CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 201 - 225 of 2446
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C09421 Rome III Constipation Module (RCM3) - discomfort pain during menstrual bleed only indicator

The frequency for how often the women participant's had discomfort or pain occur during menstrual bleeding exclusively, as a part of Rome III Constipation Module (RCM3)

 Supplemental Rome III/IV Constipation Module True Parkinson's Disease Parkinson's Disease
C09944 World Health Organization Quality of Life (WHOQOL-BREF) - get around scale

Scale used to assess the ability of the participant to get around, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

 Supplemental World Health Organization Quality of Life Assessment (WHOQOL-BREF) True Parkinson's Disease Parkinson's Disease
C09792 Food Frequency Questionnaire - (FFQ)-brown rice indicator

Average total amount of brown rice the subject had this past year, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Parkinson's Disease Parkinson's Disease
C20376 Pittsburgh Sleep Quality Index (PSQI) - Awaken past month time

The wake up time (recorded as 24-hour clock or military time) for the majority of the mornings in the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

 Supplemental Pittsburgh Sleep Quality Index (PSQI) False Parkinson's Disease Parkinson's Disease
C09322 Gambling Symptom Assessment Scale (G-SAS) - control gamble thought scale

Scale used to assess how much the participant/subject was able to control thoughts of gambling during the past week as part of the Gambling Symptom Assessment Scale (G-SAS)

 Supplemental Gambling Symptom Assessment Scale (G-SAS) True Parkinson's Disease Parkinson's Disease
C09566 Berlin Questionnaire (BQ) - snore volume type

Description of participant/subject snoring volume level as part of BQ form

 Supplemental Berlin Questionnaire True Parkinson's Disease Parkinson's Disease
C17895 Genes sequenced with no mutations text

Text about additional genes sequenced with no mutations detected

 Supplemental Parkinson's Disease Genetics False Parkinson's Disease Parkinson's Disease
C10063 Mini Nutritional Assessment (MNA) - assessment score

The total score for the questions after the screening score as part of MNA form

 Supplemental Mini Nutritional Assessment (MNA) True Parkinson's Disease Parkinson's Disease
C08051 Stimulation parameter brain hemisphere type

Side of the brain targeted for stimulation

 Supplemental Functional Neurosurgery: Deep Brain Stimulation False Parkinson's Disease Parkinson's Disease
C09752 Food Frequency Questionnaire - (FFQ)-raw spinach indicator

Average total amount of raw spinach the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Parkinson's Disease Parkinson's Disease
C20441 Beck Depression Inventory II (BDI-II) - Sex interest loss scale

Scale identifying level of loss of interest in sex, as part of the Beck Depression Inventory II (BDI-II)

 Supplemental Beck Depression Inventory II (BDI-II) True Parkinson's Disease Parkinson's Disease
C18069 Ohio State TBI Method Short Form (OSUTBIMS) - age number

Age the subject was when he or she incurred the injury as part of Ohio State TBI Method Short Form (OSUTBIMS)

 Supplemental Ohio State University TBI Identification Method Short Form True Parkinson's Disease Parkinson's Disease
C09247 Risk Factor Questionnaire (RFQ-U) - work protective shoes use indicator

The indicator of whether the participant/subject wore chemical resistant boots or shoes more than half the time when personally mixing or applying pesticides as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Parkinson's Disease Parkinson's Disease
C08235 Drug or substance illicit use frequency

The subject's/participant's average or typical use frequency during the year of greatest use of an unprescribed, controlled psychoactive drugs or substances used by the participant/subject

 Supplemental Non-prescribed Drug Use Questionnaire False Parkinson's Disease Parkinson's Disease
C12783 Variant mutational analysis results available indicator

Whether the variant or mutational analysis results are available on this participant/ subject

 Supplemental Parkinson's Disease Genetics False Parkinson's Disease Parkinson's Disease
C09082 Risk Factor Questionnaire (RFQ-U) - building maintenance work 46 55 age indicator

The indicator whether participant/subject worked in building maintenance or as a janitor from age 46 to 55 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Parkinson's Disease Parkinson's Disease
C08917 Risk Factor Questionnaire (RFQ-U) - broadleaf herbicide exposure birth 25 age indicator

The indicator whether participant/subject was exposed to broadleaf herbicide products containing 2,4-Dichlorophenoxyacetic acid (2,4-D) at work from birth to age 25 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Parkinson's Disease Parkinson's Disease
C09207 Risk Factor Questionnaire (RFQ-U) - work other herbicide use 66 onward age indicator

The indicator whether participant/subject used other herbicides at work from age 66 onward as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Parkinson's Disease Parkinson's Disease
C08081 Twin sibling type

Type of twin the participant/subject has

 Supplemental History of Early Exposure False Parkinson's Disease Parkinson's Disease
C08557 Risk Factor Questionnaire (RFQ) - taken Amlodipine Norvasc reason

Reason took Amlodipine or Norvasc as part of the Risk Factor Questionnaire for Nonsteroidal Anti-Inflammatory Drugs (NSAIDS) and Calcium Channel Blockers (CCB)

 Supplemental Risk Factor Questionnaire (RFQ) - NSAIDS and Calcium Channel Blockers (CCB) True Parkinson's Disease Parkinson's Disease
C09042 Risk Factor Questionnaire (RFQ-U) - work maneb mancozeb product use 36 45 age indicator

The indicator whether participant/subject used maneb or mancozeb products at work from age 36 to 45 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticide (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Parkinson's Disease Parkinson's Disease
C17383 Parkinson's Disease Quality of Life (PDQUALIF) - family friends view change scale

Rating scale for feeing that your spouse/children/friends' view of you has changed because of your illness as part of Parkinson's Disease Quality of Life (PDQUALIF) form

 Supplemental Parkinson's Disease Quality of Life Scale (PDQUALIF) True Parkinson's Disease Parkinson's Disease
C10309 Quality of Life in Swallowing Disorders (SWAL-QOL) - swallowing problem not go out indicator

Scale assessing how true the following statement has been for the participant during the last month: I do not go out to eat because of my swallowing problem. As part of Quality of Life in Swallowing Disorders (SWAL-QOL)

 Supplemental Quality of Life in Swallowing Disorders (SWAL-QOL) True Parkinson's Disease Parkinson's Disease
C10471 Risk Factor Questionnaire (RFQ) - currently soldering indicator

Currently soldering as part of the Risk Factor Questionnaire for Toxicants

 Supplemental Risk Factor Questionnaire (RFQ) - Toxicants True Parkinson's Disease Parkinson's Disease
C09502 Scale for the Assessment of Positive Symptoms (SAPS) - repetitive stereotypical behavior scale

Subject's likelihood to develop a set of repetitive actions or rituals that he must perform over and over, as part of the Scale For The Assessment of Positive Symptoms (SAPS)- Aggressive Agitated Behavior indicator

 Supplemental Scale for the Assessment of Positive Symptoms (SAPS) True Parkinson's Disease Parkinson's Disease
Displaying 201 - 225 of 2446

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.