CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Displaying 251 - 275 of 2660
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C08847 Risk Factor Questionnaire (RFQ-U) - herbicide exposure birth 25 age indicator

The indicator whether there was exposure to herbicides during the first 25 years of a participant's/subject's life as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Home).

Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Home) Parkinson's Disease Parkinson's Disease
C08749 Risk Factor Questionnaire (RFQ) - stopped using solvents or degreasers value

Age/year the participant stopped using solvents or degreasers as part of the Risk Factor Questionnaire for Toxicants

Supplemental Risk Factor Questionnaire (RFQ) - Toxicants Parkinson's Disease Parkinson's Disease
C02499 Imaging pulse sequence type

Type of imaging pulse sequence used

Supplemental MR Parkinson's Disease Parkinson's Disease
C09096 Risk Factor Questionnaire (RFQ-U) - work benomyl product use 46 55 age indicator

The indicator whether participant/subject used benomyl products at work from age 46 to 55 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work).

Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) Parkinson's Disease Parkinson's Disease
C08664 Risk Factor Questionnaire (RFQ) - residential history age 0 17 first residence zip code number

Number specifying the participant's/subject's first zip code of residence

Supplemental Risk Factor Questionnaire (RFQ) - Residential History Parkinson's Disease Parkinson's Disease
C08931 Risk Factor Questionnaire (RFQ-U) - work other fungicide use birth 25 age indicator

The indicator whether participant/subject used other fungicides at work from birth to age 25 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work).

Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) Parkinson's Disease Parkinson's Disease
C09449 Rome III Constipation Module (RCM3) - question 68 pain last 30 minute long frequency

The frequency for how often the participant has experienced the steady pain in the middle or right side of the upper right abdomen for 30 minutes or longer, as a part of Rome III Constipation Module (RCM3)

Supplemental Rome III Constipation Module Parkinson's Disease Parkinson's Disease
C17295 Structured Clinical Interview for Pathological Gambling (SCI-PG) - gambled most time

Time the subject gambled the most as part of Structured Clinical Interview for Pathological Gambling (SCI-PG).

Supplemental Structured Clinical Interview for Pathological Gambling (SCI-PG) Parkinson's Disease Parkinson's Disease
C09936 World Health Organization Quality of Life (WHOQOL-BREF) - concentration scale

Scale used to assess concentration ability, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

Supplemental World Health Organization Quality of Life Assessment (WHOQOL-BREF) Parkinson's Disease Parkinson's Disease
C08571 Risk Factor Questionnaire (RFQ) - age stopped regularly taking CCB medication period 1 value

Age when the participant stopped regularly taking CCB medication period 1 as part of the Risk Factor Questionnaire for Nonsteroidal Anti-Inflammatory Drugs (NSAIDS) and Calcium Channel Blockers (CCB)

Supplemental Risk Factor Questionnaire (RFQ) - NSAIDS and Calcium Channel Blockers (CCB) Parkinson's Disease Parkinson's Disease
C10066 Non-Motor Symptom assessment scale for Parkinson's Disease (NMSS) - dizziness severity score

The severity of the participant/subject experiencing light-headedness, dizziness, weakness on standing from sitting or lying position as part of the Non-Motor Symptom assessment scale for Parkinson's Disease (NMSS).

Supplemental Non-Motor Symptom assessment scale for Parkinson's Disease (NMSS) Parkinson's Disease Parkinson's Disease
C09606 Brief Psychiatric Rating Scale (BPRS) - excitement score

The score of the participant's/subject's excitement, as part of the Brief Psychiatric Rating Scale (BPRS) form.

Supplemental Brief Psychiatric Rating Scale (BPRS) Parkinson's Disease Parkinson's Disease
C17833 Quality of Life in Swallowing Disorders (SWAL-QOL) - questionnaire help indicator

Indicator of whether the subject/participant received help filling out the Quality of Life in Swallowing Disorders (SWAL-QOL) questionnaire.

Supplemental Quality of Life in Swallowing Disorders (SWAL-QOL) Parkinson's Disease Parkinson's Disease
C09755 Food Frequency Questionnaire - (FFQ)-Romaine leaf lettuce indicator

Average total amount of romaine or lead lettuce the subject had this past year, as part of Food Frequency Questionnaire -(FFQ)

Supplemental Food Frequency Questionnaire (FFQ) Parkinson's Disease Parkinson's Disease
C09409 Rome III Constipation Module (RCM3) - vomit 3 episode past year indicator

The indicator for whether the participant has had at least 3 vomiting episodes in the past year, as a part of Rome III Constipation Module (RCM3)

Supplemental Rome III Constipation Module Parkinson's Disease Parkinson's Disease
C10199 Parkinson's Impact Scale (PIMS) - best symptom family relationship scale

Family Relationships: Refers to your spouse, partner, children and relatives that you consider part of your immediate family. If your symptoms fluctuate complete for best. As part of PIMS Questionnaire

Supplemental Parkinson's Impact Scale (PIMS) Parkinson's Disease Parkinson's Disease
C10184 Thermoregulatory sweat test room temperature unit of measurement

Unit temperature is measured in for the Thermoregulatory Sweat Test (TST)

Supplemental Other Non-motor Guidelines for CDE Use Parkinson's Disease Parkinson's Disease
C09880 Food Frequency Questionnaire - (FFQ)-fruit use ten years indicator

Indicator of how the subjects use of fruits changed over the past ten years, as part of Food Frequency Questionnaire -(FFQ)

Supplemental Food Frequency Questionnaire (FFQ) Parkinson's Disease Parkinson's Disease
C09548 Snoring, Tiredness During Daytime, Observed Apnea, and High Blood Pressure (STOP) - snore indicator

Whether participant/subject snores loudly (louder than talking or loud enough to be heard through closed doors)

Supplemental STOP Questionnaire Parkinson's Disease Parkinson's Disease
C09532 SPMSQ president before current question text

Participant/subject's response to the name of the president before the current one as part of the Short Portable Mental Status Questionnaire (SPMSQ)

Supplemental Short Portable Mental Status Questionnaire (SPMSQ) Parkinson's Disease Parkinson's Disease
C09715 Food Frequency Questionnaire - (FFQ)-prune juice indicator

Average total amount of prune juice the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

Supplemental Food Frequency Questionnaire (FFQ) Parkinson's Disease Parkinson's Disease
C10151 Non-Motor Symptom assessment scale for Parkinson's Disease (NMSS) - sex function total score

The total score for Domain 8: Sexual function as part of the Non-Motor Symptom assessment scale for Parkinson's Disease (NMSS).

Supplemental Non-Motor Symptom assessment scale for Parkinson's Disease (NMSS) Parkinson's Disease Parkinson's Disease
C17243 Questionnaire for Impulsive-Compulsive Disorders in Parkinson's Disease (QUIP) - guilty trouble mind indicator

Indicator of whether the participant believes that he or she has trouble keeping gambling, sex, buying, or eating out of the mind or feels guilty about the thoughts, as part of the Questionnaire for Impulsive-Compulsive Disorders in Parkinson's Disease (QUIP)

Supplemental Questionnaire for Impulsive-Compulsive Behaviors in Parkinson's Disease (QUIP) (Long form) Parkinson's Disease Parkinson's Disease
C08267 Imaging outcome variable name

Name of the primary imaging outcome variable

Supplemental PET-SPECT Parkinson's Disease Parkinson's Disease
C08895 Risk Factor Questionnaire (RFQ-U) - home sought medical care indicator

The indicator of seeking medical attention after exposure to pesticides as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Home).

Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Home) Parkinson's Disease Parkinson's Disease
Displaying 251 - 275 of 2660

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.