CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 26 - 50 of 2660
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C09986 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - patient on medication for Parkinson indicator

Indicator for whether the participant/subject is on medication for treating the symptoms of Parkinson's Disease, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C10034 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - percent off value

Value of the percent of time the participant/subject is OFF, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C09994 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - left upper extremity rigid score

Score for the participant's/subject's left upper extremities rigidity, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C09887 Unified Parkinson's Disease Rating Scale (UPDRS) - thought disorder scale

Subjects thought disorder due to dementia or drug intoxication level response as part of Unified Parkinsons Disease Rating Scale (UPDRS).

 Core Unified Parkinson's Disease Rating Scale (UPDRS) True Parkinson's Disease Parkinson's Disease
C10002 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - pronation supination left hand movement score

Score for the participant's/subject's ability to pronate and supinate the left hand evaluating speed, amplitude, hesitations, halts and decrementing amplitude, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C09894 Unified Parkinson's Disease Rating Scale (UPDRS) - utensils scale

Subjects cutting and handling food with utensils ability as part of Unified Parkinsons Disease Rating Scale (UPDRS).

 Core Unified Parkinson's Disease Rating Scale (UPDRS) True Parkinson's Disease Parkinson's Disease
C18603 Unified Parkinson Disease Rating Scale (UPDRS) - left hand rapid alternating movement scale

Subject's ability to make rapid alternating movements with left hand as part of Unified Parkinsons Disease Rating Scale (UPDRS).

 Core Unified Parkinson's Disease Rating Scale (UPDRS) True Parkinson's Disease Parkinson's Disease
C09902 Unified Parkinson's Disease Rating Scale (UPDRS) - sensory scale

Subjects sensory complaints related to parkinsonism as part of Unified Parkinsons Disease Rating Scale (UPDRS).

 Core Unified Parkinson's Disease Rating Scale (UPDRS) True Parkinson's Disease Parkinson's Disease
C00722 Family history medical condition relative type

Relationship of the family member or ancestor with the medical condition or health related event to the participant/subject

 Core Family History False Parkinson's Disease Parkinson's Disease
C09910 Unified Parkinson's Disease Rating Scale (UPDRS) - right hand rapid alternating movement scale

Subject's ability to make rapid alternating movements with right hand as part of Unified Parkinsons Disease Rating Scale (UPDRS).

 Core Unified Parkinson's Disease Rating Scale (UPDRS) True Parkinson's Disease Parkinson's Disease
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

 Core General Core False Parkinson's Disease Parkinson's Disease
C18679 Family history medical condition relative other text

The free-text field related to 'Family history medical condition relative type' specifying other text. Relationship of the family member or ancestor with the medical condition or health related event to the participant/subject

 Core Family History False Parkinson's Disease Parkinson's Disease
C09918 Unified Parkinson's Disease Rating Scale (UPDRS) - dyskinesia disability scale

Subject's disability due to dyskinesias as part of Unified Parkinsons Disease Rating Scale (UPDRS).

 Core Unified Parkinson's Disease Rating Scale (UPDRS) True Parkinson's Disease Parkinson's Disease
C09926 Unified Parkinson's Disease Rating Scale (UPDRS) - sleep disturbances indicator

Indicator of whether or not the subject has sleep disturbances such as insomnia or hyersomnolence as part of Unified Parkinsons Disease Rating Scale (UPDRS).

 Core Unified Parkinson's Disease Rating Scale (UPDRS) True Parkinson's Disease Parkinson's Disease
C09964 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - dopamine dysregulation syndrome score

Score for the participant's/subject's features of dopamine dysregulation syndrome considering involvement in a variety of activities including atypical or excessive gambling (e.g. casinos or lottery tickets), atypical or excessive sexual drive or interests (e.g., unusual interest in pornography, masturbation, sexual demands on partner), other repetitive activities (e.g. hobbies, dismantling objects, sorting or organizing), or taking extra non-prescribed medication for non-physical reasons (i.e., addictive behavior), as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS).

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C18595 Unified Parkinson Disease Rating Scale (UPDRS) - left foot tremor at rest scale

Subject's tremor level at rest in the left foot as part of Unified Parkinsons Disease Rating Scale (UPDRS).

 Core Unified Parkinson's Disease Rating Scale (UPDRS) True Parkinson's Disease Parkinson's Disease
C10011 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - posture score

Score for how well the participant's/subject's posture is by observing the flexion and side-to-side leaning, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C09971 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - light headedness on stand score

Score for the participant's/subject's level of light headedness when standing, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C10019 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - rest tremor amplitude right lower extremity score

Score for the participant's/subject's right lower extremities rest tremor amplitude, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C09979 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - handwrite score

Score for the participant's/subject's handwriting abilities, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C10027 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - total hours awake number

Number of total number of hours the participant/subject stays awake, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C09987 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - patient clinical state while on Parkinson medication indicator

Indicator for whether the participant/subject is on the typical functional state or not , as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C10035 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - impact fluctuation score

Score for the participant's/subject's level of functional impact of fluctuations, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C09995 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - right lower extremity rigid score

Score for the participant's/subject's right lower extremities rigidity, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C09888 Unified Parkinson's Disease Rating Scale (UPDRS) - depression scale

Subjects level of depression as part of Unified Parkinsons Disease Rating Scale (UPDRS).

 Core Unified Parkinson's Disease Rating Scale (UPDRS) True Parkinson's Disease Parkinson's Disease
Displaying 26 - 50 of 2660

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.