CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 176 - 200 of 2446
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C09486 Scale for the Assessment of Positive Symptoms (SAPS) - delusion mind read scale

Subject's likelihood to believe that people can read his mind, as part of the Scale For The Assessment of Positive Symptoms (SAPS)- Aggressive Agitated Behavior indicator

 Supplemental Scale for the Assessment of Positive Symptoms (SAPS) True Parkinson's Disease Parkinson's Disease
C08719 Risk Factor Questionnaire (RFQ) - age 56 65 residential history residence pesticide use indicator

Indicator as to whether the participant's/subject's residence from 56-65 years of age was located near pesticide spraying activities during the span of residence

 Supplemental Risk Factor Questionnaire (RFQ) - Residential History True Parkinson's Disease Parkinson's Disease
C09659 Food Frequency Questionnaire - (FFQ)-vitamin B6 indicator

Vitamin B6 indicator, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Parkinson's Disease Parkinson's Disease
C09413 Rome III Constipation Module (RCM3) - heave food mouth frequency

The frequency for how often the participant experienced retching (heaving) before the food came into the mouth, as a part of Rome III Constipation Module (RCM3)

 Supplemental Rome III/IV Constipation Module True Parkinson's Disease Parkinson's Disease
C09936 World Health Organization Quality of Life (WHOQOL-BREF) - concentration scale

Scale used to assess concentration ability, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

 Supplemental World Health Organization Quality of Life Assessment (WHOQOL-BREF) True Parkinson's Disease Parkinson's Disease
C59106 Surgery head fixation status

Status of the participant's/subject's head fixation to the operating room table during surgery

 Supplemental Functional Neurosurgery: Deep Brain Stimulation False Parkinson's Disease Parkinson's Disease
C09784 Food Frequency Questionnaire - (FFQ)-cooked oatmeal oat bran indicator

Average total amount of cooked oatmeal/cooked oat bran the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Parkinson's Disease Parkinson's Disease
C20368 Pittsburgh Sleep Quality Index (PSQI) - Partner report disorientation past month scale

The scale to which the subject's partner reported disorientation or confusion during sleep past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

 Supplemental Pittsburgh Sleep Quality Index (PSQI) False Parkinson's Disease Parkinson's Disease
C09606 Brief Psychiatric Rating Scale (BPRS) - excitement score

The score of the participant's/subject's excitement, as part of the Brief Psychiatric Rating Scale (BPRS) form.

 Supplemental Brief Psychiatric Rating Scale (BPRS) False Parkinson's Disease Parkinson's Disease
C10055 Mini Nutritional Assessment (MNA) - select protein consumption marker intake score

Sum of "Yes" answers from questions K1 - K3 as part of MNA form

 Supplemental Mini Nutritional Assessment (MNA) True Parkinson's Disease Parkinson's Disease
C08038 Surgery intra-operative target verification source

Intra-operative source method used for verifying the target of the surgery

 Supplemental Functional Neurosurgery: Deep Brain Stimulation False Parkinson's Disease Parkinson's Disease
C09744 Food Frequency Questionnaire - (FFQ)-corn indicator

Average total amount of corn the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Parkinson's Disease Parkinson's Disease
C20433 Beck Depression Inventory II (BDI-II) - Indecisiveness scale

Scale identifying level of indecisiveness, as part of the Beck Depression Inventory II (BDI-II)

 Supplemental Beck Depression Inventory II (BDI-II) True Parkinson's Disease Parkinson's Disease
C18061 Ohio State TBI Method Short Form (OSUTBIMS) - greater than 30 minutes number

Number of injuries the subject incurred that lasted longer than 30 minutes as part of Ohio State TBI Method Short Form (OSUTBIMS)

 Supplemental Ohio State University TBI Identification Method Short Form True Parkinson's Disease Parkinson's Disease
C09239 Risk Factor Questionnaire (RFQ-U) - work pesticide exposure unusually high indicator

The indicator whether there was exposure to an unusually high amount of pesticides in a participant's/subject's life as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Parkinson's Disease Parkinson's Disease
C08115 Meningitis or encephalitis diagnosed type

Type of meningitis/encephalitis that participant/subject was diagnosed with

 Supplemental Infection History False Parkinson's Disease Parkinson's Disease
C09074 Risk Factor Questionnaire (RFQ-U) - farm ranch pesticide exposure crops 46 55 age text

The description of any pesticides used on crops while working in farming or ranching from age 46 to 55 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Parkinson's Disease Parkinson's Disease
C08909 Risk Factor Questionnaire (RFQ-U) - greenhouse work birth 25 age indicator

The indicator whether participant/subject worked in a nursery/greenhouse from birth to age 25 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Parkinson's Disease Parkinson's Disease
C09199 Risk Factor Questionnaire (RFQ-U) - number years pesticide exposure work 66 onward age count

The total number of years during which participant/subject held a job with pesticide exposure from age 66 onward as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Parkinson's Disease Parkinson's Disease
C08549 Risk Factor Questionnaire (RFQ) - regularly taken anti-inflammatory medication indicator

Has the participant regularly taken anti-inflammatory medications as part of the Risk Factor Questionnaire for Nonsteroidal Anti-Inflammatory Drugs (NSAIDS) and Calcium Channel Blockers (CCB)

 Supplemental Risk Factor Questionnaire (RFQ) - NSAIDS and Calcium Channel Blockers (CCB) True Parkinson's Disease Parkinson's Disease
C09034 Risk Factor Questionnaire (RFQ-U) - work paraquat diquat product use 36 45 age indicator

The indicator whether participant/subject used paraquat or diquat products at work from age 36 to 45 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticide (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Parkinson's Disease Parkinson's Disease
C10301 Quality of Life in Swallowing Disorders (SWAL-QOL) - worry pneumonia problem indicator

Scale assessing how true the following statement has been for the participant during the last month: I worry about getting pneumonia. As part of Quality of Life in Swallowing Disorders (SWAL-QOL)

 Supplemental Quality of Life in Swallowing Disorders (SWAL-QOL) True Parkinson's Disease Parkinson's Disease
C08814 Risk Factor Questionnaire (RFQ) - metal dust or fume 3 worked around text

Text description of third metal dust or metal fume was worked around as part of the Risk Factor Questionnaire for Toxicants

 Supplemental Risk Factor Questionnaire (RFQ) - Toxicants True Parkinson's Disease Parkinson's Disease
C09494 Scale for the Assessment of Positive Symptoms (SAPS) - grandiose delusion scale

Subject's likelihood to participate in grandiose delusions, as part of the Scale For The Assessment of Positive Symptoms (SAPS)- Aggressive Agitated Behavior indicator

 Supplemental Scale for the Assessment of Positive Symptoms (SAPS) True Parkinson's Disease Parkinson's Disease
C08727 Risk Factor Questionnaire (RFQ) - age 66 and over residential history residence well water indicator

Indicator as to whether the participant's/subject's source of drinking water was a private well at the residence from 66+ years of age

 Supplemental Risk Factor Questionnaire (RFQ) - Residential History True Parkinson's Disease Parkinson's Disease
Displaying 176 - 200 of 2446

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.