CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 1 - 25 of 2660
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C09912 Unified Parkinson's Disease Rating Scale (UPDRS) - arise from chair scale

Subject's ability to arise from chair as part of Unified Parkinsons Disease Rating Scale (UPDRS).

 Core Unified Parkinson's Disease Rating Scale (UPDRS) True Parkinson's Disease Parkinson's Disease
C09920 Unified Parkinson's Disease Rating Scale (UPDRS) - early morning dystonia scale

Indicator of whether or not the subject has early morning dystonia as part of Unified Parkinsons Disease Rating Scale (UPDRS).

 Core Unified Parkinson's Disease Rating Scale (UPDRS) True Parkinson's Disease Parkinson's Disease
C09962 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - anxious mood score

Score for the participant's/subject's anxious mood over the past week determining if he or she felt nervous, tense, worried or anxious, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C09928 Unified Parkinson's Disease Rating Scale (UPDRS) - Modified Hoen Yahr Stage

Modified Hoehn and Yahr Stages

 Core Unified Parkinson's Disease Rating Scale (UPDRS) True Parkinson's Disease Parkinson's Disease
C18597 Unified Parkinson Disease Rating Scale (UPDRS) - right upper extremity rigidity scale

Subject's rigidity in the right upper extremity as judged on passive movement of major joints with patient relaxed in sitting position as part of Unified Parkinsons Disease Rating Scale (UPDRS).

 Core Unified Parkinson's Disease Rating Scale (UPDRS) True Parkinson's Disease Parkinson's Disease
C09896 Unified Parkinson's Disease Rating Scale (UPDRS) - hygiene scale

Subjects hygiene as part of Unified Parkinsons Disease Rating Scale (UPDRS).

 Core Unified Parkinson's Disease Rating Scale (UPDRS) True Parkinson's Disease Parkinson's Disease
C18605 Unified Parkinson's Disease Rating Scale (UPDRS) - Heart rate seated measurement

Measurement of participant's/subject's heart rate when seated.

 Core Unified Parkinson's Disease Rating Scale (UPDRS) True Parkinson's Disease Parkinson's Disease
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

 Core Demographics False Parkinson's Disease Parkinson's Disease
C09904 Unified Parkinson's Disease Rating Scale (UPDRS) - facial scale

Subjects facial expression flexibility as part of Unified Parkinsons Disease Rating Scale (UPDRS).

 Core Unified Parkinson's Disease Rating Scale (UPDRS) True Parkinson's Disease Parkinson's Disease
C10029 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - percent dyskinesia value

Value of the percent of time the participant/subject has dyskinesia, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C09989 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - last levodopa dose time

Duration of time, in minutes, since the participant/subject last took Levodopa, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C10037 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - painful off state dystonia score

Score for the participant's/subject's level of painful off-state dystonia, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C09997 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - finger tap right hand score

Score for the participant's/subject's ability to tap the right hand fingers evaluating the speed, amplitude, hesitations, halts and decrementing amplitude, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C09890 Unified Parkinson's Disease Rating Scale (UPDRS) - speech scale

Subjects level of speech impairment as part of Unified Parkinsons Disease Rating Scale (UPDRS).

 Core Unified Parkinson's Disease Rating Scale (UPDRS) True Parkinson's Disease Parkinson's Disease
C10005 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - leg agility right leg score

Score for the participant's/subject's right leg agility evaluating speed, amplitude, hesitations, halts and decrementing amplitude

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C10013 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - postural tremor right hand score

Score for the participant's/subject's level of postural tremor of the right hand observing the highest amplitude seen, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C09973 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - speech score

Score for the participant's/subject's level of speech, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

 Core General Core False Parkinson's Disease Parkinson's Disease
C10021 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - rest tremor amplitude lip jaw score

Score for the participant's/subject's lip and jaw rest tremor amplitude, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C09981 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - turn bed score

Score for the participant's/subject's ability to turn in bed, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C08003 Family relative type parkinson's disease parkinsonism member number

Number of family members with Parkinson's disease (PD) or Parkinsonism for the relative type

 Core Family History False Parkinson's Disease Parkinson's Disease
C09913 Unified Parkinson's Disease Rating Scale (UPDRS) - posture scale

Subject's posture as part of Unified Parkinsons Disease Rating Scale (UPDRS).

 Core Unified Parkinson's Disease Rating Scale (UPDRS) True Parkinson's Disease Parkinson's Disease
C09921 Unified Parkinson's Disease Rating Scale (UPDRS) - predictable off period indicator

Indicator for the predictability of off periods as part of Unified Parkinsons Disease Rating Scale (UPDRS).

 Core Unified Parkinson's Disease Rating Scale (UPDRS) True Parkinson's Disease Parkinson's Disease
C09963 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - apathy score

Score for the participant's/subject's apathy, considering the level of spontaneous activity, assertiveness, motivation and initiative and how it affects the performance of daily routines, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C09929 Unified Parkinson's Disease Rating Scale (UPDRS) - Schwab England daily living scale

Schwab and England Activities of Daily Living scale

 Core Unified Parkinson's Disease Rating Scale (UPDRS) True Parkinson's Disease Parkinson's Disease
Displaying 1 - 25 of 2660

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.