CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Show All
Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 276 - 300 of 2660
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C09448 Rome III Constipation Module (RCM3) - steady pain middle right side upper abdomen frequency

The frequency for how often the participant has experienced steady pain in the middle or right side of the upper right abdomen in the last 6 months.

 Supplemental Rome III Constipation Module True Parkinson's Disease Parkinson's Disease
C17294 Structured Clinical Interview for Pathological Gambling (SCI-PG) - last time gambling date

Date the subject last gambled as part of Structured Clinical Interview for Pathological Gambling (SCI-PG).

 Supplemental Structured Clinical Interview for Pathological Gambling (SCI-PG) True Parkinson's Disease Parkinson's Disease
C09935 World Health Organization Quality of Life (WHOQOL-BREF) - life meaningful scale

Scale used to assess the extent to which the participant feels life is meaningful, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

 Supplemental World Health Organization Quality of Life Assessment (WHOQOL-BREF) True Parkinson's Disease Parkinson's Disease
C08570 Risk Factor Questionnaire (RFQ) - year not regularly taking CCB medication indicator

Periods of a year or more when the participant did NOT regularly take CCB medication as part of the Risk Factor Questionnaire for Nonsteroidal Anti-Inflammatory Drugs (NSAIDS) and Calcium Channel Blockers (CCB)

 Supplemental Risk Factor Questionnaire (RFQ) - NSAIDS and Calcium Channel Blockers (CCB) True Parkinson's Disease Parkinson's Disease
C10065 Mini Nutritional Assessment (MNA) - malnourished score

The score indicating whether the participant is malnourished based on his or her total assessment score as part of MNA form.

 Supplemental Mini Nutritional Assessment (MNA) True Parkinson's Disease Parkinson's Disease
C09605 Brief Psychiatric Rating Scale (BPRS) - blunted affect score

The score of the participant's/subject's blunted affect, as part of the Brief Psychiatric Rating Scale (BPRS) form.

 Supplemental Brief Psychiatric Rating Scale (BPRS) False Parkinson's Disease Parkinson's Disease
C10322 Quality of Life in Swallowing Disorders (SWAL-QOL) - general health indicator

Scale assessing the general health of the participant. As part of Quality of Life in Swallowing Disorders (SWAL-QOL).

 Supplemental Quality of Life in Swallowing Disorders (SWAL-QOL) True Parkinson's Disease Parkinson's Disease
C09754 Food Frequency Questionnaire - (FFQ)-Iceberg head lettuce indicator

Average total amount of iceberg or head lettuce the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Parkinson's Disease Parkinson's Disease
C09408 Rome III Constipation Module (RCM3) - episode vomit frequency

The frequency for how often the vomiting the participant experienced in the last year occurred in separate episodes of a few days and then stopped, as a part of Rome III Constipation Module (RCM3)

 Supplemental Rome III Constipation Module True Parkinson's Disease Parkinson's Disease
C10198 Parkinson's Impact Scale (PIMS) - stable symptom family relationship scale

Family Relationships: Refers to your spouse, partner, children and relatives that you consider part of your immediate family. If your symptoms are stable complete . As part of PIMS Questionnaire

 Supplemental Parkinson's Impact Scale (PIMS) True Parkinson's Disease Parkinson's Disease
C10183 Thermoregulatory sweat test 30 minutes elapsed room temperature value

Temperature of the room which induced the participant/subject to sweat for 30 minutes during the Thermoregulatory Sweat Test (TST)

 Supplemental Other Non-motor Guidelines for CDE Use False Parkinson's Disease Parkinson's Disease
C09879 Food Frequency Questionnaire - (FFQ)-red meat use ten years indicator

Indicator of how the subjects use of red meat changed over the past ten years, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Parkinson's Disease Parkinson's Disease
C09547 Stanford Sleepiness Scale (SSS) - sleepiness degree score

The degree of sleepiness as self-assessed by the Stanford Sleepiness Scale

 Supplemental Stanford Sleepiness Scale (SSS) True Parkinson's Disease Parkinson's Disease
C09531 Short Portable Mental Status Questionnaire (SPMSQ) - current president USA question text

Participant/subject's response to the name of the current president of the United States of America as part of the Short Portable Mental Status Questionnaire (SPMSQ)

 Supplemental Short Portable Mental Status Questionnaire (SPMSQ) False Parkinson's Disease Parkinson's Disease
C09714 Food Frequency Questionnaire - (FFQ)-prunes dried plums indicator

Average total amount of prunes or dried plums the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Parkinson's Disease Parkinson's Disease
C08266 Imaging post reconstruction filter type

Type of post reconstruction filter used to smooth image data

 Supplemental PET-SPECT False Parkinson's Disease Parkinson's Disease
C08894 Risk Factor Questionnaire (RFQ-U) - home pesticide exposure sickness indicator

The indicator of sickness after exposure to pesticides as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Home).

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Home) True Parkinson's Disease Parkinson's Disease
C08248 Imaging medication pre-treatment withheld duration

Duration of time medication(s) were withheld from the participant/subject pre-treatment for the imaging scan

 Supplemental MRI and Spectroscopy False Parkinson's Disease Parkinson's Disease
C09143 Risk Factor Questionnaire (RFQ-U) - days year work pesticide exposure 56 65 age frequency

The number of days with pesticide exposure during years with job with pesticide exposure from age 56 to 65 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work).

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Parkinson's Disease Parkinson's Disease
C07458 Ohio State TBI Method Short Form (OSUTBIMS) - identification method explosion injury indicator

Number of times and cause for subject to come in close contact with an explosion or blast as part of Ohio State TBI Method Short Form (OSUTBIMS).

 Supplemental Ohio State University TBI Identification Method Short Form True Parkinson's Disease Parkinson's Disease
C08978 Risk Factor Questionnaire (RFQ-U) - work trifluralin use 26 35 age indicator

The indicator whether participant/subject used trifluralin at work from age 26 to 35 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work).

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Parkinson's Disease Parkinson's Disease
C08235 Drug or substance illicit use frequency

The subject's/participant's average or typical use frequency during the year of greatest use of an unprescribed, controlled psychoactive drugs or substances used by the participant/subject.

 Supplemental Non-prescribed Drug Use Questionnaire False Parkinson's Disease Parkinson's Disease
C08854 Risk Factor Questionnaire (RFQ-U) - herbicide exposure 26 35 age frequency

The frequency of exposure to herbicides from ages 26 to 35 in a participant's/subject's life as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Home).

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Home) True Parkinson's Disease Parkinson's Disease
C08024 L-Dopa pre-operative stim-on time

The pre-operative stimulation start (or on) time of the L-Dopa challenge response

 Supplemental Functional Neurosurgery False Parkinson's Disease Parkinson's Disease
C08756 Risk Factor Questionnaire (RFQ) - use methylene chloride indicator

Ever use methylene chloride as part of the Risk Factor Questionnaire for Toxicants

 Supplemental Risk Factor Questionnaire (RFQ) - Toxicants True Parkinson's Disease Parkinson's Disease
Displaying 276 - 300 of 2660

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.