CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 1 - 25 of 2446
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C09967 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - daytime sleepiness score

Score for the participant's/subject's daytime sleepiness level , as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C08006 Symptoms first appear date and time

Date (and time if applicable and known) the symptoms for the disease or disorder first appeared as confirmed by the participant's/subject's medical history obtained by a physician

 Core Medical History of Parkinson's Disease False Parkinson's Disease Parkinson's Disease
C18598 Unified Parkinson Disease Rating Scale (UPDRS) - left upper extremity rigidity scale

Subject's rigidity in the left upper extremity as judged on passive movement of major joints with patient relaxed in sitting position as part of Unified Parkinsons Disease Rating Scale (UPDRS)

 Core Unified Parkinson's Disease Rating Scale (UPDRS) True Parkinson's Disease Parkinson's Disease
C18606 Unified Parkinson's Disease Rating Scale (UPDRS) - Heart rate standing measurement

Measurement of participant's/subject's heart rate when standing

 Core Unified Parkinson's Disease Rating Scale (UPDRS) True Parkinson's Disease Parkinson's Disease
C09905 Unified Parkinson's Disease Rating Scale (UPDRS) - rest tremor measurement

Subjects tremor level at rest in the head, and upper and lower extremities as part of Unified Parkinsons Disease Rating Scale (UPDRS)

 Core Unified Parkinson's Disease Rating Scale (UPDRS) True Parkinson's Disease Parkinson's Disease
C09913 Unified Parkinson's Disease Rating Scale (UPDRS) - posture scale

Subject's posture as part of Unified Parkinsons Disease Rating Scale (UPDRS)

 Core Unified Parkinson's Disease Rating Scale (UPDRS) True Parkinson's Disease Parkinson's Disease
C09921 Unified Parkinson's Disease Rating Scale (UPDRS) - predictable off period indicator

Indicator for the predictability of off periods as part of Unified Parkinsons Disease Rating Scale (UPDRS)

 Core Unified Parkinson's Disease Rating Scale (UPDRS) True Parkinson's Disease Parkinson's Disease
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

 Core General Core False Parkinson's Disease Parkinson's Disease
C09959 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - recent cognitive impairment score

Score for the participant's/subject's cognitive impairment including the cognitive slowing, impaired reasoning, memory loss, deficits in attention and orientation and how it impacts the activities of daily living, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C09929 Unified Parkinson's Disease Rating Scale (UPDRS) - Schwab England daily living scale

Schwab and England Activities of Daily Living scale

 Core Unified Parkinson's Disease Rating Scale (UPDRS) True Parkinson's Disease Parkinson's Disease
C09899 Unified Parkinson's Disease Rating Scale (UPDRS) - walking freeze scale

Subjects frequency to freeze when walking as part of Unified Parkinsons Disease Rating Scale (UPDRS)

 Core Unified Parkinson's Disease Rating Scale (UPDRS) True Parkinson's Disease Parkinson's Disease
C10014 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - postural tremor left hand score

Score for the participant's/subject's level of postural tremor of the left hand observing the highest amplitude seen, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C59020 Diagnosis certainty category

Category of the clinician's certainty of the medical diagnosis of the disease or disorder

 Core Medical History of Parkinson's Disease False Parkinson's Disease Parkinson's Disease
C10022 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - constancy of rest tremor score

Score for the participant's/subject's constancy of rest tremor when different body parts are at rest, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C09982 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - tremor score

Score for the participant's/subject's level of shaking or tremor, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C10030 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - functional impact of dyskinesia score

Score for the participant's/subject's level of functional impact of dyskinesia, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C09990 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - free flow speech score

Score for the participant's/subject's free flowing speech ability considering the volume, modulation, clarity, slurring, palilalia, and tachyphemia, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C10038 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - total hour off denominator dystonia number

Number of total hours in the off-state that the examiner records to use as the denominator to calculate proportion of Off hours affected by dystonia, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C09998 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - finger tap left hand score

Score for the participant's/subject's ability to tap the left hand fingers evaluating the speed, amplitude, hesitations, halts and decrementing amplitude, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C09891 Unified Parkinson's Disease Rating Scale (UPDRS) - salivation scale

Subjects amount of saliva as part of Unified Parkinsons Disease Rating Scale (UPDRS)

 Core Unified Parkinson's Disease Rating Scale (UPDRS) True Parkinson's Disease Parkinson's Disease
C10006 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - leg agility left leg score

Score for the participant's/subject's left leg agility evaluating speed, amplitude, hesitations, halts and decrementing amplitude

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C09968 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - pain other sensations score

Score for the participant's/subject's level of pain and other sensations, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C08007 Diagnosis first given date and time

Date (and time if applicable and known) the participant/subject was initially diagnosed with the disease or disorder

 Core Medical History of Parkinson's Disease False Parkinson's Disease Parkinson's Disease
C18599 Unified Parkinson Disease Rating Scale (UPDRS) - right lower extremity rigidity scale

Subject's rigidity in the right lower extremity as judged on passive movement of major joints with patient relaxed in sitting position as part of Unified Parkinsons Disease Rating Scale (UPDRS)

 Core Unified Parkinson's Disease Rating Scale (UPDRS) True Parkinson's Disease Parkinson's Disease
C18607 Unified Parkinson's Disease Rating Scale (UPDRS) - Schwab England daily living with dyskinesia scale

Schwab and England Activities of Daily Living Scale with dyskinesia

 Core Unified Parkinson's Disease Rating Scale (UPDRS) True Parkinson's Disease Parkinson's Disease
Displaying 1 - 25 of 2446

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.