CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 226 - 250 of 2446
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C09460 Rome III Constipation Module (RCM3) - ache pain pressure duration

The duration of time the aching, pain, or pressure lasted, as a part of Rome III Constipation Module (RCM3)

 Supplemental Rome III/IV Constipation Module True Parkinson's Disease Parkinson's Disease
C01581 Weight unit of measure

Unit of measure for the weight numerical value

 Supplemental History of Early Exposure False Parkinson's Disease Parkinson's Disease
C59159 Lead extender replacement manipulation count

Count of brain lead extenders replaced or manipulated during further surgery

 Supplemental Functional Neurosurgery: Deep Brain Stimulation False Parkinson's Disease Parkinson's Disease
C09831 Food Frequency Questionnaire - (FFQ)-brownies indicator

Average total amount of brownies the subject ate this past year, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Parkinson's Disease Parkinson's Disease
C54694 Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health bother emotional problem scale

Scale related to an individual's rating of how often he/she has been bothered by emotional problems such as feeling anxious, depressed or irritable, as part of the PROMIS Global Health

 Supplemental PROMIS Item Bank v1.2 - Global Health True Parkinson's Disease Parkinson's Disease
C17377 Parkinson's Disease Quality of Life (PDQUALIF) - independent important scale

Rating scale for feeling important to maintain independence as part of Parkinson's Disease Quality of Life (PDQUALIF) form

 Supplemental Parkinson's Disease Quality of Life Scale (PDQUALIF) True Parkinson's Disease Parkinson's Disease
C09666 Food Frequency Questionnaire - (FFQ)-vitamin D daily dose

Dose per day of Vitamin D, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Parkinson's Disease Parkinson's Disease
C59104 Genetic study data type category

Category of data type expected for the genetics study

 Supplemental Parkinson's Disease Genetics False Parkinson's Disease Parkinson's Disease
C17340 Parkinson's Disease Non Motor Symptoms (PD NMS) - talking moving acting dream indicator

Indicator of participant/subject talking/moving/acting in their sleep in the last month, as part of the Parkinson's Disease Non Motor Symptoms (PD NMS) Questionnaire.

 Supplemental Non-Motor Symptom Questionnaire (NMS-Quest) (PD-NMS) True Parkinson's Disease Parkinson's Disease
C09161 Risk Factor Questionnaire (RFQ-U) - work insecticide use 56 65 age indicator

The indicator whether participant/subject used insecticides at work from age 56 to 65 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Parkinson's Disease Parkinson's Disease
C09346 Hamilton Anxiety Rating Scale (HAM-A) - insomnia score

The score of the participant's/subject's insomnia, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.

 Supplemental Hamilton Anxiety Rating Scale (HAM-A) False Parkinson's Disease Parkinson's Disease
C59115 Test stimulation sedation type

Type of sedation used during test stimulation through deep brain stimulation (DBS) lead or other microcontact used during intra-operative target verification

 Supplemental Functional Neurosurgery: Deep Brain Stimulation False Parkinson's Disease Parkinson's Disease
C08996 Risk Factor Questionnaire (RFQ-U) - work oil use 26 35 age indicator

The indicator whether participant/subject used oil at work from age 26 to 35 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticide (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Parkinson's Disease Parkinson's Disease
C08872 Risk Factor Questionnaire (RFQ-U) - herbicide exposure 56 65 age frequency

The frequency of exposure to herbicides from ages 56 to 65 in a participant's/subject's life as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Home)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Home) True Parkinson's Disease Parkinson's Disease
C08774 Risk Factor Questionnaire (RFQ) - ever flame cut metals indicator

Has the participant ever flame cut metals as part of the Risk Factor Questionnaire for Toxicants

 Supplemental Risk Factor Questionnaire (RFQ) - Toxicants True Parkinson's Disease Parkinson's Disease
C09121 Risk Factor Questionnaire (RFQ-U) - work other fumigant use 46 55 age indicator

The indicator whether participant/subject used other fumigants at work from age 46 to 55 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Parkinson's Disease Parkinson's Disease
C08689 Risk Factor Questionnaire (RFQ) - age 26 35 residential history residence pesticide use indicator

Indicator as to whether the participant's/subject's residence from 26-35 years of age was located near pesticide spraying activities during the span of residence

 Supplemental Risk Factor Questionnaire (RFQ) - Residential History True Parkinson's Disease Parkinson's Disease
C08956 Risk Factor Questionnaire (RFQ-U) - work pesticide exposure other 26 35 age indicator

The indicator whether work exposure to pesticides from age 26 to 35 was other than through mixed or applied pesticides as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Parkinson's Disease Parkinson's Disease
C10209 Parkinson's Impact Scale (PIMS) - worst symptom travel scale

Travel: Refers to your ability to reach your destinations i.e.: work and/or social. If your symptoms fluctuate complete for worse As part of PIMS Questionnaire

 Supplemental Parkinson's Impact Scale (PIMS) True Parkinson's Disease Parkinson's Disease
C08734 Risk Factor Questionnaire (RFQ) - started using adhesives value

Age/year the participant started using adhesives as part of the Risk Factor Questionnaire for Toxicants

 Supplemental Risk Factor Questionnaire (RFQ) - Toxicants True Parkinson's Disease Parkinson's Disease
C10371 Scale for Outcomes in PD Autonomic (SCOPA-AUT) - urinary medication indicator

The indicator of whether the participant/subject has taken medication for urinary problems in the past month, as part of the Scales for Outcomes in PD-Autonomic (SCOPA-Aut) form.

 Supplemental Scale for Outcomes in Parkinson's Disease Autonomic (SCOPA-AUT) True Parkinson's Disease Parkinson's Disease
C08826 Risk Factor Questionnaire (RFQ) - height and weight age 60 body type code

Code for the patient's body type at age 60 according to the pictogram as defined by the Risk Factor Questionnaire (RFQ) - Height and Weight

 Supplemental Risk Factor Questionnaire (RFQ-U) - Height and Weight True Parkinson's Disease Parkinson's Disease
C09879 Food Frequency Questionnaire - (FFQ)-red meat use ten years indicator

Indicator of how the subjects use of red meat changed over the past ten years, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Parkinson's Disease Parkinson's Disease
C10441 South Oaks Gambling Screen (SOGS) - gamble more than intend indicator

Indicator for whether the participant has ever gambled more than he or she intended to, as a part of South Oaks Gambling Screen (SOGS)

 Supplemental South Oaks Gambling Screen (SOGS) True Parkinson's Disease Parkinson's Disease
C09714 Food Frequency Questionnaire - (FFQ)-prunes dried plums indicator

Average total amount of prunes or dried plums the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Parkinson's Disease Parkinson's Disease
Displaying 226 - 250 of 2446

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.