disease Parkinson's Disease
C08535 36-item Short Form Health Survey (SF-36) - Expect worse health score

Score of how true or false surveyee perceived the statement: I expect my health to get worse, as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Supplemental-Highly Recommended Short Form 36-Item Health Survey (SF-36) Parkinson's Disease Parkinson's Disease
C54700 Epworth Sleepiness Scale (ESS) - Doze off likelihood car passenger code

The code denoting the subect/participant's self-reported likelihood of dozing off while a passenger in a car, as part of the Epworth Sleepiness Scale (ESS)

Supplemental-Highly Recommended Epworth Sleepiness Scale (ESS) - Adult Version Parkinson's Disease Parkinson's Disease
C08253 Imaging visual analysis status

Status of findings from subjective review of image data

Supplemental-Highly Recommended PET-SPECT Localization Parkinson's Disease Parkinson's Disease
C08238 Imaging repetition gap value

Duration between successive pulse sequences, in milliseconds, applied to the same slice during imaging acquisition

Supplemental-Highly Recommended MRI and Spectroscopy Parkinson's Disease Parkinson's Disease
C17349 Parkinson's Disease Sleep Scale (PDSS) - leg arm restlessness sleep disruption scale

Scale assessing how often the participant had restlessness of his legs or arms at nights causing disruption of sleep during the past week (7 days), as part of the Parkinson's Disease Sleep Scale (PDSS)

Supplemental-Highly Recommended Parkinson's Disease Sleep Scale 2nd Version (PDSS-2) Parkinson's Disease Parkinson's Disease
C08503 36-item Short Form Health Survey (SF-36) - Health limited vigorous activities score

Score of surveyee-reported limited vigorous activities due to physical health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Supplemental-Highly Recommended Short Form 36-Item Health Survey (SF-36) Parkinson's Disease Parkinson's Disease
C10402 Scale for Outcomes of Parkinsons disease (SCOPA) - sleep tablets past month total dose

Total dose of sleeping tablets used in the last month

Supplemental-Highly Recommended Scale for Outcomes in Parkinson's Disease-Sleep (SCOPA-SLEEP) Parkinson's Disease Parkinson's Disease
C08263 Imaging radioligand injection to acquisition duration

Duration in minutes from radioligand injection to imaging acquisition

Supplemental-Highly Recommended PET-SPECT Localization Parkinson's Disease Parkinson's Disease
C09299 Apathy Scale (AS) - Apathetic interviewer scale

The scale related to interviewer's opinion on how apathetic the subject is, as part of the Apathy Scale (AS) form

Supplemental-Highly Recommended Apathy Scale (AS) Parkinson's Disease Parkinson's Disease
C10568 Imaging radio frequency coil channel count

Number of the coil channels in the radio frequency (RF) coil used for the imaging scan

Supplemental-Highly Recommended MRI and Spectroscopy Parkinson's Disease Parkinson's Disease
C17357 Parkinson's Disease Sleep Scale (PDSS) - pain arm leg morning scale

Scale assessing how often the participant woke early in the morning with painful posturing of arms and legs during the past week (7 days), as part of the Parkinson's Disease Sleep Scale (PDSS)

Supplemental-Highly Recommended Parkinson's Disease Sleep Scale 2nd Version (PDSS-2) Parkinson's Disease Parkinson's Disease
C08511 36-item Short Form Health Survey (SF-36) - Health limited walking one block score

Score of surveyee-reported limited walking one block due to physical health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Supplemental-Highly Recommended Short Form 36-Item Health Survey (SF-36) Parkinson's Disease Parkinson's Disease
C10410 Scale for Outcomes of Parkinsons disease (SCOPA) - sleep asleep unexpected past month frequency

Pre-specified frequencies for falling asleep unexpectedly during the day or in the evening in the past month

Supplemental-Highly Recommended Scale for Outcomes in Parkinson's Disease-Sleep (SCOPA-SLEEP) Parkinson's Disease Parkinson's Disease
C59175 Brain donation register indicator

Indicator of whether the participant/subject has registered for brain donation

Supplemental-Highly Recommended Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C09307 Apathy Scale (AS) - Seek work scale

The scale related to subject's desire to partake in projects, as part of the Apathy Scale (AS) form

Supplemental-Highly Recommended Apathy Scale (AS) Parkinson's Disease Parkinson's Disease
Displaying 1 - 25 of 2446

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.