CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2952-C59152	C59152	Implantable pulse generator remove count	Count of implantable pulse generators (IPGs) removed	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2952-C59107	C59107	Surgery head fixation text	The free-text field to specify the head fixation to the operating room table used for the subject/participant during surgery	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2948-C59027	C59027	Family history relative type healthy member count	Count of family members and ancestors, for the specified relative type, that are healthy	Supplemental	Family History	False	Parkinson's Disease	Parkinson's Disease
F2952-C59162	C59162	Lead extender replacement reason other text	The free-text field related to 'Lead extender replacement reason', specifying other text. The reason the lead extender was replaced	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2955-C59114	C59114	Genetic study data sample category type	Type of sample category data expected for the genetics study	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2952-C59118	C59118	Brain lead type	Type of brain lead inserted	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2952-C59590	C59590	Anterior commissure posterior commissure target z coordinate value	Stereotactic z coordinate with respect to anterior and posterior commissure (brain nuclei)	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2955-C59165	C59165	Genotype platform probe count	Count of probes for the genotype platform	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2952-C59127	C59127	Pulse generator sensing function indicator	Indicator of whether the pulse generator inserted has sensing function	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2171-C09345	C09345	Hamilton Anxiety Rating Scale (HAM-A) - fear score	The score of the participant's/subject's fears, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.	Supplemental	Hamilton Anxiety Rating Scale (HAM-A)	False	Parkinson's Disease	Parkinson's Disease
F2955-C19598	C19598	Genetic test tissue other text	The free-text field to specify the type of tissue tested for genetic test	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2952-C18758	C18758	Surgery post-operative target verification method source other text	The free-text field related to 'Surgery post-operative target verification method source', specifying other text. Post-operative source method used for verifying the brain nucleus (target) was reached	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F3042-C09584	C09584	Brief Pain Inventory (BPI) - pain mood interference scale	Scale assessing how much the pain has interfered with mood, as part of the Brief Pain Inventory (BPI) form	Supplemental	Brief Pain Inventory (BPI) Short Form	True	Parkinson's Disease	Parkinson's Disease
F2947-C08235	C08235	Drug or substance illicit use frequency	The subject's/participant's average or typical use frequency during the year of greatest use of an unprescribed, controlled psychoactive drugs or substances used by the participant/subject	Supplemental	Non-prescribed Drug Use Questionnaire	False	Parkinson's Disease	Parkinson's Disease
F2955-C12796	C12796	Gene targeted variant mutational analysis indicator	Indicator of whether variant or mutational analysis was targeted at a particular variant or mutation	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2951-C59054	C59054	Imaging quantitative outcome dopamine transporter radioligand type	Type of dopamine transporter (DAT) radioligand used for the quantitative imaging outcome to describe tracer distribution and uptake for the imaging data analysis being documented.	Supplemental	PET-SPECT Localization	False	Parkinson's Disease	Parkinson's Disease
F2945-C08081	C08081	Twin sibling type	Type of twin the participant/subject has	Supplemental	History of Early Exposure	False	Parkinson's Disease	Parkinson's Disease
F0803-C09599	C09599	Brief Psychiatric Rating Scale (BPRS) - hostility score	The score of the participant's/subject's hostility, as part of the Brief Psychiatric Rating Scale (BPRS) form.	Supplemental	Brief Psychiatric Rating Scale (BPRS)	False	Parkinson's Disease	Parkinson's Disease
F3043-C20355	C20355	Pittsburgh Sleep Quality Index (PSQI) - Feel hot past month scale	The scale to which the subject felt too hot during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Parkinson's Disease	Parkinson's Disease
F2947-C17690	C17690	Non-prescribed controlled psychoactive drug substance hallucinogen text	The text specifying the drugs within the 'Hallucinogens: ecstasy/MDMA, LSD, mescaline/peyote, psilocybin/mushrooms, PCP/phencylidine/angel dust, MDA/STP/DOM,' category as unprescribed, controlled psychoactive drugs or substances used by the participant/subject	Supplemental	Non-prescribed Drug Use Questionnaire	False	Parkinson's Disease	Parkinson's Disease
F2955-C12805	C12805	Gene mRNA variant mutation name	Name using the Human Genome Organisation (HUGO) variant or mutation nomenclature of the messenger ribonucleic acid (mRNA) variant or mutation	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2952-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2945-C08111	C08111	Preschool hour per week value	Approximate hours per week the participant/subject attended preschool as a child	Supplemental	History of Early Exposure	False	Parkinson's Disease	Parkinson's Disease
F2953-C59040	C59040	Medication prior use report duration	Duration in days prior to the study that participant/subject should report taking any medications, specified by the study protocol	Supplemental	Non-Parkinson's Disease Medication Log	False	Parkinson's Disease	Parkinson's Disease
F0803-C09607	C09607	Brief Psychiatric Rating Scale (BPRS) - disorientation score	The score of the participant's/subject's disorientation, as part of the Brief Psychiatric Rating Scale (BPRS) form.	Supplemental	Brief Psychiatric Rating Scale (BPRS)	False	Parkinson's Disease	Parkinson's Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.