CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 126 - 150 of 749
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C17684 Non-prescribed controlled psychoactive drug substance stimulant cocaine text

The text specifying the drugs within the Stimulants: cocaine/crack category as unprescribed, controlled psychoactive drugs or substances used by the participant/subject

 Supplemental Non-prescribed Drug Use Questionnaire False Parkinson's Disease Parkinson's Disease
C59160 Lead extender replacement reason

The reason the lead extender was replaced

 Supplemental Functional Neurosurgery: Deep Brain Stimulation False Parkinson's Disease Parkinson's Disease
C08105 Day care start date

Date participant/subject first started day care outside of home

 Supplemental History of Early Exposure False Parkinson's Disease Parkinson's Disease
C59117 Brain lead insert count

Count of brain leads inserted

 Supplemental Functional Neurosurgery: Deep Brain Stimulation False Parkinson's Disease Parkinson's Disease
C20384 Pittsburgh Sleep Quality Index (PSQI) - Sleep latency scale

The scale to which sleep latency was calculated, as part of the Pittsburgh Sleep Quality Index (PSQI)

 Supplemental Pittsburgh Sleep Quality Index (PSQI) False Parkinson's Disease Parkinson's Disease
C09580 Brief Pain Inventory (BPI) - current pain rating scale

Scale rating the pain the subject is feeling right now, as part of the Brief Pain Inventory (BPI) form

 Supplemental Brief Pain Inventory (BPI) Short Form True Parkinson's Disease Parkinson's Disease
C12790 Gene exon first deleted duplicated name

Name of the first exon deleted or duplicated

 Supplemental Parkinson's Disease Genetics False Parkinson's Disease Parkinson's Disease
C59021 Non-prescribed controlled psychoactive drug substance heroin text

The text specifying the drugs within the 'Heroin' category as unprescribed, controlled psychoactive drugs or substances used by the participant/subject

 Supplemental Non-prescribed Drug Use Questionnaire False Parkinson's Disease Parkinson's Disease
C59589 Anterior commissure posterior commissure target y coordinate value

Stereotactic y coordinate with respect to anterior and posterior commissure (brain nuclei)

 Supplemental Functional Neurosurgery: Deep Brain Stimulation False Parkinson's Disease Parkinson's Disease
C08113 Born prematurely indicator

Indicator of whether the participant was informed by a physician or family member that they were born prematurely

 Supplemental History of Early Exposure False Parkinson's Disease Parkinson's Disease
C59126 Pulse generator battery type

Type of battery used in the pulse generator(s) inserted

 Supplemental Functional Neurosurgery: Deep Brain Stimulation False Parkinson's Disease Parkinson's Disease
C10171 Trial number

The number representing the sequence for any repeated measure test or assessment when it is performed multiple times

 Supplemental Other Non-Motor Guidance for CDE Use False Parkinson's Disease Parkinson's Disease
C18757 Surgery lead secure method type other text

The free-text field related to 'Surgery lead secure method type', specifying other text. Type of method or device used to protect and secure the lead (part of the electrode that is introduced into the brain), this part must be safely secured and held still

 Supplemental Functional Neurosurgery: Deep Brain Stimulation False Parkinson's Disease Parkinson's Disease
C59053 Imaging quantitative outcome indicator

Indicator of use of a quantitative outcome to describe tracer distribution and uptake for the imaging data analysis

 Supplemental PET-SPECT Localization False Parkinson's Disease Parkinson's Disease
C10419 Sialorrhea Clinical Scale for PD (SCS-PD) - speech impairment saliva score

Does accumulation of saliva in your mouth impair your speech? As part of SCS-PD questionnaire

 Supplemental Sialorrhea Clinical Scale for Parkinson's Disease (SCS-PD) False Parkinson's Disease Parkinson's Disease
C10179 Diffusion Capacity Corrected measurement

Diffusion Capacity Corrected (DLCO CORR) = A correction for predicted value is made using patients Hemoglobin

 Supplemental Other Non-Motor Guidance for CDE Use False Parkinson's Disease Parkinson's Disease
C59087 Dyskinesia troublesome year duration

Duration in years of troublesome dyskinesias at the time of surgery

 Supplemental Functional Neurosurgery: Deep Brain Stimulation False Parkinson's Disease Parkinson's Disease
C02305 Adverse event severity scale grade

The grading scale of the severity or intensity of the adverse event

 Supplemental Functional Neurosurgery: Deep Brain Stimulation False Parkinson's Disease Parkinson's Disease
C09594 Brief Psychiatric Rating Scale (BPRS) - guilt feeling score

The score of the participant's/subject's feelings of guilt, as part of the Brief Psychiatric Rating Scale (BPRS) form.

 Supplemental Brief Psychiatric Rating Scale (BPRS) False Parkinson's Disease Parkinson's Disease
C07438 Patient Health Questionnaire (PHQ) - Movement speech impairment score

Score of how much the subject has been suffering with moving or speaking too slowly in the past two weeks, as part of the Patient Health Questionnaire (PHQ)

 Supplemental Patient Health Questionnaire - 9 (PHQ-9) Depression Scale True Parkinson's Disease Parkinson's Disease
C10188 Videofluoroscopic swallowing study penetration aspiration scale

Penetration aspiration scale of the Videofluoroscopic Swallowing Study (VFSS)

 Supplemental Other Non-Motor Guidance for CDE Use False Parkinson's Disease Parkinson's Disease
C08031 Functional neurosurgery target planning method type

The type of method used to determine the coordinates of the target (brain nucleus)

 Supplemental Functional Neurosurgery: Deep Brain Stimulation False Parkinson's Disease Parkinson's Disease
C18709 Imaging quantitative outcome type other text

The free-text field related to 'Imaging quantitative outcome type' specifying other text. Primary quantitative outcome to describe tracer distribution and uptake for the imaging data analysis

 Supplemental PET-SPECT Localization False Parkinson's Disease Parkinson's Disease
C09602 Brief Psychiatric Rating Scale (BPRS) - motor retardation score

The score of the participant's/subject's motor retardation, as part of the Brief Psychiatric Rating Scale (BPRS) form.

 Supplemental Brief Psychiatric Rating Scale (BPRS) False Parkinson's Disease Parkinson's Disease
C59102 Data aggregate-level General Research Use appropriate indicator

Indicator of whether the aggregate-level data is appropriate for General Research Use

 Supplemental Parkinson's Disease Genetics False Parkinson's Disease Parkinson's Disease
Displaying 126 - 150 of 749

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.