CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Core	General Core	False	Parkinson's Disease	Parkinson's Disease
C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Core	Demographics	False	Parkinson's Disease	Parkinson's Disease
C08009	Diagnostic feature criterion presence status	Status of diagnostic feature or criterion observed during clinical assessment of the participant/subject	Core	Medical History of Parkinson's Disease	False	Parkinson's Disease	Parkinson's Disease
C08003	Family history relative type Parkinsons disease parkinsonism member count	Count of family members and ancestors, for the specified relative type, with Parkinson's disease (PD) or Parkinsonism	Core	Family History	False	Parkinson's Disease	Parkinson's Disease
C00012	Education level USA type	Highest grade or level of school participant/subject has completed or the highest degree received	Core	Demographics	False	Parkinson's Disease	Parkinson's Disease
C08012	Motor symptom Parkinsonian initial type	Type(s) of initial motor symptoms of Parkinson's disease described by the participant/subject.	Core	Medical History of Parkinson's Disease	False	Parkinson's Disease	Parkinson's Disease
C00020	Ethnicity USA category	Category of ethnicity the participant/subject most closely identifies with	Core	General Core	False	Parkinson's Disease	Parkinson's Disease
C08005	Family history relative type Parkinsons disease parkinsonism other neurological disorder member count	Count of family members and ancestors, for the specified relative type, with Parkinson's disease (PD) or Parkinsonism and other neurological disorder(s)	Core	Family History	False	Parkinson's Disease	Parkinson's Disease
C00020	Ethnicity USA category	Category of ethnicity the participant/subject most closely identifies with	Core	Demographics	False	Parkinson's Disease	Parkinson's Disease
C00023	Hand preference type	Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively	Core	Medical History of Parkinson's Disease	False	Parkinson's Disease	Parkinson's Disease
C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories	Core	General Core	False	Parkinson's Disease	Parkinson's Disease
C17405	Family history relative type neurological disorder not parkinsonian count	Count of family members and ancestors, for the specified relative type, with a neurological disorder(s) other than Parkinson's Disease or Parkinsonism	Core	Family History	False	Parkinson's Disease	Parkinson's Disease
C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories	Core	Demographics	False	Parkinson's Disease	Parkinson's Disease
C00314	Medical history taken date and time	Date (and time, if applicable and known) the participant/subject's medical history was taken	Core	Medical History of Parkinson's Disease	False	Parkinson's Disease	Parkinson's Disease
C00313	Medical history condition SNOMED CT code	Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject	Core	General Core	False	Parkinson's Disease	Parkinson's Disease
C58676	Birth sex assigned type	Self-reported phenotypic sex of participant/subject, assigned at birth	Core	Demographics	False	Parkinson's Disease	Parkinson's Disease
C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Core	Medical History of Parkinson's Disease	False	Parkinson's Disease	Parkinson's Disease
C59020	Diagnosis certainty category	Category of the clinician's certainty of the medical diagnosis of the disease or disorder	Core	Medical History of Parkinson's Disease	False	Parkinson's Disease	Parkinson's Disease
C00722	Family history medical condition relative type	Relationship of the family member or ancestor with the medical condition or health related event to the participant/subject	Core	Family History	False	Parkinson's Disease	Parkinson's Disease
C00322	Medical history condition text	Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history	Core	General Core	False	Parkinson's Disease	Parkinson's Disease
C58677	Gender identity type	Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth	Core	Demographics	False	Parkinson's Disease	Parkinson's Disease
C08006	Symptoms first appear date and time	Date (and time if applicable and known) the symptoms for the disease or disorder first appeared as confirmed by the participant's/subject's medical history obtained by a physician	Core	Medical History of Parkinson's Disease	False	Parkinson's Disease	Parkinson's Disease
C08000	Family history relative type total membercount	Count of total family members and ancestors for the specified relative type	Core	Family History	False	Parkinson's Disease	Parkinson's Disease
C58676	Birth sex assigned type	Self-reported phenotypic sex of participant/subject, assigned at birth	Core	General Core	False	Parkinson's Disease	Parkinson's Disease
C08007	Diagnosis first given date and time	Date (and time if applicable and known) the participant/subject was initially diagnosed with the disease or disorder	Core	Medical History of Parkinson's Disease	False	Parkinson's Disease	Parkinson's Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.