CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 201 - 225 of 2660
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C10218 Parkinson's Impact Scale (PIMS) - worst symptom financial security scale

Financial Security: Refers to your ability to support yourself and your family and pay your medical costs. If your symptoms fluctuate complete for worse, As part of PIMS Questionnaire

 Supplemental Parkinson's Impact Scale (PIMS) True Parkinson's Disease Parkinson's Disease
C10045 Mini Nutritional Assessment (MNA) - neuropsychological problem score

The score for the degree of neuropsychological problems the participant faces as part of MNA form

 Supplemental Mini Nutritional Assessment (MNA) True Parkinson's Disease Parkinson's Disease
C09560 Survey Screen for Sleep Apnea (SSSA) - snort gasp frequency

The frequency for how often the participant has experienced snorting or gasping in his or her sleep in the last month as part of the Survey Screen for Sleep Apnea (SSSA).

 Supplemental Survey Screen for Sleep Apnea (SSSA) True Parkinson's Disease Parkinson's Disease
C09734 Food Frequency Questionnaire - (FFQ)-tomato sauce indicator

Average total amount of tomato sauce the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Parkinson's Disease Parkinson's Disease
C09388 Rome III Constipation Module (RCM3) - uncomfortable full regular size meal frequency

The frequency for how often the participant has felt uncomfortably full after eating a regular-sized meal, as a part of Rome III Constipation Module (RCM3)

 Supplemental Rome III Constipation Module True Parkinson's Disease Parkinson's Disease
C09859 Food Frequency Questionnaire - (FFQ)-salad dressing type indicator

Type of salad dressing the subject uses, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Parkinson's Disease Parkinson's Disease
C10377 Scales for Outcomes in PD-Cognitive (SCOPA-COG) - verbal recall score

The score for the participant's/subject's cognitive ability to perform verbal recall, as part of the Scales for Outcomes in PD-Cognitive (SCOPA-COG) form.

 Supplemental Scales for Outcomes in Parkinson's Disease-Cognitive (SCOPA-COG) True Parkinson's Disease Parkinson's Disease
C09694 Food Frequency Questionnaire - (FFQ)-whole milk drink amount value

Average total amount of whole milk the subject drank this past year, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Parkinson's Disease Parkinson's Disease
C08236 Imaging scanner software name

Name of the scanner software that runs the imaging camera

 Supplemental PET-SPECT False Parkinson's Disease Parkinson's Disease
C08874 Risk Factor Questionnaire (RFQ-U) - insecticide exposure 66 plus age frequency

The frequency of exposure to insecticides from age 66 onward in a participant's/subject's life as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Home).

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Home) True Parkinson's Disease Parkinson's Disease
C08045 Surgery post-operative target verification method source

Post-operative source method used for verifying the brain nucleus (target) was reached

 Supplemental Functional Neurosurgery False Parkinson's Disease Parkinson's Disease
C08776 Risk Factor Questionnaire (RFQ) - stopped weld braze or flame cut metals value

Age/year the participant stopped welding, brazing, or flame cutting metals as part of the Risk Factor Questionnaire for Toxicants

 Supplemental Risk Factor Questionnaire (RFQ) - Toxicants True Parkinson's Disease Parkinson's Disease
C18717 Imaging scanner model other text

The free-text field related to 'Imaging scanner model name' specifying other text. Name of model of imaging scanner

 Supplemental MR False Parkinson's Disease Parkinson's Disease
C09123 Risk Factor Questionnaire (RFQ-U) - work other pesticide use 46 55 age indicator

The indicator whether participant/subject used another type of pesticide at work from age 46 to 55 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work).

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Parkinson's Disease Parkinson's Disease
C08645 Risk Factor Questionnaire (RFQ) - age 18 25 sleep duration indicator

Hours of sleep the subject got in a week between the ages of 18 and 25, as part of the Risk Factor Questionnaire (RFQ)

 Supplemental Risk Factor Questionnaire (RFQ) - Physical Activity and Sleep True Parkinson's Disease Parkinson's Disease
C08691 Risk Factor Questionnaire (RFQ) - age 36 45 residential history residence duration

Duration at residence lived from ages 36-45

 Supplemental Risk Factor Questionnaire (RFQ) - Residential History True Parkinson's Disease Parkinson's Disease
C08958 Risk Factor Questionnaire (RFQ-U) - farm ranch work 26 35 age indicator

The indicator whether participant/subject worked in farming or ranching from age 26 to 35 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work).

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Parkinson's Disease Parkinson's Disease
C02003 Medication prior or concomitant ongoing indicator

Indicator of or description that the prior/concomitant medication usage is ongoing.

 Supplemental Non-Parkinson's Disease Medication Log False Parkinson's Disease Parkinson's Disease
C09248 Risk Factor Questionnaire (RFQ-U) - work protective apron use indicator

The indicator of whether the participant/subject wore a chemical resistant apron more than half the time when personally mixing or applying pesticides as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work).

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Parkinson's Disease Parkinson's Disease
C20426 Beck Depression Inventory II (BDI-II) - Punishment feeling scale

Scale identifying level of punishment feelings, as part of the Beck Depression Inventory II (BDI-II).

 Supplemental Beck Depression Inventory II (BDI-II) True Parkinson's Disease Parkinson's Disease
C08736 Risk Factor Questionnaire (RFQ) - year not regularly using adhesives indicator

Periods of a year or more when the participant did not regularly use adhesives as part of the Risk Factor Questionnaire for Toxicants

 Supplemental Risk Factor Questionnaire (RFQ) - Toxicants True Parkinson's Disease Parkinson's Disease
C08008 Diagnostic feature criterion type

Type of diagnostic feature or criterion assessed in the participant/subject.

 Supplemental Medical History of Parkinson's Disease False Parkinson's Disease Parkinson's Disease
C09083 Risk Factor Questionnaire (RFQ-U) - other pesticide exposure work 46 55 age indicator

The indicator whether participant/subject worked some other field with pesticide exposure from age 46 to 55 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work).

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Parkinson's Disease Parkinson's Disease
C10336 Questionnaire About Buying Behavior (QABB) - regret purchase indicator

Whether the participant regularly regrets his or her purchases as part of Questionnaire About Buying Behavior (QABB).

 Supplemental Questionnaire about Buying Behavior (QABB) True Parkinson's Disease Parkinson's Disease
C08828 Risk Factor Questionnaire (RFQ) - weight age 60 value

Patient's weight at age 60 as part of the Risk Factor Questionnaire (RFQ) - Height and Weight.

 Supplemental Risk Factor Questionnaire (RFQ-U) - Height and Weight True Parkinson's Disease Parkinson's Disease
Displaying 201 - 225 of 2660

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.