CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 351 - 375 of 759
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C59024 Subscribed drug or substance illicitly used specify other text

The text specifying the drugs within the 'Other, specify: (e.g., anabolic steroids)' category as illegal drugs, prescription, or over-the-counter drugs the participant/subject used for purposes other than those for which they are meant to be used, or in large amounts

Supplemental Non-prescribed Drug Use Questionnaire Parkinson's Disease Parkinson's Disease
C12798 Gene missense nonsense variant or point mutation location type

Type of location of the missense/nonsense variant or point mutation

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C59056 Imaging quantitative outcome tyrosine hydroxylase radioligand type

Type of tyrosine hydroxylase radioligand used for the quantitative imaging outcome to describe tracer distribution and uptake for the imaging data analysis being documented.

Supplemental PET-SPECT Localization Parkinson's Disease Parkinson's Disease
C59062 Birth weight known indicator

Indicator of whether the participant/subject knows his/her birth weight

Supplemental History of Early Exposure Parkinson's Disease Parkinson's Disease
C20357 Pittsburgh Sleep Quality Index (PSQI) - Sleep efficiency scale

The sleep efficiency scale calculated, as part of the Pittsburgh Sleep Quality Index (PSQI)

Supplemental Pittsburgh Sleep Quality Index (PSQI) Parkinson's Disease Parkinson's Disease
C18679 Family history medical condition relative type other text

The free-text field related to 'Family history medical condition relative type' specifying other text. Relationship of the family member or ancestor with the medical condition or health related event to the participant/subject

Supplemental Family History Parkinson's Disease Parkinson's Disease
C12807 Gene second disease allele indicator

Whether a second disease allele was identified

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C08017 Case report number

Although not a data item, the case report number may be helpful for centers to track and enumerate the number of PD DBS surgeries performed

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C20422 Beck Depression Inventory II (BDI-II) - Agitation scale

Scale identifying level of agitation, as part of the Beck Depression Inventory II (BDI-II)

Supplemental Beck Depression Inventory II (BDI-II) Parkinson's Disease Parkinson's Disease
C59070 Shave facial hair regular begin age value

The age at which the participant/subject began to regularly shave facial hair. Regular shaving is defined as once a week or more

Supplemental History of Early Exposure Parkinson's Disease Parkinson's Disease
C20365 Pittsburgh Sleep Quality Index (PSQI) - Cough snore loudly past month scale

The scale to which the subject coughed or snored loudly during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

Supplemental Pittsburgh Sleep Quality Index (PSQI) Parkinson's Disease Parkinson's Disease
C15557 Gene detection method type

The method used to detect the gene mutation or variant

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C08035 Stereotactic surgery frame type

Scaffold or support used for stereotactic surgery

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C20430 Beck Depression Inventory II (BDI-II) - Crying scale

Scale identifying level of crying, as part of the Beck Depression Inventory II (BDI-II)

Supplemental Beck Depression Inventory II (BDI-II) Parkinson's Disease Parkinson's Disease
C08100 Pneumonia episode age value

Participant's/subject's age at the time of the pneumonia episode

Supplemental Infection History Parkinson's Disease Parkinson's Disease
C10421 Sialorrhea Clinical Scale for PD (SCS-PD) - drool day score

How many times do you drool during the daytime? As part of SCS-PD questionnaire

Supplemental Sialorrhea Clinical Scale for Parkinson's Disease (SCS-PD) Parkinson's Disease Parkinson's Disease
C20373 Pittsburgh Sleep Quality Index (PSQI) - Problem maintain enthusiasm past month category

The scale to which the subject had problems keeping up enough enthusiasm to get things done past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

Supplemental Pittsburgh Sleep Quality Index (PSQI) Parkinson's Disease Parkinson's Disease
C17891 Gene additional variants unknown significance text

Text about additional variants in other genes of unknown significance

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C08045 Surgery post-operative target verification method source

Post-operative source method used for verifying the brain nucleus (target) was reached

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C20438 Beck Depression Inventory II (BDI-II) - Appetite change scale

Scale identifying level of change in appetite, as part of the Beck Depression Inventory II (BDI-II)

Supplemental Beck Depression Inventory II (BDI-II) Parkinson's Disease Parkinson's Disease
C59585 Dyskinesia troublesome month duration

Duration in months of troublesome dyskinesias at the time of surgery

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C59141 Genetic study data sequencing category type

Type of sequencing category data expected for the genetics study

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C59122 Brain lead intercontact space interval type

Type of intercontact spacing interval for the implanted brain leads (between ends of contacts, not centers)

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C09351 Hamilton Anxiety Rating Scale (HAM-A) - somatic sensory score

The score of the participant's/subject's somatic (sensory) levels, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.

Supplemental Hamilton Anxiety Rating Scale (HAM-A) Parkinson's Disease Parkinson's Disease
C02008 Medication prior or concomitant end date and time

The date (and time, if applicable and known) the administration of the prior/concomitant medication ended

Supplemental Non-Parkinson's Disease Medication Log Parkinson's Disease Parkinson's Disease
Displaying 351 - 375 of 759

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.