CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 676 - 700 of 749
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C59181 Medication prior or concomitant total daily intake text

The free-text field related to the total daily intake of the prior/concomitant medication

 Supplemental-Highly Recommended Parkinson's Disease Medication Log False Parkinson's Disease Parkinson's Disease
C09307 Apathy Scale (AS) - Seek work scale

The scale related to subject's desire to partake in projects, as part of the Apathy Scale (AS) form

 Supplemental-Highly Recommended Apathy Scale (AS) True Parkinson's Disease Parkinson's Disease
C20535 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Health today scale

Scale of how good or bad the participant's health is today, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)

 Supplemental-Highly Recommended EuroQoL-5 Dimension Questionnaire (EQ-5D) True Parkinson's Disease Parkinson's Disease
C08626 Risk Factor Questionnaire (RFQ) - longest occupation 46 55 year first duty text

Text describing the participant's/subject's first of four major tasks or duties at the longest held occupation from the age of 46-55 years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation

 Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status True Parkinson's Disease Parkinson's Disease
C08586 Risk Factor Questionnaire (RFQ) - military service age start value

The value indicating the participant's/subject's age they became active in the military as part of the Risk Factor Questionnaire (RFQ) - Occupation

 Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status True Parkinson's Disease Parkinson's Disease
C09314 Apathy Scale (AS) - Apathetic scale

The scale related to subject's self reflection on personal apathetic state, as part of the Apathy Scale (AS) form

 Supplemental-Highly Recommended Apathy Scale (AS) True Parkinson's Disease Parkinson's Disease
C54704 Epworth Sleepiness Scale (ESS) - Doze off likelihood sit car stop traffic code

The code denoting the subect/participant's self-reported likelihood of dozing off while sitting in a car stopped in traffic, as part of the Epworth Sleepiness Scale (ESS)

 Supplemental-Highly Recommended Epworth Sleepiness Scale (ESS) - Adult Version True Parkinson's Disease Parkinson's Disease
C08594 Risk Factor Questionnaire (RFQ) - military service combat city station longest text

The text describing the city the participant/subject was in combat for the longest duration as part of the Risk Factor Questionnaire (RFQ) - Occupation

 Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status True Parkinson's Disease Parkinson's Disease
C10406 Scale for Outcomes of Parkinsons disease (SCOPA) - sleep night lying-awake past month scale

Pre-specified scales for lying awake at night in the past month

 Supplemental-Highly Recommended Scale for Outcomes in Parkinson's Disease-Sleep (SCOPA-SLEEP) True Parkinson's Disease Parkinson's Disease
C08602 Risk Factor Questionnaire (RFQ) - current work indicator

The indicator as to whether or not the participant/subject is currently working as part of the Risk Factor Questionnaire (RFQ) - Occupation

 Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status True Parkinson's Disease Parkinson's Disease
C59061 Diagnosis primary clinical parkinsonism status

Status of the primary clinical parkinsonism diagnosis

 Supplemental-Highly Recommended Parkinson's Disease Genetics False Parkinson's Disease Parkinson's Disease
C08610 Risk Factor Questionnaire (RFQ) - longest occupation 25 year text

Text describing the participant's/subject's longest held occupation from the age of 0-25 years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation

 Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status True Parkinson's Disease Parkinson's Disease
C59081 Biological sample allow share consent form indicator

Indicates whether the participant's provided signed informed consent form for the biological sample collection and storage in a repository allows for sharing of the sample

 Supplemental-Highly Recommended Parkinson's Disease Genetics False Parkinson's Disease Parkinson's Disease
C08618 Risk Factor Questionnaire (RFQ) - longest occupation 26 35 year third duty text

Text describing the participant's/subject's third of four major tasks or duties at the longest held occupation from the age of 26-35 years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation

 Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status True Parkinson's Disease Parkinson's Disease
C08002 Family history relative type biological sample identifier number

Identification (ID) number assigned to family member's biological sample in repository

 Supplemental-Highly Recommended Parkinson's Disease Genetics False Parkinson's Disease Parkinson's Disease
C09308 Apathy Scale (AS) - Goal scale

The scale related to whether or not the subject has goals and plans for the future, as part of the Apathy Scale (AS) form

 Supplemental-Highly Recommended Apathy Scale (AS) True Parkinson's Disease Parkinson's Disease
C18719 Imaging slice orientation type other text

The free-text field related to 'Imaging slice orientation type', specifying other text. The slice orientation used in imaging acquisition

 Supplemental-Highly Recommended MRI and Spectroscopy False Parkinson's Disease Parkinson's Disease
C18722 Imaging volume of interest anatomic location type other text

The free-text field related to 'Imaging volume of interest anatomic location type' specifying other text. Type of anatomic location used for volume of interest (VOI) for the imaging data analysis

 Supplemental-Highly Recommended PET-SPECT Localization False Parkinson's Disease Parkinson's Disease
C08520 36-item Short Form Health Survey (SF-36) - Interfered social activities physical emotional problems score

Score of interfered normal social activities with family, friends, neighbors, or groups due to physical health or emotional problems during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Supplemental-Highly Recommended Short Form 36-Item Health Survey (SF-36) True Parkinson's Disease Parkinson's Disease
C59034 Imaging multiecho indicator

Indicator of whether a multiecho method is used in imaging acquisition

 Supplemental-Highly Recommended MRI and Spectroscopy False Parkinson's Disease Parkinson's Disease
C59044 Imaging camera type other text

The free-text field related to 'Imaging camera type', specifying other text. Type of imaging camera used

 Supplemental-Highly Recommended PET-SPECT Localization False Parkinson's Disease Parkinson's Disease
C08528 36-item Short Form Health Survey (SF-36) - Times downhearted blue score

Score of times feeling downhearted and blue during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Supplemental-Highly Recommended Short Form 36-Item Health Survey (SF-36) True Parkinson's Disease Parkinson's Disease
C08633 Risk Factor Questionnaire (RFQ) - longest occupation 56 65 year third duty text

Text describing the participant's/subject's third of four major tasks or duties at the longest held occupation from the age of 56-65 years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation

 Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status True Parkinson's Disease Parkinson's Disease
C02496 Imaging scanner manufacturer name

Name of manufacturer of imaging scanner

 Supplemental-Highly Recommended PET-SPECT Localization False Parkinson's Disease Parkinson's Disease
C59052 Imaging MRI acquire co-registration date and time

Date (and time, if applicable and known) of MRI acquired for co-registration with the imaging study being documented.

 Supplemental-Highly Recommended PET-SPECT Localization False Parkinson's Disease Parkinson's Disease
Displaying 676 - 700 of 749

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.