CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Displaying 226 - 250 of 2660
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C10412 Scale for Outcomes of Parkinsons disease (SCOPA) - sleep asleep watch read past month frequency

Pre-specified frequencies for falling asleep peacefully while watching TV or reading in the past month

Supplemental Scale for Outcomes in Parkinson's Disease-Sleep (SCOPA-Sleep) Parkinson's Disease Parkinson's Disease
C08899 Risk Factor Questionnaire (RFQ-U) - work pesticide exposure other birth 25 age indicator

The indicator whether job exposure to pesticides from birth to age 25 was other than through mixed or applied pesticides as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work).

Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) Parkinson's Disease Parkinson's Disease
C08170 Neuritic plaque density category

Density of neuritic plaques (plaques with argyrophilic dystrophic neurites with or without dense amyloid cores).

Supplemental Neuropathology Parkinson's Disease Parkinson's Disease
C09189 Risk Factor Questionnaire (RFQ-U) - farm ranch pesticide exposure animals 66 onward age indicator

The indicator whether participant/subject exposed to pesticides used on livestock/farm animals while working in farming or ranching from age 66 onward as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work).

Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) Parkinson's Disease Parkinson's Disease
C08539 Risk Factor Questionnaire (RFQ) - age year stop taking ibuprofen based medication value

Age/year the participant stopped regularly taking an ibuprofen-based medication as part of the Risk Factor Questionnaire for Nonsteroidal Anti-Inflammatory Drugs (NSAIDS) and Calcium Channel Blockers (CCB)

Supplemental Risk Factor Questionnaire (RFQ) - NSAIDS and Calcium Channel Blockers (CCB) Parkinson's Disease Parkinson's Disease
C08071 Aborted procedures reason

Reason for aborted procedures

Supplemental Functional Neurosurgery Parkinson's Disease Parkinson's Disease
C09024 Risk Factor Questionnaire (RFQ-U) - pest control work 36 45 age indicator

The indicator whether participant/subject worked in pest control or as an exterminator from age 36 to 45 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticide (Work).

Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) Parkinson's Disease Parkinson's Disease
C10291 Quality of Life in Swallowing Disorders (SWAL-QOL) - food sticking throat problem indicator

Scale assessing how true the following statement has been for the participant during the last month: Food sticking in your throat. As part of Quality of Life in Swallowing Disorders (SWAL-QOL).

Supplemental Quality of Life in Swallowing Disorders (SWAL-QOL) Parkinson's Disease Parkinson's Disease
C08802 Risk Factor Questionnaire (RFQ) - ever used silver indicator

Has the participant ever used silver as part of the Risk Factor Questionnaire for Toxicants

Supplemental Risk Factor Questionnaire (RFQ) - Toxicants Parkinson's Disease Parkinson's Disease
C10439 South Oaks Gambling Screen (SOGS) - gamble lie indicator

Indicator for whether the participant claims to win money Gambling but in fact lost money, as a part of South Oaks Gambling Screen (SOGS).

Supplemental South Oaks Gambling Screen (SOGS) Parkinson's Disease Parkinson's Disease
C08717 Risk Factor Questionnaire (RFQ) - age 56 65 residential history residence well water indicator

Indicator as to whether the participant's/subject's source of drinking water was a private well at the residence from 56-65 years of age

Supplemental Risk Factor Questionnaire (RFQ) - Residential History Parkinson's Disease Parkinson's Disease
C10365 Scale for Outcomes in PD Autonomic (SCOPA-AUT) - medication erection disorder indicator

The indicator of whether the male participant/subject has taken medication for an erection disorder in the past month, as part of the Scales for Outcomes in PD-Autonomic (SCOPA-Aut) form.

Supplemental Scale for Outcomes in Parkinson's Disease Autonomic (SCOPA-AUT) Parkinson's Disease Parkinson's Disease
C09337 Geriatric Depression Scale (GDS) - bored indicator

Indicator whether respondent has often gotten bored over the past week, as part of the Geriatric Depression Scale (short form) (GDSSF).

