CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 126 - 150 of 2446
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C09975 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - chew swallow score

Score for the participant's/subject's ability to chew and swallow food, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C10023 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - dyskinesia chorea or dystonia presence score

Indicator for whether the participant's/subject's had any dyskinesia (chorea or dystonia) present during examination, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C09983 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - get out bed car deep chair score

Score for the participant's/subject's ability to get out of bed, a car, or a deep chair, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C10031 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - time spent in off state score

Score for the participant's/subject's level of complexity of motor fluctuations, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C09991 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - facial expression score

Score for the participant's/subject's ability to make facial expressions observing the eye-blink frequency, masked faces or loss of facial expression, spontaneous smiling and parting of lips, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

 Core General Core False Parkinson's Disease Parkinson's Disease
C09961 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - depress mood score

Score of the participant's/subject's depressed mood considering low mood, sadness, hopelessness, feelings of emptiness or loss of enjoyment, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C18592 Unified Parkinson Disease Rating Scale (UPDRS) - right hand tremor at rest scale

Subject's tremor level at rest in the right hand as part of Unified Parkinsons Disease Rating Scale (UPDRS)

 Core Unified Parkinson's Disease Rating Scale (UPDRS) True Parkinson's Disease Parkinson's Disease
C09969 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - urinary problem score

Score for the participant's/subject's degree of urinary problems (e.g. urgent need to urinate, a need to urinate too often, or urine accidents), as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C08008 Diagnostic feature criterion type

Type of diagnostic feature or criterion assessed in the participant/subject.

 Core Medical History of Parkinson's Disease False Parkinson's Disease Parkinson's Disease
C18600 Unified Parkinson Disease Rating Scale (UPDRS) - left lower extremity rigidity scale

Subject's rigidity in the left lower extremity as judged on passive movement of major joints with patient relaxed in sitting position as part of Unified Parkinsons Disease Rating Scale (UPDRS)

 Core Unified Parkinson's Disease Rating Scale (UPDRS) True Parkinson's Disease Parkinson's Disease
C09907 Unified Parkinson's Disease Rating Scale (UPDRS) - neck rigidity scale

Subjects rigidity judged on passive movement of major joints with patient relaxed in sitting position as part of Unified Parkinsons Disease Rating Scale (UPDRS)

 Core Unified Parkinson's Disease Rating Scale (UPDRS) True Parkinson's Disease Parkinson's Disease
C09915 Unified Parkinson's Disease Rating Scale (UPDRS) - postural stability scale

Subject's postural stability as part of Unified Parkinsons Disease Rating Scale (UPDRS)

 Core Unified Parkinson's Disease Rating Scale (UPDRS) True Parkinson's Disease Parkinson's Disease
C08000 Family history relative type total membercount

Count of total family members and ancestors for the specified relative type

 Core Family History False Parkinson's Disease Parkinson's Disease
C09923 Unified Parkinson's Disease Rating Scale (UPDRS) - sudden off period indicator

Indicator of whether or not off periods come on suddenly or within a few seconds as part of Unified Parkinsons Disease Rating Scale (UPDRS)

 Core Unified Parkinson's Disease Rating Scale (UPDRS) True Parkinson's Disease Parkinson's Disease
C10040 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - percent off dystonia value

Value of the percent of time the participant/subject is off with dystonia, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C10000 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - left hand movement score

Score for the participant's/subject's ability to move the left hand evaluating speed, amplitude, hesitations, halts and decrementing amplitude, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C09893 Unified Parkinson's Disease Rating Scale (UPDRS) - handwriting scale

Subjects handwriting ability as part of Unified Parkinsons Disease Rating Scale (UPDRS)

 Core Unified Parkinson's Disease Rating Scale (UPDRS) True Parkinson's Disease Parkinson's Disease
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

 Core Demographics False Parkinson's Disease Parkinson's Disease
C10008 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - gait score

Score for the participant's/subject's level of gait observing the stride amplitude, stride speed, height of foot lift, heel strike during walking, turning, and arm swing, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C10016 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - kinetic tremor left hand score

Score for the participant's/subject's level of kinetic tremor of the left hand observing the highest amplitude seen, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C09976 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - eat task score

Score for the participant's/subject's ability to eat and handle food and utensils, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C10024 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - movement interference score

Indicator for whether the participant's/subject's movements interfered with the ratings because of the dyskinesia, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C09984 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - walk balance score

Score for the participant's/subject's ability to walk and balance on his or her own, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C10032 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - total hour awake number

Number of total hours that the participant is awake, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
Displaying 126 - 150 of 2446

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.