CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 126 - 150 of 749
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C14517 Device manufacturer name

The company responsible for development of the device

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C09578 Brief Pain Inventory (BPI) - least pain rating scale

Scale indicating the rating of the least pain experienced by the subject, as part of the Brief Pain Inventory (BPI) form

Supplemental Brief Pain Inventory (BPI) Short Form Parkinson's Disease Parkinson's Disease
C17687 Non-prescribed controlled psychoactive drug substance sedative barbiturate text

The text specifying the drugs within the 'Sedatives-barbiturates and others: phenobarbital, Seconol, Nembutal, Dorieden, Quaalude, Amytal, Fiorinal, downers,' category as unprescribed, controlled psychoactive drugs or substances used by the participant/subject

Supplemental Non-prescribed Drug Use Questionnaire Parkinson's Disease Parkinson's Disease
C12788 Gene exon copy number tested indicator

Indicator of whether the copy number was directly tested for all exons

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C08108 Preschool attendance indicator

Indicator of whether the participant/subject attended preschool as a child

Supplemental History of Early Exposure Parkinson's Disease Parkinson's Disease
C09604 Brief Psychiatric Rating Scale (BPRS) - unusual thought content score

The score of the participant's/subject's unusual thought content, as part of the Brief Psychiatric Rating Scale (BPRS) form.

Supplemental Brief Psychiatric Rating Scale (BPRS) Parkinson's Disease Parkinson's Disease
C19600 Genetic test diagnostic laboratory name

Name of diagnostic laboratory for genetic testing

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C18761 Surgical complication intra-operative type other text

The free-text field related to 'Surgical complications intra-operative type', specifying other text. Type of intra-operative surgical complications experienced by the participant/subject

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C09586 Brief Pain Inventory (BPI) - pain normal work interference scale

Scale assessing how much the pain has interfered with normal work, as part of the Brief Pain Inventory (BPI) form

Supplemental Brief Pain Inventory (BPI) Short Form Parkinson's Disease Parkinson's Disease
C59024 Subscribed drug or substance illicitly used specify other text

The text specifying the drugs within the 'Other, specify: (e.g., anabolic steroids)' category as illegal drugs, prescription, or over-the-counter drugs the participant/subject used for purposes other than those for which they are meant to be used, or in large amounts

Supplemental Non-prescribed Drug Use Questionnaire Parkinson's Disease Parkinson's Disease
C12798 Gene missense nonsense variant point mutation location type

Type of location of the missense/nonsense variant or point mutation

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C59056 Imaging quantitative outcome tyrosine hydroxylase radioligand type

Type of tyrosine hydroxylase radioligand used for the quantitative imaging outcome to describe tracer distribution and uptake for the imaging data analysis being documented.

Supplemental PET-SPECT Localization Parkinson's Disease Parkinson's Disease
C59062 Birth weight known indicator

Indicator of whether the participant/subject knows his/her birth weight

Supplemental History of Early Exposure Parkinson's Disease Parkinson's Disease
C07436 Patient Health Questionnaire (PHQ) - Feeling failure score

Score of how much the subject has been feeling bad for himself/herself in the past two weeks, as part of the Patient Health Questionnaire (PHQ)

Supplemental Patient Health Questionnaire - 9 (PHQ-9) Depression Scale Parkinson's Disease Parkinson's Disease
C59147 Adverse event treatment specify text

The free-text field to specify the treatment required for the adverse event other than action taken with study intervention/ treatment

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C10186 Videofluoroscopic swallowing study swallow effort number

Each swallow effort of the Videofluoroscopic Swallowing Study (VFSS) is numbered; first swallow effort is numbered 1, second swallow effort is numbered 2, etc

Supplemental Other Non-Motor Guidance for CDE Use Parkinson's Disease Parkinson's Disease
C59100 Functional neurosurgery target anatomic site multiple ipsilateral lead specify text

The free-text field to specify the anatomic site targets when multiple ipsilateral leads are used in functional neurosurgery procedure

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C59155 Pulse generator replacement manipulation count

Count of pulse generators replaced or manipulated

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C59093 Database of Genotypes and Phenotypes phenotype study accession number text

The free-text field to specify the study phenotype study (phs) accession number for the database of Genotypes and Phenotypes (dbGaP) study

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C59110 Surgery intra-operative target verify lead placement MRI type

Type of magnetic resonance imaging (MRI) intra-operative target verification in relation to time of lead placement surgery

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C59585 Dyskinesia troublesome month duration

Duration in months of troublesome dyskinesias at the time of surgery

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C59141 Genetic study data sequencing category type

Type of sequencing category data expected for the genetics study

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C59122 Brain lead intercontact space interval type

Type of intercontact spacing interval for the implanted brain leads (between ends of contacts, not centers)

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C09351 Hamilton Anxiety Rating Scale (HAM-A) - somatic sensory score

The score of the participant's/subject's somatic (sensory) levels, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.

Supplemental Hamilton Anxiety Rating Scale (HAM-A) Parkinson's Disease Parkinson's Disease
C02008 Medication prior or concomitant end date and time

The date (and time, if applicable and known) the administration of the prior/concomitant medication ended

Supplemental Non-Parkinson's Disease Medication Log Parkinson's Disease Parkinson's Disease
Displaying 126 - 150 of 749

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.