CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 176 - 200 of 749
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C19615 Genetic test name

The name of the genetic test used

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C08064 Lead reposition reason

Reason the lead was repositioned in the participant/subject

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C17683 Non-prescribed controlled psychoactive drug substance marijuana text

The text specifying the drugs within the Marijuana: hash, THC category as unprescribed, controlled psychoactive drugs or substances used by the participant/subject

Supplemental Non-prescribed Drug Use Questionnaire Parkinson's Disease Parkinson's Disease
C08104 Day care attendance indicator

Indicator of whether the participant/subject attended day care outside of the home as a child

Supplemental History of Early Exposure Parkinson's Disease Parkinson's Disease
C07432 Patient Health Questionnaire (PHQ) - Sleep impairment score

Score of how much the subject has been bothered with troubling falling/staying asleep or sleeping too much in the past two weeks, as part of the Patient Health Questionnaire (PHQ)

Supplemental Patient Health Questionnaire - 9 (PHQ-9) Depression Scale Parkinson's Disease Parkinson's Disease
C59144 Brain lead post implant interval

Interval post implantation of brain leads at which the stimulation and parameters and clinical motor outcomes were documented

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C10183 Thermoregulatory sweat test 30 minutes elapsed room temperature value

Temperature of the room which induced the participant/subject to sweat for 30 minutes during the Thermoregulatory Sweat Test (TST)

Supplemental Other Non-Motor Guidance for CDE Use Parkinson's Disease Parkinson's Disease
C59096 L-Dopa pre-operative challenge off dopamine agonist duration

Duration in hours the participant/subject was off of dopamine agonists as part of the pre-operative L-Dopa challenge

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C18755 Stereotactic surgery frame type other text

The free-text field related to 'Stereotactic surgery frame type', specifying other text. Scaffold or support used for stereotactic surgery

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C18670 Subscribed drug or substance illicitly used category other text

The free-text field related to 'Subscribed drug or substance illicitly used category' specifying other text. Category of illegal drugs, prescription, or over-the-counter drugs the participant/subject used for purposes other than those for which they are meant to be used, or in large amounts

Supplemental Non-prescribed Drug Use Questionnaire Parkinson's Disease Parkinson's Disease
C08112 Birth weight category

Categorization of the participant's/subject's birth weight

Supplemental History of Early Exposure Parkinson's Disease Parkinson's Disease
C07441 Patient Health Questionnaire (PHQ) - Difficulty performing scale

The scale related to how difficult it is to do work, take care of things at home, or get along with other people for the subject, as part of the Patient Health Questionnaire (PHQ)

Supplemental Patient Health Questionnaire - 9 (PHQ-9) Depression Scale Parkinson's Disease Parkinson's Disease
C59152 Implantable pulse generator remove count

Count of implantable pulse generators (IPGs) removed

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C59107 Surgery head fixation text

The free-text field to specify the head fixation to the operating room table used for the subject/participant during surgery

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C59086 Motor fluctuation year duration

Duration in years of motor fluctuations at the time of surgery

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C09346 Hamilton Anxiety Rating Scale (HAM-A) - insomnia score

The score of the participant's/subject's insomnia, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.

Supplemental Hamilton Anxiety Rating Scale (HAM-A) Parkinson's Disease Parkinson's Disease
C08002 Family history relative type biological sample identifier number

Identification (ID) number assigned to family member's biological sample in repository

Supplemental Family History Parkinson's Disease Parkinson's Disease
C17889 Gene missense nonsense variant point mutation location exon text

The free-text field about missense/nonsense variant or point mutation at the exon

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C20436 Beck Depression Inventory II (BDI-II) - Sleep pattern change scale

Scale identifying level of change in sleep pattern, as part of the Beck Depression Inventory II (BDI-II)

Supplemental Beck Depression Inventory II (BDI-II) Parkinson's Disease Parkinson's Disease
C10844 Gene type

The type of gene screened in the participant/subject for the disease or disorder

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C09600 Brief Psychiatric Rating Scale (BPRS) - suspiciousness score

The score of the participant's/subject's suspiciousness, as part of the Brief Psychiatric Rating Scale (BPRS) form.

Supplemental Brief Psychiatric Rating Scale (BPRS) Parkinson's Disease Parkinson's Disease
C59029 Family history relative type neurological disorder not parkinsonian code other text

The free-text field related to 'Family history relative type neurological disorder not parkinsonian code', specifying other text. Code for neurological disorder(s) other than Parkinson's Disease or Parkinsonism experienced by the family member or ancestor, for the specified relative type

Supplemental Family History Parkinson's Disease Parkinson's Disease
C20379 Pittsburgh Sleep Quality Index (PSQI) - Partner report other sleep restlessness past month scale other text

The free-text entry for other reason(s) the subject's partner reported the subject having restlessness while they sleep the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

Supplemental Pittsburgh Sleep Quality Index (PSQI) Parkinson's Disease Parkinson's Disease
C18874 Gene variant mutation category other text

The free-text field related to 'Gene variant or mutation category', specifying other text. Category of the variant or mutation detected on the gene

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C09576 Brief Pain Inventory (BPI) - pain area indicator

On the diagram, shade in the areas where you feel pain. Put an X on the area that hurts the most, as part of the Brief Pain Inventory (BPI) form

Supplemental Brief Pain Inventory (BPI) Short Form Parkinson's Disease Parkinson's Disease
Displaying 176 - 200 of 749

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.