CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 151 - 175 of 2660
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C10035 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - impact fluctuation score

Score for the participant's/subject's level of functional impact of fluctuations, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C09995 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - right lower extremity rigid score

Score for the participant's/subject's right lower extremities rigidity, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C09965 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - questionnaire information provider type

The type as related to the provider of the participant's/subject's information, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C18596 Unified Parkinson Disease Rating Scale (UPDRS) - left hand action tremor scale

Subject's action or postural tremor of participant's left hand as part of Unified Parkinsons Disease Rating Scale (UPDRS).

 Core Unified Parkinson's Disease Rating Scale (UPDRS) True Parkinson's Disease Parkinson's Disease
C00722 Family history medical condition relative type

Relationship of the family member or ancestor with the medical condition or health related event to the participant/subject

 Core Family History False Parkinson's Disease Parkinson's Disease
C09895 Unified Parkinson's Disease Rating Scale (UPDRS) - dressing scale

Subjects dressing ability as part of Unified Parkinsons Disease Rating Scale (UPDRS).

 Core Unified Parkinson's Disease Rating Scale (UPDRS) True Parkinson's Disease Parkinson's Disease
C18604 Unified Parkinson Disease Rating Scale (UPDRS) - left leg agility scale

Subject's level of left leg agility as part of Unified Parkinsons Disease Rating Scale (UPDRS).

 Core Unified Parkinson's Disease Rating Scale (UPDRS) True Parkinson's Disease Parkinson's Disease
C18679 Family history medical condition relative other text

The free-text field related to 'Family history medical condition relative type' specifying other text. Relationship of the family member or ancestor with the medical condition or health related event to the participant/subject

 Core Family History False Parkinson's Disease Parkinson's Disease
C09903 Unified Parkinson's Disease Rating Scale (UPDRS) - speech ability scale

Subjects motor speech ability as part of Unified Parkinsons Disease Rating Scale (UPDRS).

 Core Unified Parkinson's Disease Rating Scale (UPDRS) True Parkinson's Disease Parkinson's Disease
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth.

 Core General Core False Parkinson's Disease Parkinson's Disease
C09911 Unified Parkinson's Disease Rating Scale (UPDRS) - right leg agility scale

Subject's level of right leg agility as part of Unified Parkinsons Disease Rating Scale (UPDRS).

 Core Unified Parkinson's Disease Rating Scale (UPDRS) True Parkinson's Disease Parkinson's Disease
C09919 Unified Parkinson's Disease Rating Scale (UPDRS) - dyskinesia pain scale

Subject's pain intensity due to dyskinesias as part of Unified Parkinsons Disease Rating Scale (UPDRS).

 Core Unified Parkinson's Disease Rating Scale (UPDRS) True Parkinson's Disease Parkinson's Disease
C09927 Unified Parkinson's Disease Rating Scale (UPDRS) - symptomatic orthostasis indicator

Indicator of whether or not the patient has symptomatic orthostasis as part of Unified Parkinsons Disease Rating Scale (UPDRS).

 Core Unified Parkinson's Disease Rating Scale (UPDRS) True Parkinson's Disease Parkinson's Disease
C08017 Case report number

Although not a data item, the case report number may be helpful for centers to track and enumerate the number of PD DBS surgeries performed

 Exploratory Functional Neurosurgery False Parkinson's Disease Parkinson's Disease
C02013 Medication prior or concomitant dose unit of measure UCUM code

Code that represents the dosage unit of measure of the prior or concomitant medication administered. Unified Code for Units of Measure (UCUM).

 Supplemental Parkinson's Disease Medication Log False Parkinson's Disease Parkinson's Disease
C10361 Scale for Outcomes in PD Autonomic (SCOPA-AUT) - trouble tolerate cold indicator

The indicator of whether the participant/subject has had trouble tolerating cold in the past month, as part of the Scales for Outcomes in PD-Autonomic (SCOPA-Aut) form.

 Supplemental Scale for Outcomes in Parkinson's Disease Autonomic (SCOPA-AUT) True Parkinson's Disease Parkinson's Disease
C09333 Geriatric Depression Scale (GDS) - situation hopeless indicator

Indicator whether over the past week respondent felt her or his situation is hopeless, as part of the Geriatric Depression Scale (short form) (GDSSF).

 Supplemental Geriatric Depression Scale (GDS) False Parkinson's Disease Parkinson's Disease
C09679 Food Frequency Questionnaire - (FFQ)-zinc daily dose

Dose per day of Zinc, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Parkinson's Disease Parkinson's Disease
C17327 Parkinson's Disease Non Motor Symptoms (PD NMS) - short term memory problem indicator

Indicator of participant/subject experiencing short term memory loss or forgetfulness in the last month, as part of the Parkinson's Disease Non Motor Symptoms (PD NMS) Questionnaire.

 Supplemental Non-Motor Symptom Questionnaire (NMS-Quest) (PD-NMS) True Parkinson's Disease Parkinson's Disease
C10115 Non-Motor Symptom assessment scale for Parkinson's Disease (NMSS) - problem concentration activity severity score

The severity of the participant/subject having problems sustaining concentration during activities (for example, reading or having a conversation) as part of the Non-Motor Symptom assessment scale for Parkinson's Disease (NMSS).

 Supplemental Non-Motor Symptom assessment scale for Parkinson's Disease (NMSS) True Parkinson's Disease Parkinson's Disease
C18031 Diffuse plaques brain region score anatomic site

The anatomic site as it relates to the region in the brain where the diffuse plaques were scored

 Supplemental Neuropathology False Parkinson's Disease Parkinson's Disease
C09804 Food Frequency Questionnaire - (FFQ)-other low calorie beverage without caffeine indicator

Average total amount of other low-calorie beverage without caffeine the subject drank this past year, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Parkinson's Disease Parkinson's Disease
C08079 Full biological brothers number

Number of full biological brothers the participant/subject has

 Supplemental History of Early Exposure False Parkinson's Disease Parkinson's Disease
C09458 Rome III Constipation Module (RCM3) - leakage composition type

The type of composition of the stools leaked in the last year, as a part of Rome III Constipation Module (RCM3)

 Supplemental Rome III Constipation Module True Parkinson's Disease Parkinson's Disease
C09640 Fatigue Severity Scale (FSS) - exercise fatigue scale

Scale used to describe the extent to which exercise brought on the patient's fatigue in the past week, as part of the Fatigue Severity Scale (FSS)

 Supplemental Fatigue Severity Scale (FSS) True Parkinson's Disease Parkinson's Disease
Displaying 151 - 175 of 2660

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.