CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 401 - 425 of 749
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C09351 Hamilton Anxiety Rating Scale (HAM-A) - somatic sensory score

The score of the participant's/subject's somatic (sensory) levels, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.

Supplemental Hamilton Anxiety Rating Scale (HAM-A) Parkinson's Disease Parkinson's Disease
C02008 Medication prior or concomitant end date and time

The date (and time, if applicable and known) the administration of the prior/concomitant medication ended

Supplemental Non-Parkinson's Disease Medication Log Parkinson's Disease Parkinson's Disease
C59168 Gene whole affect exon deleted duplicated indicator

Indicator of whether the whole gene was affected by exonic deletions/duplications

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C59130 Stimulation brain parameter negative contact text

Text related to negative contact brain stimulation parameters

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C08272 Imaging F-dopa binding ratio type

Type of F-dopa binding ratio with respect to the rest of the brain

Supplemental PET-SPECT Localization Parkinson's Disease Parkinson's Disease
C59138 Stimulation brain paradigm type other text

The free-text field related to 'Stimulation brain paradigm type', specifying other text. Type of brain stimulation paradigm

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C10177 Slow vital capacity percent of predicted normal value

Value representing the percentage of the predicted normal value of Slow Vital Capacity (sVC) to grade the severity of the abnormality, where sVC is the total amount of air that can be blown out leisurely after a maximal deep breath

Supplemental Other Non-Motor Guidance for CDE Use Parkinson's Disease Parkinson's Disease
C56038 Genetic test performed other text

The free-text field specifying the other genetic test that was performed

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C59089 Deep brain stimulation indication type medication side effect other text

The free text field related to 'Deep brain stimulation indication type', specifying other medication side effects

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C07436 Patient Health Questionnaire (PHQ) - Feeling failure score

Score of how much the subject has been feeling bad for himself/herself in the past two weeks, as part of the Patient Health Questionnaire (PHQ)

Supplemental Patient Health Questionnaire - 9 (PHQ-9) Depression Scale Parkinson's Disease Parkinson's Disease
C59147 Adverse event treatment specify text

The free-text field to specify the treatment required for the adverse event other than action taken with study intervention/ treatment

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C10186 Videofluoroscopic swallowing study swallow effort number

Each swallow effort of the Videofluoroscopic Swallowing Study (VFSS) is numbered; first swallow effort is numbered 1, second swallow effort is numbered 2, etc

Supplemental Other Non-Motor Guidance for CDE Use Parkinson's Disease Parkinson's Disease
C59100 Functional neurosurgery target anatomic site multiple ipsilateral lead specify text

The free-text field to specify the anatomic site targets when multiple ipsilateral leads are used in functional neurosurgery procedure

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C09599 Brief Psychiatric Rating Scale (BPRS) - hostility score

The score of the participant's/subject's hostility, as part of the Brief Psychiatric Rating Scale (BPRS) form.

Supplemental Brief Psychiatric Rating Scale (BPRS) Parkinson's Disease Parkinson's Disease
C20374 Pittsburgh Sleep Quality Index (PSQI) - Other reason past month other text

The free-text entry for other reason(s) the subject reported having trouble sleeping in the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

Supplemental Pittsburgh Sleep Quality Index (PSQI) Parkinson's Disease Parkinson's Disease
C17893 Gene missense nonsense variant point mutation location other text

The free-text field about missense/nonsense variant or point mutation at locations other than the exon and intron

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C08046 Medication anti-Parkinsonian reduced after surgery indicator

Indicator of whether anti-Parkinsonism medication(s) were reduced following optimization (X weeks after surgery)

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C20439 Beck Depression Inventory II (BDI-II) - Concentration difficulty scale

Scale identifying level of difficulty concentrating, as part of the Beck Depression Inventory II (BDI-II)

Supplemental Beck Depression Inventory II (BDI-II) Parkinson's Disease Parkinson's Disease
C08233 Drug or substance first illicit use date and time

Date (and time if applicable and known) the participant/subject first used the category of illegal drugs, prescription or over-the-counter drugs

Supplemental Non-prescribed Drug Use Questionnaire Parkinson's Disease Parkinson's Disease
C12690 Gene name

Name of the gene analyzed

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C09607 Brief Psychiatric Rating Scale (BPRS) - disorientation score

The score of the participant's/subject's disorientation, as part of the Brief Psychiatric Rating Scale (BPRS) form.

Supplemental Brief Psychiatric Rating Scale (BPRS) Parkinson's Disease Parkinson's Disease
C08079 Full biological brothers count

Count of full biological brothers the participant/subject has

Supplemental History of Early Exposure Parkinson's Disease Parkinson's Disease
C20382 Pittsburgh Sleep Quality Index (PSQI) - Sleep disturbance scale

The scale to which sleep disturbance was calculated, as part of the Pittsburgh Sleep Quality Index (PSQI)

Supplemental Pittsburgh Sleep Quality Index (PSQI) Parkinson's Disease Parkinson's Disease
C18681 Functional neurosurgery target anatomic site other text

The free-text field related to 'Functional neurosurgery target anatomic site', specifying other text. The anatomic site in the brain nucleus or group of neurons to be intervened for surgery

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C09579 Brief Pain Inventory (BPI) - average pain rating scale

Scale indicating the rating of the average pain experienced by the subject, as part of the Brief Pain Inventory (BPI) form

Supplemental Brief Pain Inventory (BPI) Short Form Parkinson's Disease Parkinson's Disease
Displaying 401 - 425 of 749

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.