CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Displaying 301 - 325 of 2660
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C09941 World Health Organization Quality of Life (WHOQOL-BREF) - enough money scale

Scale used to assess financial stability, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

Supplemental World Health Organization Quality of Life Assessment (WHOQOL-BREF) Parkinson's Disease Parkinson's Disease
C08576 Risk Factor Questionnaire (RFQ) - taken Diltiazem Cardizem Cartia Dilacor Tiazac Dilt-CD Diltia XT indicator

Taken Diltiazem or Cardizem, Cartia, Dilacor, Tiazac, Dilt-CD, Diltia XT as part of the Risk Factor Questionnaire for Nonsteroidal Anti-Inflammatory Drugs (NSAIDS) and Calcium Channel Blockers (CCB)

Supplemental Risk Factor Questionnaire (RFQ) - NSAIDS and Calcium Channel Blockers (CCB) Parkinson's Disease Parkinson's Disease
C09319 Gambling Symptom Assessment Scale (G-SAS) - control gamble urge scale

Scale used to assess how much the participant/subject was able to control gambling urges during the past week as part of the Gambling Symptom Assessment Scale (G-SAS)

Supplemental Gambling Symptom Assessment Scale (G-SAS) Parkinson's Disease Parkinson's Disease
C17840 Quality of Life in Swallowing Disorders (SWAL-QOL) - marital status

Status of whether the participant is married, divorced, separated, widowed, or never married.

Supplemental Quality of Life in Swallowing Disorders (SWAL-QOL) Parkinson's Disease Parkinson's Disease
C08109 Preschool start date

Date participant/subject first started preschool

Supplemental History of Early Exposure Parkinson's Disease Parkinson's Disease
C09063 Risk Factor Questionnaire (RFQ-U) - work methyl bromide use 36 45 age indicator

The indicator whether participant/subject used methyl bromide at work from age 36 to 45 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticide (Work).

Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) Parkinson's Disease Parkinson's Disease
C18723 Imaging volume of interest placement method other text

The free-text field related to 'Imaging volume of interest placement method type' specifying other text. Type of method used for volume of interest (VOI) placement for the imaging data analysis

Supplemental PET-SPECT Parkinson's Disease Parkinson's Disease
C10411 Scale for Outcomes of Parkinsons disease (SCOPA) - sleep asleep sitting past month frequency

Pre-specified frequencies for falling asleep while sitting peacefully in the past month

Supplemental Scale for Outcomes in Parkinson's Disease-Sleep (SCOPA-Sleep) Parkinson's Disease Parkinson's Disease
C17353 Parkinson's Disease Sleep Scale (PDSS) - urinate night scale

Scale assessing how often the participant got up at night to pass urine during the past week (7 days), as part of the Parkinson's Disease Sleep Scale (PDSS).

Supplemental Parkinson's Disease Sleep Scale 2nd Version (PDSS-2) Parkinson's Disease Parkinson's Disease
C08898 Risk Factor Questionnaire (RFQ-U) - work pesticide exposure mixed applied birth 25 age indicator

The indicator whether job exposure to pesticides from birth to age 25 was through mixed or applied pesticides as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work).

Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) Parkinson's Disease Parkinson's Disease
C08169 Antibody stain method name

Name of staining method used for antibodies

Supplemental Neuropathology Parkinson's Disease Parkinson's Disease
C09188 Risk Factor Questionnaire (RFQ-U) - farm ranch pesticide exposure crops 66 onward age text

The description of any pesticides used on crops while working in farming or ranching from age 66 onward as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work).

Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) Parkinson's Disease Parkinson's Disease
C08538 Risk Factor Questionnaire (RFQ) - age year started ibuprofen based medication value

Age/year the participant started regularly taking an ibuprofen-based medication as part of the Risk Factor Questionnaire for Nonsteroidal Anti-Inflammatory Drugs (NSAIDS) and Calcium Channel Blockers (CCB)

Supplemental Risk Factor Questionnaire (RFQ) - NSAIDS and Calcium Channel Blockers (CCB) Parkinson's Disease Parkinson's Disease
C08070 Aborted procedures number

Number of aborted procedures

Supplemental Functional Neurosurgery Parkinson's Disease Parkinson's Disease
C09023 Risk Factor Questionnaire (RFQ-U) - greenhouse work 36 45 age indicator

The indicator whether participant/subject worked in a nursery/greenhouse from age 36 to 45 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticide (Work).

Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) Parkinson's Disease Parkinson's Disease
C10290 Quality of Life in Swallowing Disorders (SWAL-QOL) - clear throat problem indicator

Scale assessing how true the following statement has been for the participant during the last month: Having to clear your throat. As part of Quality of Life in Swallowing Disorders (SWAL-QOL).

Supplemental Quality of Life in Swallowing Disorders (SWAL-QOL) Parkinson's Disease Parkinson's Disease
C08801 Risk Factor Questionnaire (RFQ) - ever used tin-lead indicator

Has the participant ever used tin-lead as part of the Risk Factor Questionnaire for Toxicants

Supplemental Risk Factor Questionnaire (RFQ) - Toxicants Parkinson's Disease Parkinson's Disease
C10438 South Oaks Gambling Screen (SOGS) - gamble money back frequency

Frequency for how often the participant goes back another day to gamble back the money he or she lost, as a part of South Oaks Gambling Screen (SOGS).

Supplemental South Oaks Gambling Screen (SOGS) Parkinson's Disease Parkinson's Disease
C08716 Risk Factor Questionnaire (RFQ) - age 56 65 residential history residence location type

Type describing the participant's/subject's location of residence from 56-65 years of age

Supplemental Risk Factor Questionnaire (RFQ) - Residential History Parkinson's Disease Parkinson's Disease
C10364 Scale for Outcomes in PD Autonomic (SCOPA-AUT) - unable ejaculate indicator

The indicator of whether the male participant/subject has been unable to ejaculate in the past month, as part of the Scales for Outcomes in PD-Autonomic (SCOPA-Aut) form.

Supplemental Scale for Outcomes in Parkinson's Disease Autonomic (SCOPA-AUT) Parkinson's Disease Parkinson's Disease
C09336 Geriatric Depression Scale (GDS) - empty life indicator

Indicator whether respondent has felt his or her life is empty over the past week, as part of the Geriatric Depression Scale (short form) (GDSSF).

Supplemental Geriatric Depression Scale (GDS) Parkinson's Disease Parkinson's Disease
C10118 Non-Motor Symptom assessment scale for Parkinson's Disease (NMSS) - forget event severity score

The severity of the participant/subject forgetting things that he/she has been told a short time ago or events that happened in the last few days as part of the Non-Motor Symptom assessment scale for Parkinson's Disease (NMSS).

Supplemental Non-Motor Symptom assessment scale for Parkinson's Disease (NMSS) Parkinson's Disease Parkinson's Disease
C09807 Food Frequency Questionnaire - (FFQ)-punch lemonade sports drinks sugared iced tea indicator

Average total amount of punch, lemonade, sports drinks, or sugared ice tea the subject drank this past year, as part of Food Frequency Questionnaire -(FFQ)

Supplemental Food Frequency Questionnaire (FFQ) Parkinson's Disease Parkinson's Disease
C09461 Rome III Constipation Module (RCM3) - heartburn frequency

The frequency for how often the participant has felt heartburn in the past 3 months, as a part of Rome III Constipation Module (RCM3)

Supplemental Rome III Constipation Module Parkinson's Disease Parkinson's Disease
C10269 Parkinson's Disease - Mini Environmental Risk Questionnaire (PD-DOC-MERQ) - average dose number

Number of doses measured in number of tablets per week, as a part of Parkinson's Disease - Mini Environmental Risk Questionnaire (PD-DOC-MERQ)

Supplemental PD DOC Mini Environmental Risk Questionnaire for Parkinson's Disease Patients Baseline (PD DOC MERQ-PD-B) Parkinson's Disease Parkinson's Disease
Displaying 301 - 325 of 2660

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.