CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 251 - 275 of 2446
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C59167 Genotype platform description text

The free-text field describing the genotype platform

 Supplemental Parkinson's Disease Genetics False Parkinson's Disease Parkinson's Disease
C17232 Swallowing Disturbance Questionnaire (SwDQ) - difficulty swallow solid food score

Score for how frequent the participant/subject experiences difficulty in swallowing solid foods (i.e. do apples or crackers get stuck in your throat), as a part of Swallowing Disturbance Questionnaire (SDQ)

 Supplemental Swallowing Disturbance Questionnaire (SDQ) True Parkinson's Disease Parkinson's Disease
C59129 Stimulation brain parameter contact configuration text

Text related to contact configuration brain stimulation parameters

 Supplemental Functional Neurosurgery: Deep Brain Stimulation False Parkinson's Disease Parkinson's Disease
C08884 Risk Factor Questionnaire (RFQ-U) - home personal gloves usual type indicator

The indicator of what type of gloves participant/subject most often wore when personally mixing or applying pesticides as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Home)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Home) True Parkinson's Disease Parkinson's Disease
C08786 Risk Factor Questionnaire (RFQ) - ever weld cu, braze chromium plated steel indicator

Has the participant ever weld, cut, braze chromium plated steel as part of the Risk Factor Questionnaire for Toxicants

 Supplemental Risk Factor Questionnaire (RFQ) - Toxicants True Parkinson's Disease Parkinson's Disease
C09133 Risk Factor Questionnaire (RFQ-U) - farm ranch pesticide exposure animals 56 65 age text

The description of any pesticides used on livestock/farm animals while working in farming or ranching from age 56 to 65 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Parkinson's Disease Parkinson's Disease
C08701 Risk Factor Questionnaire (RFQ) - age 46 55 residential history residence duration

Duration at residence lived from ages 46-55

 Supplemental Risk Factor Questionnaire (RFQ) - Residential History True Parkinson's Disease Parkinson's Disease
C08968 Risk Factor Questionnaire (RFQ-U) - building maintenance work 26 35 age indicator

The indicator whether participant/subject worked in building maintenance or as a janitor from age 26 to 35 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Parkinson's Disease Parkinson's Disease
C08844 Risk Factor Questionnaire (RFQ-U) - insecticide exposure birth 25 age frequency

The frequency of exposure to insecticides during the first 25 years of a participant's/subject's life as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Home)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Home) True Parkinson's Disease Parkinson's Disease
C10221 Parkinson's Impact Scale (PIMS) - worst symptom sexuality scale

Sexuality: Refers to your ability to maintain a satisfactory sexual relationship. If your symptoms fluctuate complete for worse, As part of PIMS Questionnaire

 Supplemental Parkinson's Impact Scale (PIMS) True Parkinson's Disease Parkinson's Disease
C08746 Risk Factor Questionnaire (RFQ) - use other solvent-based adhesives text

Text description of which other solvent-based adhesives used as part of the Risk Factor Questionnaire for Toxicants

 Supplemental Risk Factor Questionnaire (RFQ) - Toxicants True Parkinson's Disease Parkinson's Disease
C09093 Risk Factor Questionnaire (RFQ-U) - work other herbicide use 46 55 age indicator

The indicator whether participant/subject used other herbicides at work from age 46 to 55 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Parkinson's Disease Parkinson's Disease
C10422 Sialorrhea Clinical Scale for PD (SCS-PD) - social saliva score

When you go out or on social occasions, does saliva accumulation bother you? As part of SCS-PD questionnaire

 Supplemental Sialorrhea Clinical Scale for Parkinson's Disease (SCS-PD) False Parkinson's Disease Parkinson's Disease
C08661 Risk Factor Questionnaire (RFQ) - residential history age 0 17 residence duration

Duration at residence lived from birth through age 17

 Supplemental Risk Factor Questionnaire (RFQ) - Residential History True Parkinson's Disease Parkinson's Disease
C08928 Risk Factor Questionnaire (RFQ-U) - work maneb mancozeb product use birth 25 age indicator

The indicator whether participant/subject used maneb or mancozeb products at work from birth to age 25 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Parkinson's Disease Parkinson's Disease
C09381 Insomnia Severity Index (ISI) - noticeability measurement

Noticeability measurement to others on how subjects sleep pattern is impairing the subjects quality of life as part of ISI form

 Supplemental Insomnia Severity Index (ISI) True Parkinson's Disease Parkinson's Disease
C10453 South Oaks Gambling Screen (SOGS) - gamble pay debt bank loan credit union indicator

Indicator for whether the participant has ever borrowed money from banks, loan companies, or credit unions to gamble or pay off debts, as a part of South Oaks Gambling Screen (SOGS)

 Supplemental South Oaks Gambling Screen (SOGS) True Parkinson's Disease Parkinson's Disease
C08568 Risk Factor Questionnaire (RFQ) - age year started CCB medications value

Age/year the participant started regularly taking CCB medication as part of the Risk Factor Questionnaire for Nonsteroidal Anti-Inflammatory Drugs (NSAIDS) and Calcium Channel Blockers (CCB)

 Supplemental Risk Factor Questionnaire (RFQ) - NSAIDS and Calcium Channel Blockers (CCB) True Parkinson's Disease Parkinson's Disease
C09726 Food Frequency Questionnaire - (FFQ)-grapefruit juice indicator

Average total amount of grapefruit juice the subject had this past year, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Parkinson's Disease Parkinson's Disease
C10343 Scale for Outcomes in PD Autonomic (SCOPA-AUT) - saliva dribbled indicator

The indicator of whether the participant/subject has had saliva dribbled out of their mouth in the past month, as part of the Scales for Outcomes in PD-Autonomic (SCOPA-Aut) form.

 Supplemental Scale for Outcomes in Parkinson's Disease Autonomic (SCOPA-AUT) True Parkinson's Disease Parkinson's Disease
C08216 Medication prior or concomitant total daily as needed dose measurement

Total daily dose or PRN (as needed) dose of the non-Parkinson's disease (PD) medication taken by the participant/subject

 Supplemental Non-Parkinson's Disease Medication Log False Parkinson's Disease Parkinson's Disease
C09851 Food Frequency Questionnaire - (FFQ)-salt added table indicator

Average total amount of salt added at the table the subject ate this past year, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Parkinson's Disease Parkinson's Disease
C08271 Imaging quantitative outcome type

Primary quantitative outcome to describe tracer distribution and uptake for the imaging data analysis

 Supplemental PET-SPECT Localization False Parkinson's Disease Parkinson's Disease
C09686 Food Frequency Questionnaire - (FFQ)-time taken fish oil omega three fatty acids duration

Duration fish oil (Omega 3 fatty acids) taken, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Parkinson's Disease Parkinson's Disease
C17240 Swallowing Disturbance Questionnaire (SwDQ) - suffer respiratory infection past year indicator

Indicator for whether the participant/subject has suffered from a respiratory infection in the past year, as a part of Swallowing Disturbance Questionnaire (SDQ)

 Supplemental Swallowing Disturbance Questionnaire (SDQ) True Parkinson's Disease Parkinson's Disease
Displaying 251 - 275 of 2446

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.