CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 51 - 75 of 759
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12804 Gene cDNA variant or mutation name

The Human Genome Organisation (HUGO) variant or mutation nomenclature of the complementary deoxyribonucleic acid (cDNA) variant or mutation

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C08039 Electrode brain count

Count of electrodes introduced in the brain

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C09599 Brief Psychiatric Rating Scale (BPRS) - hostility score

The score of the participant's/subject's hostility, as part of the Brief Psychiatric Rating Scale (BPRS) form.

Supplemental Brief Psychiatric Rating Scale (BPRS) Parkinson's Disease Parkinson's Disease
C19247 Subject ID

Subject identification ID

Supplemental Non-Parkinson's Disease Medication Log Parkinson's Disease Parkinson's Disease
C59072 Height in twenties measurement

Measurement of participant's/subject's height when in their twenties

Supplemental History of Early Exposure Parkinson's Disease Parkinson's Disease
C20362 Pittsburgh Sleep Quality Index (PSQI) - Partner report other sleep restlessness past month scale

The scale to which the subject's partner reported other restlessness during sleep past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

Supplemental Pittsburgh Sleep Quality Index (PSQI) Parkinson's Disease Parkinson's Disease
C15539 Gene variant or mutation type

The type of genetic variant or mutation shown

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C08064 Lead reposition reason

Reason the lead was repositioned in the participant/subject

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C20427 Beck Depression Inventory II (BDI-II) - Self-dislike scale

Scale identifying level of self-dislike, as part of the Beck Depression Inventory II (BDI-II)

Supplemental Beck Depression Inventory II (BDI-II) Parkinson's Disease Parkinson's Disease
C09607 Brief Psychiatric Rating Scale (BPRS) - disorientation score

The score of the participant's/subject's disorientation, as part of the Brief Psychiatric Rating Scale (BPRS) form.

Supplemental Brief Psychiatric Rating Scale (BPRS) Parkinson's Disease Parkinson's Disease
C08114 Meningitis or encephalitis history indicator

Indicator of whether the participant/subject has ever had meningitis or encephalitis (brain infection) diagnosed by a physician

Supplemental Infection History Parkinson's Disease Parkinson's Disease
C07441 Patient Health Questionnaire (PHQ) - Difficulty performing scale

The scale related to how difficult it is to do work, take care of things at home, or get along with other people for the subject, as part of the Patient Health Questionnaire (PHQ)

Supplemental Patient Health Questionnaire - 9 (PHQ-9) Depression Scale Parkinson's Disease Parkinson's Disease
C59589 Anterior commissure posterior commissure target y coordinate value

Stereotactic y coordinate with respect to anterior and posterior commissure (brain nuclei)

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C54688 Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health quality of life scale

Scale related to an individual's rating of his/her quality of life, as part of the PROMIS Global Health

Supplemental PROMIS Item Bank v1.2 - Global Health Parkinson's Disease Parkinson's Disease
C59126 Pulse generator battery type

Type of battery used in the pulse generator(s) inserted

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C09345 Hamilton Anxiety Rating Scale (HAM-A) - fear score

The score of the participant's/subject's fears, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.

Supplemental Hamilton Anxiety Rating Scale (HAM-A) Parkinson's Disease Parkinson's Disease
C02022 Medication prior or concomitant dose unit of measure

Dosage unit of measure of the prior or concomitant medication administered

Supplemental Non-Parkinson's Disease Medication Log Parkinson's Disease Parkinson's Disease
C58680 Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health general health scale

Scale related to an individual's rating of his/her general health, as part of the PROMIS Global Health

Supplemental PROMIS Item Bank v1.2 - Global Health Parkinson's Disease Parkinson's Disease
C59114 Genetic study data sample category type

Type of sample category data expected for the genetics study

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C59134 Stimulation brain parameter amplitude unit of measure

Unit of measure for amplitude of electric impulses (stimulation) on brain hemisphere

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C09353 Hamilton Anxiety Rating Scale (HAM-A) - respiratory symptom score

The score of the participant's/subject's respiratory symptoms, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.

Supplemental Hamilton Anxiety Rating Scale (HAM-A) Parkinson's Disease Parkinson's Disease
C59165 Genotype platform probe count

Count of probes for the genotype platform

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C59143 Unified Parkinsons Disease Rating Scale part three on DBS on medication score

The score related to part three of the Unified Parkinson's Disease Rating Scale (UPDRS) when the participant/subject is on DBS and on medications

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C59095 L-Dopa pre-operative challenge off levodopa duration

Duration in hours the participant/subject was off of levodopa as part of the pre-operative L-Dopa challenge

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C59029 Family history relative type neurological disorder not parkinsonian code other text

The free-text field related to 'Family history relative type neurological disorder not parkinsonian code', specifying other text. Code for neurological disorder(s) other than Parkinson's Disease or Parkinsonism experienced by the family member or ancestor, for the specified relative type

Supplemental Family History Parkinson's Disease Parkinson's Disease
Displaying 51 - 75 of 759

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.