CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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CRF Name

2446 results.

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Operations

Selected 21 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C08505	36-item Short Form Health Survey (SF-36) - Health limited carrying groceries score	Score of surveyee-reported limited lifting or carrying groceries due to physical health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)	Supplemental-Highly Recommended	Short Form 36-Item Health Survey (SF-36)	True	Parkinson's Disease	Parkinson's Disease
C10404	Scale for Outcomes of Parkinsons disease (SCOPA) - sleep night trouble fall asleep past month scale	Pre-specified scales for trouble falling asleep at night in the past month	Supplemental-Highly Recommended	Scale for Outcomes in Parkinson's Disease-Sleep (SCOPA-SLEEP)	True	Parkinson's Disease	Parkinson's Disease
C08265	Imaging attenuation correction method type	Type of method to correct for different tissues density when analyzing the image	Supplemental-Highly Recommended	PET-SPECT Localization	False	Parkinson's Disease	Parkinson's Disease
C09301	Apathy Scale (AS) - Learn eagerness scale	The scale related to subject's eagerness to learn new things, as part of the Apathy Scale (AS) form	Supplemental-Highly Recommended	Apathy Scale (AS)	True	Parkinson's Disease	Parkinson's Disease
C10685	Imaging slice orientation type	The slice orientation used in imaging acquisition	Supplemental-Highly Recommended	MRI and Spectroscopy	False	Parkinson's Disease	Parkinson's Disease
C17359	Parkinson's Disease Sleep Scale (PDSS) - feeling tired awake scale	Scale assessing how often the participant felt tired and slept after waking in the morning during the past week (7 days), as part of the Parkinson's Disease Sleep Scale (PDSS)	Supplemental-Highly Recommended	Parkinson's Disease Sleep Scale 2nd Version (PDSS-2)	True	Parkinson's Disease	Parkinson's Disease
C08513	36-item Short Form Health Survey (SF-36) - Cut time on work activities physical health indicator	Indicator for surveyee-reported cut down time on work or other activities as a result of physical health during past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)	Supplemental-Highly Recommended	Short Form 36-Item Health Survey (SF-36)	True	Parkinson's Disease	Parkinson's Disease
C08620	Risk Factor Questionnaire (RFQ) - longest occupation 36 45 year text	Text describing the participant's/subject's longest held occupation from the age of 36-45 years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation	Supplemental-Highly Recommended	Risk Factor Questionnaire (RFQ) - Occupation and Employment Status	True	Parkinson's Disease	Parkinson's Disease
C59061	Diagnosis primary clinical parkinsonism status	Status of the primary clinical parkinsonism diagnosis	Supplemental-Highly Recommended	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
C08628	Risk Factor Questionnaire (RFQ) - longest occupation 46 55 year third duty text	Text describing the participant's/subject's third of four major tasks or duties at the longest held occupation from the age of 46-55 years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation	Supplemental-Highly Recommended	Risk Factor Questionnaire (RFQ) - Occupation and Employment Status	True	Parkinson's Disease	Parkinson's Disease
C08588	Risk Factor Questionnaire (RFQ) - military service longest job text	Text describing the participant's/subject's longest held job while active in the military as part of the Risk Factor Questionnaire (RFQ) - Occupation	Supplemental-Highly Recommended	Risk Factor Questionnaire (RFQ) - Occupation and Employment Status	True	Parkinson's Disease	Parkinson's Disease
C16195	Biological sample in repository specimen type	Type of biological sample or specimen collected and stored in a repository	Supplemental-Highly Recommended	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
C08636	Risk Factor Questionnaire (RFQ) - longest occupation over 65 year first duty text	Text describing the participant's/subject's first of four major tasks or duties at the longest held occupation from the age of 66+ years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation	Supplemental-Highly Recommended	Risk Factor Questionnaire (RFQ) - Occupation and Employment Status	True	Parkinson's Disease	Parkinson's Disease
C59180	Medication prior or concomitant daily dose frequency	Frequency of use of a prior/concomitant medication daily	Supplemental-Highly Recommended	Parkinson's Disease Medication Log	False	Parkinson's Disease	Parkinson's Disease
C08596	Risk Factor Questionnaire (RFQ) - military service combat country station longest text	The text describing the country the participant/subject was in combat for the longest duration as part of the Risk Factor Questionnaire (RFQ) - Occupation	Supplemental-Highly Recommended	Risk Factor Questionnaire (RFQ) - Occupation and Employment Status	True	Parkinson's Disease	Parkinson's Disease
C08604	Risk Factor Questionnaire (RFQ) - current job first duty text	Text describing the first of four major duties or tasks at the participant's/subject's current job as part of the Risk Factor Questionnaire (RFQ) - Occupation	Supplemental-Highly Recommended	Risk Factor Questionnaire (RFQ) - Occupation and Employment Status	True	Parkinson's Disease	Parkinson's Disease
C59042	Imaging radioligand type dihydrotetrabenazine specify text	The free-text field related to 'Imaging radioligand type', specifying dihydrotetrabenazine (DTBZ) isotope details. Isotope-labeled bioactive compound (generic or common name) used in the imaging scan	Supplemental-Highly Recommended	PET-SPECT Localization	False	Parkinson's Disease	Parkinson's Disease
C17287	Questionnaire for Impulsive Disorders in Parkinson's Disease (QUIP-Current-Short) - spending excessive time other activities indicator	Indicates if there is an issue with spending too much time on other activities, as part of the Questionnaire for Impulsive Disorders in Parkinson's Disease (QUIP-Current-Short)	Supplemental-Highly Recommended	Questionnaire for Impulsive-Compulsive Disorders in Parkinson's Disease (QUIP) (Short Form)	True	Parkinson's Disease	Parkinson's Disease
C19584	Genetic test performed year value	Value of the year the genetic test was performed	Supplemental-Highly Recommended	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
C08612	Risk Factor Questionnaire (RFQ) - longest occupation 25 year second duty text	Text describing the participant's/subject's second of four major tasks or duties at the longest held occupation from the age of 0-25 years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation	Supplemental-Highly Recommended	Risk Factor Questionnaire (RFQ) - Occupation and Employment Status	True	Parkinson's Disease	Parkinson's Disease
C59050	Imaging reconstruct image resolution full width half maximum millimeter value	Value in millimeters of the reconstructed image resolution measured as full width at half maximum (FWHM)	Supplemental-Highly Recommended	PET-SPECT Localization	False	Parkinson's Disease	Parkinson's Disease

2446 results.

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.