Supplemental Geriatric Depression Scale (GDS) Parkinson's Disease Parkinson's Disease
C10119 Non-Motor Symptom assessment scale for Parkinson's Disease (NMSS) - forget event frequency

The frequency of the participant/subject forgetting things that he/she has been told a short time ago or events that happened in the last few days as part of the Non-Motor Symptom assessment scale for Parkinson's Disease (NMSS).

Supplemental Non-Motor Symptom assessment scale for Parkinson's Disease (NMSS) Parkinson's Disease Parkinson's Disease
C09808 Food Frequency Questionnaire - (FFQ)-regular beer indicator

Average total amount of regular beer the subject drank this past year, as part of Food Frequency Questionnaire -(FFQ)

Supplemental Food Frequency Questionnaire (FFQ) Parkinson's Disease Parkinson's Disease
C09462 Rome III Constipation Module (RCM3) - anus pain occur disappear same day indicator

The indicator for whether the pain in the anus and rectum occur and then completely disappear in the same day, as a part of Rome III Constipation Module (RCM3)

Supplemental Rome III Constipation Module Parkinson's Disease Parkinson's Disease
C10270 Parkinson's Disease - Mini Environmental Risk Questionnaire (PD-DOC-MERQ) - regular use Cox-2 indicator

Indicator for the regular use of Cox-2-Inhibitor (Bextra, Celebrex, Vioxx, Meloxicam, Piroxicam), as a part of Parkinson's Disease - Mini Environmental Risk Questionnaire (PD-DOC-MERQ)

Supplemental PD DOC Mini Environmental Risk Questionnaire for Parkinson's Disease Patients Baseline (PD DOC MERQ-PD-B) Parkinson's Disease Parkinson's Disease
C09644 Fatigue Severity Scale (FSS) - prevent sustain physical function scale

Scale used to describe the extent to which fatigue prevented the patient's sustained physical functioning in the past week, as part of the Fatigue Severity Scale (FSS)

Supplemental Fatigue Severity Scale (FSS) Parkinson's Disease Parkinson's Disease
C10079 Non-Motor Symptom assessment scale for Parkinson's Disease (NMSS) - difficulty sleeping severity score

The severity of the participant/subject having difficulties falling or staying asleep as part of the Non-Motor Symptom assessment scale for Parkinson's Disease (NMSS).

Supplemental Non-Motor Symptom assessment scale for Parkinson's Disease (NMSS) Parkinson's Disease Parkinson's Disease
C18667 Data source other text

The free-text field related to 'Data source' specifying other text. Source of the data provided on the case report form

Supplemental Neuropathology Parkinson's Disease Parkinson's Disease
C09237 Risk Factor Questionnaire (RFQ-U) - work other pesticide use 66 onward age indicator

The indicator whether participant/subject used another type of pesticide at work from age 66 onward as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work).

Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) Parkinson's Disease Parkinson's Disease
C09768 Food Frequency Questionnaire - (FFQ)-chicken turkey hot dogs sausages indicator

Average amount of chicken or turkey hot dogs or sausages the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

Supplemental Food Frequency Questionnaire (FFQ) Parkinson's Disease Parkinson's Disease
C08100 Pneumonia episode age value

Participant's/subject's age at the time of the pneumonia episode

Supplemental Infection History Parkinson's Disease Parkinson's Disease
C09072 Risk Factor Questionnaire (RFQ-U) - farm ranch work 46 55 age indicator

The indicator whether participant/subject worked in farming or ranching from age 46 to 55 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work).

Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) Parkinson's Disease Parkinson's Disease
C10230 Parkinson's Disease - Mini Environmental Risk Questionnaire (PD-DOC-MERQ) - age twenty one forty city location

Location of the city that the participant/subject spent the majority of his or her time from 21-40 years, as a part of Parkinson's Disease - Mini Environmental Risk Questionnaire (PD-DOC-MERQ)

Supplemental PD DOC Mini Environmental Risk Questionnaire for Parkinson's Disease Patients Baseline (PD DOC MERQ-PD-B) Parkinson's Disease Parkinson's Disease
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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.