CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 351 - 375 of 759

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
C10179	Diffusion Capacity Corrected measurement	Diffusion Capacity Corrected (DLCO CORR) = A correction for predicted value is made using patients Hemoglobin	Supplemental	Other Non-Motor Guidance for CDE Use	False	Parkinson's Disease	Parkinson's Disease
C59154	Brain lead replacement manipulation count	Count of brain leads replaced or manipulated	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
C17686	Non-prescribed controlled psychoactive drug substance sedative tranquilizer text	The text specifying the drugs within the 'Sedatives/minor tranquilizers/muscle relaxants-benzodiazepines and others: Valium/diazepam, Librium, Halcion, Xanax, Dalmane, Flexeril,' category as unprescribed, controlled psychoactive drugs or substances used by the participant/subject	Supplemental	Non-prescribed Drug Use Questionnaire	False	Parkinson's Disease	Parkinson's Disease
C59098	Database of Genotypes and Phenotypes study title text	The free-text field to specify the title of the of the database of Genotypes and Phenotypes (dbGaP) study	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
C59109	Stereotactic surgery robotic guidance lead insert platform text	The free-text field related to the robotic guidance platform used during stereotactic surgery for lead insertion	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
C08107	Day care hour per week value	Approximate hours per week the participant/subject attended day care as a child	Supplemental	History of Early Exposure	False	Parkinson's Disease	Parkinson's Disease
C18758	Surgery post-operative target verification method source other text	The free-text field related to 'Surgery post-operative target verification method source', specifying other text. Post-operative source method used for verifying the brain nucleus (target) was reached	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
C59054	Imaging quantitative outcome dopamine transporter radioligand type	Type of dopamine transporter (DAT) radioligand used for the quantitative imaging outcome to describe tracer distribution and uptake for the imaging data analysis being documented.	Supplemental	PET-SPECT Localization	False	Parkinson's Disease	Parkinson's Disease
C10188	Videofluoroscopic swallowing study penetration aspiration scale	Penetration aspiration scale of the Videofluoroscopic Swallowing Study (VFSS)	Supplemental	Other Non-Motor Guidance for CDE Use	False	Parkinson's Disease	Parkinson's Disease
C59584	Motor fluctuation month duration	Duration in months of motor fluctuations at the time of surgery	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
C59023	Non-prescribed controlled psychoactive drug substance anti-psychotic text	The text specifying the drugs within the 'Anti-psychotics: (Thorazine or Haldol)' category as unprescribed, controlled psychoactive drugs or substances used by the participant/subject	Supplemental	Non-prescribed Drug Use Questionnaire	False	Parkinson's Disease	Parkinson's Disease
C59157	Genetic study data analysis category type	Type of analysis category data expected for the genetics study	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
C59121	Brain lead cylindrical type other text	The free-text field related to 'Brain lead type', specifying the other type of cylindrical lead inserted	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
C08272	Imaging F-dopa binding ratio type	Type of F-dopa binding ratio with respect to the rest of the brain	Supplemental	PET-SPECT Localization	False	Parkinson's Disease	Parkinson's Disease
C52710	Menarche begin age value	The age at which menarche began for the participant/subject	Supplemental	History of Early Exposure	False	Parkinson's Disease	Parkinson's Disease
C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
C12790	Gene exon first deleted duplicated name	Identify first exon deleted or duplicated	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
C09607	Brief Psychiatric Rating Scale (BPRS) - disorientation score	The score of the participant's/subject's disorientation, as part of the Brief Psychiatric Rating Scale (BPRS) form.	Supplemental	Brief Psychiatric Rating Scale (BPRS)	False	Parkinson's Disease	Parkinson's Disease
C20376	Pittsburgh Sleep Quality Index (PSQI) - Awaken past month time	The wake up time (recorded as 24-hour clock or military time) for the majority of the mornings in the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Parkinson's Disease	Parkinson's Disease
C20441	Beck Depression Inventory II (BDI-II) - Sex interest loss scale	Scale identifying level of loss of interest in sex, as part of the Beck Depression Inventory II (BDI-II)	Supplemental	Beck Depression Inventory II (BDI-II)	True	Parkinson's Disease	Parkinson's Disease
C19607	Genetic test mitochondrial DNA variant or mutation quantitative analysis heteroplasmy level type	Type of heteroplasmy level in quantitative analysis for mitochondrial DNA variant or mutation	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
C12801	Gene point mutation nonsense variant codon type	Type of nonsense variant or point mutation	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
C08217	Medication prior taken as needed indicator	Indicator of whether the medication is being taken PRN (as needed)	Supplemental	Non-Parkinson's Disease Medication Log	False	Parkinson's Disease	Parkinson's Disease
C20385	Pittsburgh Sleep Quality Index (PSQI) - Day dysfunction due to sleepiness scale	The scale to which day dysfunction due to sleepiness was calculated, as part of the Pittsburgh Sleep quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Parkinson's Disease	Parkinson's Disease
C09581	Brief Pain Inventory (BPI) - treatment received text	Text of treatment/medication subject receives for the pain, as part of the Brief Pain Inventory (BPI) form	Supplemental	Brief Pain Inventory (BPI) Short Form	True	Parkinson's Disease	Parkinson's Disease

Displaying 351 - 375 of 759

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.