CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C02495	Imaging scanner strength value	Value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported	Supplemental-Highly Recommended	MRI and Spectroscopy	False	Parkinson's Disease	Parkinson's Disease
C54703	Epworth Sleepiness Scale (ESS) - Doze off likelihood sit after lunch code	The code denoting the subect/participant's self-reported likelihood of dozing off while sitting quietly after a lunch that did not include alcohol, as part of the Epworth Sleepiness Scale (ESS)	Supplemental-Highly Recommended	Epworth Sleepiness Scale (ESS) - Adult Version	True	Parkinson's Disease	Parkinson's Disease
C08258	Imaging radioligand type	Isotope-labeled bioactive compound (generic or common name) used in the imaging scan	Supplemental-Highly Recommended	PET-SPECT Localization	False	Parkinson's Disease	Parkinson's Disease
C08241	Imaging field of view axis 1 measurement	Axis 1 of the image that is visible through the camera at a particular position in orientation and space in millimeters	Supplemental-Highly Recommended	MRI and Spectroscopy	False	Parkinson's Disease	Parkinson's Disease
C17352	Parkinson's Disease Sleep Scale (PDSS) - hallucination scale	Scale assessing how often the participant suffered from distressing hallucinations at night during the past week (7 days), as part of the Parkinson's Disease Sleep Scale (PDSS)	Supplemental-Highly Recommended	Parkinson's Disease Sleep Scale 2nd Version (PDSS-2)	True	Parkinson's Disease	Parkinson's Disease
C08506	36-item Short Form Health Survey (SF-36) - Health limited climbing several stairs score	Score of surveyee-reported limited climbing several flights of stairs due to physical health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)	Supplemental-Highly Recommended	Short Form 36-Item Health Survey (SF-36)	True	Parkinson's Disease	Parkinson's Disease
C10405	Scale for Outcomes of Parkinsons disease (SCOPA) - sleep night woken past month scale	Pre-specified scales for having woken at night in the past month	Supplemental-Highly Recommended	Scale for Outcomes in Parkinson's Disease-Sleep (SCOPA-SLEEP)	True	Parkinson's Disease	Parkinson's Disease
C08266	Imaging post reconstruction filter type	Type of post reconstruction filter used to smooth image data	Supplemental-Highly Recommended	PET-SPECT Localization	False	Parkinson's Disease	Parkinson's Disease
C09302	Apathy Scale (AS) - Interest scale	The scale related to subject's interests, as part of the Apathy Scale (AS) form	Supplemental-Highly Recommended	Apathy Scale (AS)	True	Parkinson's Disease	Parkinson's Disease
C10927	Imaging inversion time	The time period between the 180° inversion pulse and the 90° excitation pulse in an Inversion Recovery pulse sequence	Supplemental-Highly Recommended	MRI and Spectroscopy	False	Parkinson's Disease	Parkinson's Disease
C17360	Parkinson's Disease Sleep Scale (PDSS) - sleep disruption snoring breathing difficulty scale	Scale assessing how often the participant woke up at night due to snoring or difficulties with breathing during the past week (7 days), as part of the Parkinson's Disease Sleep Scale (PDSS)	Supplemental-Highly Recommended	Parkinson's Disease Sleep Scale 2nd Version (PDSS-2)	True	Parkinson's Disease	Parkinson's Disease
C08514	36-item Short Form Health Survey (SF-36) - Less accomplished physical health indicator	Indicator for surveyee-reported less accomplishment as a result of physical health during past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)	Supplemental-Highly Recommended	Short Form 36-Item Health Survey (SF-36)	True	Parkinson's Disease	Parkinson's Disease
C10413	Scale for Outcomes of Parkinsons disease (SCOPA) - sleep asleep talk past month frequency	Pre-specified frequencies for falling asleep while talking to someone in the past month	Supplemental-Highly Recommended	Scale for Outcomes in Parkinson's Disease-Sleep (SCOPA-SLEEP)	True	Parkinson's Disease	Parkinson's Disease
C18037	Imaging radioligand specific activity value indicator	Whether the specific activity value is known	Supplemental-Highly Recommended	PET-SPECT Localization	False	Parkinson's Disease	Parkinson's Disease
C59178	Blood sample repository indicator	Indicator whether the participant/subject provided a blood sample to a repository	Supplemental-Highly Recommended	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
C17243	Questionnaire for Impulsive-Compulsive Disorders in Parkinson's Disease (QUIP) - guilty trouble mind indicator	Indicator of whether the participant believes that he or she has trouble keeping gambling, sex, buying, or eating out of the mind or feels guilty about the thoughts, as part of the Questionnaire for Impulsive-Compulsive Disorders in Parkinson's Disease (QUIP)	Supplemental-Highly Recommended	Questionnaire for Impulsive-Compulsive Disorders in Parkinson's Disease (QUIP) (Long Form)	True	Parkinson's Disease	Parkinson's Disease
C09310	Apathy Scale (AS) - Energy scale	The scale related to the subject's energy levels, as part of the Apathy Scale (AS) form	Supplemental-Highly Recommended	Apathy Scale (AS)	True	Parkinson's Disease	Parkinson's Disease
C57934	Imaging multiband use indicator	Indicator of whether a multiband method is used in imaging acquisition	Supplemental-Highly Recommended	MRI and Spectroscopy	False	Parkinson's Disease	Parkinson's Disease
C08522	36-item Short Form Health Survey (SF-36) - Pain interfere work score	Score of bodily pain interfering with work (in home and outside) during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)	Supplemental-Highly Recommended	Short Form 36-Item Health Survey (SF-36)	True	Parkinson's Disease	Parkinson's Disease
C02015	Medication prior or concomitant route type	Type of access route for the administration of the prior/concomitant medication	Supplemental-Highly Recommended	Parkinson's Disease Medication Log	False	Parkinson's Disease	Parkinson's Disease
C18707	Imaging pre-scan procedure type other text	The free-text field related to 'Imaging pre-scan procedure type' specifying other text. Type(s) of pre-scan procedures administered to the participant/subject	Supplemental-Highly Recommended	PET-SPECT Localization	False	Parkinson's Disease	Parkinson's Disease
C17251	Questionnaire for Impulsive-Compulsive Disorders in Parkinson's Disease (QUIP) - hinder function relationship work indicator	Indicator of whether the specific tasks, hobbies, or other organized activities interfere with daily functioning, or cause relationship or work difficulties, as part of the Questionnaire for Impulsive-Compulsive Disorders in Parkinson's Disease (QUIP)	Supplemental-Highly Recommended	Questionnaire for Impulsive-Compulsive Disorders in Parkinson's Disease (QUIP) (Long Form)	True	Parkinson's Disease	Parkinson's Disease
C59036	Imaging scan initiation time	Time of scan initiation	Supplemental-Highly Recommended	MRI and Spectroscopy	False	Parkinson's Disease	Parkinson's Disease
C59080	Biological sample in repository specimen type other text	The free-text field related to 'Biological sample in repository specimen type', specifying other text. Type of biological sample or specimen collected and stored in a repository	Supplemental-Highly Recommended	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
C08530	36-item Short Form Health Survey (SF-36) - Times happy score	Score of times being a happy person during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)	Supplemental-Highly Recommended	Short Form 36-Item Health Survey (SF-36)	True	Parkinson's Disease	Parkinson's Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.