CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 101 - 125 of 2446
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C18601 Unified Parkinson Disease Rating Scale (UPDRS) - left hand finger tap scale

Subject's ability to tap on fingers of the left hand as part of Unified Parkinsons Disease Rating Scale (UPDRS)

 Core Unified Parkinson's Disease Rating Scale (UPDRS) True Parkinson's Disease Parkinson's Disease
C18596 Unified Parkinson Disease Rating Scale (UPDRS) - left hand action tremor scale

Subject's action or postural tremor of participant's left hand as part of Unified Parkinsons Disease Rating Scale (UPDRS)

 Core Unified Parkinson's Disease Rating Scale (UPDRS) True Parkinson's Disease Parkinson's Disease
C18595 Unified Parkinson Disease Rating Scale (UPDRS) - left foot tremor at rest scale

Subject's tremor level at rest in the left foot as part of Unified Parkinsons Disease Rating Scale (UPDRS)

 Core Unified Parkinson's Disease Rating Scale (UPDRS) True Parkinson's Disease Parkinson's Disease
C18591 Unified Parkinson Disease Rating Scale (UPDRS) - face lips chin tremor at rest scale

Subject's tremor level at rest in the participant's face, lips or chin as part of Unified Parkinsons Disease Rating Scale (UPDRS)

 Core Unified Parkinson's Disease Rating Scale (UPDRS) True Parkinson's Disease Parkinson's Disease
C08081 Twin sibling type

Type of twin the participant/subject has

 Supplemental History of Early Exposure False Parkinson's Disease Parkinson's Disease
C08080 Twin sibling indicator

Indicator of whether the participant/subject has a twin brother or sister

 Supplemental History of Early Exposure False Parkinson's Disease Parkinson's Disease
C59066 Twin sibling birth sex assigned type

Sex assigned at birth of participant's/subject's twin sibling

 Supplemental History of Early Exposure False Parkinson's Disease Parkinson's Disease
C59067 Twin pea pod look indicator

Indicator of whether the participant/subject and his/her twin look like two peas in a pod

 Supplemental History of Early Exposure False Parkinson's Disease Parkinson's Disease
C59068 Twin difficult tell apart indicator

Indicator of whether the participant/subject and his/her twin are/were difficult for teachers or friends to tell apart

 Supplemental History of Early Exposure False Parkinson's Disease Parkinson's Disease
C10171 Trial number

The number representing the sequence for any repeated measure test or assessment when it is performed multiple times

 Supplemental Other Non-Motor Guidance for CDE Use False Parkinson's Disease Parkinson's Disease
C10180 Thermoregulatory sweat test sweat chemical type

Type of chemical used for Thermoregulatory Sweat Test (TST) that shows a significant color change when mingled with sweat

 Supplemental Other Non-Motor Guidance for CDE Use False Parkinson's Disease Parkinson's Disease
C18769 Thermoregulatory sweat test sweat chemical other text

The free-text field related to 'Thermoregulatory sweat test sweat chemical type' specifying other text. Type of chemical used for Thermoregulatory Sweat Test (TST) that shows a significant color change when mingled with sweat

 Supplemental Other Non-Motor Guidance for CDE Use False Parkinson's Disease Parkinson's Disease
C10184 Thermoregulatory sweat test room temperature unit of measurement

Unit temperature is measured in for the Thermoregulatory Sweat Test (TST)

 Supplemental Other Non-Motor Guidance for CDE Use False Parkinson's Disease Parkinson's Disease
C10185 Thermoregulatory sweat test intensity color change value

Intensity of the color change of the chemical on participant/subject's body during the Thermoregulatory Sweat Test (TST)

 Supplemental Other Non-Motor Guidance for CDE Use False Parkinson's Disease Parkinson's Disease
C10182 Thermoregulatory sweat test baseline room temperature value

Baseline (starting) temperature of the room the participant/subject is placed in for Thermoregulatory Sweat Test (TST)

 Supplemental Other Non-Motor Guidance for CDE Use False Parkinson's Disease Parkinson's Disease
C10183 Thermoregulatory sweat test 30 minutes elapsed room temperature value

Temperature of the room which induced the participant/subject to sweat for 30 minutes during the Thermoregulatory Sweat Test (TST)

 Supplemental Other Non-Motor Guidance for CDE Use False Parkinson's Disease Parkinson's Disease
C59115 Test stimulation sedation type

Type of sedation used during test stimulation through deep brain stimulation (DBS) lead or other microcontact used during intra-operative target verification

 Supplemental Functional Neurosurgery: Deep Brain Stimulation False Parkinson's Disease Parkinson's Disease
C08006 Symptoms first appear date and time

Date (and time if applicable and known) the symptoms for the disease or disorder first appeared as confirmed by the participant's/subject's medical history obtained by a physician

 Core Medical History of Parkinson's Disease False Parkinson's Disease Parkinson's Disease
C10500 Symptom onset age value

Age when symptoms first experienced

 Supplemental-Highly Recommended Parkinson's Disease Genetics False Parkinson's Disease Parkinson's Disease
C17231 Swallowing Disturbance Questionnaire (SwDQ) - swallow food multiple time before ingest score

Score for how frequent the participant/subject swallows chewed up food several times before it goes down the throat, as a part of Swallowing Disturbance Questionnaire (SDQ)

 Supplemental Swallowing Disturbance Questionnaire (SDQ) True Parkinson's Disease Parkinson's Disease
C17240 Swallowing Disturbance Questionnaire (SwDQ) - suffer respiratory infection past year indicator

Indicator for whether the participant/subject has suffered from a respiratory infection in the past year, as a part of Swallowing Disturbance Questionnaire (SDQ)

 Supplemental Swallowing Disturbance Questionnaire (SDQ) True Parkinson's Disease Parkinson's Disease
C17234 Swallowing Disturbance Questionnaire (SwDQ) - lump food stuck throat meal score

Score for how frequent the participant/subject feels as if a lump of food is stuck in the throat while eating, as a part of Swallowing Disturbance Questionnaire (SDQ)

 Supplemental Swallowing Disturbance Questionnaire (SDQ) True Parkinson's Disease Parkinson's Disease
C17227 Swallowing Disturbance Questionnaire (SwDQ) - food residue mouth after swallow score

Score for how frequent the participant/subject has any food residues in the mouth, cheeks, under the tongue, or stuck to the palate after swallowing, as a part of Swallowing Disturbance Questionnaire (SDQ)

 Supplemental Swallowing Disturbance Questionnaire (SDQ) True Parkinson's Disease Parkinson's Disease
C17228 Swallowing Disturbance Questionnaire (SwDQ) - food or liquid expelled nose after ingestion score

Score for how frequent the participant/subject has food or liquid come out the nose when eating or drinking, as a part of Swallowing Disturbance Questionnaire (SDQ)

 Supplemental Swallowing Disturbance Questionnaire (SDQ) True Parkinson's Disease Parkinson's Disease
C17230 Swallowing Disturbance Questionnaire (SwDQ) - excess difficulty swallow saliva score

Score for how frequent the participant/subject feels as if he or she has excess saliva in the mouth, drools, or has trouble swallowing the saliva in the mouth, as a part of Swallowing Disturbance Questionnaire (SDQ)

 Supplemental Swallowing Disturbance Questionnaire (SDQ) True Parkinson's Disease Parkinson's Disease
Displaying 101 - 125 of 2446

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.