CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Displaying 176 - 200 of 2660
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C17240 Swallowing Disturbance Questionnaire (SwDQ) - suffer respiratory infection past year indicator

Indicator for whether the participant/subject has suffered from a respiratory infection in the past year, as a part of Swallowing Disturbance Questionnaire (SDQ).

Supplemental Swallowing Disturbance Questionnaire (SDQ) Parkinson's Disease Parkinson's Disease
C08944 Risk Factor Questionnaire (RFQ-U) - work other insecticide use birth 25 age text

The description of any other insecticides used at work from birth to age 25 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticide (Work).

Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) Parkinson's Disease Parkinson's Disease
C09949 World Health Organization Quality of Life (WHOQOL-BREF) - personal relationship scale

Scale used to assess personal relationship satisfaction, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

Supplemental World Health Organization Quality of Life Assessment (WHOQOL-BREF) Parkinson's Disease Parkinson's Disease
C10462 Risk Factor Questionnaire (RFQ) - currently taking ibuprofen based medication indicator

Indicator of whether the participant is currently taking an ibuprofen-based medication as part of the Risk Factor Questionnaire for Nonsteroidal Anti-Inflammatory Drugs (NSAIDS) and Calcium Channel Blockers (CCB)

Supplemental Risk Factor Questionnaire (RFQ) - NSAIDS and Calcium Channel Blockers (CCB) Parkinson's Disease Parkinson's Disease
C08006 Symptoms first appeared date and time

Date (and time if applicable and known) the symptoms for the disease or disorder first appeared as confirmed by the participant's/subject's medical history obtained by a physician

Supplemental Medical History of Parkinson's Disease Parkinson's Disease Parkinson's Disease
C09327 Gambling Symptom Assessment Scale (G-SAS) - gamble personal trouble scale

Scale used to assess how much personal trouble the participant/subject experienced in the past week due to gambling in the past week as part of the Gambling Symptom Assessment Scale (G-SAS)

Supplemental Gambling Symptom Assessment Scale (G-SAS) Parkinson's Disease Parkinson's Disease
C18104 Quality of Life in Swallowing Disorders (SWAL-QOL) - current marital status

Current marital status of the subject, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL)

Supplemental Quality of Life in Swallowing Disorders (SWAL-QOL) Parkinson's Disease Parkinson's Disease
C17320 Parkinson's Disease Non Motor Symptoms (PD NMS) - constipation strain stool indicator

Indicator of participant/subject experiencing constipation or trouble passing a stool in the last month, as part of the Parkinson's Disease Non Motor Symptoms (PD NMS) Questionnaire.

Supplemental Non-Motor Symptom Questionnaire (NMS-Quest) (PD-NMS) Parkinson's Disease Parkinson's Disease
C09422 Rome III Constipation Module (RCM3) - pain daily activity restriction frequency

The frequency for how often the participant was limited or restricted to daily activities due to pain, as a part of Rome III Constipation Module (RCM3)

Supplemental Rome III Constipation Module Parkinson's Disease Parkinson's Disease
C10212 Parkinson's Impact Scale (PIMS) - worst symptom leisure scale

Leisure: Refers to your ability to continue enjoyable activities (hobbies, sports, volunteering). If your symptoms fluctuate complete for worse, As part of PIMS Questionnaire

Supplemental Parkinson's Impact Scale (PIMS) Parkinson's Disease Parkinson's Disease
C18760 Surgery skull opening other text

The free-text field related to 'Surgery skull opening type' specifying other text. Type of drilling or perforation of the skull in order to get access to the brain

Supplemental Functional Neurosurgery Parkinson's Disease Parkinson's Disease
C09383 Insomnia Severity Index (ISI) - interference measurement

The extent to which the subject believes that their sleep problem interferes with their daily functioning as part of ISI form

Supplemental Insomnia Severity Index (ISI) Parkinson's Disease Parkinson's Disease
C09554 Survey Screen for Sleep Apnea (SSSA) - fall asleep while drive frequency

The frequencies for how often the participant has fallen asleep while driving in the last month as part of the Survey Screen for Sleep Apnea (SSSA).

Supplemental Survey Screen for Sleep Apnea (SSSA) Parkinson's Disease Parkinson's Disease
C09728 Food Frequency Questionnaire - (FFQ)-strawberries fresh frozen canned indicator

Average total amount of strawberries, fresh, frozen, or canned the subject had this past year, as part of Food Frequency Questionnaire -(FFQ)

Supplemental Food Frequency Questionnaire (FFQ) Parkinson's Disease Parkinson's Disease
C10164 Non-Motor Symptom assessment scale for Parkinson's Disease (NMSS) - miscellaneous total score

The total score for Domain 9: Miscellaneous as part of the Non-Motor Symptom assessment scale for Parkinson's Disease (NMSS).

Supplemental Non-Motor Symptom assessment scale for Parkinson's Disease (NMSS) Parkinson's Disease Parkinson's Disease
C08048 Medication anti-Parkinsonian added after surgery indicator

Indicator of whether anti-Parkinsonism medication(s) were added following optimization after surgery

Supplemental Functional Neurosurgery Parkinson's Disease Parkinson's Disease
C18040 Radioligand dose other unit of measure

Other unit of measure for the dose of injected radioligand for the imaging scan

Supplemental PET-SPECT Parkinson's Disease Parkinson's Disease
C09853 Food Frequency Questionnaire - (FFQ)-Splenda indicator

Average total amount of Splenda the subject had this past year, as part of Food Frequency Questionnaire -(FFQ)

Supplemental Food Frequency Questionnaire (FFQ) Parkinson's Disease Parkinson's Disease
C09157 Risk Factor Questionnaire (RFQ-U) - work S compound use 56 65 age indicator

The indicator whether participant/subject used sulfur compounds at work from age 56 to 65 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work).

Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) Parkinson's Disease Parkinson's Disease
C18071 Ohio State TBI Method Short Form (OSUTBIMS) - loss of consciousness greater than 30 number

Number of injuries the subject incurred with a loss of consciousness for greater than 30 minutes as part of Ohio State TBI Method Short Form (OSUTBIMS).

Supplemental Ohio State University TBI Identification Method Short Form Parkinson's Disease Parkinson's Disease
C09688 Food Frequency Questionnaire - (FFQ)-potassium daily amount dose

Dose per day of potassium, as part of Food Frequency Questionnaire -(FFQ)

Supplemental Food Frequency Questionnaire (FFQ) Parkinson's Disease Parkinson's Disease
C08203 Fuse in sarcoma abnormal pathology indicator

Indicator of whether abnormal fused in sarcoma (FUS) protein pathology is present

Supplemental Neuropathology Parkinson's Disease Parkinson's Disease
C08992 Risk Factor Questionnaire (RFQ-U) - work chlorpyrifos terbufos use 26 35 age indicator

The indicator whether participant/subject used chlorpyrifos or terbufos at work from age 26 to 35 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work).

Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) Parkinson's Disease Parkinson's Disease
C18735 Medication prior or concomitant discontinuation other text

The free-text field related to 'Medication prior or concomitant discontinuation reason' specifying other text. Reason the participant/subject discontinued taking the prior or concomitant medication

Supplemental Parkinson's Disease Medication Log Parkinson's Disease Parkinson's Disease
C08868 Risk Factor Questionnaire (RFQ-U) - insecticide exposure 56 65 age frequency

The frequency of exposure to insecticides from ages 56 to 65 in a participant's/subject's life as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Home).

Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Home) Parkinson's Disease Parkinson's Disease
Displaying 176 - 200 of 2660

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.