CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 326 - 350 of 759
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C18757 Surgery lead secure method type other text

The free-text field related to 'Surgery lead secure method type', specifying other text. Type of method or device used to protect and secure the lead (part of the electrode that is introduced into the brain), this part must be safely secured and held still

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C09583 Brief Pain Inventory (BPI) - pain general activity interference scale

Scale assessing how much the pain has interfered with general activity, as part of the Brief Pain Inventory (BPI) form

Supplemental Brief Pain Inventory (BPI) Short Form Parkinson's Disease Parkinson's Disease
C59021 Non-prescribed controlled psychoactive drug substance heroin text

The text specifying the drugs within the 'Heroin' category as unprescribed, controlled psychoactive drugs or substances used by the participant/subject

Supplemental Non-prescribed Drug Use Questionnaire Parkinson's Disease Parkinson's Disease
C12795 Gene coding region sequenced indicator

Indicator of whether the entire coding region was sequenced for the allele of the gene for missense/nonsense variant or point mutations or pseudoexons

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C59053 Imaging quantitative outcome indicator

Indicator of use of a quantitative outcome to describe tracer distribution and uptake for the imaging data analysis

Supplemental PET-SPECT Localization Parkinson's Disease Parkinson's Disease
C08113 Born prematurely indicator

Indicator of whether the participant was informed by a physician or family member that they were born prematurely

Supplemental History of Early Exposure Parkinson's Disease Parkinson's Disease
C59087 Dyskinesia troublesome year duration

Duration in years of troublesome dyskinesias at the time of surgery

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C20354 Pittsburgh Sleep Quality Index (PSQI) - Cannot breathe comfortably past month scale

The scale to which the subject had trouble breathing comfortably during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

Supplemental Pittsburgh Sleep Quality Index (PSQI) Parkinson's Disease Parkinson's Disease
C12804 Gene cDNA variant mutation name

Name using the Human Genome Organisation (HUGO) variant or mutation nomenclature of the complementary deoxyribonucleic acid (cDNA) variant or mutation

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C02305 Adverse event severity scale grade

The grading scale of the severity or intensity of the adverse event

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C59067 Twin pea pod look indicator

Indicator of whether the participant/subject and his/her twin look like two peas in a pod

Supplemental History of Early Exposure Parkinson's Disease Parkinson's Disease
C19247 Subject ID

Subject identification ID

Supplemental Non-Parkinson's Disease Medication Log Parkinson's Disease Parkinson's Disease
C58781 Gender identity type other text

The free-text field related to 'Gender identity type', specifying other text

Supplemental General Core Parkinson's Disease Parkinson's Disease
C20362 Pittsburgh Sleep Quality Index (PSQI) - Partner report other sleep restlessness past month scale

The scale to which the subject's partner reported other restlessness during sleep past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

Supplemental Pittsburgh Sleep Quality Index (PSQI) Parkinson's Disease Parkinson's Disease
C07441 Patient Health Questionnaire (PHQ) - Difficulty performing scale

The scale related to how difficult it is to do work, take care of things at home, or get along with other people for the subject, as part of the Patient Health Questionnaire (PHQ)

Supplemental Patient Health Questionnaire - 9 (PHQ-9) Depression Scale Parkinson's Disease Parkinson's Disease
C59152 Implantable pulse generator remove count

Count of implantable pulse generators (IPGs) removed

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C54688 Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health quality of life scale

Scale related to an individual's rating of his/her quality of life, as part of the PROMIS Global Health

Supplemental PROMIS Item Bank v1.2 - Global Health Parkinson's Disease Parkinson's Disease
C59107 Surgery head fixation text

The free-text field to specify the head fixation to the operating room table used for the subject/participant during surgery

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C59162 Lead extender replacement reason other text

The free-text field related to 'Lead extender replacement reason', specifying other text. The reason the lead extender was replaced

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C58680 Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health general health scale

Scale related to an individual's rating of his/her general health, as part of the PROMIS Global Health

Supplemental PROMIS Item Bank v1.2 - Global Health Parkinson's Disease Parkinson's Disease
C59114 Genetic study data sample category type

Type of sample category data expected for the genetics study

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C59118 Brain lead type

Type of brain lead inserted

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C09348 Hamilton Anxiety Rating Scale (HAM-A) - depressed mood score

The score of the participant's/subject's depressed mood, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.

Supplemental Hamilton Anxiety Rating Scale (HAM-A) Parkinson's Disease Parkinson's Disease
C59590 Anterior commissure posterior commissure target z coordinate value

Stereotactic z coordinate with respect to anterior and posterior commissure (brain nuclei)

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C59165 Genotype platform probe count

Count of probes for the genotype platform

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
Displaying 326 - 350 of 759

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.