CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 1 - 25 of 2446
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C10000 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - left hand movement score

Score for the participant's/subject's ability to move the left hand evaluating speed, amplitude, hesitations, halts and decrementing amplitude, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C09893 Unified Parkinson's Disease Rating Scale (UPDRS) - handwriting scale

Subjects handwriting ability as part of Unified Parkinsons Disease Rating Scale (UPDRS)

 Core Unified Parkinson's Disease Rating Scale (UPDRS) True Parkinson's Disease Parkinson's Disease
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

 Core Demographics False Parkinson's Disease Parkinson's Disease
C10008 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - gait score

Score for the participant's/subject's level of gait observing the stride amplitude, stride speed, height of foot lift, heel strike during walking, turning, and arm swing, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C10016 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - kinetic tremor left hand score

Score for the participant's/subject's level of kinetic tremor of the left hand observing the highest amplitude seen, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C09976 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - eat task score

Score for the participant's/subject's ability to eat and handle food and utensils, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C10024 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - movement interference score

Indicator for whether the participant's/subject's movements interfered with the ratings because of the dyskinesia, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C09984 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - walk balance score

Score for the participant's/subject's ability to walk and balance on his or her own, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C10032 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - total hour awake number

Number of total hours that the participant is awake, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C09992 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - neck rigidity score

Score for the participant's/subject's neck rigidity , as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C10040 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - percent off dystonia value

Value of the percent of time the participant/subject is off with dystonia, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C09962 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - anxious mood score

Score for the participant's/subject's anxious mood over the past week determining if he or she felt nervous, tense, worried or anxious, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C18593 Unified Parkinson Disease Rating Scale (UPDRS) - left hand tremor at rest scale

Subject's tremor level at rest in the left hand as part of Unified Parkinsons Disease Rating Scale (UPDRS)

 Core Unified Parkinson's Disease Rating Scale (UPDRS) True Parkinson's Disease Parkinson's Disease
C09970 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - constipation problem score

Score for the participant's/subject's level of constipation, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C08009 Diagnostic feature criterion presence status

Status of diagnostic feature or criterion observed during clinical assessment of the participant/subject

 Core Medical History of Parkinson's Disease False Parkinson's Disease Parkinson's Disease
C18601 Unified Parkinson Disease Rating Scale (UPDRS) - left hand finger tap scale

Subject's ability to tap on fingers of the left hand as part of Unified Parkinsons Disease Rating Scale (UPDRS)

 Core Unified Parkinson's Disease Rating Scale (UPDRS) True Parkinson's Disease Parkinson's Disease
C09908 Unified Parkinson's Disease Rating Scale (UPDRS) - right finger taps scale

Subjects ability to tap fingers as part of Unified Parkinsons Disease Rating Scale (UPDRS)

 Core Unified Parkinson's Disease Rating Scale (UPDRS) True Parkinson's Disease Parkinson's Disease
C09916 Unified Parkinson's Disease Rating Scale (UPDRS) - body bradykinesia hypokinesia scale

Subject's body bradykinesia and hypokinesia as part of Unified Parkinsons Disease Rating Scale (UPDRS)

 Core Unified Parkinson's Disease Rating Scale (UPDRS) True Parkinson's Disease Parkinson's Disease
C09924 Unified Parkinson's Disease Rating Scale (UPDRS) - average proporation waking day off period scale

Percentage of how often the subject is off on average during the waking day as part of Unified Parkinsons Disease Rating Scale (UPDRS)

 Core Unified Parkinson's Disease Rating Scale (UPDRS) True Parkinson's Disease Parkinson's Disease
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

 Core General Core False Parkinson's Disease Parkinson's Disease
C10001 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - pronation supination right hand movement score

Score for the participant's/subject's ability to pronate and supinate the right hand evaluating speed, amplitude, hesitations, halts and decrementing amplitude, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C09894 Unified Parkinson's Disease Rating Scale (UPDRS) - utensils scale

Subjects cutting and handling food with utensils ability as part of Unified Parkinsons Disease Rating Scale (UPDRS)

 Core Unified Parkinson's Disease Rating Scale (UPDRS) True Parkinson's Disease Parkinson's Disease
C00012 Education level USA type

Highest grade or level of school participant/subject has completed or the highest degree received

 Core Demographics False Parkinson's Disease Parkinson's Disease
C10009 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - freeze gait score

Score for the participant's/subject's level of gait freezing episodes or hesitations especially when turning and reaching the end of the task, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C10017 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - rest tremor amplitude right upper extremity score

Score for the participant's/subject's right upper extremities rest tremor amplitude, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
Displaying 1 - 25 of 2446

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.