CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 676 - 700 of 749
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C09314 Apathy Scale (AS) - Apathetic scale

The scale related to subject's self reflection on personal apathetic state, as part of the Apathy Scale (AS) form

Supplemental-Highly Recommended Apathy Scale (AS) Parkinson's Disease Parkinson's Disease
C09304 Apathy Scale (AS) - Condition concern scale

The scale related to subject's concern for ones own condition, as part of the Apathy Scale (AS) form

Supplemental-Highly Recommended Apathy Scale (AS) Parkinson's Disease Parkinson's Disease
C08516 36-item Short Form Health Survey (SF-36) - Difficulty work activities physical health indicator

Indicator for surveyee-reported difficulty performing work or other activities as a result of physical health during past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Supplemental-Highly Recommended Short Form 36-Item Health Survey (SF-36) Parkinson's Disease Parkinson's Disease
C59082 Brain family member available indicator

Indicator of whether a brain of the participant's/subject's family member is available in a repository

Supplemental-Highly Recommended Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C08269 Imaging volume of interest anatomic location type

Type of anatomic location used for volume of interest (VOI) for the imaging data analysis

Supplemental-Highly Recommended PET-SPECT Localization Parkinson's Disease Parkinson's Disease
C08594 Risk Factor Questionnaire (RFQ) - military service combat city station longest text

The text describing the city the participant/subject was in combat for the longest duration as part of the Risk Factor Questionnaire (RFQ) - Occupation

Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status Parkinson's Disease Parkinson's Disease
C18692 Imaging attenuation correction method type other text

The free-text field related to 'Imaging attenuation correction method type' specifying other text. The type of method to correct for different tissues density when analyzing the image

Supplemental-Highly Recommended PET-SPECT Localization Parkinson's Disease Parkinson's Disease
C08602 Risk Factor Questionnaire (RFQ) - current work indicator

The indicator as to whether or not the participant/subject is currently working as part of the Risk Factor Questionnaire (RFQ) - Occupation

Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status Parkinson's Disease Parkinson's Disease
C18710 Imaging radioligand dose other text

The free-text field related to 'Imaging radioligand dose unit of measure' specifying other text. Unit of measure for the dose of injected radioligand for the imaging scan

Supplemental-Highly Recommended PET-SPECT Localization Parkinson's Disease Parkinson's Disease
C08610 Risk Factor Questionnaire (RFQ) - longest occupation 25 year text

Text describing the participant's/subject's longest held occupation from the age of 0-25 years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation

Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status Parkinson's Disease Parkinson's Disease
C10414 Scale for Outcomes of Parkinsons disease (SCOPA) - sleep trouble awake day evening past month frequency

Pre-specified frequencies for trouble staying awake during the day or in the evening in the past month

Supplemental-Highly Recommended Scale for Outcomes in Parkinson's Disease-Sleep (SCOPA-SLEEP) Parkinson's Disease Parkinson's Disease
C20247 Imaging scanner model name text

The free-text field related to name of model of imaging scanner

Supplemental-Highly Recommended PET-SPECT Localization Parkinson's Disease Parkinson's Disease
C08618 Risk Factor Questionnaire (RFQ) - longest occupation 26 35 year third duty text

Text describing the participant's/subject's third of four major tasks or duties at the longest held occupation from the age of 26-35 years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation

Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status Parkinson's Disease Parkinson's Disease
C59046 Imaging observe method status

Status related to the method of observation of participant/subject during scan

Supplemental-Highly Recommended PET-SPECT Localization Parkinson's Disease Parkinson's Disease
C02016 Medication prior or concomitant start date and time

The date (and time, if applicable and known) on which the prior/concomitant medication usage began

Supplemental-Highly Recommended Parkinson's Disease Medication Log Parkinson's Disease Parkinson's Disease
C08626 Risk Factor Questionnaire (RFQ) - longest occupation 46 55 year first duty text

Text describing the participant's/subject's first of four major tasks or duties at the longest held occupation from the age of 46-55 years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation

Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status Parkinson's Disease Parkinson's Disease
C08586 Risk Factor Questionnaire (RFQ) - military service age start value

The value indicating the participant's/subject's age they became active in the military as part of the Risk Factor Questionnaire (RFQ) - Occupation

Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status Parkinson's Disease Parkinson's Disease
C16198 Biological sample in repository consent form signed indicator

Indicates whether the participant provided signed informed consent for the biological sample collection and storage in a repository

Supplemental-Highly Recommended Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C10500 Symptom onset age value

Age when symptoms first experienced

Supplemental-Highly Recommended Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C18716 Imaging scanner manufacturer name other text

The free-text field related to 'Imaging scanner manufacturer name', specifying other text. Name of manufacturer of imaging scanner

Supplemental-Highly Recommended MRI and Spectroscopy Parkinson's Disease Parkinson's Disease
C09313 Apathy Scale (AS) - Neutral mood scale

The scale related to subject's self reflection on their own mood and attitude towards the life that surrounds them, as part of the Apathy Scale (AS) form

Supplemental-Highly Recommended Apathy Scale (AS) Parkinson's Disease Parkinson's Disease
C54698 Epworth Sleepiness Scale (ESS) - Doze off likelihood watch television code

The code denoting the subect/participant's self-reported likelihood of dozing off while watching television (TV), as part of the Epworth Sleepiness Scale (ESS)

Supplemental-Highly Recommended Epworth Sleepiness Scale (ESS) - Adult Version Parkinson's Disease Parkinson's Disease
C08525 36-item Short Form Health Survey (SF-36) - Times down score

Score of times feeling so down in the dumps that nothing could cheer up during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Supplemental-Highly Recommended Short Form 36-Item Health Survey (SF-36) Parkinson's Disease Parkinson's Disease
C08630 Risk Factor Questionnaire (RFQ) - longest occupation 56 65 year text

Text describing the participant's/subject's longest held occupation from the age of 56-65 years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation

Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status Parkinson's Disease Parkinson's Disease
C59032 Imaging eye status

Status of eyes during imaging session

Supplemental-Highly Recommended MRI and Spectroscopy Parkinson's Disease Parkinson's Disease
Displaying 676 - 700 of 749

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.